The 20 Best Erythropoietic Protoporphyria Doctors Near Me

Find the Top Erythropoietic Protoporphyria Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 583 doctor with experience in Erythropoietic Protoporphyria. Of these, 476 are Experienced, 74 are Advanced, 26 are Distinguished and 7 are Elite.

Location
LocationClose
583 providers found
    Elite in Erythropoietic Protoporphyria

    Francesca Granata
    Elite in Erythropoietic Protoporphyria

    Francesca Granata
    Referral may be required
    Milan, IT 

    Francesca Granata practices practicing medicine in Milan, Italy. Ms. Granata is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

    Elite in Erythropoietic Protoporphyria

    Gayle Ross
    Elite in Erythropoietic Protoporphyria

    Gayle Ross
    Referral may be required
    Melbourne, VIC, AU 

    Gayle Ross practices practicing medicine in Melbourne, Australia. Ms. Ross is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Porphyria Cutanea Tarda.

    Elite in Erythropoietic Protoporphyria

    Bruce M. Wang
    Elite in Erythropoietic Protoporphyria

    Bruce M. Wang
    Referral may be required
    Floor 2, No. 17-1, Lane 113, Xiamen Street, 
    TPQ, TW 

    Bruce Wang practices practicing medicine in Taiwan. Mr. Wang is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Erythropoietic Protoporphyria, and Liver Transplant.

    Learn about our expert tiers
    Elite in Erythropoietic Protoporphyria

    Jasmin Barman-Aksozen
    Elite in Erythropoietic Protoporphyria

    Jasmin Barman-Aksozen
    Referral may be required
    Zurich, ZH, CH 

    Jasmin Barman-Aksozen practices practicing medicine in Zurich, Switzerland. Ms. Barman-Aksozen is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Protoporphyria, Erythropoietic Protoporphyria, and Acute Hepatic Porphyria (AHP).

    Elite in Erythropoietic Protoporphyria

    Elena Di Pierro
    Elite in Erythropoietic Protoporphyria

    Elena Di Pierro
    Referral may be required
    Milan, IT 

    Elena Di Pierro practices practicing medicine in Milan, Italy. Ms. Di Pierro is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Acute Intermittent Porphyria.

    Elite in Erythropoietic Protoporphyria

    Giovanna Graziadei
    Elite in Erythropoietic Protoporphyria

    Giovanna Graziadei
    Referral may be required
    Milan, IT 

    Giovanna Graziadei practices practicing medicine in Milan, Italy. Ms. Graziadei is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Thalassemia, Anemia, Congenital Hemolytic Anemia, Splenectomy, and Bone Marrow Transplant.

    Elite in Erythropoietic Protoporphyria

    Valentina Brancaleoni
    Elite in Erythropoietic Protoporphyria

    Valentina Brancaleoni
    Referral may be required
    Milan, IT 

    Valentina Brancaleoni practices practicing medicine in Milan, Italy. Ms. Brancaleoni is rated as an Elite expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Congenital Erythropoietic Porphyria.

    Experienced in Erythropoietic Protoporphyria

    Dr. Sakshi Singal
    Hematology | Oncology
    Experienced in Erythropoietic Protoporphyria

    Dr. Sakshi Singal
    Hematology | Oncology
    Referral may be required

    Ballad Health Cancer Center

    1 Professional Park Drive, Suite 21, 
    Johnson City, TN 
    423-232-6900
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Sakshi Singal is a Hematologist and an Oncologist practicing medicine in Johnson City, Tennessee. Dr. Singal is rated as an Experienced provider by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Squamous Cell Lung Carcinoma, Lung Adenocarcinoma, Small Cell Lung Cancer (SCLC), ALK-Positive Non-Small Cell Lung Cancer, and Bone Marrow Aspiration. Dr. Singal is board certified in American Board Of Internal Medicine.

    Advanced in Erythropoietic Protoporphyria

    Dr. Joshua Arbesman
    Dermatology
    Advanced in Erythropoietic Protoporphyria

    Dr. Joshua Arbesman
    Dermatology
    Referral may be required

    Cleveland Clinic Main Campus

    2049 East 100th Street, 
    Cleveland, OH 
    216-444-2200
    Experience:
    20+ years
    Languages Spoken:
    English
    See accepted insurances

    Joshua Arbesman is a Dermatologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 20 years. Dr. Arbesman is rated as an Advanced provider by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Melanoma, Familial Atypical Multiple Mole Melanoma Syndrome, Seborrheic Keratosis, and Kaposiform Hemangioendothelioma. Dr. Arbesman is board certified in American Board Of Dermatology, 2015.

    Distinguished in Erythropoietic Protoporphyria

    Ida M. Heerfordt
    Distinguished in Erythropoietic Protoporphyria

    Ida M. Heerfordt
    Referral may be required
    Copenhagen, DK 

    Ida Heerfordt practices practicing medicine in Copenhagen, Denmark. Ms. Heerfordt is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Actinic Keratosis.

    Distinguished in Erythropoietic Protoporphyria

    Elisabeth I. Minder
    Distinguished in Erythropoietic Protoporphyria

    Elisabeth I. Minder
    Referral may be required
    Zurich, ZH, CH 

    Elisabeth Minder practices practicing medicine in Zurich, Switzerland. Ms. Minder is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Protoporphyria, Erythropoietic Protoporphyria, and Liver Transplant.

    Distinguished in Erythropoietic Protoporphyria

    Laurent Gouya
    Distinguished in Erythropoietic Protoporphyria

    Laurent Gouya
    Referral may be required
    Paris, FR 

    Laurent Gouya practices practicing medicine in Paris, France. Mr. Gouya is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Erythropoietic Protoporphyria, and Bone Marrow Transplant.

    Distinguished in Erythropoietic Protoporphyria

    Peter J. Stewart
    Distinguished in Erythropoietic Protoporphyria

    Peter J. Stewart
    Referral may be required
    Brisbane, QLD, AU 

    Peter Stewart practices practicing medicine in Brisbane, Australia. Mr. Stewart is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, Acute Hepatic Porphyria (AHP), and Angioplasty.

    Distinguished in Erythropoietic Protoporphyria

    Janneke G. Langendonk
    Distinguished in Erythropoietic Protoporphyria

    Janneke G. Langendonk
    Referral may be required
    Rotterdam, ZH, NL 

    Janneke Langendonk practices practicing medicine in Rotterdam, Netherlands. Langendonk is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Classic Galactosemia, and Protoporphyria.

    Distinguished in Erythropoietic Protoporphyria

    Anna-elisabeth Minder
    Distinguished in Erythropoietic Protoporphyria

    Anna-elisabeth Minder
    Referral may be required
    Zurich, ZH, CH 

    Anna-elisabeth Minder practices practicing medicine in Zurich, Switzerland. Minder is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Acute Intermittent Porphyria.

    Distinguished in Erythropoietic Protoporphyria

    Hans C. Wulf
    Distinguished in Erythropoietic Protoporphyria

    Hans C. Wulf
    Referral may be required
    Copenhagen, DK 

    Hans Wulf practices practicing medicine in Copenhagen, Denmark. Mr. Wulf is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Actinic Keratosis, Erythropoietic Protoporphyria, Protoporphyria, and Sunburn.

    Distinguished in Erythropoietic Protoporphyria

    Debby Wensink
    Distinguished in Erythropoietic Protoporphyria

    Debby Wensink
    Referral may be required
    Rotterdam, ZH, NL 

    Debby Wensink practices practicing medicine in Rotterdam, Netherlands. Ms. Wensink is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Acute Intermittent Porphyria.

    Distinguished in Erythropoietic Protoporphyria

    Herve Puy
    Distinguished in Erythropoietic Protoporphyria

    Herve Puy
    Referral may be required
    Clichy-sous-bois, FR 

    Herve Puy practices practicing medicine in Clichy-sous-bois, France. Mr. Puy is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Congenital Erythropoietic Porphyria, and Erythropoietic Protoporphyria.

    Distinguished in Erythropoietic Protoporphyria

    Xiaoye Yin-Schneider
    Distinguished in Erythropoietic Protoporphyria

    Xiaoye Yin-Schneider
    Referral may be required
    Zurich, ZH, CH 

    Xiaoye Yin-Schneider practices practicing medicine in Zurich, Switzerland. Yin-Schneider is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Variegate Porphyria.

    Distinguished in Erythropoietic Protoporphyria

    Silvia Fustinoni
    Distinguished in Erythropoietic Protoporphyria

    Silvia Fustinoni
    Referral may be required
    Milan, IT 

    Silvia Fustinoni practices practicing medicine in Milan, Italy. Ms. Fustinoni is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, Porphyria, and Heavy Metal Poisoning.

    Showing 1-20 of 583

    Last Updated: 06/30/2026

    What is the definition of Erythropoietic Protoporphyria?

    Erythropoietic protoporphyria (EPP) is a type of porphyria. Porphyrias are caused by an abnormality in the heme production process. Heme is essential in enabling our blood cells to carry oxygen and in breaking down chemical compounds in the liver. Erythropoietic protoporphyria is caused by pathogenic variants in the FECH gene which lead to an impaired activity of ferrocheletase (FECH), an important enzyme in heme production. This results in the build-up of protoporphyrin in the bone marrow, red blood cells, blood plasma, skin, and eventually liver. Build up of protoporphyrin can cause extreme sensitivity to sunlight, liver damage, abdominal pain, gallstones, and enlargement of the spleen. Inheritance is autosomal recessive.

    When should I see an Erythropoietic Protoporphyria doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erythropoietic Protoporphyria doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Erythropoietic Protoporphyria doctor near me?

    You can find an Erythropoietic Protoporphyria doctor in any of the 10 largest U.S. cities by clicking below:

    Erythropoietic Protoporphyria doctor near New York, NY
    Erythropoietic Protoporphyria doctor near Los Angeles, CA
    Erythropoietic Protoporphyria doctor near Chicago, IL
    Erythropoietic Protoporphyria doctor near Houston, TX
    Erythropoietic Protoporphyria doctor near Phoenix, AZ
    Erythropoietic Protoporphyria doctor near Philadelphia, PA
    Erythropoietic Protoporphyria doctor near Atlanta, GA
    Erythropoietic Protoporphyria doctor near Boston, MA
    Erythropoietic Protoporphyria doctor near Dallas, TX
    Erythropoietic Protoporphyria doctor near San Jose, CA

    How does MediFind rank Erythropoietic Protoporphyria doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erythropoietic Protoporphyria doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erythropoietic Protoporphyria doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erythropoietic Protoporphyria doctor search results page. 

    Why is it important to get a second opinion from a different Erythropoietic Protoporphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erythropoietic Protoporphyria doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erythropoietic Protoporphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erythropoietic Protoporphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erythropoietic Protoporphyria doctors near me?

    Look for the filter feature on the left side of the Erythropoietic Protoporphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erythropoietic Protoporphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Erythropoietic Protoporphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.