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    Last Updated: 01/09/2026

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    MediFind found 2464 doctor with experience in Facioscapulohumeral Muscular Dystrophy (FSHD). Of these, 2134 are Experienced, 238 are Advanced, 74 are Distinguished and 18 are Elite.

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    2,464 providers found
      Doris G. Leung
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

      Kennedy Krieger Institute

      1741 Ashland Avenue, Room 847, Room 847, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, Limb-Girdle Muscular Dystrophy Type 2I, and Limb-Girdle Muscular Dystrophy.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Statland is a Neurologist in Kansas City, Kansas. Dr. Statland is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is currently accepting new patients.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Leiden, ZH, NL 

      Silvere Van Der Maarel practices in Leiden, Netherlands. Van Der Maarel is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), ICF Syndrome, Myasthenia Gravis, and Bosma Arhinia Microphthalmia Syndrome.

      Learn about our expert tiers
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Leiden, ZH, NL 

      Richard Lemmers practices in Leiden, Netherlands. Mr. Lemmers is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Chromosome 18p Deletion, Choanal Atresia, and Bosma Arhinia Microphthalmia Syndrome.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      825 Eastlake Ave E, 
      Seattle, WA 
      Languages Spoken:
      English

      Stephen Tapscott is a Neurologist in Seattle, Washington. Dr. Tapscott is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Bosma Arhinia Microphthalmia Syndrome, Duchenne Muscular Dystrophy, and Medulloblastoma.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Nijmegen, GE, NL 

      Baziel Van Engelen practices in Nijmegen, Netherlands. Van Engelen is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Paramyotonia Congenita.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

      CHU Nice

      Nice, FR 

      Sabrina Sacconi practices in Nice, France. Ms. Sacconi is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Pompe Disease, Myasthenia Gravis, and Chromosome 18p Deletion.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology

      The Association Of University Physicians

      1701 Columbia Rd, 
      Seattle, WA 
      Languages Spoken:
      English, Hindi, Mandarin, Punjabi
      Accepting New Patients
      Offers Telehealth

      Leo Wang is a Neurologist in Seattle, Washington. Dr. Wang is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Inclusion Body Myositis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis. Dr. Wang is currently accepting new patients.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      601 Elmwood Ave, 
      Rochester, NY 
      Languages Spoken:
      English

      Alrabi Tawil is a Neurologist in Rochester, New York. Dr. Tawil is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Limb-Girdle Muscular Dystrophy Type 1B.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      451 Smyth Road, K1H 8 M5, 
      Ottawa, ON, CA 

      Giorgio Tasca practices in Ottawa, Canada. Mr. Tasca is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Limb-Girdle Muscular Dystrophy, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Nijmegen, GE, NL 

      Karlien Mul practices in Nijmegen, Netherlands. Mul is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Their top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Myotonic Dystrophy Type 2, Myotonic Dystrophy, and Paramyotonia Congenita.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Modena, IT 

      Rossella Tupler practices in Modena, Italy. Ms. Tupler is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Choanal Atresia, Mosaicism, and ICF Syndrome.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Trento, IT 

      Enzo Ricci practices in Trento, Italy. Mr. Ricci is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Nijmegen, GE, NL 

      Nicol Voermans practices in Nijmegen, Netherlands. Ms. Voermans is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Rhabdomyolysis, Facioscapulohumeral Muscular Dystrophy (FSHD), Ehlers-Danlos Syndrome (EDS), and Congenital Fiber-Type Disproportion.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Padova, IT 

      Corrado Angelini practices in Padova, Italy. Mr. Angelini is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Limb-Girdle Muscular Dystrophy, Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Heart Transplant.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
      Languages Spoken:
      English

      Chad Heatwole is a Neurologist in Rochester, New York. Dr. Heatwole is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Myotonic Dystrophy Type 2, Myotonic Dystrophy, Paramyotonia Congenita, and Facioscapulohumeral Muscular Dystrophy (FSHD).

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology | Neuromusculoskeletal Medicine
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology | Neuromusculoskeletal Medicine

      The Regents Of The University Of California

      200 Ucla Medical Plz, Suite 120, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Perry Shieh is a Neurologist and a Neuromusculoskeletal Medicine provider in Los Angeles, California. Dr. Shieh is rated as an Elite provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Tubular Aggregate Myopathy.

      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Elite in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Turin, IT 

      Tiziana Mongini practices in Turin, Italy. Ms. Mongini is rated as an Elite expert by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Pompe Disease, Facioscapulohumeral Muscular Dystrophy (FSHD), Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

      Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology | Pediatrics | Pediatric Neurology
      Distinguished in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Neurology | Pediatrics | Pediatric Neurology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as a Distinguished provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.

      Brian Demaster
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Family Medicine
      Experienced in Facioscapulohumeral Muscular Dystrophy (FSHD)
      Family Medicine

      Aurora Family Medicine

      313 S Main St, 
      Cedar Grove, WI 
      Languages Spoken:
      English

      Brian Demaster is a primary care provider, practicing in Family Medicine in Cedar Grove, Wisconsin. Dr. Demaster is rated as an Experienced provider by MediFind in the treatment of Facioscapulohumeral Muscular Dystrophy (FSHD). His top areas of expertise are Limb-Girdle Muscular Dystrophy Type 1A, Limb-Girdle Muscular Dystrophy Type 2C, Limb-Girdle Muscular Dystrophy Type 2I, and Limb-Girdle Muscular Dystrophy Type 2B.

      Showing 1-20 of 2,464

      Last Updated: 01/09/2026

      What is the definition of Facioscapulohumeral Muscular Dystrophy (FSHD)?

      Facioscapulohumeral muscular dystrophy is a condition that causes muscle weakness and loss of muscle tissue that gets worse over time.

      When should I see a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Facioscapulohumeral Muscular Dystrophy (FSHD) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Facioscapulohumeral Muscular Dystrophy (FSHD) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. 

      Why is it important to get a second opinion from a different Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Facioscapulohumeral Muscular Dystrophy (FSHD) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Facioscapulohumeral Muscular Dystrophy (FSHD) doctors near me?

      Look for the filter feature on the left side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Facioscapulohumeral Muscular Dystrophy (FSHD) doctor that offers video calls?

      Look for the filter feature on the left-side of the Facioscapulohumeral Muscular Dystrophy (FSHD) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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