The 20 Best Filippi Syndrome Doctors Near Me in Indianapolis, IN

Find the Top Filippi Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 43 doctor with experience in Filippi Syndrome near Indianapolis, IN. Of these, 32 are Experienced and 11 are Advanced.

Location
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43 providers found
    Advanced in Filippi Syndrome
    Advanced in Filippi Syndrome

    Iu Health Dermatology-Downtown Indianapolis

    550 University Blvd Ste 3240, 
    Indianapolis, IN 
     (1.1 miles away)
    Languages Spoken:
    English

    Anita Haggstrom is a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Haggstrom is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 135 other conditions, according to our data. Her clinical expertise encompasses Hemangioma, Vascular Birthmark, Aplasia Cutis Congenita, PHACE Syndrome, and Tissue Biopsy.

    Experienced in Filippi Syndrome
    Experienced in Filippi Syndrome

    Office

    355 W 16th St Ste 3200, 
    Indianapolis, IN 
     (1.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dragos Sabau is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Sabau is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), and Epilepsy.

    Experienced in Filippi Syndrome
    Neurology
    Experienced in Filippi Syndrome
    Neurology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Lisa Smith is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 57 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Seizures, and Tuberous Sclerosis.

    Learn about our expert tiers
    Experienced in Filippi Syndrome
    Experienced in Filippi Syndrome

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Deborah Sokol is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Sokol is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Seizures, Partial Familial Epilepsy, Memory Loss, and Partial Seizure.

    Experienced in Filippi Syndrome
    Experienced in Filippi Syndrome

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Marcia Felker is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Felker is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy Type 1, Duchenne Muscular Dystrophy, Seizures, and Spinal Muscular Atrophy Type 2.

    Experienced in Filippi Syndrome
    Pediatric Cardiology
    Experienced in Filippi Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Robert Darragh is a Pediatric Cardiologist practicing medicine in Indianapolis, Indiana. Dr. Darragh is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Tricuspid Atresia, Tetralogy of Fallot, Double Inlet Left Ventricle, Heart Transplant, and Thymectomy.

    Experienced in Filippi Syndrome
    Pediatric Cardiology
    Experienced in Filippi Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Timothy Cordes is a Pediatric Cardiologist practicing medicine in Indianapolis, Indiana. Dr. Cordes is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 45 other conditions, according to our data. His clinical expertise encompasses Transposition of the Great Arteries, Isthmian Coarctation, Coarctation of the Aorta, and Hypoplastic Left Heart Syndrome (HLHS).

    Experienced in Filippi Syndrome
    Pediatric Cardiology
    Experienced in Filippi Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    John Parent is a Pediatric Cardiologist practicing medicine in Indianapolis, Indiana. Dr. Parent is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 64 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Pulmonary Valve Stenosis, RASopathies, Duchenne Muscular Dystrophy, and Heart Transplant.

    Experienced in Filippi Syndrome
    Pediatric Cardiology
    Experienced in Filippi Syndrome
    Pediatric Cardiology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Tiffanie Johnson is a Pediatric Cardiologist practicing medicine in Indianapolis, Indiana. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Isthmian Coarctation, Coarctation of the Aorta, Pulmonary Supravalvular Stenosis, and Pulmonary Valve Stenosis.

    Experienced in Filippi Syndrome
    Experienced in Filippi Syndrome

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Derryl Miller is a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Partial Familial Epilepsy, Partial Seizure, Continuous Spike-Wave During Slow Sleep Syndrome, and Photosensitive Epilepsy.

    Experienced in Filippi Syndrome
    Pediatric Endocrinology
    Experienced in Filippi Syndrome
    Pediatric Endocrinology

    Riley Hospital For Children At Indiana University Health

    705 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Alexander Tuttle is a Pediatric Endocrinologist practicing medicine in Indianapolis, Indiana. Dr. Tuttle is rated as an Experienced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Type 1 Diabetes (T1D), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Short Stature (Growth Disorders).

    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    550 University Blvd, 
    Indianapolis, IN 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Gabrielle Geddes is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Geddes is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 99 other conditions, according to our data. Her clinical expertise encompasses Costello Syndrome, Hemihyperplasia, RASopathies, Polysyndactyly Cardiac Malformation, and Gastrostomy. Dr. Geddes is currently accepting new patients.

    Advanced in Filippi Syndrome
    Medical Genetics
    Advanced in Filippi Syndrome
    Medical Genetics
    1002 Wishard Blvd, 
    Indianapolis, IN 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Evan-jacob Garcia is a Medical Genetics provider practicing medicine in Indianapolis, Indiana. Dr. Garcia is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 141 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Microcephaly, Micrognathia, and Stickler Syndrome. Dr. Garcia is currently accepting new patients.

    Advanced in Filippi Syndrome
    Pediatrics | Developmental and Behavioral Pediatrics | Pediatric Neurology
    Advanced in Filippi Syndrome
    Pediatrics | Developmental and Behavioral Pediatrics | Pediatric Neurology

    Office

    1002 Wishard Blvd, 
    Indianapolis, IN 
     (1.2 miles away)
    Languages Spoken:
    English

    Matthew Miller is a Pediatrics specialist and a Developmental and Behavioral Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Miller is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 126 other conditions, according to our data. His clinical expertise encompasses Aphantasia, Stereotypic Movement Disorder, Spasmus Nutans, and Cerebral Palsy.

    Advanced in Filippi Syndrome
    Pediatrics | Pediatric Neurology | Neurology
    Advanced in Filippi Syndrome
    Pediatrics | Pediatric Neurology | Neurology

    Indiana University Med Ctr Homecare

    575 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English

    Celanie Christensen is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Indianapolis, Indiana. Dr. Christensen is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 124 other conditions, according to our data. Her clinical expertise encompasses Aphantasia, Fetal Akinesia Sequence, Van Maldergem Syndrome, and Bardet-Biedl Syndrome.

    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    575 Riley Hospital Dr, 
    Indianapolis, IN 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Ware is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Ware is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 89 other conditions, according to our data. Her clinical expertise encompasses KBG Syndrome, Arachnodactyly, Costello Syndrome, and Isolated Ectopia Lentis. Dr. Ware is currently accepting new patients.

    Advanced in Filippi Syndrome
    Pediatric Neurology | Neurology
    Advanced in Filippi Syndrome
    Pediatric Neurology | Neurology

    Iu Health Medical Group LLC

    1701 N Senate Blvd, 
    Indianapolis, IN 
     (1.5 miles away)
    Languages Spoken:
    English

    Laurence Walsh is a Pediatric Neurologist and a Neurologist practicing medicine in Indianapolis, Indiana. Dr. Walsh is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 182 other conditions, according to our data. His clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Seizures, Neurofibromatosis, and Partial Familial Epilepsy.

    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics

    Iu Health Medical Group LLC

    1701 N Senate Blvd, 
    Indianapolis, IN 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Theodore Wilson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. He is also highly rated in 165 other conditions, according to our data. His clinical expertise encompasses AEC Syndrome, EEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and Clouston Syndrome. Dr. Wilson is currently accepting new patients.

    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics

    Iu Health Medical Group LLC

    1701 N Senate Blvd, 
    Indianapolis, IN 
     (1.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Melissa Lah is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Lah is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 132 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Prader-Willi Syndrome, Maternal Hyperphenylalaninemia, and Miller-Dieker Syndrome. Dr. Lah is currently accepting new patients.

    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics
    Advanced in Filippi Syndrome
    Medical Genetics | Pediatrics

    Iu Health Medical Group LLC

    1701 N Senate Ave, 
    Indianapolis, IN 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Molly Mcpheron is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Mcpheron is rated as an Advanced provider by MediFind in the treatment of Filippi Syndrome. She is also highly rated in 135 other conditions, according to our data. Her clinical expertise encompasses Ornithine Transcarbamylase Deficiency, Pompe Disease, Phenylketonuria (PKU), and Danon Disease. Dr. Mcpheron is currently accepting new patients.

    Showing 1-20 of 43

    Last Updated: 04/28/2026

    What is the definition of Filippi Syndrome?

    Filippi syndrome is present at birth and impacts the development of the head, face, and limbs. Signs and symptoms include a small head (microcephaly), webbing of the fingers and toes (syndactyly), intellectual disability, growth delay, and distinctive facial features (high and broad nasal bridge, thin nostrils, small chin or micrognathia, and a high frontal hairline). Other features may can include vision problems, extra fingers and toes, and seizures. Because Filippi syndrome is very rare, it is not known how this condition changes over time. Filippi syndrome is caused by a genetic variant in the CKAP2L gene and is inherited in an autosomal recessive pattern. Diagnosis is based on the symptoms, clinical exam, and may be confirmed by the results of genetic testing.

    When should I see a Filippi Syndrome doctor near Indianapolis, IN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Filippi Syndrome doctor near Indianapolis, IN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Filippi Syndrome doctors near Indianapolis, IN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Filippi Syndrome doctors near Indianapolis, IN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Filippi Syndrome doctor near Indianapolis, IN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Filippi Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Filippi Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Filippi Syndrome doctor near Indianapolis, IN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Filippi Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Filippi Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Filippi Syndrome doctors near Indianapolis, IN?

    Look for the filter feature on the left side of the Filippi Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Filippi Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Filippi Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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