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    Last Updated: 10/30/2025

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    MediFind found 20 doctor with experience in Fatal Familial Insomnia near The United States. Of these, 15 are Experienced and 2 are Advanced.

    Location
    LocationClose
    20 providers found
      Advanced in Fatal Familial Insomnia
      Advanced in Fatal Familial Insomnia

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Reder is a Neurologist in Chicago, Illinois. Dr. Reder is rated as an Advanced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Transverse Myelitis, Neuromyelitis Optica, and Gastrostomy. Dr. Reder is currently accepting new patients.

      Advanced in Fatal Familial Insomnia
      Advanced in Fatal Familial Insomnia

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Michael Geschwind is a Neurologist in San Francisco, California. Dr. Geschwind is rated as an Advanced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Creutzfeldt-Jakob Disease, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy, Olivopontocerebellar Atrophy, and Spinocerebellar Ataxia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Edgar Yepes-Correa
      Nurse Practitioner
      Nurse Practitioner

      Adrian Yepes, MSN,PMHNP-BC,RN,BS

      Ocean Ave, 
      San Francisco, CA 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Edgar Yepes-Correa is a Nurse Practitioner in San Francisco, California. His top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Generalized Anxiety Disorder (GAD), Bipolar Disorder (BPD), and Dementia.

      Learn about our expert tiers
      Paola F. Paquini
      Nurse Practitioner
      Nurse Practitioner

      Paola Paquini's Practice

      S Avalon Blvd, 
      Los Angeles, CA 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Paola Paquini practices in Los Angeles, California. Her top areas of expertise are Generalized Anxiety Disorder (GAD), Major Depression, Post-Traumatic Stress Disorder (PTSD), and Attention Deficit Hyperactivity Disorder (ADHD).

      Afi Kpakossou
      Nurse Practitioner
      Nurse Practitioner

      Afi Kpakossou, PMHNP-BC

      Clark Ave, 
      Raleigh, NC 
      Languages Spoken:
      English, Afrikaans, French
      Accepting New Patients
      Offers Telehealth

      Afi Kpakossou practices in Raleigh, North Carolina. Her top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Bipolar Disorder (BPD), Oppositional Defiant Disorder (ODD), and Major Depression. Dr. Kpakossou is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Mcv Associated Physicians

      417 N 11th St, 
      Richmond, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Taylor Haight is a Neurologist in Richmond, Virginia. Dr. Haight is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Stroke, Fatal Familial Insomnia, Cavernous Sinus Thrombosis, Transient Ischemic Attack (TIA), and Thrombectomy. Dr. Haight is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Vigilias LLC

      4610 Mews Dr, 
      Owings Mills, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Deborah Rose is a Neurologist in Owings Mills, Maryland. Dr. Rose is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Stroke, Alzheimer's Disease, and Dementia.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia
      3800 Reservoir Rd Nw, Phc, 7th Floor, 
      Washington, DC 
      Languages Spoken:
      English

      Jessica Stevens is a Neurologist in Washington, Washington, D.c.. Dr. Stevens is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Fatal Familial Insomnia, Progressive Multifocal Leukoencephalopathy, Encephalitis, and Creutzfeldt-Jakob Disease.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Sean Taylor is a Neurologist in Rochester, Minnesota. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Familial Benign Copper Deficiency, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Fatal Familial Insomnia.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Vanderbilt University Medical Center

      1301 Medical Ctr Dr, 
      Nashville, TN 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Matthew Schrag is a Neurologist in Nashville, Tennessee. Dr. Schrag is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Cerebral Amyloid Angiopathy, Stroke, Primary Localized Cutaneous Amyloidosis, Thrombectomy, and Gastrostomy. Dr. Schrag is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Yale University

      800 Howard Ave, 
      New Haven, CT 
      Languages Spoken:
      English

      Sirisha Sanamandra is a Neurologist in New Haven, Connecticut. Dr. Sanamandra is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Memory Loss, Seizures, Migraine, and Fatal Familial Insomnia.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      New York University

      111 Broadway, Fl 2, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Janet Rucker is a Neurologist in New York, New York. Dr. Rucker is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Brown Syndrome, Moebius Syndrome, Supranuclear Ocular Palsy, Movement Disorders, and Deep Brain Stimulation.

      Experienced in Fatal Familial Insomnia
      Neurology
      Experienced in Fatal Familial Insomnia
      Neurology
      Massachusetts General Hospital, 55 Fruit Street, 
      Boston, MA 
      Languages Spoken:
      English

      Mee-ohk Kim is a Neurologist in Boston, Massachusetts. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. Her top areas of expertise are Creutzfeldt-Jakob Disease, Gerstmann-Straussler-Scheinker Syndrome, Fatal Familial Insomnia, and Dementia.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia
      600 N Wolfe St, 
      Baltimore, MD 
      Languages Spoken:
      English
      Accepting New Patients

      David Zee is a Neurologist in Baltimore, Maryland. Dr. Zee is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Vertigo, Brown Syndrome, Cerebelloparenchymal Disorder 3, and Benign Paroxysmal Positional Vertigo. Dr. Zee is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      The University Of Texas Health Science Center At San Antonio

      8300 Floyd Curl Dr, 
      San Antonio, TX 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Antonio Teixeira is a Neurologist in San Antonio, Texas. Dr. Teixeira is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Chorea, Huntington Disease, Dementia, and Primary Amebic Meningoencephalitis. Dr. Teixeira is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia
      1250 S Cedar Crest Blvd Ste 405, 
      Allentown, PA 
      Languages Spoken:
      English

      Colin Smith is a Neurologist in Allentown, Pennsylvania. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Creutzfeldt-Jakob Disease, Retinal Vasculopathy with Cerebral Leukodystrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Experience:
      16+ years
      Languages Spoken:
      English, Arabic, German
      Accepting New Patients
      Offers Telehealth

      Mohamed Elkasaby is a Neurologist in Cleveland, Ohio. Dr. Elkasaby has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Cerebellar Degeneration, Movement Disorders, Alzheimer's Disease, and Primary Progressive Aphasia. Dr. Elkasaby is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Medstar Medical Group Ii LLC

      3800 Reservoir Rd Nw, 
      Washington, DC 
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Levine is a Neurologist in Washington, Washington, D.c.. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Fatal Familial Insomnia, and Hydrocephalus.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Mgmc LLC

      3800 Reservoir Rd Nw, 
      Washington, DC 
      Languages Spoken:
      English, Farsi
      Accepting New Patients
      Offers Telehealth

      Gholam Motamedi is a Neurologist in Washington, Washington, D.c.. Dr. Motamedi is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Seizures, Restless Legs Syndrome, Generalized Tonic-Clonic Seizure, and Epilepsy. Dr. Motamedi is currently accepting new patients.

      Experienced in Fatal Familial Insomnia
      Experienced in Fatal Familial Insomnia

      Johns Hopkins University

      600 N Wolfe St, Blalock 266, 
      Baltimore, MD 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Probasco is a Neurologist in Baltimore, Maryland. Dr. Probasco has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Fatal Familial Insomnia. His top areas of expertise are Encephalitis, Anti-NMDA Receptor Encephalitis, Status Epilepticus, Creutzfeldt-Jakob Disease, and Gastrostomy. Dr. Probasco is currently accepting new patients.

      Showing 1-20 of 20

      Last Updated: 10/30/2025

      What is the definition of Fatal Familial Insomnia?

      Fatal familial insomnia (FFI) affects the thalamus, the part of the brain that controls the sleep-wake cycle. The most common symptoms are sleep disturbance, psychiatric problems, weight loss, and balance problems. Other symptoms include high blood pressure, excess sweating, and difficulty controlling body temperature. These symptoms tend to get worse over time. Almost all cases of FFI occur due to a specific variant in the PRNP gene and are inherited in an autosomal dominant pattern. Diagnosis is based on the symptoms, clinical exam, sleep study, and imaging studies. The results of genetic testing can help confirm the diagnosis.

      When should I see a Fatal Familial Insomnia doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fatal Familial Insomnia doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Fatal Familial Insomnia doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fatal Familial Insomnia doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fatal Familial Insomnia doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. 

      Why is it important to get a second opinion from a different Fatal Familial Insomnia doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fatal Familial Insomnia doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fatal Familial Insomnia doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fatal Familial Insomnia doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fatal Familial Insomnia doctors in The United States?

      Look for the filter feature on the left side of the Fatal Familial Insomnia doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fatal Familial Insomnia doctor that offers video calls?

      Look for the filter feature on the left-side of the Fatal Familial Insomnia doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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