Filters

Distance
    Level of Expertise
    Availability
    Gender
    Years of Experience
    Insurance
    Specialty
    Additional Specialty
    Language

    Last Updated: 02/22/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 21 doctor with experience in Familial Porencephaly near Charlotte, NC. Of these, 16 are Experienced, 4 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    21 providers found
      Anthony L. Asher
      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      Carolinas Medical Center

      1000 Blythe Blvd., 
      Charlotte, NC 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Asher is a Neurosurgery provider in Charlotte, North Carolina. Dr. Asher is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Spondylolisthesis, Cervical Myelopathy, Brain Tumor, Laminectomy, and Spinal Fusion. Dr. Asher is currently accepting new patients.

      Martin M. Henegar
      Distinguished in Familial Porencephaly
      General Surgery
      Distinguished in Familial Porencephaly
      General Surgery

      Carolina Neurosurgery & Spine Associates - Charlotte

      225 Baldwin Ave., 
      Charlotte, NC 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Martin Henegar is a General Surgeon in Charlotte, North Carolina. Dr. Henegar is rated as a Distinguished provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Cerebellum Agenesis Hydrocephaly, Hydrocephalus, Familial Porencephaly, Deep Brain Stimulation, and Laminectomy. Dr. Henegar is currently accepting new patients.

      Robert L. Mittl
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology

      Charlotte Radiology

      700 E. Morehead St., Suite 300, 
      Charlotte, NC 
       (0.9 miles away)
      Experience:
      41+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Mittl is a Radiologist and a Neuroradiologist in Charlotte, North Carolina. Dr. Mittl has been practicing medicine for over 41 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Headache, Stroke, Hydrocephalus, and Cortical Dysplasia. Dr. Mittl is currently accepting new patients.

      Learn about our expert tiers
      John Grimm
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology

      Charlotte Radiology

      700 E. Morehead St., Suite 300, 
      Charlotte, NC 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Grimm is a Radiologist and a Neuroradiologist in Charlotte, North Carolina. Dr. Grimm is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Subarachnoid Hemorrhage, Headache, and Neural Crest Tumor. Dr. Grimm is currently accepting new patients.

      Vernon D. Byrd
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology

      Charlotte Radiology

      700 E. Morehead St., Suite 300, 
      Charlotte, NC 
       (0.9 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vernon Byrd is a Radiologist and a Neuroradiologist in Charlotte, North Carolina. Dr. Byrd has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Headache, Stroke, CAPOS Syndrome, and Hydrocephalus. Dr. Byrd is currently accepting new patients.

      Mark V. Poppel
      Experienced in Familial Porencephaly
      Neurology | General Surgery
      Experienced in Familial Porencephaly
      Neurology | General Surgery

      Carolina Neurosurgery & Spine Associates - Charlotte

      225 Baldwin Ave., 
      Charlotte, NC 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Poppel is a Neurologist and a General Surgeon in Charlotte, North Carolina. Dr. Poppel is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Dysembryoplastic Neuroepithelial Tumors (DNET), Awake Craniotomy, and Gastrostomy. Dr. Poppel is currently accepting new patients.

      Meredith Snapp
      Experienced in Familial Porencephaly
      Neurology | Sleep Medicine
      Experienced in Familial Porencephaly
      Neurology | Sleep Medicine

      Novant Health Neurology & Sleep - Midtown

      1918 Randolph Road, Suite 400, 
      Charlotte, NC 
       (1.5 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English
      Offers Telehealth

      Meredith Snapp is a Neurologist and a Sleep Medicine provider in Charlotte, North Carolina. Dr. Snapp has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Obstructive Sleep Apnea, Drowsiness, Excessive Daytime Sleepiness, and REM Behavior Disorder.

      Gary J. Defilipp
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology
      Experienced in Familial Porencephaly
      Radiology | Neuroradiology

      Carolinas Medical Center

      1000 Blythe Blvd., 
      Charlotte, NC 
       (1.6 miles away)
      Experience:
      50+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Gary Defilipp is a Radiologist and a Neuroradiologist in Charlotte, North Carolina. Dr. Defilipp has been practicing medicine for over 50 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Stroke, Cerebellum Agenesis Hydrocephaly, CAPOS Syndrome, Thrombectomy, and Transmyocardial Revascularization. Dr. Defilipp is currently accepting new patients.

      Advanced in Familial Porencephaly
      Neuroradiology
      Advanced in Familial Porencephaly
      Neuroradiology

      Office

      3816 Latrobe Dr, 
      Charlotte, NC 
       (3.4 miles away)
      Languages Spoken:
      English

      John Wylie is a Neuroradiologist in Charlotte, North Carolina. Dr. Wylie is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Herniated Disk, Meningioma, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Office

      700 E Morehead St Ste 300, 
      Charlotte, NC 
       (0.2 miles away)
      Languages Spoken:
      English

      Barry Mcginnis is a Radiologist in Charlotte, North Carolina. Dr. Mcginnis is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Stroke, Headache, Intestinal Pseudo-Obstruction, and CAPOS Syndrome.

      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Office

      700 E Morehead St Ste 300, 
      Charlotte, NC 
       (0.2 miles away)
      Languages Spoken:
      English

      Olin Harbury is a Neuroradiologist in Charlotte, North Carolina. Dr. Harbury is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Headache, CAPOS Syndrome, and Hydrocephalus.

      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Office

      700 E Morehead St Ste 300, 
      Charlotte, NC 
       (0.2 miles away)
      Languages Spoken:
      English

      John Howard is a Neuroradiologist in Charlotte, North Carolina. Dr. Howard is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Headache, Stroke, Hydrocephalus, and Cerebellum Agenesis Hydrocephaly.

      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Office

      700 E Morehead St Ste 300, 
      Charlotte, NC 
       (0.2 miles away)
      Languages Spoken:
      English

      Brian Perry is a Neuroradiologist in Charlotte, North Carolina. Dr. Perry is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Headache, Hydrocephalus, and Normal Pressure Hydrocephalus.

      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Charlotte Radiology

      700 E. Morehead St., Suite 300, 
      Charlotte, NC 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Seeburg is a Neuroradiologist in Charlotte, North Carolina. Dr. Seeburg is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), CAPOS Syndrome, Headache, Rhizotomy, and Microvascular Decompression. Dr. Seeburg is currently accepting new patients.

      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Mecklenburg Radiology Associates - Presbyterian

      200 Hawthorne Ln, 
      Charlotte, NC 
       (1.4 miles away)
      Languages Spoken:
      English

      James Johnson is a Radiologist in Charlotte, North Carolina. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Headache, Stroke, CAPOS Syndrome, and Vertigo.

      Experienced in Familial Porencephaly
      Radiology
      Experienced in Familial Porencephaly
      Radiology

      Mecklenburg Radiology Associates - Presbyterian

      200 Hawthorne Ln, 
      Charlotte, NC 
       (1.4 miles away)
      Languages Spoken:
      English

      Robert Barr is a Radiologist in Charlotte, North Carolina. Dr. Barr is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Headache, Cholesterol Pneumonia, Subcortical Band Heterotopia, and Lhermitte-Duclos Disease.

      Charles Gordon
      Advanced in Familial Porencephaly
      Internal Medicine
      Advanced in Familial Porencephaly
      Internal Medicine

      Novant Health Neurology & Headache - SouthPark

      6324 Fairview Road, Suite 400, 
      Charlotte, NC 
       (5.4 miles away)
      Languages Spoken:
      English, German, Spanish
      Offers Telehealth

      Charles Gordon is an Internal Medicine provider in Charlotte, North Carolina. Dr. Gordon is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Migraine, Familial Porencephaly, Choroid Plexus Cyst, and Migraine with Brainstem Aura.

      Ryan M. Gleason
      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      Atrium Health Neurology

      10660 Park Road, Suite 4500, 
      Charlotte, NC 
       (9.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Gleason is a Neurologist in Charlotte, North Carolina. Dr. Gleason is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Opsoclonus-Myoclonus Syndrome, Seizures, Generalized Tonic-Clonic Seizure, and Trigeminal Neuralgia. Dr. Gleason is currently accepting new patients.

      Tooba Khan
      Experienced in Familial Porencephaly
      Neurology
      Experienced in Familial Porencephaly
      Neurology

      Atrium Health Neurology

      10660 Park Road, Suite 4500, 
      Charlotte, NC 
       (9.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tooba Khan is a Neurologist in Charlotte, North Carolina. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Trigeminal Neuralgia, and Stroke. Dr. Khan is currently accepting new patients.

      Siddhartha Varma
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Novant Health Neurology & Sleep - Matthews

      3330 Siskey Parkway, 
      Matthews, NC 
       (11.8 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English, Hindi
      Offers Telehealth

      Siddhartha Varma is a Neurologist in Matthews, North Carolina. Dr. Varma has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Transient Ischemic Attack (TIA), Transient Global Amnesia, Movement Disorders, and Parkinson's Disease.

      Showing 1-20 of 21

      Last Updated: 02/22/2026

      What is the definition of Familial Porencephaly?

      Familial porencephaly is part of a group of conditions called the COL4A1-related disorders. The conditions in this group have a range of signs and symptoms that involve fragile blood vessels. In familial porencephaly, fluid-filled cysts develop in the brain (porencephaly) during fetal development or soon after birth. These cysts typically occur in only one side of the brain and vary in size. The cysts are thought to be the result of bleeding within the brain (hemorrhagic stroke). People with this condition also have leukoencephalopathy, which is a change in a type of brain tissue called white matter that can be seen with magnetic resonance imaging (MRI).

      When should I see a Familial Porencephaly doctor near Charlotte, NC?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Familial Porencephaly doctor near Charlotte, NC?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Familial Porencephaly doctors near Charlotte, NC?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Familial Porencephaly doctors near Charlotte, NC?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Familial Porencephaly doctor near Charlotte, NC?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Familial Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Familial Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Familial Porencephaly doctor near Charlotte, NC?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Familial Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Familial Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Familial Porencephaly doctors near Charlotte, NC?

      Look for the filter feature on the left side of the Familial Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Familial Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Familial Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Familial Porencephaly Doctors by city