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    Last Updated: 10/30/2025

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    MediFind found 167 doctor with experience in Fibrochondrogenesis. Of these, 101 are Advanced, 60 are Experienced and 6 are Distinguished.

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    LocationClose
    167 providers found
      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Cambridge, ENG, GB 

      Allan Richards practices in Cambridge, United Kingdom. Mr. Richards is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Stickler Syndrome, Fountain Syndrome, Retinal Detachment, Fibrochondrogenesis, and Vitrectomy.

      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Cambridge, ENG, GB 

      Martin Snead practices in Cambridge, United Kingdom. Mr. Snead is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Stickler Syndrome, Retinal Detachment, Fountain Syndrome, Deafness Craniofacial Syndrome, and Vitrectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Fibrochondrogenesis
      Infectious Disease
      Distinguished in Fibrochondrogenesis
      Infectious Disease
      1740 W Taylor St, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients

      James Cook is an Infectious Disease provider in Chicago, Illinois. Dr. Cook is rated as a Distinguished provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Fibrochondrogenesis, Nontuberculous Mycobacterial Lung Disease, Compartment Syndrome, Bone Graft, and Osteotomy. Dr. Cook is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in Fibrochondrogenesis
      Medical Genetics | Obstetrics and Gynecology | Neonatology
      Distinguished in Fibrochondrogenesis
      Medical Genetics | Obstetrics and Gynecology | Neonatology

      The Regents Of The University Of California

      200 Medical Plz, Suite 430, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Deborah Krakow is a Medical Genetics specialist and an Obstetrics and Gynecologist in Los Angeles, California. Dr. Krakow is rated as a Distinguished provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Osteogenesis Imperfecta, Acromicric Dysplasia, Chondrodystrophy, and Spondyloepimetaphyseal Dysplasia Strudwick Type.

      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Cambridge, ENG, GB 

      Annie Mcninch practices in Cambridge, United Kingdom. Ms. Mcninch is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Stickler Syndrome, Deafness Craniofacial Syndrome, Fibrochondrogenesis, Retinal Detachment, and Vitrectomy.

      Distinguished in Fibrochondrogenesis
      Distinguished in Fibrochondrogenesis
      Al Ain, AZ, AE 

      Lihadh Gazali-Al practices in Al Ain, United Arab Emirates. Gazali-Al is rated as a Distinguished expert by MediFind in the treatment of Fibrochondrogenesis. Their top areas of expertise are VLDLR-Associated Cerebellar Hypoplasia, Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Taurinuria, and Camptodactyly Syndrome Guadalajara Type 1.

      Robert Smigiel
      Advanced in Fibrochondrogenesis
      Advanced in Fibrochondrogenesis
      Wroclaw, DS, PL 

      Robert Smigiel practices in Wroclaw, Poland. Mr. Smigiel is rated as an Advanced expert by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Hypotonia, Esophageal Atresia, Tracheoesophageal Fistula, and Filippi Syndrome.

      Advanced in Fibrochondrogenesis
      Pediatric Orthopedics | Orthopedics
      Advanced in Fibrochondrogenesis
      Pediatric Orthopedics | Orthopedics
      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      William Mackenzie is a Pediatric Orthopedics specialist and an Orthopedics provider in Wilmington, Delaware. Dr. Mackenzie is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Cartilage-Hair Hypoplasia, Acromesomelic Dysplasia Hunter Thompson Type, Metatropic Dysplasia, and Desbuquois Syndrome. Dr. Mackenzie is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Nurse Practitioner
      Advanced in Fibrochondrogenesis
      Nurse Practitioner

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Colleen Ditro is a Nurse Practitioner in Wilmington, Delaware. Ms. Ditro is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Kniest Dysplasia, Otospondylomegaepiphyseal Dysplasia, Weissenbacher-Zweymuller Syndrome, Spondyloepimetaphyseal Dysplasia Joint Laxity, and Osteotomy. Ms. Ditro is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Neurosurgery | Neurology
      Advanced in Fibrochondrogenesis
      Neurosurgery | Neurology
      A.i. Dupont Hospital For Children, 1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Campbell is a Neurosurgery specialist and a Neurologist in Wilmington, Delaware. Dr. Campbell is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Achondroplasia, Increased Head Circumference, Spondyloepiphyseal Dysplasia, Bone Graft, and Adenoidectomy. Dr. Campbell is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Medical Genetics | Pediatrics
      Advanced in Fibrochondrogenesis
      Medical Genetics | Pediatrics
      A.i. Dupont Hospital For Children, 1600 Rockland Road, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Bober is a Medical Genetics specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Bober is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Achondroplasia, Osteotomy, and Adenoidectomy. Dr. Bober is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Hospital Medicine | Pediatrics
      Advanced in Fibrochondrogenesis
      Hospital Medicine | Pediatrics
      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English
      Accepting New Patients

      Ricki Carroll is a Hospital Medicine specialist and a Pediatrics provider in Wilmington, Delaware. Dr. Carroll is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Thanatophoric Dysplasia, Spondyloepiphyseal Dysplasia, Diastrophic Dysplasia, Acromicric Dysplasia, and Osteotomy. Dr. Carroll is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology
      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology

      The Nemours Foundation

      8331 N Davis Hwy, Childrens Spec Care, 
      Pensacola, FL 
      Languages Spoken:
      English

      David Saul is a Pediatric Radiologist and a Radiologist in Pensacola, Florida. Dr. Saul is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Scoliosis, and Hypochondroplasia.

      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Pediatrics
      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Pediatrics

      The Nemours Foundation

      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Mary Harty is a Pediatric Radiologist and a Pediatrics provider in Wilmington, Delaware. Dr. Harty is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are X-Linked Spondyloepiphyseal Dysplasia Tarda, CHST3-Related Skeletal Dysplasia, Dyggve-Melchior-Clausen Syndrome, and Weissenbacher-Zweymuller Syndrome.

      Advanced in Fibrochondrogenesis
      Orthopedics
      Advanced in Fibrochondrogenesis
      Orthopedics
      2211 North Oak Park Avenue, Shriners Hospital For Children Chicago, 
      Chicago, IL 
      Languages Spoken:
      English

      Peter Smith is an Orthopedics provider in Chicago, Illinois. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Osteogenesis Imperfecta, Clubfoot, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Brachydactyly Mononen Type.

      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology
      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology
      500 University Dr, 
      Hershey, PA 
      Languages Spoken:
      English

      Michael Moore is a Pediatric Radiologist and a Radiologist in Hershey, Pennsylvania. Dr. Moore is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Scoliosis, Hypochondroplasia, and Septoplasty.

      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology
      Advanced in Fibrochondrogenesis
      Pediatric Radiology | Radiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English

      Grace Guo is a Pediatric Radiologist and a Radiologist in Orlando, Florida. Dr. Guo is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Atelosteogenesis Type 2, and Diastrophic Dysplasia.

      Advanced in Fibrochondrogenesis
      Advanced in Fibrochondrogenesis
      3101 S. W. Sam Jackson Park Rd., 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Bernstein is an Orthopedics provider in Portland, Oregon. Dr. Bernstein is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Singleton-Merten Syndrome, Greenberg Dysplasia, Myhre Syndrome, and Multicentric Carpotarsal Osteolysis Syndrome. Dr. Bernstein is currently accepting new patients.

      Advanced in Fibrochondrogenesis
      Advanced in Fibrochondrogenesis
      300 Longwood Ave, Children's Hosp. - Orthopaedics, 
      Boston, MA 
      Languages Spoken:
      English

      Samantha Spencer is an Orthopedics provider in Boston, Massachusetts. Dr. Spencer is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Acromicric Dysplasia, Brachydactyly Mononen Type, Chondrodystrophy, Achondroplasia, and Osteotomy.

      Advanced in Fibrochondrogenesis
      Physician Assistant
      Advanced in Fibrochondrogenesis
      Physician Assistant
      1600 Rockland Rd, 
      Wilmington, DE 
      Languages Spoken:
      English

      Sarah Little is a Physician Assistant in Wilmington, Delaware. Ms. Little is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Hypochondroplasia, Kozlowski Warren Fisher Syndrome, Thanatophoric Dysplasia, and Metatropic Dysplasia.

      Showing 1-20 of 167

      Last Updated: 10/30/2025

      What is the definition of Fibrochondrogenesis?

      Fibrochondrogenesis is a very severe disorder of bone growth. Affected infants have a very narrow chest, which prevents the lungs from developing normally. Most infants with this condition are stillborn or die shortly after birth from respiratory failure. However, some affected individuals have lived into childhood.

      When should I see a Fibrochondrogenesis doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Fibrochondrogenesis doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Fibrochondrogenesis doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Fibrochondrogenesis doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Fibrochondrogenesis doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrochondrogenesis doctor search results page. 

      Why is it important to get a second opinion from a different Fibrochondrogenesis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Fibrochondrogenesis doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Fibrochondrogenesis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Fibrochondrogenesis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Fibrochondrogenesis doctors near me?

      Look for the filter feature on the left side of the Fibrochondrogenesis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Fibrochondrogenesis doctor that offers video calls?

      Look for the filter feature on the left-side of the Fibrochondrogenesis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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