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    Last Updated: 01/09/2026

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    MediFind found 406 doctor with experience in Fatal Familial Insomnia. Of these, 320 are Experienced, 52 are Advanced, 25 are Distinguished and 6 are Elite.

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    406 providers found
      Roberto Chiesa
      Elite in Fatal Familial Insomnia

      Roberto Chiesa
      Elite in Fatal Familial Insomnia

      Roberto Chiesa
      Milan, IT 

      Roberto Chiesa practices in Milan, Italy. Mr. Chiesa is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Fatal Familial Insomnia, Thoracic Aortic Aneurysm, Creutzfeldt-Jakob Disease, Stent Placement, and Carotid Artery Surgery.

      Elite in Fatal Familial Insomnia

      Kexin Xie
      Elite in Fatal Familial Insomnia

      Kexin Xie
      Changchun Street 45, 
      Beijing, CN 

      Kexin Xie practices in Beijing, China. Ms. Xie is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Frontotemporal Dementia, and Syndactyly Type 1.

      Elite in Fatal Familial Insomnia

      Joaquin Castilla
      Elite in Fatal Familial Insomnia

      Joaquin Castilla
      Bilbao, PV, ES 

      Joaquin Castilla practices in Bilbao, Spain. Mr. Castilla is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Gerstmann-Straussler-Scheinker Syndrome, and Congenital Erythropoietic Porphyria.

      Learn about our expert tiers
      Elite in Fatal Familial Insomnia

      Zhongyun Chen
      Elite in Fatal Familial Insomnia

      Zhongyun Chen
      Changchun Street 45, 
      Beijing, CN 

      Zhongyun Chen practices in Beijing, China. Chen is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. Their top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, Thrombectomy, and Craniectomy.

      Elite in Fatal Familial Insomnia

      Elena Restelli
      Elite in Fatal Familial Insomnia

      Elena Restelli
      Milan, IT 

      Elena Restelli practices in Milan, Italy. Ms. Restelli is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Gerstmann-Straussler-Scheinker Syndrome, Creutzfeldt-Jakob Disease, and Hereditary Ataxia.

      Elite in Fatal Familial Insomnia

      Qi Z. Shi
      Elite in Fatal Familial Insomnia

      Qi Z. Shi
      National Key Laboratory Of Intelligent Tracking And Forecasting For Infectious Diseases, 
      Beijing, CN 

      Qi Shi practices in Beijing, China. Mr. Shi is rated as an Elite expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, and Kuru.

      Experienced in Fatal Familial Insomnia

      Dr. Matthew S. Schrag
      Neurology
      Experienced in Fatal Familial Insomnia

      Dr. Matthew S. Schrag
      Neurology

      Vanderbilt Medical Group- Teleneurology

      1161 21st Ave South, A-0118 Medical Center North, 
      Nashville, TN 
      615-936-0060
      Languages Spoken:
      English
      See accepted insurances
      Offers Telehealth

      . Dr. Schrag is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Cerebral Amyloid Angiopathy, Stroke, Cardiac Amyloidosis, Thrombectomy, and Gastrostomy.

      Distinguished in Fatal Familial Insomnia

      Walker S. Jackson
      Distinguished in Fatal Familial Insomnia

      Walker S. Jackson
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Walker Jackson practices in Bonn, Germany. Mr. Jackson is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, and Huntington Disease.

      Distinguished in Fatal Familial Insomnia

      Gianluigi L. Forloni
      Distinguished in Fatal Familial Insomnia

      Gianluigi L. Forloni
      Milan, IT 

      Gianluigi Forloni practices in Milan, Italy. Mr. Forloni is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Memory Loss, Dementia, Alzheimer's Disease, and Fatal Familial Insomnia.

      Distinguished in Fatal Familial Insomnia

      Federica Provini
      Distinguished in Fatal Familial Insomnia

      Federica Provini
      Bologna, IT 

      Federica Provini practices in Bologna, Italy. Ms. Provini is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Restless Legs Syndrome, Fatal Familial Insomnia, Familial Dysautonomia, and Delirium Tremens.

      Distinguished in Fatal Familial Insomnia

      Kang L. Xiao
      Distinguished in Fatal Familial Insomnia

      Kang L. Xiao
      Peking Union Medical College Hospital, Peking Union Medical College, 
      Beijing, CN 

      Kang Xiao practices in Beijing, China. Ms. Xiao is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, and Nearsightedness.

      Distinguished in Fatal Familial Insomnia

      Pietro Cortelli
      Distinguished in Fatal Familial Insomnia

      Pietro Cortelli
      Bologna, IT 

      Pietro Cortelli practices in Bologna, Italy. Mr. Cortelli is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Familial Dysautonomia, Low Blood Pressure, Movement Disorders, Orthostatic Hypotension, and Deep Brain Stimulation.

      Distinguished in Fatal Familial Insomnia

      Matthias A. Schmitz
      Distinguished in Fatal Familial Insomnia

      Matthias A. Schmitz
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Matthias Schmitz practices in Goettingen, Germany. Mr. Schmitz is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Creutzfeldt-Jakob Disease, Fatal Familial Insomnia, Dementia, and Vascular Dementia.

      Distinguished in Fatal Familial Insomnia

      Fabrizio Tagliavini
      Distinguished in Fatal Familial Insomnia

      Fabrizio Tagliavini
      Via Celoria 11, 
      Milan, IT 

      Fabrizio Tagliavini practices in Milan, Italy. Mr. Tagliavini is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Creutzfeldt-Jakob Disease, Frontotemporal Dementia, Dementia, and Fatal Familial Insomnia.

      Distinguished in Fatal Familial Insomnia

      Xiao-ping Y. Dong
      Distinguished in Fatal Familial Insomnia

      Xiao-ping Y. Dong
      Shanghai, CN 

      Xiao-ping Dong practices in Shanghai, China. Dong is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Their top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Kuru, and Atypical Pneumonia.

      Distinguished in Fatal Familial Insomnia

      Inga Zerr
      Distinguished in Fatal Familial Insomnia

      Inga Zerr
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Inga Zerr practices in Goettingen, Germany. Ms. Zerr is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Creutzfeldt-Jakob Disease, Dementia, Fatal Familial Insomnia, and Alzheimer's Disease.

      Distinguished in Fatal Familial Insomnia

      Ilaria Bertani
      Distinguished in Fatal Familial Insomnia

      Ilaria Bertani
      Milan, IT 

      Ilaria Bertani practices in Milan, Italy. Ms. Bertani is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Dementia, and Drug Induced Dyskinesia.

      Distinguished in Fatal Familial Insomnia

      Chen L. Gao
      Distinguished in Fatal Familial Insomnia

      Chen L. Gao
      National Key Laboratory Of Intelligent Tracking And Forecasting For Infectious Diseases, 
      Beijing, CN 

      Chen Gao practices in Beijing, China. Gao is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Their top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Palatal Myoclonus, and Dementia.

      Distinguished in Fatal Familial Insomnia

      Liyong Y. Wu
      Distinguished in Fatal Familial Insomnia

      Liyong Y. Wu
      45 Changchun Street, 
      Beijing, CN 

      Liyong Wu practices in Beijing, China. Wu is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Their top areas of expertise are Fatal Familial Insomnia, Creutzfeldt-Jakob Disease, Frontotemporal Dementia, and Dementia.

      Distinguished in Fatal Familial Insomnia

      Cao S. Chen
      Distinguished in Fatal Familial Insomnia

      Cao S. Chen
      National Key Laboratory Of Intelligent Tracking And Forecasting For Infectious Diseases, NHC Key Laboratory Of Medical Virology And Viral Diseases, 
      Beijing, CN 

      Cao Chen practices in Beijing, China. Chen is rated as a Distinguished expert by MediFind in the treatment of Fatal Familial Insomnia. Their top areas of expertise are Creutzfeldt-Jakob Disease, Fatal Familial Insomnia, Kuru, and Dementia.

      Showing 1-20 of 406

      Last Updated: 01/09/2026

      What is the definition of Fatal Familial Insomnia?

      Fatal familial insomnia (FFI) affects the thalamus, the part of the brain that controls the sleep-wake cycle. The most common symptoms are sleep disturbance, psychiatric problems, weight loss, and balance problems. Other symptoms include high blood pressure, excess sweating, and difficulty controlling body temperature. These symptoms tend to get worse over time. Almost all cases of FFI occur due to a specific variant in the PRNP gene and are inherited in an autosomal dominant pattern. Diagnosis is based on the symptoms, clinical exam, sleep study, and imaging studies. The results of genetic testing can help confirm the diagnosis.

      When should I see a Fatal Familial Insomnia doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fatal Familial Insomnia doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Fatal Familial Insomnia doctor near me?

      You can find a Fatal Familial Insomnia doctor in any of the 10 largest U.S. cities by clicking below:

      Fatal Familial Insomnia doctor near New York, NY
      Fatal Familial Insomnia doctor near Los Angeles, CA
      Fatal Familial Insomnia doctor near Chicago, IL
      Fatal Familial Insomnia doctor near Houston, TX
      Fatal Familial Insomnia doctor near Phoenix, AZ
      Fatal Familial Insomnia doctor near Philadelphia, PA
      Fatal Familial Insomnia doctor near Atlanta, GA
      Fatal Familial Insomnia doctor near Boston, MA
      Fatal Familial Insomnia doctor near Dallas, TX
      Fatal Familial Insomnia doctor near San Jose, CA

      How does MediFind rank Fatal Familial Insomnia doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fatal Familial Insomnia doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fatal Familial Insomnia doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. 

      Why is it important to get a second opinion from a different Fatal Familial Insomnia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fatal Familial Insomnia doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fatal Familial Insomnia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fatal Familial Insomnia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fatal Familial Insomnia doctors near me?

      Look for the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fatal Familial Insomnia doctor that offers video calls?

      Look for the filter feature on the left-side of the Fatal Familial Insomnia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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