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    Last Updated: 10/30/2025

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    MediFind found 75 doctor with experience in Familial Porencephaly near Cleveland, OH. Of these, 60 are Experienced and 15 are Advanced.

    Location
    LocationClose
    75 providers found
      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
       (4.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Krystal Tomei is a Neurosurgery provider in Cleveland, Ohio. Dr. Tomei is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Hydrocephalus, Chiari Malformation Type 2, Chiari Malformation, and Chiari Malformation Type 1. Dr. Tomei is currently accepting new patients.

      Badih Adada
      Advanced in Familial Porencephaly
      General Surgery
      Advanced in Familial Porencephaly
      General Surgery

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English, Arabic, French
      Offers Telehealth

      Badih Adada is a General Surgeon in Cleveland, Ohio. Dr. Adada is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Trigeminal Neuralgia, Hydrocephalus, Meningioma, Nerve Decompression, and Awake Craniotomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Violette Recinos
      Advanced in Familial Porencephaly
      General Surgery
      Advanced in Familial Porencephaly
      General Surgery

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      28+ years
      Languages Spoken:
      English

      Violette Recinos is a General Surgeon in Cleveland, Ohio. Dr. Recinos has been practicing medicine for over 28 years and is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Chiari Malformation Type 2, Cortical Dysplasia, Chiari Malformation, Metopic Ridge, and Awake Craniotomy.

      Learn about our expert tiers
      Parvez Masood
      Advanced in Familial Porencephaly
      Neuroradiology
      Advanced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English, Hindi, Urdu

      Parvez Masood is a Neuroradiologist in Cleveland, Ohio. Dr. Masood is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Hydrocephalus, Cerebellum Agenesis Hydrocephaly, and Subarachnoid Hemorrhage.

      Darryl Rini
      Advanced in Familial Porencephaly
      Radiology
      Advanced in Familial Porencephaly
      Radiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English

      Darryl Rini is a Radiologist in Cleveland, Ohio. Dr. Rini has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Vertigo, Aseptic and Alopecic Nodules of Scalp (AANS), Tenosynovitis, and Gallbladder Disease.

      Gene Barnett
      Advanced in Familial Porencephaly
      Neurosurgery
      Advanced in Familial Porencephaly
      Neurosurgery

      Cleveland Clinic Main Campus

      10201 Carnegie Avenue, 
      Cleveland, OH 
       (4.1 miles away)
      Experience:
      50+ years
      Languages Spoken:
      English
      Offers Telehealth

      Gene Barnett is a Neurosurgery provider in Cleveland, Ohio. Dr. Barnett has been practicing medicine for over 50 years and is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Brain Tumor, Astrocytoma, Meningioma, Gamma Knife Radiosurgery, and Craniectomy.

      Varun Kshettry
      Advanced in Familial Porencephaly
      Neurosurgery
      Advanced in Familial Porencephaly
      Neurosurgery

      Cleveland Clinic Main Campus

      10201 Carnegie Avenue, 
      Cleveland, OH 
       (4.1 miles away)
      Experience:
      22+ years
      Languages Spoken:
      English
      Offers Telehealth

      Varun Kshettry is a Neurosurgery provider in Cleveland, Ohio. Dr. Kshettry has been practicing medicine for over 22 years and is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Meningioma, Pituitary Tumor, Encephalocele, Endoscopic Transnasal Transsphenoidal Surgery, and Balloon Sinuplasty.

      Alireza M. Mohammadi
      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      Cleveland Clinic Main Campus

      10201 Carnegie Avenue, 
      Cleveland, OH 
       (4.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Alireza Mohammadi is a Neurosurgery provider in Cleveland, Ohio. Dr. Mohammadi is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Subependymoma, Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Gamma Knife Radiosurgery, and Awake Craniotomy.

      Pablo Recinos
      Advanced in Familial Porencephaly
      Neurosurgery
      Advanced in Familial Porencephaly
      Neurosurgery

      Cleveland Clinic Main Campus

      10201 Carnegie Avenue, 
      Cleveland, OH 
       (4.1 miles away)
      Experience:
      25+ years
      Languages Spoken:
      English, Portuguese, Spanish
      Offers Telehealth

      Pablo Recinos is a Neurosurgery provider in Cleveland, Ohio. Dr. Recinos has been practicing medicine for over 25 years and is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Meningioma, Pituitary Tumor, Cushing's disease, Endoscopic Transnasal Transsphenoidal Surgery, and Balloon Sinuplasty.

      Advanced in Familial Porencephaly
      Nurse Practitioner | Neurology
      Advanced in Familial Porencephaly
      Nurse Practitioner | Neurology

      Cleveland Clinic

      8950 Euclid Ave, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Beth Mellors is a Nurse Practitioner specialist and a Neurologist in Cleveland, Ohio. Ms. Mellors is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are Meningioma, Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, and Metastatic Brain Tumor.

      Advanced in Familial Porencephaly
      Advanced in Familial Porencephaly

      Cleveland Clinic

      8950 Euclid Ave, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English

      Volodymyr Statsevych is a Radiologist in Cleveland, Ohio. Dr. Statsevych is rated as an Advanced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Hydrocephalus, Subarachnoid Hemorrhage, and Cerebellum Agenesis Hydrocephaly.

      Alfonso Rivera
      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic

      8950 Euclid Ave, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      34+ years
      Languages Spoken:
      English, Spanish

      Alfonso Rivera is a Neuroradiologist in Cleveland, Ohio. Dr. Rivera has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Herniated Disk, Radiation Induced Meningioma, Meningioma, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

      Scott Johnson
      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Scott Johnson is a Neuroradiologist in Cleveland, Ohio. Dr. Johnson has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Hydrocephalus, Relapsing Multiple Sclerosis (RMS), and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

      Emmanuel Obusez
      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      21+ years
      Languages Spoken:
      English

      Emmanuel Obusez is a Neuroradiologist in Cleveland, Ohio. Dr. Obusez has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Relapsing Multiple Sclerosis (RMS), Meningioma, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, and Thalamotomy.

      Stephen Jones
      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      42+ years
      Languages Spoken:
      English

      Stephen Jones is a Neuroradiologist in Cleveland, Ohio. Dr. Jones has been practicing medicine for over 42 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Cortical Dysplasia, Epilepsy, Multiple Sclerosis (MS), Sacral Nerve Stimulation, and Deep Brain Stimulation.

      Razia Rehmani
      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      30+ years
      Languages Spoken:
      English

      Razia Rehmani is a Neuroradiologist in Cleveland, Ohio. Dr. Rehmani has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are CAPOS Syndrome, Herniated Disk, Aseptic and Alopecic Nodules of Scalp (AANS), and Relapsing Multiple Sclerosis (RMS).

      Andreas Alexopoulos
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English, German, Greek
      Offers Telehealth

      Andreas Alexopoulos is a Neurologist in Cleveland, Ohio. Dr. Alexopoulos is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Seizures, Epilepsy, Cortical Dysplasia, and Generalized Tonic-Clonic Seizure.

      Elia P. Knight
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English

      Elia Knight is a Pediatrics provider in Cleveland, Ohio. Dr. Knight is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. Her top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy.

      Richard Burgess
      Experienced in Familial Porencephaly
      Experienced in Familial Porencephaly

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Experience:
      57+ years
      Languages Spoken:
      English

      Richard Burgess is a Neurologist in Cleveland, Ohio. Dr. Burgess has been practicing medicine for over 57 years and is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are Epilepsy, Seizures, Continuous Spike-Wave During Slow Sleep Syndrome, Thrombectomy, and Embolectomy.

      James Dixon
      Experienced in Familial Porencephaly
      Neuroradiology
      Experienced in Familial Porencephaly
      Neuroradiology

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
       (3.7 miles away)
      Languages Spoken:
      English

      James Dixon is a Neuroradiologist in Cleveland, Ohio. Dr. Dixon is rated as an Experienced provider by MediFind in the treatment of Familial Porencephaly. His top areas of expertise are CAPOS Syndrome, Subarachnoid Hemorrhage, Lymphofollicular Hyperplasia, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

      Showing 1-20 of 75

      Last Updated: 10/30/2025

      What is the definition of Familial Porencephaly?

      Familial porencephaly is part of a group of conditions called the COL4A1-related disorders. The conditions in this group have a range of signs and symptoms that involve fragile blood vessels. In familial porencephaly, fluid-filled cysts develop in the brain (porencephaly) during fetal development or soon after birth. These cysts typically occur in only one side of the brain and vary in size. The cysts are thought to be the result of bleeding within the brain (hemorrhagic stroke). People with this condition also have leukoencephalopathy, which is a change in a type of brain tissue called white matter that can be seen with magnetic resonance imaging (MRI).

      When should I see a Familial Porencephaly doctor near Cleveland, OH?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Familial Porencephaly doctor near Cleveland, OH?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Familial Porencephaly doctors near Cleveland, OH?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Familial Porencephaly doctors near Cleveland, OH?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Familial Porencephaly doctor near Cleveland, OH?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Familial Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Familial Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Familial Porencephaly doctor near Cleveland, OH?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Familial Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Familial Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Familial Porencephaly doctors near Cleveland, OH?

      Look for the filter feature on the left side of the Familial Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Familial Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Familial Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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