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    Last Updated: 01/09/2026

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    MediFind found 11 doctor with experience in Emery-Dreifuss Muscular Dystrophy near Kansas, US. Of these, 7 are Experienced, 3 are Advanced and 1 are Distinguished.

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    11 providers found
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Statland is a Neurologist in Kansas City, Kansas. Dr. Statland is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Office

      3599 Rainbow Blvd # Stp, 
      Kansas City, KS 
      Languages Spoken:
      English
      Offers Telehealth

      Mazen Dimachkie is a Neurologist in Kansas City, Kansas. Dr. Dimachkie is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myositis, Inclusion Body Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy.

      Richard Barohn
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Office

      3599 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English

      Richard Barohn is a Neurologist in Kansas City, Kansas. Dr. Barohn is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myositis, Myasthenia Gravis, Thymectomy, and Tissue Biopsy.

      Learn about our expert tiers
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      University Of Kansas Hospital Transplant Center

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English

      Kevin Mulhern is a Cardiologist in Kansas City, Kansas. Dr. Mulhern is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Familial Progressive Cardiac Conduction Defect, Tetralogy of Fallot, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Mid-America Cardiology Associates Inc

      10787 Nall Ave, Suite 300, 
      Overland Park, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pradeep Mammen is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Overland Park, Kansas. Dr. Mammen is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myotonic Dystrophy, Myotonic Dystrophy Type 2, Duchenne Muscular Dystrophy, Heart Transplant, and Thrombectomy. Dr. Mammen is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, French, Greek, Spanish
      Accepting New Patients
      Offers Telehealth

      Constantine Farmakidis is a Neurologist in Kansas City, Kansas. Dr. Farmakidis is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Paramyotonia Congenita, Charcot-Marie-Tooth Disease, Tomaculous Neuropathy, and Thymectomy. Dr. Farmakidis is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      345 N Riverview St Ste 500, 
      Wichita, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Susan Giovanni is a primary care provider, practicing in Family Medicine in Wichita, Kansas. Dr. Giovanni is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Dementia, Seasonal Affective Disorder (SAD), Chronic Obstructive Pulmonary Disease (COPD), and Hypertensive Heart Disease. Dr. Giovanni is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine

      Great Plains Of Ellinwood Inc

      300 N Park Ave, Ellinwood Hospital Clinic, 
      Ellinwood, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Brown is a primary care provider, practicing in Family Medicine in Ellinwood, Kansas. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Chronic Cough, Hypothyroidism, Pneumonia, and Maturity Onset Diabetes of the Young. Dr. Brown is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine

      Freeman-Oak Hill Health System

      608 Willard St, 
      Frontenac, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      William Sullivan is a primary care provider, practicing in Internal Medicine in Frontenac, Kansas. Dr. Sullivan is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Parkinson's Disease, Atherosclerosis, Coronary Heart Disease, and Severe Fever with Thrombocytopenia Syndrome. Dr. Sullivan is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Johnson County Neurology LLC

      12140 Nall Ave, Suite 230, 
      Leawood, KS 
      Languages Spoken:
      English
      Accepting New Patients

      David Clark is a Neurologist in Leawood, Kansas. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Trigeminal Neuralgia, Cramp-Fasciculation Syndrome, Primary Orthostatic Tremor, and Lambert-Eaton Syndrome. Dr. Clark is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine

      Great Plains Of Ellinwood Inc

      300 N Park Ave, 
      Ellinwood, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Charlie Joslin is a primary care provider, practicing in Family Medicine in Ellinwood, Kansas. Dr. Joslin is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Lung Metastases, Chronic Cough, Low Potassium Level, and Chronic Obstructive Pulmonary Disease (COPD). Dr. Joslin is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 01/09/2026

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors in Kansas, US?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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