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    Last Updated: 01/09/2026

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    MediFind found 32 doctor with experience in Griscelli Syndrome near Netherlands. Of these, 28 are Experienced, 3 are Distinguished and 1 are Advanced.

    Location
    LocationClose
    32 providers found
      Distinguished in Griscelli Syndrome
      Distinguished in Griscelli Syndrome
      Utrecht, UT, NL 

      J Frenkel practices in Utrecht, Netherlands. Frenkel is rated as a Distinguished expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Mevalonate Kinase Deficiency, Familial Mediterranean Fever, Muckle-Wells Syndrome, and Neonatal Onset Multisystem Inflammatory Disease.

      Distinguished in Griscelli Syndrome
      Distinguished in Griscelli Syndrome
      Nijmegen, GE, NL 

      Anna Simon practices in Nijmegen, Netherlands. Ms. Simon is rated as a Distinguished expert by MediFind in the treatment of Griscelli Syndrome. Her top areas of expertise are Mevalonate Kinase Deficiency, Schnitzler Syndrome, Muckle-Wells Syndrome, and Familial Cold Autoinflammatory Syndrome.

      Distinguished in Griscelli Syndrome
      Distinguished in Griscelli Syndrome
      Utrecht, UT, NL 

      Nienke Ter Haar practices in Utrecht, Netherlands. Ter Haar is rated as a Distinguished expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Mevalonate Kinase Deficiency, Familial Cold Autoinflammatory Syndrome, Neonatal Onset Multisystem Inflammatory Disease, and Muckle-Wells Syndrome.

      Learn about our expert tiers
      Advanced in Griscelli Syndrome
      Advanced in Griscelli Syndrome
      Nijmegen, GE, NL 

      Catharina Manders practices in Nijmegen, Netherlands. Ms. Manders is rated as an Advanced expert by MediFind in the treatment of Griscelli Syndrome. Her top areas of expertise are Griscelli Syndrome, Familial Cold Autoinflammatory Syndrome, Neonatal Onset Multisystem Inflammatory Disease, and Muckle-Wells Syndrome.

      Tom A. Van Der Poll
      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Amsterdam, NH, NL 

      Tom Van Der Poll practices in Amsterdam, Netherlands. Mr. Van Der Poll is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Sepsis, Pneumonia, Melioidosis, and Acute Respiratory Distress Syndrome (ARDS).

      Robert B. Landewe
      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Arc, 
      Amsterdam, NH, NL 

      Robert Landewe practices in Amsterdam, Netherlands. Mr. Landewe is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Axial Spondyloarthritis (AxSpA), Ankylosing Spondylitis, Arthritis, and Rheumatoid Arthritis (RA).

      Tim Niehues
      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Tim Niehues practices in Rotterdam, Netherlands. Mr. Niehues is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Hyper IgE Syndrome, Autosomal Dominant Hyper IgE Syndrome, Chronic Granulomatous Disease, and Bone Marrow Transplant.

      Desiree M. Van Der Heijde
      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome

      Lumc

      Leiden, ZH, NL 

      Desiree Van Der Heijde practices in Leiden, Netherlands. Ms. Van Der Heijde is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Her top areas of expertise are Ankylosing Spondylitis, Arthritis, Axial Spondyloarthritis (AxSpA), and Rheumatoid Arthritis (RA).

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome

      Radboud UMC

      Nijmegen, GE, NL 

      Leo Joosten practices in Nijmegen, Netherlands. Mr. Joosten is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Gout, Arthritis, Lyme Disease, Atherosclerosis, and Mastectomy.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Amsterdam, NH, NL 

      Niek Van Til practices in Amsterdam, Netherlands. Van Til is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Severe Combined Immunodeficiency (SCID), Pompe Disease, Omenn Syndrome, and Griscelli Syndrome.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Utrecht, UT, NL 

      Nico Wulffraat practices in Utrecht, Netherlands. Wulffraat is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Juvenile Idiopathic Arthritis (JIA), Arthritis, Juvenile Dermatomyositis, Dermatomyositis, and Bone Marrow Transplant.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Utrecht, UT, NL 

      Meriem Khairoun practices in Utrecht, Netherlands. Ms. Khairoun is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Her top areas of expertise are Piebaldism, Diabetic Nephropathy, Griscelli Syndrome, Kidney Transplant, and Pancreas Transplant.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Utrecht, UT, NL 

      Charlotte Eijkelboom practices in Utrecht, Netherlands. Ms. Eijkelboom is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Her top areas of expertise are Griscelli Syndrome, Cold Urticaria, Familial Cold Autoinflammatory Syndrome, and Neonatal Onset Multisystem Inflammatory Disease.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Rotterdam, ZH, NL 

      Timo Zondag practices in Rotterdam, Netherlands. Mr. Zondag is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Activated PI3K Delta Syndrome (APDS), Hemophagocytic Lymphohistiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Maastricht, LI, NL 

      Myrurgia Hamid-Abdul practices in Maastricht, Netherlands. Hamid-Abdul is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Basal Cell Skin Cancer, Thymic Epithelial Tumor, Dilated Cardiomyopathy (DCM), Lymphangiectasis, and Thymectomy.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Utrecht, UT, NL 

      Kim Annink practices in Utrecht, Netherlands. Annink is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Asphyxia Neonatorum, Mevalonate Kinase Deficiency, Hypothermia, and TNF Receptor-Associated Periodic Syndrome.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      PO Box 1738, Rotterdam 3000 DR, 
      DR, NL 

      Tim Kanters practices in Netherlands. Mr. Kanters is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Pompe Disease, Hives, Seizures, Griscelli Syndrome, and Splenectomy.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Rotterdam, ZH, NL 

      Maud Hermans practices in Rotterdam, Netherlands. Ms. Hermans is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Her top areas of expertise are Activated PI3K Delta Syndrome (APDS), Systemic Mastocytosis, Mast Cell Activation Syndrome (MCAS), and Hypereosinophilic Syndrome.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome
      Heerlen, LI, NL 

      Ward Vercoutere practices in Heerlen, Netherlands. Mr. Vercoutere is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. His top areas of expertise are Adult Still's Disease, Piebaldism, Griscelli Syndrome, and Albinism.

      Experienced in Griscelli Syndrome
      Experienced in Griscelli Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Jan Van Laar practices in Rotterdam, Netherlands. Van Laar is rated as an Experienced expert by MediFind in the treatment of Griscelli Syndrome. Their top areas of expertise are Tuberculous Uveitis, Reticulohistiocytoma, Histiocytosis, and IgG4-Related Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 32

      Last Updated: 01/09/2026

      What is the definition of Griscelli Syndrome?

      Griscelli syndrome is an inherited condition characterized by unusually light (hypopigmented) skin and light silvery-gray hair starting in infancy. Researchers have identified three types of this disorder, which are distinguished by their genetic cause and pattern of signs and symptoms.

      When should I see a Griscelli Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Griscelli Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Griscelli Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Griscelli Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Griscelli Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Griscelli Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Griscelli Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Griscelli Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Griscelli Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Griscelli Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Griscelli Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the Griscelli Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Griscelli Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Griscelli Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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