The 20 Best Fibrochondrogenesis Doctors in The United States

Find the Top Fibrochondrogenesis Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 91 doctor with experience in Fibrochondrogenesis near The United States. Of these, 56 are Experienced, 33 are Advanced and 2 are Distinguished.

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91 providers found
    Distinguished in Fibrochondrogenesis
    Medical Genetics | Obstetrics and Gynecology | Neonatology
    Distinguished in Fibrochondrogenesis
    Medical Genetics | Obstetrics and Gynecology | Neonatology
    Referral may be required

    The Regents Of The University Of California

    200 Medical Plaza, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Deborah Krakow is a Medical Genetics specialist and an Obstetrics and Gynecologist practicing medicine in Los Angeles, California. Dr. Krakow is rated as a Distinguished provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Osteogenesis Imperfecta, Chondrodystrophy, Acromicric Dysplasia, and Acrofacial Dysostosis Catania Type.

    Distinguished in Fibrochondrogenesis
    Infectious Disease
    Distinguished in Fibrochondrogenesis
    Infectious Disease
    Referral may be required

    Loyola University Medical Center

    2160 S 1st Ave, 
    Maywood, IL 
    Languages Spoken:
    English
    Accepting New Patients

    James Cook is an Infectious Disease provider practicing medicine in Maywood, Illinois. Dr. Cook is rated as a Distinguished provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Fibrochondrogenesis, Nontuberculous Mycobacterial Lung Disease, Methicillin-Resistant Staphylococcus Aureus (MRSA), Bone Graft, and Osteotomy. Dr. Cook is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Advanced in Fibrochondrogenesis
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients

    William Mackenzie is an Orthopedics provider practicing medicine in Orlando, Florida. Dr. Mackenzie is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Craniometaphyseal Dysplasia, Mucopolysaccharidoses (MPS), Kyphomelic Dysplasia, and Spondyloepimetaphyseal Dysplasia Joint Laxity. Dr. Mackenzie is board certified in American Board Of Orthopaedic Surgery. Dr. Mackenzie is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Fibrochondrogenesis
    Advanced in Fibrochondrogenesis
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Colleen Ditro is an Orthopedics provider practicing medicine in Orlando, Florida. Dr. Ditro is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 56 other conditions, according to our data. Her clinical expertise encompasses Metatropic Dysplasia, Achondroplasia, X-Linked Spondyloepiphyseal Dysplasia Tarda, Spinal Fusion, and Osteotomy. Dr. Ditro is board certified in Pediatric Nursing Certification Board. Dr. Ditro is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Neurosurgery | Pediatrics | General Surgery
    Advanced in Fibrochondrogenesis
    Neurosurgery | Pediatrics | General Surgery
    Referral may be required
    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Jeffrey Campbell is a Neurosurgery specialist and a Pediatrics provider practicing medicine in Wilmington, Delaware. Dr. Campbell is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 82 other conditions, according to our data. His clinical expertise encompasses Achondroplasia, Increased Head Circumference, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Spinal Fusion, and Bone Graft. Dr. Campbell is board certified in American Board Of Neurological Surgery, American Board Of Pediatric Neurological Surgery, Pediatric Neurological Surgery, Neurological Surgery, and American Board Of Neurological Surgery, Neurological Surgery. Dr. Campbell is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Medical Genetics
    Advanced in Fibrochondrogenesis
    Medical Genetics
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Bober is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Bober is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 70 other conditions, according to our data. His clinical expertise encompasses Microcephalic Osteodysplastic Primordial Dwarfism Type 2 (MOPD2), Microcephalic Osteodysplastic Primordial Dwarfism Type 1 (MOPD1), Achondroplasia, Osteotomy, and Spinal Fusion. Dr. Bober is board certified in American Board Of Medical Genetics And Genomics. Dr. Bober is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Medical Genetics
    Advanced in Fibrochondrogenesis
    Medical Genetics
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Ricki Carroll is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Carroll is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 65 other conditions, according to our data. Her clinical expertise encompasses Achondroplasia, Thanatophoric Dysplasia, Spondyloepiphyseal Dysplasia, Osteotomy, and Spinal Fusion. Dr. Carroll is board certified in American Board Of Pediatrics. Dr. Carroll is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    17+ years
    Languages Spoken:
    English

    David Saul is a Pediatric Radiologist and a Radiologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 17 years. Dr. Saul is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 118 other conditions, according to our data. His clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Scoliosis, Hypochondroplasia, and Angioplasty. Dr. Saul is board certified in American Board Of Radiology.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Health, Downtown Orlando

    1717 S. Orange Ave., 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Mary Harty is a Pediatric Radiologist and a Radiologist practicing medicine in Orlando, Florida. Dr. Harty is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 93 other conditions, according to our data. Her clinical expertise encompasses X-Linked Spondyloepiphyseal Dysplasia Tarda, Caffey Disease, Spondyloepiphyseal Dysplasia, and Spondyloenchondrodysplasia. Dr. Harty is board certified in American Board Of Radiology and American Board Of Radiology, Diagnostic Radiology. Dr. Harty is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Moore is a Pediatric Radiologist and a Radiologist practicing medicine in Wilmington, Delaware. Dr. Moore is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 86 other conditions, according to our data. His clinical expertise encompasses Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Scoliosis, and Hypochondroplasia. Dr. Moore is board certified in American Board Of Radiology. Dr. Moore is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Health, Jacksonville

    807 Children's Way, 
    Jacksonville, FL 
    Languages Spoken:
    English, Mandarin

    Grace Guo is a Pediatric Radiologist and a Radiologist practicing medicine in Jacksonville, Florida. Dr. Guo is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 84 other conditions, according to our data. Her clinical expertise encompasses Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Diastrophic Dysplasia, and Atelosteogenesis Type 2. Dr. Guo is board certified in American Board Of Radiology.

    Advanced in Fibrochondrogenesis
    Medical Genetics
    Advanced in Fibrochondrogenesis
    Medical Genetics
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Sarah Little is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Little is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Osteogenesis Imperfecta, Hypochondroplasia, Achondroplasia, and Kozlowski Warren Fisher Syndrome. Dr. Little is board certified in National Commission On Certification Of Physician Assistants.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Health, Jacksonville

    807 Children's Way, 
    Jacksonville, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kerry Bron is a Pediatric Radiologist and a Radiologist practicing medicine in Jacksonville, Florida. Dr. Bron is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Otospondylomegaepiphyseal Dysplasia, and Weissenbacher-Zweymuller Syndrome. Dr. Bron is board certified in American Board Of Radiology. Dr. Bron is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pulmonary Medicine | Pediatric Pulmonology
    Advanced in Fibrochondrogenesis
    Pulmonary Medicine | Pediatric Pulmonology
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Heinle is a Pulmonary Medicine specialist and a Pediatric Pulmonologist practicing medicine in Wilmington, Delaware. Dr. Heinle is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Subglottic Stenosis, Duchenne Muscular Dystrophy, Hypochondroplasia, Osteotomy, and Spinal Fusion. Dr. Heinle is board certified in Pediatrics, Pulmonary, Sleep Medicine, Internal Medicine, and American Board Of Pediatrics. Dr. Heinle is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, Urdu
    Accepting New Patients
    Offers Telehealth

    Faaiza Kazmi is a Pediatric Radiologist and a Radiologist practicing medicine in Orlando, Florida. Dr. Kazmi is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 70 other conditions, according to our data. Her clinical expertise encompasses Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Scoliosis, Short Stature (Growth Disorders), and Small Bowel Resection. Dr. Kazmi is board certified in American Board Of Radiology. Dr. Kazmi is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Advanced in Fibrochondrogenesis
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Alicia Mccarthy is an Orthopedics provider practicing medicine in Wilmington, Delaware. Dr. Mccarthy is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Metatropic Dysplasia, Leri-Weill Dyschondrosteosis, Pseudoachondroplasia, Spondyloepimetaphyseal Dysplasia Strudwick Type, and Spinal Fusion. Dr. Mccarthy is board certified in Pediatric Nursing Certification Board. Dr. Mccarthy is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pulmonary Medicine
    Advanced in Fibrochondrogenesis
    Pulmonary Medicine
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Vandna Passi is a Pulmonary Medicine provider practicing medicine in Wilmington, Delaware. Dr. Passi is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Subglottic Stenosis, Ellis-Van Creveld Syndrome, Kozlowski Warren Fisher Syndrome, and Thanatophoric Dysplasia. Dr. Passi is board certified in American Board Of Pediatrics. Dr. Passi is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Medical Genetics
    Advanced in Fibrochondrogenesis
    Medical Genetics
    Referral may be required

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English
    Accepting New Patients

    Mahim Jain is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Jain is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 138 other conditions, according to our data. His clinical expertise encompasses Osteogenesis Imperfecta, Miller-Dieker Syndrome, Lissencephaly 1, and Spondyloepimetaphyseal Dysplasia Strudwick Type. Dr. Jain is board certified in American Board Of Medical Genetics And Genomics. Dr. Jain is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Advanced in Fibrochondrogenesis
    Pediatric Radiology | Radiology
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Kathleen Schenker is a Pediatric Radiologist and a Radiologist practicing medicine in Orlando, Florida. She has been practicing medicine for over 17 years. Dr. Schenker is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. She is also highly rated in 93 other conditions, according to our data. Her clinical expertise encompasses Osteoporosis-Pseudoglioma Syndrome, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Short Stature (Growth Disorders), and Gastrostomy. Dr. Schenker is board certified in American Board Of Radiology. Dr. Schenker is currently accepting new patients.

    Advanced in Fibrochondrogenesis
    Pediatric Orthopedics
    Advanced in Fibrochondrogenesis
    Pediatric Orthopedics
    Referral may be required

    Shriners Hospitals For Children-Chicago

    2211 N Oak Park Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Peter Smith is a Pediatric Orthopedics provider practicing medicine in Chicago, Illinois. Dr. Smith is rated as an Advanced provider by MediFind in the treatment of Fibrochondrogenesis. He is also highly rated in 67 other conditions, according to our data. His clinical expertise encompasses Clubfoot, Acromicric Dysplasia, Greenberg Dysplasia, and Desbuquois Syndrome.

    Showing 1-20 of 91

    Last Updated: 11/08/2026

    What is the definition of Fibrochondrogenesis?

    Fibrochondrogenesis is a very severe disorder of bone growth. Affected infants have a very narrow chest, which prevents the lungs from developing normally. Most infants with this condition are stillborn or die shortly after birth from respiratory failure. However, some affected individuals have lived into childhood.

    When should I see a Fibrochondrogenesis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fibrochondrogenesis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fibrochondrogenesis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fibrochondrogenesis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fibrochondrogenesis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fibrochondrogenesis doctor search results page. 

    Why is it important to get a second opinion from a different Fibrochondrogenesis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fibrochondrogenesis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fibrochondrogenesis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fibrochondrogenesis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fibrochondrogenesis doctors in The United States?

    Look for the filter feature on the left side of the Fibrochondrogenesis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fibrochondrogenesis doctor that offers video calls?

    Look for the filter feature on the left-side of the Fibrochondrogenesis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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