The 20 Best Erythropoietic Protoporphyria Doctors in Germany

Find the Top Erythropoietic Protoporphyria Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 40 doctor with experience in Erythropoietic Protoporphyria near Germany. Of these, 36 are Experienced and 4 are Advanced.

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40 providers found
    Advanced in Erythropoietic Protoporphyria

    Ulrich Stolzel
    Advanced in Erythropoietic Protoporphyria

    Ulrich Stolzel
    Chemnitz, SN, DE 

    Ulrich Stolzel practices practicing medicine in Chemnitz, Germany. Mr. Stolzel is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Acute Hepatic Porphyria (AHP), Porphyria, Acute Intermittent Porphyria, Hereditary Coproporphyria, and Liver Transplant.

    Advanced in Erythropoietic Protoporphyria

    Daniel Seehofer
    Advanced in Erythropoietic Protoporphyria

    Daniel Seehofer

    Charité Campus Virchow

    Berlin, BE, DE 

    Daniel Seehofer practices practicing medicine in Berlin, Germany. Mr. Seehofer is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Liver Cancer, Liver Failure, Cholangiocarcinoma (Bile Duct Cancer), Liver Transplant, and Hepatectomy.

    Advanced in Erythropoietic Protoporphyria

    Norbert J. Neumann
    Advanced in Erythropoietic Protoporphyria

    Norbert J. Neumann
    Duesseldorf, NW, DE 

    Norbert Neumann practices practicing medicine in Duesseldorf, Germany. Mr. Neumann is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Protoporphyria, Porphyria, Erythropoietic Protoporphyria, and Congenital Erythropoietic Porphyria.

    Learn about our expert tiers
    Advanced in Erythropoietic Protoporphyria

    Sandra Hanneken
    Advanced in Erythropoietic Protoporphyria

    Sandra Hanneken
    Graf Adolf Str. 59, Deutschland, 
    Duesseldorf, NW, DE 

    Sandra Hanneken practices practicing medicine in Duesseldorf, Germany. Ms. Hanneken is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Protoporphyria, Erythropoietic Protoporphyria, Autosomal Recessive Hypotrichosis, and Porphyria.

    Experienced in Erythropoietic Protoporphyria

    Johannes Schetelig
    Experienced in Erythropoietic Protoporphyria

    Johannes Schetelig
    Dresden, SN, DE 

    Johannes Schetelig practices practicing medicine in Dresden, Germany. Mr. Schetelig is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Leukemia, Acute Myeloid Leukemia (AML), Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Graft.

    Experienced in Erythropoietic Protoporphyria

    Martin Bornhauser
    Experienced in Erythropoietic Protoporphyria

    Martin Bornhauser
    Dresden, SN, DE 

    Martin Bornhauser practices practicing medicine in Dresden, Germany. Mr. Bornhauser is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Leukemia, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Splenectomy.

    Experienced in Erythropoietic Protoporphyria

    Christian Posch
    Experienced in Erythropoietic Protoporphyria

    Christian Posch
    Biedersteiner Str. 29, 
    Munich, BY, DE 

    Christian Posch practices practicing medicine in Munich, Germany. Mr. Posch is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Melanoma, Hidradenitis Suppurativa, Merkel Cell Carcinoma, and Pyoderma Gangrenosum.

    Experienced in Erythropoietic Protoporphyria

    Bernhard Homey
    Experienced in Erythropoietic Protoporphyria

    Bernhard Homey
    Duesseldorf, NW, DE 

    Bernhard Homey practices practicing medicine in Duesseldorf, Germany. Mr. Homey is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Rosacea, Atopic Dermatitis, Genital Warts, Leg or Foot Amputation, and Lymphadenectomy.

    Experienced in Erythropoietic Protoporphyria

    Jorge A. Frank
    Experienced in Erythropoietic Protoporphyria

    Jorge A. Frank
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Jorge Frank practices practicing medicine in Goettingen, Germany. Mr. Frank is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Variegate Porphyria, Multiple Familial Trichoepithelioma, Porphyria, and Aplasia Cutis Congenita.

    Experienced in Erythropoietic Protoporphyria

    Irina Nazarenko
    Experienced in Erythropoietic Protoporphyria

    Irina Nazarenko
    Hugstetter Str. 55, 
    Freiburg, BW, DE 

    Irina Nazarenko practices practicing medicine in Freiburg, Germany. Ms. Nazarenko is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Facial Ectodermal Dysplasia, Porphyria, Protoporphyria, and Focal Dermal Hypoplasia.

    Experienced in Erythropoietic Protoporphyria

    Thomas Stauch
    Experienced in Erythropoietic Protoporphyria

    Thomas Stauch
    Karlsruhe, BW, DE 

    Thomas Stauch practices practicing medicine in Karlsruhe, Germany. Mr. Stauch is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Adult Immune Thrombocytopenia, Immune Thrombocytopenic Purpura (ITP), and Liver Transplant.

    Experienced in Erythropoietic Protoporphyria

    Richard Taubert
    Experienced in Erythropoietic Protoporphyria

    Richard Taubert
    Hamburg, HH, DE 

    Richard Taubert practices practicing medicine in Hamburg, Germany. Mr. Taubert is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Autoimmune Hepatitis, Hepatitis, Cholangitis, Sclerosing Cholangitis, and Liver Transplant.

    Experienced in Erythropoietic Protoporphyria

    Deborah M. Gregersen
    Experienced in Erythropoietic Protoporphyria

    Deborah M. Gregersen
    Jena, TH, DE 

    Deborah Gregersen practices practicing medicine in Jena, Germany. Ms. Gregersen is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. Her clinical expertise encompasses Kerion Celsi, Erythropoietic Protoporphyria, Protoporphyria, and Eosinophilic Granulomatosis with Polyangiitis (EGPA, Churg-Strauss Syndrome).

    Experienced in Erythropoietic Protoporphyria

    Lars K. Kaestner
    Experienced in Erythropoietic Protoporphyria

    Lars K. Kaestner
    Saarbruecken, SL, DE 

    Lars Kaestner practices practicing medicine in Saarbruecken, Germany. Mr. Kaestner is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Chorea-Acanthocytosis, Mcleod Neuroacanthocytosis Syndrome, Hereditary Spherocytosis, Anemia, and Splenectomy.

    Experienced in Erythropoietic Protoporphyria

    Bernadette Eberlein
    Experienced in Erythropoietic Protoporphyria

    Bernadette Eberlein
    Biedersteiner Str. 29, 
    Munich, BY, DE 

    Bernadette Eberlein practices practicing medicine in Munich, Germany. Ms. Eberlein is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Alpha-gal Syndrome (AGS), Anaphylaxis, Polymorphous Light Eruption, and Grass Allergy.

    Experienced in Erythropoietic Protoporphyria

    Katharina Heidrich-Egger
    Experienced in Erythropoietic Protoporphyria

    Katharina Heidrich-Egger
    Dresden, SN, DE 

    Katharina Heidrich-Egger practices practicing medicine in Dresden, Germany. Ms. Heidrich-Egger is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. Her clinical expertise encompasses Graft Versus Host Disease (GvHD), Acute Myeloid Leukemia (AML), Erythropoietic Protoporphyria, Leukemia, and Bone Marrow Transplant.

    Experienced in Erythropoietic Protoporphyria

    Friedrich Stolzel
    Experienced in Erythropoietic Protoporphyria

    Friedrich Stolzel
    Kiel, SH, DE 

    Friedrich Stolzel practices practicing medicine in Kiel, Germany. Mr. Stolzel is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Acute Myeloid Leukemia (AML), Leukemia, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Bone Graft.

    Experienced in Erythropoietic Protoporphyria

    Desiree Kunadt
    Experienced in Erythropoietic Protoporphyria

    Desiree Kunadt
    Dresden, SN, DE 

    Desiree Kunadt practices practicing medicine in Dresden, Germany. Ms. Kunadt is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Acute Myeloid Leukemia (AML), Leukemia, Graft Versus Host Disease (GvHD), Erythropoietic Protoporphyria, and Bone Marrow Transplant.

    Experienced in Erythropoietic Protoporphyria

    Kristina Holig
    Experienced in Erythropoietic Protoporphyria

    Kristina Holig
    Dresden, SN, DE 

    Kristina Holig practices practicing medicine in Dresden, Germany. Ms. Holig is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. Her clinical expertise encompasses Erythropoietic Protoporphyria, Protoporphyria, ABO Incompatibility, Bone Graft, and Bone Marrow Transplant.

    Experienced in Erythropoietic Protoporphyria

    Markus Bohm
    Experienced in Erythropoietic Protoporphyria

    Markus Bohm
    Von Esmarch Str. 58, 
    Muenster, NW, DE 

    Markus Bohm practices practicing medicine in Muenster, Germany. Mr. Bohm is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Vitiligo, Hypomelanotic Disorder, Cutis Gyrata Syndrome, and Phacomatosis Pigmentovascularis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 04/28/2026

    What is the definition of Erythropoietic Protoporphyria?

    Erythropoietic protoporphyria (EPP) is a type of porphyria. Porphyrias are caused by an abnormality in the heme production process. Heme is essential in enabling our blood cells to carry oxygen and in breaking down chemical compounds in the liver. Erythropoietic protoporphyria is caused by pathogenic variants in the FECH gene which lead to an impaired activity of ferrocheletase (FECH), an important enzyme in heme production. This results in the build-up of protoporphyrin in the bone marrow, red blood cells, blood plasma, skin, and eventually liver. Build up of protoporphyrin can cause extreme sensitivity to sunlight, liver damage, abdominal pain, gallstones, and enlargement of the spleen. Inheritance is autosomal recessive.

    When should I see an Erythropoietic Protoporphyria doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erythropoietic Protoporphyria doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Erythropoietic Protoporphyria doctor in Germany?

    You can find an Erythropoietic Protoporphyria doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Erythropoietic Protoporphyria doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erythropoietic Protoporphyria doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erythropoietic Protoporphyria doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erythropoietic Protoporphyria doctor search results page. 

    Why is it important to get a second opinion from a different Erythropoietic Protoporphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erythropoietic Protoporphyria doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erythropoietic Protoporphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erythropoietic Protoporphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erythropoietic Protoporphyria doctors in Germany?

    Look for the filter feature on the left side of the Erythropoietic Protoporphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erythropoietic Protoporphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Erythropoietic Protoporphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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