The 20 Best Gangliosidosis Doctors in The United States

Find the Top Gangliosidosis Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 69 doctor with experience in Gangliosidosis near The United States. Of these, 54 are Experienced, 11 are Advanced, 2 are Distinguished and 2 are Elite.

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69 providers found
    Elite in Gangliosidosis
    Pediatrics | Medical Genetics
    Elite in Gangliosidosis
    Pediatrics | Medical Genetics
    Referral may be required

    M Health Fairview Explorer Pediatric Specialty Clinic

    12th Flr, East Bld 2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester Whitley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Whitley is rated as an Elite provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A), and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome). Dr. Whitley is board certified in Clinical Genetics And Genomics: American Board Of Medical Genetics And Genomics, 1984 and Clinical Biochemical Genetics: American Board Of Medical Genetics And Genomics, 1984. Dr. Whitley is currently accepting new patients.

    Elite in Gangliosidosis
    Medical Genetics
    Elite in Gangliosidosis
    Medical Genetics
    Referral may be required
    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Cynthia Tifft is a Medical Genetics provider practicing medicine in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

    Distinguished in Gangliosidosis
    Distinguished in Gangliosidosis
    Referral required

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Stephen is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Stephen is rated as a Distinguished provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Spinocerebellar Ataxia Type 27, Movement Disorders, and Tay-Sachs Disease. Dr. Stephen is board certified in Neurology. Dr. Stephen is currently accepting new patients.

    Learn about our expert tiers
    Distinguished in Gangliosidosis
    Medical Genetics | Pediatrics
    Distinguished in Gangliosidosis
    Medical Genetics | Pediatrics
    Referral may be required
    10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
    Bethesda, MD 
    Languages Spoken:
    English

    William Gahl is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Bethesda, Maryland. Dr. Gahl is rated as a Distinguished provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

    Advanced in Gangliosidosis
    Neurology | Pediatric Neurology
    Advanced in Gangliosidosis
    Neurology | Pediatric Neurology
    Referral may be required

    Medical Arts Building - Columbia

    11085 Little Patuxent Parkway, Suite 210, 
    Columbia, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Adam Hartman is a Neurologist and a Pediatric Neurologist practicing medicine in Columbia, Maryland. Dr. Hartman is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Hemimegalencephaly, Seizures, Epilepsy, and Increased Head Circumference. Dr. Hartman is board certified in American Board Of Psychiatry And Neurology. Dr. Hartman is currently accepting new patients.

    Advanced in Gangliosidosis
    Medical Genetics
    Advanced in Gangliosidosis
    Medical Genetics
    Referral may be required
    3400 Computer Dr, Genzyme Genetics Mdl, 
    Westborough, MA 
    Languages Spoken:
    English

    Stephanie Hallam is a Medical Genetics provider practicing medicine in Westborough, Massachusetts. Dr. Hallam is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Tay-Sachs Disease and Gangliosidosis.

    Advanced in Gangliosidosis
    Advanced in Gangliosidosis
    Referral may be required

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeremy Schmahmann is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Schmahmann is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 77 other conditions, according to our data. His clinical expertise encompasses Spinocerebellar Ataxia, Acute Cerebellar Ataxia, Olivopontocerebellar Atrophy, Posterior Fossa Decompression, and Gastrostomy. Dr. Schmahmann is currently accepting new patients.

    Advanced in Gangliosidosis
    Advanced in Gangliosidosis
    Referral may be required

    Mayo Clinic Health System - Eau Claire

    1221 Whipple St, 
    Eau Claire, WI 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Timothy Young is a Neurologist practicing medicine in Eau Claire, Wisconsin. Dr. Young is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Distal Median Nerve Dysfunction, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Young is currently accepting new patients.

    Advanced in Gangliosidosis
    Medical Genetics
    Advanced in Gangliosidosis
    Medical Genetics
    Referral may be required
    1201 W La Veta Ave, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Walla Al-Hertani is a Medical Genetics provider practicing medicine in Orange, California. Dr. Al-Hertani is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 62 other conditions, according to our data. Her clinical expertise encompasses Von Gierke Disease, Classic Galactosemia, Andersen Disease, and Glycogen Storage Disease Type 0. Dr. Al-Hertani is currently accepting new patients.

    Advanced in Gangliosidosis
    Medical Genetics
    Advanced in Gangliosidosis
    Medical Genetics
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Raymond Wang is a Medical Genetics provider practicing medicine in Orange, California. Dr. Wang is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A), Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Mucopolysaccharidoses (MPS), and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome). Dr. Wang is currently accepting new patients.

    Advanced in Gangliosidosis
    Advanced in Gangliosidosis
    Referral may be required

    Saint Lukes Roosevelt Hospital Lab

    1000 10th Ave, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Shanna Patterson is a Neurologist practicing medicine in New York, New York. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Peripheral Neuropathy, Cramp-Fasciculation Syndrome, and Gangliosidosis. Dr. Patterson is currently accepting new patients.

    Advanced in Gangliosidosis
    Advanced in Gangliosidosis
    Referral may be required

    NYU Langone Internal Medicine Associates

    222 E 41st St, 
    New York, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Giulietta Riboldi is a Neurologist practicing medicine in New York, New York. Dr. Riboldi is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Parkinson's Disease.

    Advanced in Gangliosidosis
    Advanced in Gangliosidosis
    Referral may be required

    Office

    801 Meadows Rd Ste 103, 
    Boca Raton, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Patricio Espinosa-Prado is a Neurologist practicing medicine in Boca Raton, Florida. Dr. Espinosa-Prado is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 70 other conditions, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Memory Loss, Essential Tremor, and Gastrostomy. Dr. Espinosa-Prado is currently accepting new patients.

    Advanced in Gangliosidosis
    Neurology | Pediatric Neurology
    Advanced in Gangliosidosis
    Neurology | Pediatric Neurology
    Referral may be required
    1201 West La Veta Avenue, 
    Orange, CA 
    Languages Spoken:
    English
    Accepting New Patients

    Maija-riikka Steenari is a Neurologist and a Pediatric Neurologist practicing medicine in Orange, California. Dr. Steenari is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 158 other conditions, according to our data. Her clinical expertise encompasses Pyruvate Carboxylase Deficiency, PEPCK 1 Deficiency, Autosomal Recessive Congenital Methemoglobinemia, and Dihydrolipoamide Dehydrogenase Deficiency. Dr. Steenari is currently accepting new patients.

    Advanced in Gangliosidosis
    Advanced in Gangliosidosis
    Referral may be required

    National Institutes Of Health

    10 Center Dr Bldg 10CRC, 
    Bethesda, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Tanya Lehky is a Neurologist practicing medicine in Bethesda, Maryland. Dr. Lehky is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Giant Axonal Neuropathy, Sandhoff Disease, Chediak-Higashi Syndrome, and Peripheral Neuropathy. Dr. Lehky is currently accepting new patients.

    Experienced in Gangliosidosis
    Pediatric Neurology | Neurology
    Experienced in Gangliosidosis
    Pediatric Neurology | Neurology
    Referral may be required
    3023 Hamaker Ct, 300, 
    Fairfax, VA 
    Languages Spoken:
    English, Vietnamese
    Accepting New Patients
    Offers Telehealth

    Thanh Nguyen is a Pediatric Neurologist and a Neurologist practicing medicine in Fairfax, Virginia. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her clinical expertise encompasses GM1 Gangliosidosis, Gangliosidosis, Progressive Myoclonic Epilepsy, and Seizures. Dr. Nguyen is board certified in Pediatrics: American Board Of Pediatrics, 2009 and American Board Of Psychiatry And Neurology, 2014. Dr. Nguyen is currently accepting new patients.

    Experienced in Gangliosidosis
    Experienced in Gangliosidosis
    Referral may be required

    Neurology Consultants Of Dallas

    8390 LBJ Fwy, Ste 1000, 
    Dallas, TX 
    Languages Spoken:
    English, Latin, Spanish
    Accepting New Patients

    Steven Gerhardt is a Neurologist practicing medicine in Dallas, Texas. Dr. Gerhardt is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Stroke, Distal Median Nerve Dysfunction, Foot Drop, and Common Peroneal Nerve Dysfunction. Dr. Gerhardt is currently accepting new patients.

    Experienced in Gangliosidosis
    Medical Genetics
    Experienced in Gangliosidosis
    Medical Genetics
    Referral may be required

    CUIMC/NewYork-Presbyterian Morgan Stanley Children's Hospital

    3959 Broadway, 
    New York, NY 
    Languages Spoken:
    English
    Accepting New Patients

    Gustavo Maegawa is a Medical Genetics provider practicing medicine in New York, New York. Dr. Maegawa is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Krabbe Disease, Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, and Gaucher Disease. Dr. Maegawa is board certified in Clinical Genetics And Genomics (MD) and Medical Biochemical Genetics. Dr. Maegawa is currently accepting new patients.

    Experienced in Gangliosidosis
    Experienced in Gangliosidosis
    Referral may be required

    Memory And Aging Center

    1651 Fourth St., Suite 212, 
    San Francisco, CA 
    Languages Spoken:
    English
    Accepting New Patients

    William Seeley is a Neurologist practicing medicine in San Francisco, California. Dr. Seeley is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Frontotemporal Dementia, Dementia, Primary Progressive Aphasia, and Alzheimer's Disease. Dr. Seeley is board certified in American Board Of Psychiatry And Neurology., Neurology. Dr. Seeley is currently accepting new patients.

    Experienced in Gangliosidosis
    Experienced in Gangliosidosis
    Referral required

    Texas Neurology, P.A.

    6080 N Central Expy, Ste 100, 
    Dallas, TX 
    Languages Spoken:
    English, French, Hebrew
    Accepting New Patients
    Offers Telehealth

    Raphael Schiffmann is a Neurologist practicing medicine in Dallas, Texas. Dr. Schiffmann is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 3, Fabry Disease, Gaucher Disease, and Leukodystrophy. Dr. Schiffmann is board certified in Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology and Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology/Neurology With Special Qualification In Child Neurology. Dr. Schiffmann is currently accepting new patients.

    Showing 1-20 of 69

    Last Updated: 09/26/2026

    When should I see a Gangliosidosis doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Gangliosidosis doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Gangliosidosis doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Gangliosidosis doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Gangliosidosis doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Gangliosidosis doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Gangliosidosis doctors in The United States?

    Look for the filter feature on the left side of the Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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