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    Last Updated: 01/09/2026

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    MediFind found 82 doctor with experience in Gangliosidosis near The United States. Of these, 61 are Experienced, 15 are Advanced, 3 are Distinguished and 3 are Elite.

    Location
    LocationClose
    82 providers found
      Elite in Gangliosidosis
      Medical Genetics
      Elite in Gangliosidosis
      Medical Genetics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Cynthia Tifft is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

      Elite in Gangliosidosis
      Elite in Gangliosidosis

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Florian Eichler is a Neurologist in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy. Dr. Eichler is currently accepting new patients.

      Elite in Gangliosidosis
      Pediatrics | Medical Genetics
      Elite in Gangliosidosis
      Pediatrics | Medical Genetics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Whitley is a Pediatrics specialist and a Medical Genetics provider in Minneapolis, Minnesota. Dr. Whitley is rated as an Elite provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), and Mucopolysaccharidosis Type 3A (MPS IIIA, Sanfilippo Syndrome A). Dr. Whitley is currently accepting new patients.

      Learn about our expert tiers
      Raymond Y. Wang
      Distinguished in Gangliosidosis
      Medical Genetics
      Distinguished in Gangliosidosis
      Medical Genetics
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English

      Raymond Wang is a Medical Genetics provider in Orange, California. Dr. Wang is rated as a Distinguished provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Pompe Disease, and Adenoidectomy.

      Distinguished in Gangliosidosis
      Distinguished in Gangliosidosis

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Stephen is a Neurologist in Boston, Massachusetts. Dr. Stephen is rated as a Distinguished provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Drug Induced Dyskinesia, Spinocerebellar Ataxia Type 27, Movement Disorders, and Tay-Sachs Disease. Dr. Stephen is currently accepting new patients.

      Distinguished in Gangliosidosis
      Medical Genetics | Pediatrics
      Distinguished in Gangliosidosis
      Medical Genetics | Pediatrics
      10 Center Drive Msc 1851, Bldg. 10, Room 10c-103, Nhgri, Nih, 
      Bethesda, MD 
      Languages Spoken:
      English

      William Gahl is a Medical Genetics specialist and a Pediatrics provider in Bethesda, Maryland. Dr. Gahl is rated as a Distinguished provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Oculocutaneous Albinism Type 2, Hermansky-Pudlak Syndrome, Oculocutaneous Albinism Type 1, Oculocutaneous Albinism, and Deep Brain Stimulation.

      Adam L. Hartman
      Advanced in Gangliosidosis
      Neurology | Pediatric Neurology
      Advanced in Gangliosidosis
      Neurology | Pediatric Neurology

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Adam Hartman is an Adjunct Associate Professor of Neurology and Pediatrics at Johns Hopkins School of Medicine. He focuses on treating children with epilepsy, with an emphasis on those whose seizures have not been adequately controlled with medication. He evaluates and manages patients in his clinic who may be candidates for epilepsy surgery, including those with Rasmussen syndrome, brain malformations, and perinatal strokes. Patients who may not be surgery candidates due to inborn errors of metabolism (particularly mitochondrial disorders) also are a special interest for Dr. Hartman. Dr. Hartman is currently a Physician at NINDS/NIH, serving as a Program Director in the Division of Clinical Research. Previously, Dr. Hartman was the Associate Program Director for the Pediatric Neurology Residency at Johns Hopkins Hospital. He also was the Co-Director of the Neurology Intensive Care Nursery and an Attending Physician on the Pediatric Neurology Inpatient Service at Johns Hopkins Hospital. Dr. Hartman’s prior laboratory work was funded by National Institute of Neurological Disorders and Stroke (NIH), Technology Development Corporation (State of Maryland), a Johns Hopkins University School of Medicine Clinician Scientist Award, the Pakula Family, and the Becker Family. Dr. Hartman received his medical degree from Northwestern University Medical School. After completing his residency in Pediatrics in the National Capital Uniformed Services Pediatric Residency Program (National Naval Medical Center, Walter Reed Army Medical Center), he served as a general pediatrician in the US Navy for five years (the last as division head of general pediatrics at Naval Medical Center San Diego). He completed his residency in pediatric neurology and a fellowship in clinical neurophysiology/pediatric epilepsy, both at Johns Hopkins. Dr. Hartman is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Hemimegalencephaly, Seizures, Epilepsy, and Increased Head Circumference.

      Experienced in Gangliosidosis
      Obstetrics and Gynecology | Medical Genetics
      Experienced in Gangliosidosis
      Obstetrics and Gynecology | Medical Genetics

      Carnegie Imaging For Women, Carnegie Women's Health And Maternal Fetal Medicine Associates

      1245 Madison Ave, 
      New York, NY 
      Languages Spoken:
      English

      Tamar Goldwaser is an Obstetrics and Gynecologist and a Medical Genetics provider in New York, New York. Dr. Goldwaser is rated as an Experienced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Amenorrhea, Premature Infant, Placenta Previa, and Tay-Sachs Disease.

      Advanced in Gangliosidosis
      Pediatric Neurology | Neurology
      Advanced in Gangliosidosis
      Pediatric Neurology | Neurology
      240 E 38th St, 20th Floor, 
      New York, NY 
      Languages Spoken:
      English

      Heather Lau is a Pediatric Neurologist and a Neurologist in New York, New York. Dr. Lau is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Gaucher Disease, Sandhoff Disease, Gaucher Disease Type 2, and Gaucher Disease Type 3.

      Advanced in Gangliosidosis
      Medical Genetics
      Advanced in Gangliosidosis
      Medical Genetics
      3400 Computer Dr, Genzyme Genetics Mdl, 
      Westborough, MA 
      Languages Spoken:
      English

      Stephanie Hallam is a Medical Genetics provider in Westborough, Massachusetts. Dr. Hallam is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Tay-Sachs Disease and Gangliosidosis.

      Advanced in Gangliosidosis
      Neurology | Pulmonary Medicine
      Advanced in Gangliosidosis
      Neurology | Pulmonary Medicine

      Mayo Clinic Health System-Northwest Wisconsin Region Inc

      1400 Bellinger St, 
      Eau Claire, WI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Timothy Young is a Neurologist and a Pulmonary Medicine provider in Eau Claire, Wisconsin. Dr. Young is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Distal Median Nerve Dysfunction, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Young is currently accepting new patients.

      Advanced in Gangliosidosis
      Medical Genetics | Pediatrics
      Advanced in Gangliosidosis
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Baker is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Ornithine Transcarbamylase Deficiency, Urea Cycle Disorders (UCD), Acid Sphingomyelinase Deficiency (ASMD), and Propionic Acidemia.

      Advanced in Gangliosidosis
      Advanced in Gangliosidosis

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeremy Schmahmann is a Neurologist in Boston, Massachusetts. Dr. Schmahmann is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Spinocerebellar Ataxia, Acute Cerebellar Ataxia, Olivopontocerebellar Atrophy, Drug Induced Dyskinesia, and Gastrostomy. Dr. Schmahmann is currently accepting new patients.

      Advanced in Gangliosidosis
      Medical Genetics
      Advanced in Gangliosidosis
      Medical Genetics
      1201 W La Veta Ave, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Walla Al-Hertani is a Medical Genetics provider in Orange, California. Dr. Al-Hertani is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Von Gierke Disease, Classic Galactosemia, Glycogen Storage Disease Type 13, and Phosphoglycerate Mutase Deficiency. Dr. Al-Hertani is currently accepting new patients.

      Advanced in Gangliosidosis
      Advanced in Gangliosidosis

      Saint Lukes Roosevelt Hospital Lab

      1000 10th Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Shanna Patterson is a Neurologist in New York, New York. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Peripheral Neuropathy, Cramp-Fasciculation Syndrome, and Gangliosidosis.

      Advanced in Gangliosidosis
      Advanced in Gangliosidosis

      New York University

      111 Broadway, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Giulietta Riboldi is a Neurologist in New York, New York. Dr. Riboldi is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Movement Disorders, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Drug Induced Dyskinesia.

      Advanced in Gangliosidosis
      Neurology | Pediatric Neurology
      Advanced in Gangliosidosis
      Neurology | Pediatric Neurology
      700 West Ave S, 
      La Crosse, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Marc Patterson is a Neurologist and a Pediatric Neurologist in La Crosse, Wisconsin. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome. Dr. Patterson is currently accepting new patients.

      Advanced in Gangliosidosis
      Family Medicine | Emergency Medicine | Neurology
      Advanced in Gangliosidosis
      Family Medicine | Emergency Medicine | Neurology
      132 Mechanic St, 
      Spartansburg, PA 
      Languages Spoken:
      English

      John Balmer is an Emergency Medicine specialist and a Neurologist in Spartansburg, Pennsylvania. Dr. Balmer is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Chronic Pain, GM1 Gangliosidosis, Gangliosidosis, and Shingles.

      Advanced in Gangliosidosis
      Neuromusculoskeletal Medicine | Neurology | Radiology
      Advanced in Gangliosidosis
      Neuromusculoskeletal Medicine | Neurology | Radiology

      Cora Health Services Inc

      7015 Beracasa Way, Cora Physical Therapy W Bo, 
      Boca Raton, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Patricio Espinosa is a Neuromusculoskeletal Medicine specialist and a Neurologist in Boca Raton, Florida. Dr. Espinosa is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, Essential Tremor, and Gastrostomy. Dr. Espinosa is currently accepting new patients.

      Advanced in Gangliosidosis
      Neurology | Pediatric Neurology
      Advanced in Gangliosidosis
      Neurology | Pediatric Neurology
      1201 West La Veta Avenue, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Maija-riikka Steenari is a Neurologist and a Pediatric Neurologist in Orange, California. Dr. Steenari is rated as an Advanced provider by MediFind in the treatment of Gangliosidosis. Her top areas of expertise are Dihydrolipoamide Dehydrogenase Deficiency, Pyruvate Carboxylase Deficiency, PEPCK 1 Deficiency, and Autosomal Recessive Congenital Methemoglobinemia. Dr. Steenari is currently accepting new patients.

      Showing 1-20 of 82

      Last Updated: 01/09/2026

      When should I see a Gangliosidosis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Gangliosidosis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Gangliosidosis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Gangliosidosis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Gangliosidosis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Gangliosidosis doctor search results page. 

      Why is it important to get a second opinion from a different Gangliosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Gangliosidosis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Gangliosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Gangliosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Gangliosidosis doctors in The United States?

      Look for the filter feature on the left side of the Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Gangliosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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