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    Last Updated: 03/06/2025

     
     
     
     
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    • Excellent at diagnosing and treating conditions.
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    MediFind found 17 doctor with experience in Fibrochondrogenesis. Of these, 8 are Advanced, 8 are Experienced and 1 are Distinguished.

    Location:
    17 providers found
    Distinguished in Fibrochondrogenesis
    Medical Genetics | Obstetrics and Gynecology | Neonatology
    Distinguished in Fibrochondrogenesis
    Medical Genetics | Obstetrics and Gynecology | Neonatology

    The Regents Of The University Of California

    200 Medical Plaza, 
    Los Angeles, CA 
     (2476.5 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Deborah Krakow is a Medical Genetics specialist and an Obstetrics and Gynecologist in Los Angeles, California. Dr. Krakow and is rated as a Distinguished provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Osteogenesis Imperfecta, Acromicric Dysplasia, Fibrochondrogenesis, and Chondrodystrophy.

    Advanced in Fibrochondrogenesis
    Geriatrics | Internal Medicine
    Advanced in Fibrochondrogenesis
    Geriatrics | Internal Medicine

    Henry Ford Health System

    2799 W Grand Blvd, 
    Detroit, MI 
     (498.5 mi)
    Languages Spoken:
    English, Hindi, Punjabi
    Accepting New Patients

    Jasdeep Sidhu is a Geriatrics specialist and an Internal Medicine provider in Detroit, Michigan. Dr. Sidhu and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Metatropic Dysplasia, Kozlowski Spondylometaphyseal Dysplasia, Fibrochondrogenesis, and Pseudoachondroplasia. Dr. Sidhu is currently accepting new patients.

    What does Elite, Distinguished, Advanced, Experienced mean?
    Advanced in Fibrochondrogenesis
    Family Medicine
    Advanced in Fibrochondrogenesis
    Family Medicine
    377 Gallimore Rd, Brevard, 
    Brevard, NC 
     (638.7 mi)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    James Shaw is a Family Medicine provider in Brevard, North Carolina. Dr. Shaw and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Chronic Pain, Kozlowski Spondylometaphyseal Dysplasia, Spondyloepimetaphyseal Dysplasia Strudwick Type, and Pseudoachondroplasia. Dr. Shaw is currently accepting new patients.

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    Advanced in Fibrochondrogenesis
    Family Medicine
    Advanced in Fibrochondrogenesis
    Family Medicine
    540 Hospital Dr, 
    Winamac, IN 
     (677.6 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Rex Allman is a Family Medicine provider in Winamac, Indiana. Dr. Allman and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Fibrochondrogenesis, Kozlowski Spondylometaphyseal Dysplasia, Leri-Weill Dyschondrosteosis, and Metatropic Dysplasia. Dr. Allman is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Nurse Practitioner
    Advanced in Fibrochondrogenesis
    Nurse Practitioner
    100 Commercial Dr, 
    Keystone Heights, FL 
     (910.6 mi)
    Languages Spoken:
    English

    Betty Krause is a Nurse Practitioner in Keystone Heights, Florida. Krause and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Spondyloepimetaphyseal Dysplasia Strudwick Type, Kozlowski Spondylometaphyseal Dysplasia, Pseudoachondroplasia, and Leri-Weill Dyschondrosteosis.

    Advanced in Fibrochondrogenesis
    Family Medicine
    Advanced in Fibrochondrogenesis
    Family Medicine
    1600 Sw Archer Rd, 
    Gainesville, FL 
     (928.6 mi)
    Languages Spoken:
    English
    Accepting New Patients

    George Samraj is a Family Medicine provider in Gainesville, Florida. Dr. Samraj and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Pseudoachondroplasia, Metatropic Dysplasia, Spondyloepimetaphyseal Dysplasia Strudwick Type, and Fibrochondrogenesis. Dr. Samraj is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Advanced in Fibrochondrogenesis
    180 S Frontage Rd W, 
    Vail, CO 
     (1719.9 mi)
    Languages Spoken:
    English

    Benjamin Rothrauff is a Sports Medicine provider in Vail, Colorado. Dr. Rothrauff and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Fibrochondrogenesis, Hypermobile Joints, Tendinitis, and Endoscopy.

    Advanced in Fibrochondrogenesis
    Nurse Practitioner
    Advanced in Fibrochondrogenesis
    Nurse Practitioner

    Ampla Health

    680 Cohasset Rd, 
    Chico, CA 
     (2508.4 mi)
    Experience:
    16+ years
    Languages Spoken:
    English

    Nou Her is a Nurse Practitioner in Chico, California. Her has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Metatropic Dysplasia, Leri-Weill Dyschondrosteosis, Fibrochondrogenesis, and Spondyloepimetaphyseal Dysplasia Strudwick Type.

    Advanced in Fibrochondrogenesis
    Sports Medicine | Orthopedics
    Advanced in Fibrochondrogenesis
    Sports Medicine | Orthopedics

    Stanford Health Care

    420 Broadway St, 
    Redwood City, CA 
     (2578.9 mi)
    Languages Spoken:
    English
    Offers Telehealth

    Seth Sherman is a Sports Medicine specialist and an Orthopedics provider in Redwood City, California. Dr. Sherman and is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Hypermobile Joints, Osteoarthritis, Knock Knees, Osteotomy, and Shoulder Arthroscopy.

    Experienced in Fibrochondrogenesis
    Medical Genetics | Pediatrics
    Experienced in Fibrochondrogenesis
    Medical Genetics | Pediatrics
    200 Hawkins Dr, 
    Iowa City, IA 
     (931.2 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Safina is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Safina and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Split Hand Foot Malformation, AEC Syndrome, Nicolaides-Baraitser Syndrome, and Aase Syndrome. Dr. Safina is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Experienced in Fibrochondrogenesis

    Sports And Orthopedic Rehabilitation Services Inc

    5347 Main St, 
    New Port Richey, FL 
     (1023.9 mi)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Steven Lyons is an Orthopedics provider in New Port Richey, Florida. Dr. Lyons and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Osteoarthritis, Acute Pain, Infectious Arthritis, Knee Replacement, and Osteotomy. Dr. Lyons is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Neurosurgery
    Experienced in Fibrochondrogenesis
    Neurosurgery

    Specialty Associates Of West Houston PLLC

    800 Peakwood Dr, Suite 5f, 
    Houston, TX 
     (1439.7 mi)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Juan Martin is a Neurosurgery provider in Houston, Texas. Dr. Martin and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Leri-Weill Dyschondrosteosis, Pseudoachondroplasia, Kozlowski Spondylometaphyseal Dysplasia, and Fibrochondrogenesis. Dr. Martin is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Family Medicine
    Experienced in Fibrochondrogenesis
    Family Medicine
    4343 Fairmont Pkwy, 
    Pasadena, TX 
     (1443.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Alberto Romero is a Family Medicine provider in Pasadena, Texas. Dr. Romero and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Nephrosclerosis, Renovascular Hypertension, Leri-Weill Dyschondrosteosis, and Metatropic Dysplasia. Dr. Romero is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Experienced in Fibrochondrogenesis

    Baylor St Lukes Medical Group

    6624 Fannin St, Suite 1240, 
    Houston, TX 
     (1451.1 mi)
    Languages Spoken:
    English
    Accepting New Patients

    David Randall is an Orthopedics provider in Houston, Texas. Dr. Randall and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Osteoarthritis, Bursitis, Tenosynovitis, Tendinitis, and Hip Replacement. Dr. Randall is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Pediatrics | Medical Genetics
    Experienced in Fibrochondrogenesis
    Pediatrics | Medical Genetics
    6701 Fannin St, 
    Houston, TX 
     (1451.2 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Carlos Bacino is a Pediatrics specialist and a Medical Genetics provider in Houston, Texas. Dr. Bacino and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Achondroplasia, Angelman Syndrome, Miller-Dieker Syndrome, and Lissencephaly 1. Dr. Bacino is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Experienced in Fibrochondrogenesis

    Houston Radiology Associated

    18500 Katy Fwy, 
    Houston, TX 
     (1461.7 mi)
    Languages Spoken:
    English
    Accepting New Patients

    Roger Selouan is a Radiologist in Houston, Texas. Dr. Selouan and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. His top areas of expertise are Normal Pressure Hydrocephalus, Herniated Disk, Sacroiliac Joint Disease, Bone Graft, and Vertebroplasty. Dr. Selouan is currently accepting new patients.

    Experienced in Fibrochondrogenesis
    Medical Genetics | Pediatrics
    Experienced in Fibrochondrogenesis
    Medical Genetics | Pediatrics

    Kapiolani Medical Specialists

    1319 Punahou St, 
    Honolulu, HI 
     (4975.3 mi)
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients

    Sophia Hufnagel is a Medical Genetics specialist and a Pediatrics provider in Honolulu, Hawaii. Dr. Hufnagel has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Fibrochondrogenesis. Her top areas of expertise are Cockayne Syndrome, Holoprosencephaly, Micrognathia, and Hypotonia. Dr. Hufnagel is currently accepting new patients.

    Showing 1-17 of 17

    Last Updated: 03/06/2025

    What is the definition of Fibrochondrogenesis?

    Fibrochondrogenesis is a very severe disorder of bone growth. Affected infants have a very narrow chest, which prevents the lungs from developing normally. Most infants with this condition are stillborn or die shortly after birth from respiratory failure. However, some affected individuals have lived into childhood.

    When should I see a Fibrochondrogenesis doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fibrochondrogenesis doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fibrochondrogenesis doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fibrochondrogenesis doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fibrochondrogenesis doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrochondrogenesis doctor search results page. 

    Why is it important to get a second opinion from a different Fibrochondrogenesis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fibrochondrogenesis doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fibrochondrogenesis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fibrochondrogenesis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fibrochondrogenesis doctors near me?

    Look for the filter feature on the left side of the Fibrochondrogenesis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fibrochondrogenesis doctor that offers video calls?

    Look for the filter feature on the left-side of the Fibrochondrogenesis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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