The 20 Best Fatal Familial Insomnia Doctors Near Me

Find the Top Fatal Familial Insomnia Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 400 doctor with experience in Fatal Familial Insomnia. Of these, 307 are Experienced, 60 are Advanced, 21 are Distinguished and 9 are Elite.

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400 providers found
    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    Milan, IT 

    Roberto Chiesa practices practicing medicine in Milan, Italy. Mr. Chiesa is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Fatal Familial Insomnia, Thoracic Aortic Aneurysm, Creutzfeldt-Jakob Disease, Stent Placement, and Carotid Artery Surgery.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    45 Changchun Street, 
    Beijing, CN 

    Liyong Wu practices practicing medicine in Beijing, China. Wu is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Fatal Familial Insomnia, Frontotemporal Dementia, Dementia, and Creutzfeldt-Jakob Disease.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    Bilbao, PV, ES 

    Joaquin Castilla practices practicing medicine in Bilbao, Spain. Mr. Castilla is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Gerstmann-Straussler-Scheinker Syndrome, and Congenital Erythropoietic Porphyria.

    Learn about our expert tiers
    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    Changchun Street 45, 
    Beijing, CN 

    Kexin Xie practices practicing medicine in Beijing, China. Ms. Xie is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Syndactyly Type 1, and Frontotemporal Dementia.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    45 Changchun Street, 
    Beijing, CN 

    Min Chu practices practicing medicine in Beijing, China. Chu is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Fatal Familial Insomnia, Frontotemporal Dementia, Dementia, and Creutzfeldt-Jakob Disease.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    Changchun Street 45, 
    Beijing, CN 

    Zhongyun Chen practices practicing medicine in Beijing, China. Chen is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, Thrombectomy, and Craniectomy.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    Milan, IT 

    Elena Restelli practices practicing medicine in Milan, Italy. Ms. Restelli is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Gerstmann-Straussler-Scheinker Syndrome, and Hereditary Ataxia.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    National Key Laboratory Of Intelligent Tracking And Forecasting For Infectious Disease, NHC Key Laboratory Of Medical Virology And Viral Diseases, 
    Beijing, CN 

    Qi Shi practices practicing medicine in Beijing, China. Mr. Shi is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Creutzfeldt-Jakob Disease, Fatal Familial Insomnia, Dementia, and Kuru.

    Elite in Fatal Familial Insomnia
    Elite in Fatal Familial Insomnia
    Referral may be required
    Milan, IT 

    Fabrizio Tagliavini practices practicing medicine in Milan, Italy. Mr. Tagliavini is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Creutzfeldt-Jakob Disease, Frontotemporal Dementia, Dementia, and Fatal Familial Insomnia.

    Experienced in Fatal Familial Insomnia
    Experienced in Fatal Familial Insomnia
    Referral may be required

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    615-936-0060
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Matthew Schrag is a Neurologist practicing medicine in Nashville, Tennessee. Dr. Schrag is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Cerebral Amyloid Angiopathy, Stroke, Cardiac Amyloidosis, Thrombectomy, and Gastrostomy. Dr. Schrag is board certified in American Board Of Psychiatry & Neurology.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Sigmund Freud Str. 25, 
    Bonn, NW, DE 

    Walker Jackson practices practicing medicine in Bonn, Germany. Mr. Jackson is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Huntington Disease, and Dementia.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Matthias Schmitz practices practicing medicine in Goettingen, Germany. Mr. Schmitz is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Creutzfeldt-Jakob Disease, Fatal Familial Insomnia, Dementia, and Vascular Dementia.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Peking Union Medical College Hospital, Peking Union Medical College, 
    Beijing, CN 

    Kang Xiao practices practicing medicine in Beijing, China. Ms. Xiao is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, and Nearsightedness.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Bologna, IT 

    Pietro Cortelli practices practicing medicine in Bologna, Italy. Mr. Cortelli is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Familial Dysautonomia, Low Blood Pressure, Movement Disorders, Headache, and Deep Brain Stimulation.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Inga Zerr practices practicing medicine in Goettingen, Germany. Ms. Zerr is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Creutzfeldt-Jakob Disease, Dementia, Fatal Familial Insomnia, and Alzheimer's Disease.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Milan, IT 

    Gianluigi Forloni practices practicing medicine in Milan, Italy. Mr. Forloni is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Memory Loss, and Fatal Familial Insomnia.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Bologna, IT 

    Federica Provini practices practicing medicine in Bologna, Italy. Ms. Provini is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Restless Legs Syndrome, Fatal Familial Insomnia, Familial Dysautonomia, and Delirium Tremens.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Union Hospital, 
    Wuhan, CN 

    Xiao-ping Dong practices practicing medicine in Wuhan, China. Dong is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Kuru, and Dementia.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Milan, IT 

    Ilaria Bertani practices practicing medicine in Milan, Italy. Ms. Bertani is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Drug Induced Dyskinesia, and Dementia.

    Distinguished in Fatal Familial Insomnia
    Distinguished in Fatal Familial Insomnia
    Referral may be required
    Robert Koch Str, 40, 
    Goettingen, NI, DE 

    Franc Llorens practices practicing medicine in Goettingen, Germany. Llorens is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Creutzfeldt-Jakob Disease, Fatal Familial Insomnia, Vascular Dementia, and Dementia.

    Showing 1-20 of 400

    Last Updated: 06/30/2026

    What is the definition of Fatal Familial Insomnia?

    Fatal familial insomnia (FFI) affects the thalamus, the part of the brain that controls the sleep-wake cycle. The most common symptoms are sleep disturbance, psychiatric problems, weight loss, and balance problems. Other symptoms include high blood pressure, excess sweating, and difficulty controlling body temperature. These symptoms tend to get worse over time. Almost all cases of FFI occur due to a specific variant in the PRNP gene and are inherited in an autosomal dominant pattern. Diagnosis is based on the symptoms, clinical exam, sleep study, and imaging studies. The results of genetic testing can help confirm the diagnosis.

    When should I see a Fatal Familial Insomnia doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fatal Familial Insomnia doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Fatal Familial Insomnia doctor near me?

    You can find a Fatal Familial Insomnia doctor in any of the 10 largest U.S. cities by clicking below:

    Fatal Familial Insomnia doctor near New York, NY
    Fatal Familial Insomnia doctor near Los Angeles, CA
    Fatal Familial Insomnia doctor near Chicago, IL
    Fatal Familial Insomnia doctor near Houston, TX
    Fatal Familial Insomnia doctor near Phoenix, AZ
    Fatal Familial Insomnia doctor near Philadelphia, PA
    Fatal Familial Insomnia doctor near Atlanta, GA
    Fatal Familial Insomnia doctor near Boston, MA
    Fatal Familial Insomnia doctor near Dallas, TX
    Fatal Familial Insomnia doctor near San Jose, CA

    How does MediFind rank Fatal Familial Insomnia doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fatal Familial Insomnia doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fatal Familial Insomnia doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. 

    Why is it important to get a second opinion from a different Fatal Familial Insomnia doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fatal Familial Insomnia doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fatal Familial Insomnia doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fatal Familial Insomnia doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fatal Familial Insomnia doctors near me?

    Look for the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fatal Familial Insomnia doctor that offers video calls?

    Look for the filter feature on the left-side of the Fatal Familial Insomnia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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