The 20 Best Emery-Dreifuss Muscular Dystrophy Doctors Near Me in Massachusetts, US

Find the Top Emery-Dreifuss Muscular Dystrophy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 47 doctor with experience in Emery-Dreifuss Muscular Dystrophy near Massachusetts, US. Of these, 40 are Experienced, 6 are Advanced and 1 are Distinguished.

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47 providers found
    Distinguished in Emery-Dreifuss Muscular Dystrophy
    Distinguished in Emery-Dreifuss Muscular Dystrophy

    Hale Building For Transformative Medicine On BWH Main Campus

    60 Fenwood Rd, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Anthony Amato is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. He is also highly rated in 63 other conditions, according to our data. His clinical expertise encompasses Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is board certified in Neurology, 1991 and Neuromuscular Medicine, 2008.

    Advanced in Emery-Dreifuss Muscular Dystrophy
    Advanced in Emery-Dreifuss Muscular Dystrophy

    BIDMC Department Of Neurology

    330 Brookline Avenue, East/Shapiro 8, 
    Boston, MA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Aimee Boegle is a Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 18 years. Dr. Boegle is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Inclusion Body Myositis, Myasthenia Gravis, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Boegle is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Experienced in Emery-Dreifuss Muscular Dystrophy

    BIDMC Department Of Neurology

    330 Brookline Avenue, 
    Boston, MA 
    Languages Spoken:
    English

    Elizabeth Raynor is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Raynor is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Post Polio Syndrome, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Raynor is board certified in American Board Of Clinical Neurophysiology.

    Learn about our expert tiers
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Experienced in Emery-Dreifuss Muscular Dystrophy

    BIDMC Department Of Neurology

    330 Brookline Avenue, East/Shapiro 8, 
    Boston, MA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Courtney Mcilduff is a Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 18 years. Dr. Mcilduff is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Peripheral Neuropathy, and Herpes Simplex Encephalitis. Dr. Mcilduff is board certified in American Board Of Clinical Neurophysiology.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Internal Medicine
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Internal Medicine

    Beth Israel Deaconess Medical Center

    One Brookline Place, Suite 230, 
    Brookline, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Suzanne Salamon is a primary care provider, practicing in Internal Medicine in Brookline, Massachusetts. Dr. Salamon is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Heart Failure with Preserved Ejection Fraction (HFpEF), Meige Disease, Primary Intestinal Lymphangiectasia, and Heart Failure. Dr. Salamon is board certified in American Board Of Internal Medicine.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Experienced in Emery-Dreifuss Muscular Dystrophy

    Brigham And Women's Hospital, Heart And Vascular Center

    70 Francis Street, Carl J. And Ruth Shapiro Cardiovascular Center, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Neal K. Lakdawala is a cardiovascular medicine specialist at Brigham and Women’s Hospital (BWH). He is also an instructor in medicine at Harvard Medical School (HMS).Dr. Lakdawala received his medical degree from The University of Texas HSCSA. He completed a residency and chief residency in internal medicine at Columbia-Presbyterian Medical Center, a clinical and research fellowship in cardiovascular disease at BWH and a master’s degree in epidemiology at the Harvard School of Public Health. Dr. Lakdawala is board certified in internal medicine, cardiovascular disease and advanced heart failure and transplant cardiology.His clinical expertise includes cardiomyopathy, cardiac sarcoidosis, congestive heart failure, cardiovascular genetics and heart transplantation. Dr. Lakdawala’s research and peer-reviewed publications investigate early phenotypes in genetic cardiomyopathy to identify physiology-based therapeutics for heart failure. He has received research funding from the National Institutes of Health’s Heart Failure Network. Dr. Lakdawala is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Familial Hypertrophic Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Lakdawala is board certified in Cardiovascular Disease and Advanced Heart Failure And Transplant Cardiology.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Experienced in Emery-Dreifuss Muscular Dystrophy

    BIDMC Department Of Neurology

    330 Brookline Avenue, East/Shapiro 8, 
    Boston, MA 
    Languages Spoken:
    English, Hindi, Tamil
    Offers Telehealth

    Pushpa Narayanaswami is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Narayanaswami is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Limb-Girdle Muscular Dystrophy, Polymyositis, Wyburn-Mason Syndrome, and Thymectomy. Dr. Narayanaswami is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Experienced in Emery-Dreifuss Muscular Dystrophy

    BIDMC Department Of Neurology

    Neurology Department, 330 Brookline Avenue, Shapiro 8, 
    Boston, MA 
    Languages Spoken:
    English

    Patricia Greenstein is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Greenstein is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 51 other conditions, according to our data. Her clinical expertise encompasses Spinocerebellar Ataxia, Cervical Myelopathy, Harding Ataxia, and Infantile-Onset Spinocerebellar Ataxia (IOSCA). Dr. Greenstein is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Experienced in Emery-Dreifuss Muscular Dystrophy

    Beth Israel Deaconess Medical Center

    330 Brookline Avenue, Shapiro 8, Neuromuscular/EMG, 
    Boston, MA 
    Languages Spoken:
    English, French, Portuguese, Spanish
    Offers Telehealth

    Fernanda Yungher is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Yungher is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Myasthenia Gravis, Foot Drop, and VEXAS Syndrome. Dr. Yungher is board certified in American Board Of Clinical Neurophysiology.

    Advanced in Emery-Dreifuss Muscular Dystrophy
    Neurology | Neuromusculoskeletal Medicine
    Advanced in Emery-Dreifuss Muscular Dystrophy
    Neurology | Neuromusculoskeletal Medicine

    UMass Memorial Medical Center - University Campus

    55 Lake Avenue North, 
    Worcester, MA 
    Experience:
    37+ years
    Languages Spoken:
    English, Spanish

    Lawrence Hayward is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Worcester, Massachusetts. He has been practicing medicine for over 37 years. Dr. Hayward is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Dysferlinopathy, Distal Myopathy 2, Delta-Sarcoglycanopathy, and Oculopharyngeal Muscular Dystrophy. Dr. Hayward is board certified in Neurology.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Neurology
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Neurology

    Baystate Neurology-Springfield-Main Street

    3300 Main St, 
    Springfield, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Alina Bayer is a Neurologist practicing medicine in Springfield, Massachusetts. Dr. Bayer is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Generalized Tonic-Clonic Seizure, Peripheral Neuropathy, Seizures, and Epilepsy.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Pediatric Cardiology
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Pediatric Cardiology

    Department Of Cardiology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Kelsey Jurow is a Pediatric Cardiologist practicing medicine in Boston, Massachusetts. Dr. Jurow is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses Pulmonary Artery Agenesis, Tetralogy of Fallot, Total Anomalous Pulmonary Venous Return, and Congenital Mitral Stenosis.

    Advanced in Emery-Dreifuss Muscular Dystrophy
    Family Medicine
    Advanced in Emery-Dreifuss Muscular Dystrophy
    Family Medicine

    Gardner Community Health Center

    175 Connors St, 
    Gardner, MA 
    Languages Spoken:
    English

    Kim Houde is a primary care provider, practicing in Family Medicine in Gardner, Massachusetts. Dr. Houde is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Bullae, Chronic Pain, and Lung Metastases.

    Advanced in Emery-Dreifuss Muscular Dystrophy
    Pediatric Neurology
    Advanced in Emery-Dreifuss Muscular Dystrophy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Basil Darras is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Darras is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 1, and Gastrostomy.

    Advanced in Emery-Dreifuss Muscular Dystrophy
    Neurology
    Advanced in Emery-Dreifuss Muscular Dystrophy
    Neurology

    Cape Cod Healthcare Neurologists

    46 North St Ste 7, 
    Hyannis, MA 
    Languages Spoken:
    English

    Karen Lynch is a Neurologist practicing medicine in Hyannis, Massachusetts. Dr. Lynch is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Migraine, Memory Loss, Distal Myopathy 2, and Emery-Dreifuss Muscular Dystrophy.

    Advanced in Emery-Dreifuss Muscular Dystrophy
    Advanced in Emery-Dreifuss Muscular Dystrophy

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Partha Ghosh is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ghosh is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. He is also highly rated in 65 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Amyotonia Congenita.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Neuromusculoskeletal Medicine | Neurology
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Neuromusculoskeletal Medicine | Neurology

    UMass Memorial Medical Center - University Campus

    55 Lake Avenue North, 
    Worcester, MA 
    Experience:
    16+ years
    Languages Spoken:
    English
    Offers Telehealth

    Kate Daniello is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in Worcester, Massachusetts. She has been practicing medicine for over 16 years. Dr. Daniello is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Progressive External Ophthalmoplegia, Horizontal Gaze Palsy with Progressive Scoliosis, Glycogen Storage Disease Type 5, and Myasthenia Gravis. Dr. Daniello is board certified in General Neurology and Neuromuscular Medicine.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Orthopedics
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Orthopedics

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Rebecca Siegel is an Orthopedics provider practicing medicine in Boston, Massachusetts. Dr. Siegel is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy with Arthrogryposis, X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, and Spasticity.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Pediatric Neurology
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Experience:
    10+ years
    Languages Spoken:
    English

    Leslie Hayes is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 10 years. Dr. Hayes is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Centronuclear Myopathy, Spinal Muscular Atrophy with Arthrogryposis, X-Linked Infantile Spinal Muscular Atrophy, Spinal Muscular Atrophy Type 2, and Gastrostomy.

    Experienced in Emery-Dreifuss Muscular Dystrophy
    Neurology
    Experienced in Emery-Dreifuss Muscular Dystrophy
    Neurology

    Office

    55 Fruit St Ste 835, 
    Boston, MA 
    Languages Spoken:
    English
    Offers Telehealth

    Doreen Ho is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Cramp-Fasciculation Syndrome, Myasthenia Gravis, and Gastrostomy.

    Showing 1-20 of 47

    Last Updated: 04/28/2026

    What is the definition of Emery-Dreifuss Muscular Dystrophy?

    Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

    When should I see an Emery-Dreifuss Muscular Dystrophy doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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