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    Last Updated: 10/30/2025

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    MediFind found 46 doctor with experience in Emery-Dreifuss Muscular Dystrophy near Pennsylvania, US. Of these, 40 are Experienced, 4 are Advanced and 2 are Distinguished.

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    46 providers found
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Penn Neuroscience Center - Neurology

      330 South 9th Street, 3rd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Lauren Elman is a Neurologist in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy Type 2, and Myotonic Dystrophy. Dr. Elman is currently accepting new patients.

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Geisinger Clinic

      100 N Academy Ave, 
      Danville, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Scott Friedenberg is a Neurologist in Danville, Pennsylvania. Dr. Friedenberg is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, and Miller-Fisher Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Cardiology

      Penn Heart And Vascular Center

      3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Rajat Deo is a Cardiologist in Philadelphia, Pennsylvania. Dr. Deo is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Ventricular Tachycardia, Arrhythmias, Cardiomyopathy, Cardiac Ablation, and Pacemaker Implantation. Dr. Deo is currently accepting new patients.

      Learn about our expert tiers
      Lee R. Goldberg
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Penn Heart And Vascular Center

      3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lee Goldberg is a Cardiologist in Philadelphia, Pennsylvania. Dr. Goldberg is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Heart Failure, Sarcoidosis, Cardiogenic Shock, Heart Transplant, and Cardiac Ablation. Dr. Goldberg is currently accepting new patients.

      Caitlin E. Innerfield
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pain Medicine | Physiatry
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pain Medicine | Physiatry

      Clearway Pain Solutions

      1100 NORTHBROOK DR STE 100 Feasterville, 
      Trevose, PA 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Caitlin Innerfield is a Pain Medicine specialist and a Physiatrist in Trevose, Pennsylvania. Dr. Innerfield has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Chronic Pain, Sacroiliac Joint Disease, Invertebral Disc Disease, and Cervical Spondylosis. Dr. Innerfield is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Penn Heart And Vascular Center Radnor

      145 King Of Prussia Road, Suite 110, 
      Center Radnor, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Saman Nazarian is a Cardiologist in Center Radnor, Pennsylvania. Dr. Nazarian is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Ventricular Tachycardia, Arrhythmias, Atrial Fibrillation, Cardiac Ablation, and Pacemaker Implantation. Dr. Nazarian is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Penn Heart And Vascular Center

      3400 Civic Center Boulevard, East Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Teresa Wang is a Cardiologist in Philadelphia, Pennsylvania. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Heart Failure, Cardiomyopathy, Arrhythmogenic Right Ventricular Cardiomyopathy, and Cardiogenic Shock. Dr. Wang is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology

      University Of Penn-Medical Group

      3400 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Fermin Garcia is a Cardiac Electrophysiologist and a Cardiologist in Philadelphia, Pennsylvania. Dr. Garcia is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Ventricular Tachycardia, Arrhythmias, Ectopic Heartbeat, Cardiac Ablation, and Pacemaker Implantation.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      135 East 38th St, 
      Erie, PA 
      Languages Spoken:
      English

      Mahendrasinh Jadeja is a primary care provider, practicing in Internal Medicine in Erie, Pennsylvania. Dr. Jadeja is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Oculopharyngeal Muscular Dystrophy, Emery-Dreifuss Muscular Dystrophy, Delta-Sarcoglycanopathy, and Fukuyama Type Muscular Dystrophy.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Temple Faculty Practice Plan Inc

      3509 N Broad St, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Jin-jun Luo is a Neurologist in Philadelphia, Pennsylvania. Dr. Luo is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Brown-Sequard Syndrome, Gaucher Disease, Gaucher Disease Type 2, and Gaucher Disease Type 3.

      Mark A. Woodburn
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine

      Grob, Scheri, Woodburn And Griffin Family Medicine

      1140 Perry Highway, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Woodburn, MD, specializes and is certified in family medicine by the American Board of Family Medicine. He practices at Grob, Scheri, Woodburn and Griffin Family Medicine. Dr. Woodburn is affiliated with UPMC Passavant. He completed his residency at University of Pittsburgh School of Medicine and medical degree at Hahnemann/Drexel University College. Dr. Woodburn is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cirrhosis, Xanthoma, Familial Combined Hyperlipidemia, Endoscopy, and Ureteroscopy.

      Brad E. Dicianno
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      UPMC Department Of Physical Medicine And Rehabilitation

      3600 Forbes Avenue, Forbes Tower 3010, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Brad Dicianno, MD, is a physiatrist and bioengineer and is certified in physical medicine and rehabilitation by the American Board of Physical Medicine and Rehabilitation. He is the Medical Director of the UPMC Center for Assistive Technology, Director of the UPMC Adult Spina Bifida Clinic, and Medical Director and COO of the Human Engineering Research Laboratories. He also is a Professor, Endowed Research Chair, and Assistant Dean for Medical Student Research at the University of Pittsburgh School of Medicine. He received his medical degree from the University of Pittsburgh School of Medicine and completed his residency at UPMC. Dr. Dicianno’s clinical interests are in the areas of spina bifida and assistive technology. His research interests lie at the intersection of disability, assistive technology, and value-based care. Specifically, he is interested in studying how technologies can improve outcomes for people with disability and improve the delivery of health care and community-based services. He is a member of the Association of Academic Physiatrists, the International Society of Physical Medicine and Rehabilitation, and the Clinician Task Force. View the full list of Dr. Dicianno’s publications on PubMed. Dr. Dicianno is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myelomeningocele, Paraplegia, Cerebral Palsy, and Hydrocele.

      Paula R. Clemens
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neuromusculoskeletal Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neuromusculoskeletal Medicine

      UPMC Department Of Neurology

      3471 5th Avenue, Suite 810, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Paula Clemens, MD, is a neurologist certified by the American Board of Psychiatry and Neurology. She is chief of the Division of Veterans Affairs and a professor of Neurology, Molecular Genetics and Biochemistry, Human Genetics, and Pediatrics at the University of Pittsburgh School of Medicine. She received her medical degree from the Medical College of Pennsylvania and completed her residency at Dartmouth-Hitchcock Medical Center, followed by a neuromuscular fellowship at Mayo Clinic and a molecular genetics fellowship at Baylor College of Medicine. Dr. Clemens is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Pompe Disease, and Myotonic Dystrophy Type 2.

      Dennis F. Stull
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine

      Stull, Jarvis And Spinola Internal Medicine Associates - UPMC

      5215 Centre Avenue, Suite 100, 
      Pittsburgh, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Dennis Stull, MD, specializes in internal medicine and is certified by the American Board of Internal Medicine. He practices at Stull, Jarvis and Spinola Internal Medicine Associates-UPMC and is affiliated with UPMC Shadyside. He completed his residency at the University of Pittsburgh School of Medicine and his medical degree at Wake Forest University School of Medicine. Dr. Stull is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Sitosterolemia, Umbilical Hernia, Dermatomyositis, and High Cholesterol.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Neurology | Neurology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Neurology | Neurology

      University Of Penn-Medical Group

      3400 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Sabrina Yum is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Yum is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Spinal Muscular Atrophy Type 2, and Spinal Muscular Atrophy with Arthrogryposis.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      The Milton S Hershey Medical Center Physicians Group

      30 Hope Dr, Suite 1300, 
      Hershey, PA 
      Languages Spoken:
      English

      Divpreet Kaur is a Neurologist in Hershey, Pennsylvania. Dr. Kaur is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, Paramyotonia Congenita, and Peripheral Neuropathy.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Temple Faculty Practice Plan Inc

      3509 N Broad St, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Terry Heiman-Patterson is a Neurologist in Philadelphia, Pennsylvania. Dr. Heiman-Patterson is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Gastrostomy.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Neurology | Neurology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Neurology | Neurology

      University Of Penn-Medical Group

      3400 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      John Brandsema is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Brandsema is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Thymectomy.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Perelman Center For Advanced Medicine South Pavilion, 2nd Floor

      3400 Civic Center Boulevard, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Chafic Karam is a Neurologist in Philadelphia, Pennsylvania. Dr. Karam is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Transthyretin Amyloidosis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Multifocal Motor Neuropathy, and Laminectomy. Dr. Karam is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy
      333 Cottman Ave, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Justin Kwan is a Neurologist in Philadelphia, Pennsylvania. Dr. Kwan is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, and Spinal and Bulbar Muscular Atrophy.

      Showing 1-20 of 46

      Last Updated: 10/30/2025

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor in Pennsylvania, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor in Pennsylvania, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors in Pennsylvania, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors in Pennsylvania, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor in Pennsylvania, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor in Pennsylvania, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors in Pennsylvania, US?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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