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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in GM1 Gangliosidosis near District of Columbia, US. Of these, 6 are Experienced, 2 are Advanced, 2 are Elite and 1 are Distinguished.

    Location
    LocationClose
    11 providers found
      Elite in GM1 Gangliosidosis
      Medical Genetics
      Elite in GM1 Gangliosidosis
      Medical Genetics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Cynthia Tifft is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

      Elite in GM1 Gangliosidosis
      Pediatric Neurology
      Elite in GM1 Gangliosidosis
      Pediatric Neurology
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Maria Acosta is a Pediatric Neurologist in Washington, Washington, D.c.. Dr. Acosta is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Neurofibromatosis, Sandhoff Disease, and Autism Spectrum Disorder.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in GM1 Gangliosidosis
      Distinguished in GM1 Gangliosidosis

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Debra Regier is a Pediatrics provider in Washington, Washington, D.c.. Dr. Regier is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Cantu Syndrome, Malonyl-CoA Decarboxylase Deficiency, and Hyperlysinemia.

      Learn about our expert tiers
      Advanced in GM1 Gangliosidosis
      Ophthalmology
      Advanced in GM1 Gangliosidosis
      Ophthalmology
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Brian Brooks is an Ophthalmologist in Washington, Washington, D.c.. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Coloboma, Coloboma of Iris, Albinism, and Oculocutaneous Albinism.

      Advanced in GM1 Gangliosidosis
      Ophthalmology
      Advanced in GM1 Gangliosidosis
      Ophthalmology
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Laryssa Huryn is an Ophthalmologist in Washington, Washington, D.c.. Dr. Huryn is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Bietti Crystalline Dystrophy (BCD), Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, and Cone-Rod Dystrophy.

      Experienced in GM1 Gangliosidosis
      Neurology | Pediatrics | Psychiatry
      Experienced in GM1 Gangliosidosis
      Neurology | Pediatrics | Psychiatry
      111 Michigan Ave Nw, Division Of Neurology, 
      Washington, DC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Thanh Nguyen is a Neurologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Gangliosidosis, Progressive Myoclonic Epilepsy, and Seizures. Dr. Nguyen is currently accepting new patients.

      Experienced in GM1 Gangliosidosis
      Pediatric Neurology | Neurology
      Experienced in GM1 Gangliosidosis
      Pediatric Neurology | Neurology
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Alonso Zea Vera is a Pediatric Neurologist and a Neurologist in Washington, Washington, D.c.. Dr. Zea Vera is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Tourette Syndrome, Transient Tic Disorder, Chorea, Thrombectomy, and Deep Brain Stimulation.

      Experienced in GM1 Gangliosidosis
      Pediatrics | Pediatric Hematology Oncology
      Experienced in GM1 Gangliosidosis
      Pediatrics | Pediatric Hematology Oncology

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Ashley Lanzel is a Pediatrics specialist and a Pediatric Hematologist Oncology provider in Washington, Washington, D.c.. Dr. Lanzel is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are GM1 Gangliosidosis, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), and Mucopolysaccharidoses (MPS).

      Experienced in GM1 Gangliosidosis
      Medical Genetics
      Experienced in GM1 Gangliosidosis
      Medical Genetics
      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Iskren Menkovic is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Menkovic is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Gaucher Disease Type 1, Gaucher Disease, Mucopolysaccharidoses (MPS), and GM1 Gangliosidosis.

      Experienced in GM1 Gangliosidosis
      Pediatrics | Medical Genetics
      Experienced in GM1 Gangliosidosis
      Pediatrics | Medical Genetics

      Children's Hospital

      111 Michigan Ave Nw, 
      Washington, DC 
      Languages Spoken:
      English

      Christina Grant is a Pediatrics specialist and a Medical Genetics provider in Washington, Washington, D.c.. Dr. Grant is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), and Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A).

      Experienced in GM1 Gangliosidosis
      Neuroradiology | Radiology | Pediatrics
      Experienced in GM1 Gangliosidosis
      Neuroradiology | Radiology | Pediatrics
      111 Michigan Ave NW, 
      Washington, DC 
      Languages Spoken:
      English

      Matthew Whitehead is a Neuroradiologist and a Radiologist in Washington, Washington, D.c.. Dr. Whitehead is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. His top areas of expertise are Dandy-Walker Syndrome, Cortical Dysplasia, Epilepsy in Children, CHARGE Syndrome, and Mastoidectomy.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of GM1 Gangliosidosis?

      GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

      When should I see a GM1 Gangliosidosis doctor in District of Columbia, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a GM1 Gangliosidosis doctor in District of Columbia, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank GM1 Gangliosidosis doctors in District of Columbia, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by GM1 Gangliosidosis doctors in District of Columbia, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a GM1 Gangliosidosis doctor in District of Columbia, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

      Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a GM1 Gangliosidosis doctor in District of Columbia, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my GM1 Gangliosidosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female GM1 Gangliosidosis doctors in District of Columbia, US?

      Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

      Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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