The 20 Best Fucosidosis Doctors Near Me in Minnesota, US

Find the Top Fucosidosis Experts and Specialists

Last Updated: 02/22/2026

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MediFind found 8 doctor with experience in Fucosidosis near Minnesota, US. Of these, 4 are Advanced and 4 are Experienced.

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8 providers found
    Paul Orchard
    Advanced in Fucosidosis
    Hematology | Oncology
    Advanced in Fucosidosis
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Paul Orchard is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Orchard is rated as an Advanced provider by MediFind in the treatment of Fucosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

    Experienced in Fucosidosis
    Neuroradiology
    Experienced in Fucosidosis
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist in Minneapolis, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Fucosidosis. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    Advanced in Fucosidosis
    Nurse Practitioner
    Advanced in Fucosidosis
    Nurse Practitioner

    Office

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Kristen Nanke is a Nurse Practitioner in Rochester, Minnesota. Ms. Nanke is rated as an Advanced provider by MediFind in the treatment of Fucosidosis. Her top areas of expertise are Schindler Disease, Alpha Mannosidosis, Beta-Mannosidosis, and Fucosidosis.

    Learn about our expert tiers
    Advanced in Fucosidosis
    Pediatric Orthopedics
    Advanced in Fucosidosis
    Pediatric Orthopedics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Kevin Walker is a Pediatric Orthopedics provider in Saint Paul, Minnesota. Dr. Walker is rated as an Advanced provider by MediFind in the treatment of Fucosidosis. His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Beukes Familial Hip Dysplasia, Beta-Mannosidosis, and Osteotomy.

    Advanced in Fucosidosis
    Hematology | Oncology
    Advanced in Fucosidosis
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Troy Lund is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Lund is rated as an Advanced provider by MediFind in the treatment of Fucosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant.

    Experienced in Fucosidosis
    Pediatric Pulmonology
    Experienced in Fucosidosis
    Pediatric Pulmonology

    Fairview Pharmacy Services

    2512 S 7th St Fl 3, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Helena Molero is a Pediatric Pulmonologist in Minneapolis, Minnesota. Dr. Molero is rated as an Experienced provider by MediFind in the treatment of Fucosidosis. Her top areas of expertise are Congenital Unilateral Pulmonary Hypoplasia, Cerebral Hypoxia, Mucopolysaccharidoses (MPS), Obstructive Sleep Apnea, and Adenoidectomy.

    Experienced in Fucosidosis
    Hematology | Oncology
    Experienced in Fucosidosis
    Hematology | Oncology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jakub Tolar is a Hematologist and an Oncologist in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Fucosidosis. His top areas of expertise are Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

    Experienced in Fucosidosis
    Experienced in Fucosidosis

    U Of M Health Clinics And Surgery Center Inc.

    909 Fulton St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Shernan Holtan is a Hematologist in Minneapolis, Minnesota. Dr. Holtan is rated as an Experienced provider by MediFind in the treatment of Fucosidosis. Her top areas of expertise are Graft Versus Host Disease (GvHD), Chronic Graft Versus Host Disease (cGvHD), Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration.

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    Last Updated: 02/22/2026

    What is the definition of Fucosidosis?

    Fucosidosis is a condition that affects many areas of the body, especially the brain. The symptoms of fucosidosis can vary from person to person. Affected individuals have intellectual disabilities that worsen with age. Over time, people with this condition tend to lose skills they had previously learned, such as sitting, standing, walking, or talking. Additional signs and symptoms of fucosidosis can include slow growth, abnormal bone development (dysostosis multiplex), and rigid or stiff muscles (spasticity). People with fucosidosis may also have clusters of enlarged blood vessels that form small, dark red spots on the skin (angiokeratomas) and distinctive facial features that are often described as "coarse." Additional features of fucosidosis can include frequent respiratory infections, an enlarged liver and spleen (hepatosplenomegaly), and seizures.

    When should I see a Fucosidosis doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Fucosidosis doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Fucosidosis doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Fucosidosis doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Fucosidosis doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Fucosidosis doctor search results page. 

    Why is it important to get a second opinion from a different Fucosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Fucosidosis doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Fucosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Fucosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Fucosidosis doctors in Minnesota, US?

    Look for the filter feature on the left side of the Fucosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Fucosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Fucosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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