The 20 Best Erythropoietic Protoporphyria Doctors in France

Find the Top Erythropoietic Protoporphyria Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 31 doctor with experience in Erythropoietic Protoporphyria near France. Of these, 18 are Experienced, 7 are Advanced and 6 are Distinguished.

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31 providers found
    Distinguished in Erythropoietic Protoporphyria
    Distinguished in Erythropoietic Protoporphyria
    Paris, FR 

    Laurent Gouya practices practicing medicine in Paris, France. Mr. Gouya is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, Erythropoietic Protoporphyria, and Bone Marrow Transplant.

    Distinguished in Erythropoietic Protoporphyria
    Distinguished in Erythropoietic Protoporphyria
    Clichy-sous-bois, FR 

    Herve Puy practices practicing medicine in Clichy-sous-bois, France. Mr. Puy is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Congenital Erythropoietic Porphyria, and Erythropoietic Protoporphyria.

    Distinguished in Erythropoietic Protoporphyria
    Distinguished in Erythropoietic Protoporphyria
    Paris, FR 

    Jean-charles Deybach practices practicing medicine in Paris, France. Deybach is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Congenital Erythropoietic Porphyria.

    Learn about our expert tiers
    Distinguished in Erythropoietic Protoporphyria
    Distinguished in Erythropoietic Protoporphyria
    Gif-sur-yvette, FR 

    Antoine Poli practices practicing medicine in Gif-sur-yvette, France. Mr. Poli is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Congenital Erythropoietic Porphyria, Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Bone Marrow Transplant.

    Distinguished in Erythropoietic Protoporphyria
    Distinguished in Erythropoietic Protoporphyria
    Clichy-sous-bois, FR 

    Hana Manceau practices practicing medicine in Clichy-sous-bois, France. Ms. Manceau is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Protoporphyria, Erythropoietic Protoporphyria, and Congenital Erythropoietic Porphyria.

    Distinguished in Erythropoietic Protoporphyria
    Distinguished in Erythropoietic Protoporphyria
    Rouen, FR 

    Gael Nicolas practices practicing medicine in Rouen, France. Nicolas is rated as a Distinguished expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 17 other conditions, according to our data. Their clinical expertise encompasses Primary Familial Brain Calcification, Calcinosis, Alzheimer's Disease, and Dementia.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria
    Paris, FR 

    Caroline Schmitt practices practicing medicine in Paris, France. Ms. Schmitt is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Congenital Erythropoietic Porphyria, and Erythropoietic Protoporphyria.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria
    Paris, FR 

    Thibaud Lefebvre practices practicing medicine in Paris, France. Lefebvre is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Congenital Erythropoietic Porphyria, Erythropoietic Protoporphyria, and Sleeve Gastrectomy.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria
    Paris, FR 

    Arienne Mirmiran practices practicing medicine in Paris, France. Ms. Mirmiran is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Acute Intermittent Porphyria, Porphyria, Congenital Erythropoietic Porphyria, and Erythropoietic Protoporphyria.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria
    Toulouse, FR 

    Zoubida Karim practices practicing medicine in Toulouse, France. Karim is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Congenital Erythropoietic Porphyria, Acute Intermittent Porphyria, and Hemochromatosis.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria
    Colombes, FR 

    Boualem Moulouel practices practicing medicine in Colombes, France. Moulouel is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Congenital Erythropoietic Porphyria, Porphyria, Protoporphyria, and Erythropoietic Protoporphyria.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria
    Paris, FR 

    Katell Peoc'h practices practicing medicine in Paris, France. Peoc'h is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Porphyria, Acute Intermittent Porphyria, Cholesterol Pneumonia, and N-Acetylglutamate Synthase Deficiency.

    Advanced in Erythropoietic Protoporphyria
    Advanced in Erythropoietic Protoporphyria

    CHU Clermont Ferrand

    Clermont-ferrand, FR 

    Etienne Merlin practices practicing medicine in Clermont-ferrand, France. Mr. Merlin is rated as an Advanced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Juvenile Idiopathic Arthritis (JIA), Erythropoietic Protoporphyria, Protoporphyria, Arthritis, and Bone Marrow Transplant.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Paris, FR 

    Neila Talbi practices practicing medicine in Paris, France. Ms. Talbi is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Porphyria, Acute Hepatic Porphyria (AHP), Acute Intermittent Porphyria, and Protoporphyria.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Paris, FR 

    Flore De Fontbrune practices practicing medicine in Paris, France. Ms. De Fontbrune is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Paroxysmal Cold Hemoglobinuria, Paroxysmal Nocturnal Hemoglobinuria (PNH), Anemia, Hemolysis, and Bone Marrow Transplant.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Nantes, FR 

    Herve Dutartre practices practicing medicine in Nantes, France. Mr. Dutartre is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. His clinical expertise encompasses Porphyria, Erythropoietic Protoporphyria, Protoporphyria, and Congenital Erythropoietic Porphyria.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Metz, FR 

    J-f Cuny practices practicing medicine in Metz, France. Cuny is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. Their clinical expertise encompasses Congenital Erythropoietic Porphyria, Porphyria Cutanea Tarda, Hereditary Coproporphyria, and Pyogenic Granuloma.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Paris, FR 

    Caroline Kannengiesser practices practicing medicine in Paris, France. Ms. Kannengiesser is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Sideroblastic Anemia, Pulmonary Fibrosis, Interstitial Lung Disease, Acute Interstitial Pneumonia, and Lung Transplant.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Paris, FR 

    Nathalie Parquet practices practicing medicine in Paris, France. Ms. Parquet is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Myeloproliferative Neoplasms (MPN), Chronic Graft Versus Host Disease (cGvHD), Febrile Neutropenia, Bone Graft, and Bone Marrow Transplant.

    Experienced in Erythropoietic Protoporphyria
    Experienced in Erythropoietic Protoporphyria
    Paris, FR 

    Dimitri Tchernitchko practices practicing medicine in Paris, France. Mr. Tchernitchko is rated as an Experienced expert by MediFind in the treatment of Erythropoietic Protoporphyria. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Hemochromatosis, Birt-Hogg-Dube Syndrome, Porphyria, and Multiple Familial Trichoepithelioma.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 04/28/2026

    What is the definition of Erythropoietic Protoporphyria?

    Erythropoietic protoporphyria (EPP) is a type of porphyria. Porphyrias are caused by an abnormality in the heme production process. Heme is essential in enabling our blood cells to carry oxygen and in breaking down chemical compounds in the liver. Erythropoietic protoporphyria is caused by pathogenic variants in the FECH gene which lead to an impaired activity of ferrocheletase (FECH), an important enzyme in heme production. This results in the build-up of protoporphyrin in the bone marrow, red blood cells, blood plasma, skin, and eventually liver. Build up of protoporphyrin can cause extreme sensitivity to sunlight, liver damage, abdominal pain, gallstones, and enlargement of the spleen. Inheritance is autosomal recessive.

    When should I see an Erythropoietic Protoporphyria doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erythropoietic Protoporphyria doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Erythropoietic Protoporphyria doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erythropoietic Protoporphyria doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erythropoietic Protoporphyria doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erythropoietic Protoporphyria doctor search results page. 

    Why is it important to get a second opinion from a different Erythropoietic Protoporphyria doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erythropoietic Protoporphyria doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erythropoietic Protoporphyria doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erythropoietic Protoporphyria doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erythropoietic Protoporphyria doctors in France?

    Look for the filter feature on the left side of the Erythropoietic Protoporphyria doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erythropoietic Protoporphyria doctor that offers video calls?

    Look for the filter feature on the left-side of the Erythropoietic Protoporphyria doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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