Self-Management for Youth Living with Sickle Cell Disease: SMYLS Multi-site Trial
Status: Recruiting
Location: See location...
Intervention Type: Behavioral
Study Type: Interventional
Study Phase: Not Applicable
SUMMARY
The purpose of this study is to find out whether a web-based intervention using a mobile app is helpful for teens and young adults with sickle cell disease (SCD) in learning how to care for and manage their symptoms.
Eligibility
Participation Requirements
Sex: All
Minimum Age: 14
Maximum Age: 21
Healthy Volunteers: t
View:
• documentation in the electronic health record of any type of SCD
• owns mobile device compatible with the intervention
• access to the internet
Locations
United States
South Carolina
Medical University of South Carolina
RECRUITING
Charleston
Contact Information
Primary
Shannon Phillips, PhD, RN
phillipss@musc.edu
843-792-9379
Backup
Margie Prentice, MBA
prenticm@musc.edu
843-792-4771
Time Frame
Start Date: 2024-04-04
Estimated Completion Date: 2028-01-31
Participants
Target number of participants: 272
Treatments
Experimental: Intervention
Study participants randomized to receive the intervention.
Active_comparator: Control
Study participants randomized to receive enhanced usual care (control).
Related Therapeutic Areas
Sponsors
Leads: Medical University of South Carolina
Collaborators: National Institute of Nursing Research (NINR)