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    Last Updated: 01/09/2026

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    MediFind found 169 doctor with experience in Fibrochondrogenesis. Of these, 104 are Advanced, 60 are Experienced and 5 are Distinguished.

    Location
    LocationClose
    169 providers found
      Jeffrey W. Campbell
      Advanced in Fibrochondrogenesis
      General Surgery | Pediatrics
      Advanced in Fibrochondrogenesis
      General Surgery | Pediatrics
      2932 Springfield Road, 
      Broomall, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Campbell is a General Surgeon and a Pediatrics provider in Broomall, Pennsylvania. Dr. Campbell is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Achondroplasia, Increased Head Circumference, Spondyloepiphyseal Dysplasia, Bone Graft, and Adenoidectomy. Dr. Campbell is currently accepting new patients.

      Robert A. Heinle
      Advanced in Fibrochondrogenesis
      Pediatrics | Pediatric Pulmonology | Pulmonary Medicine
      Advanced in Fibrochondrogenesis
      Pediatrics | Pediatric Pulmonology | Pulmonary Medicine

      Nemours Children’s Health – Wilmington

      1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Heinle is a Pediatrics specialist and a Pediatric Pulmonologist in Wilmington, Delaware. Dr. Heinle is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Subglottic Stenosis, Duchenne Muscular Dystrophy, Hypochondroplasia, Osteotomy, and Adenoidectomy. Dr. Heinle is currently accepting new patients.

      Benjamin B. Rothrauff
      Advanced in Fibrochondrogenesis
      Advanced in Fibrochondrogenesis

      Atrium Health Musculoskeletal Institute Sports Medicine

      3030 Randolph Road, Suite 105-B, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Rothrauff is a Sports Medicine provider in Charlotte, North Carolina. Dr. Rothrauff is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Fibrochondrogenesis, Hypermobile Joints, Tendinitis, Osteotomy, and Endoscopy. Dr. Rothrauff is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Cambridge, ENG, GB 

      Allan Richards practices in Cambridge, United Kingdom. Mr. Richards is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Stickler Syndrome, Fountain Syndrome, Retinal Detachment, Fibrochondrogenesis, and Vitrectomy.

      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Cambridge, ENG, GB 

      Martin Snead practices in Cambridge, United Kingdom. Mr. Snead is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Stickler Syndrome, Retinal Detachment, Fountain Syndrome, Deafness Craniofacial Syndrome, and Vitrectomy.

      Distinguished in Fibrochondrogenesis
      Medical Genetics | Obstetrics and Gynecology | Neonatology
      Distinguished in Fibrochondrogenesis
      Medical Genetics | Obstetrics and Gynecology | Neonatology

      The Regents Of The University Of California

      200 Medical Plz, Suite 430, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Deborah Krakow is a Medical Genetics specialist and an Obstetrics and Gynecologist in Los Angeles, California. Dr. Krakow is rated as a Distinguished provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Osteogenesis Imperfecta, Acromicric Dysplasia, Chondrodystrophy, and Spondyloepimetaphyseal Dysplasia Strudwick Type.

      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Cambridge, ENG, GB 

      Annie Mcninch practices in Cambridge, United Kingdom. Ms. Mcninch is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Stickler Syndrome, Deafness Craniofacial Syndrome, Fibrochondrogenesis, Retinal Detachment, and Vitrectomy.

      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Al Ain, AZ, AE 

      Lihadh Gazali-Al practices in Al Ain, United Arab Emirates. Gazali-Al is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. Their top areas of expertise are VLDLR-Associated Cerebellar Hypoplasia, Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Taurinuria, and Camptodactyly Syndrome Guadalajara Type 1.

      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology
      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Billing Extracts, 
      Wilmington, DE 
      Languages Spoken:
      English

      Mary Harty is a Pediatric Radiologist and a Radiologist in Wilmington, Delaware. Dr. Harty is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Caffey Disease, X-Linked Spondyloepiphyseal Dysplasia Tarda, Kniest Dysplasia, and Spondyloenchondrodysplasia.

      Jennifer A. Hagerty
      Experienced in Fibrochondrogenesis
      Experienced in Fibrochondrogenesis
      1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Hagerty is a Pediatrics provider in Wilmington, Delaware. Dr. Hagerty is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Posterior Urethral Valves, Undescended Testicle, Testicular Torsion, Loin Pain Hematuria Syndrome, and Gastrostomy. Dr. Hagerty is currently accepting new patients.

      Puneeta Ramachandra
      Experienced in Fibrochondrogenesis
      Pediatrics | Urology
      Experienced in Fibrochondrogenesis
      Pediatrics | Urology
      1280 Almonesson Road, 
      Deptford, NJ 
      Languages Spoken:
      English
      Accepting New Patients

      Puneeta Ramachandra is a Pediatrics specialist and an Urologist in Deptford, New Jersey. Dr. Ramachandra is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Renal Tubular Dysgenesis, Testicular Torsion, Diphallia, Lithotripsy, and Ureteroscopy. Dr. Ramachandra is currently accepting new patients.

      Robert Smigiel
      Advanced in Fibrochondrogenesis
      Advanced in Fibrochondrogenesis
      Wroclaw, DS, PL 

      Robert Smigiel practices in Wroclaw, Poland. Mr. Smigiel is rated as an Advanced expert by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Hypotonia, Esophageal Atresia, Tracheoesophageal Fistula, and Choanal Atresia.

      Experienced in Fibrochondrogenesis
      Pediatric Cardiology
      Experienced in Fibrochondrogenesis
      Pediatric Cardiology

      Nemours Children's Hospital Delaware

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Takeshi Tsuda is a Pediatric Cardiologist in Wilmington, Delaware. Dr. Tsuda is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Duchenne Muscular Dystrophy, Anomalous Left Coronary Artery from the Pulmonary Artery, Patent Ductus Arteriosus, and Transposition of the Great Arteries.

      Experienced in Fibrochondrogenesis
      Experienced in Fibrochondrogenesis

      Nemours DuPont Hospital For Children

      1600 Rockland Road, Department Of, 
      Wilmington, DE 
      Experience:
      40+ years
      Languages Spoken:
      English

      Maura Mcmanus is a Pediatrics provider in Wilmington, Delaware. Dr. Mcmanus has been practicing medicine for over 40 years and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Mucopolysaccharidoses (MPS), Chondrodystrophy, Early Infantile Epileptic Encephalopathy, and Microcephaly Deafness Syndrome.

      Advanced in Fibrochondrogenesis
      Pediatric Orthopedics | Orthopedics
      Advanced in Fibrochondrogenesis
      Pediatric Orthopedics | Orthopedics

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      William Mackenzie is a Pediatric Orthopedics specialist and an Orthopedics provider in Wilmington, Delaware. Dr. Mackenzie is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Fibrochondrogenesis, Kyphomelic Dysplasia, Mucopolysaccharidoses (MPS), and Kniest Dysplasia. Dr. Mackenzie is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Nurse Practitioner
      Advanced in Fibrochondrogenesis
      Nurse Practitioner
      13535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Colleen Ditro is a Nurse Practitioner in Orlando, Florida. Ms. Ditro is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Kniest Dysplasia, Spondyloepiphyseal Dysplasia Congenita, Weissenbacher-Zweymuller Syndrome, Dyggve-Melchior-Clausen Syndrome, and Osteotomy. Ms. Ditro is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Medical Genetics
      Advanced in Fibrochondrogenesis
      Medical Genetics
      A.i. Dupont Hospital For Children, 1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Bober is a Medical Genetics provider in Wilmington, Delaware. Dr. Bober is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Achondroplasia, Osteotomy, and Adenoidectomy. Dr. Bober is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Hospital Medicine | Pediatrics
      Advanced in Fibrochondrogenesis
      Hospital Medicine | Pediatrics

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Ricki Carroll is a Hospital Medicine specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Carroll is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Thanatophoric Dysplasia, Spondyloepiphyseal Dysplasia, Diastrophic Dysplasia, Acromicric Dysplasia, and Osteotomy. Dr. Carroll is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology
      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology

      The Nemours Foundation

      8331 N Davis Hwy, Childrens Spec Care, 
      Pensacola, FL 
      Languages Spoken:
      English

      David Saul is a Pediatric Radiologist and a Radiologist in Pensacola, Florida. Dr. Saul is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Scoliosis, and Hypochondroplasia.

      Advanced in Fibrochondrogenesis
      Orthopedics
      Advanced in Fibrochondrogenesis
      Orthopedics
      2211 North Oak Park Avenue, Shriners Hospital For Children Chicago, 
      Chicago, IL 
      Languages Spoken:
      English

      Peter Smith is an Orthopedics provider in Chicago, Illinois. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Osteogenesis Imperfecta, Acromesomelic Dysplasia Campailla Martinelli Type, Acromicric Dysplasia, and Acromesomelic Dysplasia.

      Showing 1-20 of 169

      Last Updated: 01/09/2026

      What is the definition of Fibrochondrogenesis?

      Fibrochondrogenesis is a very severe disorder of bone growth. Affected infants have a very narrow chest, which prevents the lungs from developing normally. Most infants with this condition are stillborn or die shortly after birth from respiratory failure. However, some affected individuals have lived into childhood.

      When should I see a Fibrochondrogenesis doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fibrochondrogenesis doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Fibrochondrogenesis doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fibrochondrogenesis doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fibrochondrogenesis doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrochondrogenesis doctor search results page. 

      Why is it important to get a second opinion from a different Fibrochondrogenesis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fibrochondrogenesis doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fibrochondrogenesis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fibrochondrogenesis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fibrochondrogenesis doctors near me?

      Look for the filter feature on the left side of the Fibrochondrogenesis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fibrochondrogenesis doctor that offers video calls?

      Look for the filter feature on the left-side of the Fibrochondrogenesis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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