The 20 Best GM1 Gangliosidosis Doctors Near Me in Washington, DC

Find the Top GM1 Gangliosidosis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 9 doctor with experience in GM1 Gangliosidosis near Washington, DC. Of these, 4 are Experienced, 3 are Advanced, 1 are Distinguished and 1 are Elite.

Location
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9 providers found
    Elite in GM1 Gangliosidosis
    Medical Genetics
    Elite in GM1 Gangliosidosis
    Medical Genetics
    Referral may be required
    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Cynthia Tifft is a Medical Genetics provider practicing medicine in Washington, Washington, D.c.. Dr. Tifft is rated as an Elite provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Sandhoff Disease, Gangliosidosis, GM1 Gangliosidosis, and Tay-Sachs Disease.

    Distinguished in GM1 Gangliosidosis
    Pediatrics
    Distinguished in GM1 Gangliosidosis
    Pediatrics
    Referral may be required

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Experience:
    17+ years
    Languages Spoken:
    English

    Debra Regier is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. She has been practicing medicine for over 17 years. Dr. Regier is rated as a Distinguished provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Gangliosidosis, GM1 Gangliosidosis, Cantu Syndrome, and Maple Syrup Urine Disease.

    Advanced in GM1 Gangliosidosis
    Advanced in GM1 Gangliosidosis
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Experience:
    43+ years
    Languages Spoken:
    English, Portuguese, Spanish

    Zenaide Quezado is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. She has been practicing medicine for over 43 years. Dr. Quezado is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Anemia, GM1 Gangliosidosis, and Acute Pain. Dr. Quezado is board certified in Pediatric Anesthesiology: American Board Of Anesthesiology, 2013, Anesthesiology: American Board Of Anesthesiology, 2000, and Critical Care Medicine: American Board Of Internal Medicine, 1993.

    Learn about our expert tiers
    Advanced in GM1 Gangliosidosis
    Ophthalmology
    Advanced in GM1 Gangliosidosis
    Ophthalmology
    Referral may be required
    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Brian Brooks is an Ophthalmologist practicing medicine in Washington, Washington, D.c.. Dr. Brooks is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Coloboma, Albinism, Oculocutaneous Albinism Type 1, and Oculocutaneous Albinism.

    Advanced in GM1 Gangliosidosis
    Psychiatry
    Advanced in GM1 Gangliosidosis
    Psychiatry
    Referral may be required

    The Ross Center For Anxiety & Related Disorders Inc

    5225 Wisconsin Ave NW Ste 400, 
    Washington, DC 
    Languages Spoken:
    English

    Kelly King is a Psychiatrist practicing medicine in Washington, Washington, D.c.. Dr. King is rated as an Advanced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses GM1 Gangliosidosis, Fountain Syndrome, Neurofibromatosis, and Paroxysmal Nocturnal Hemoglobinuria (PNH).

    Experienced in GM1 Gangliosidosis
    Pediatric Neurology | Neurology
    Experienced in GM1 Gangliosidosis
    Pediatric Neurology | Neurology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Experience:
    20+ years
    Languages Spoken:
    English, Vietnamese
    Offers Telehealth

    Thanh Nguyen, MD, sees patients in the Division of Epilepsy and Neurophysiology. She speaks fluent Vietnamese. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her clinical expertise encompasses GM1 Gangliosidosis, Gangliosidosis, Progressive Myoclonic Epilepsy, and Seizures. Dr. Nguyen is board certified in American Board Of Psychiatry And Neurology, 2014 and Pediatrics: American Board Of Pediatrics, 2009.

    Experienced in GM1 Gangliosidosis
    Pediatric Hematology Oncology
    Experienced in GM1 Gangliosidosis
    Pediatric Hematology Oncology
    Referral may be required

    Main Hospital

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Experience:
    14+ years
    Languages Spoken:
    English

    Ashley Lanzel, MD, MA, trained in pediatrics at Johns Hopkins Hospital, pediatric hematology-oncology at Emory/Children’s Healthcare of Atlanta, and hospice and palliative medicine at the National Institutes of Health. While at Emory University, she obtained a Master of Arts in bioethics. Her research focus is in decision-making, communication, palliative oncology and pediatric palliative ethics. She enjoys being a clinical educator. When she is not at work, she is having fun with her kids. Dr. Lanzel is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. Her clinical expertise encompasses GM1 Gangliosidosis, Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), and Mucopolysaccharidoses (MPS). Dr. Lanzel is board certified in American Board Of Pediatrics, 2022, Pediatric Hematology-Oncology: American Board Of Pediatrics, 2019, and Pediatrics: American Board Of Pediatrics, 2015.

    Experienced in GM1 Gangliosidosis
    Experienced in GM1 Gangliosidosis
    Referral may be required

    Main Hospital-Genetics Clinic

    111 Michigan Avenue Northwest, 
    Washington, DC 
    Experience:
    14+ years
    Languages Spoken:
    English
    Offers Telehealth

    Christina Grant, MD, PhD, completed her medical genetics and medical biochemical genetics training at the National Institutes of Health National Human Genome Research Institute in Bethesda, MD, and joined Children’s National Hospital in 2018. Her clinical and research interests focus on large molecule storage disorders especially lysosomal storage diseases. Dr. Grant is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 7 (MPS VII, Sly Syndrome), Mucopolysaccharidosis Type 4A (MPS IVA, Morquio Syndrome Type A), and Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome). Dr. Grant is board certified in Medical Biochemical Genetics: American Board Of Medical Genetics And Genomics, 2019, American Board Of Medical Genetics And Genomics, 2017, and Pediatrics: American Board Of Pediatrics, 2015.

    Experienced in GM1 Gangliosidosis
    Medical Genetics
    Experienced in GM1 Gangliosidosis
    Medical Genetics
    Referral may be required
    111 Michigan Ave Nw, 
    Washington, DC 
    Languages Spoken:
    English

    Iskren Menkovic is a Medical Genetics provider practicing medicine in Washington, Washington, D.c.. Dr. Menkovic is rated as an Experienced provider by MediFind in the treatment of GM1 Gangliosidosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease Type 1, Gaucher Disease, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, and Mucopolysaccharidoses (MPS).

    Showing 1-9 of 9

    Last Updated: 06/30/2026

    What is the definition of GM1 Gangliosidosis?

    GM1 gangliosidosis is an inherited disorder that destroys nerve cells (neurons) in the brain and spinal cord. This condition can be classified as one of three major types based on the age at which signs and symptoms first appear. However, the signs and symptoms of these three types can overlap, leading some researchers to believe that GM1 gangliosidosis occurs on a spectrum instead of as three distinct types.

    When should I see a GM1 Gangliosidosis doctor near Washington, DC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a GM1 Gangliosidosis doctor near Washington, DC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank GM1 Gangliosidosis doctors near Washington, DC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by GM1 Gangliosidosis doctors near Washington, DC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a GM1 Gangliosidosis doctor near Washington, DC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. 

    Why is it important to get a second opinion from a different GM1 Gangliosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a GM1 Gangliosidosis doctor near Washington, DC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my GM1 Gangliosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my GM1 Gangliosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female GM1 Gangliosidosis doctors near Washington, DC?

    Look for the filter feature on the left side of the GM1 Gangliosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a GM1 Gangliosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the GM1 Gangliosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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