The 20 Best Heterotaxy Syndrome Doctors Near Me in Orlando, FL

Find the Top Heterotaxy Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 7 doctor with experience in Heterotaxy Syndrome near Orlando, FL. Of these, 7 are Experienced.

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7 providers found
    Experienced in Heterotaxy Syndrome
    Family Medicine
    Experienced in Heterotaxy Syndrome
    Family Medicine

    Shubhaam Corp

    2863 Delaney Ave, 
    Orlando, FL 
     (2.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jan Parrillo is a primary care provider, practicing in Family Medicine in Orlando, Florida. Dr. Parrillo is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 104 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Cirrhosis.

    Experienced in Heterotaxy Syndrome
    Family Medicine
    Experienced in Heterotaxy Syndrome
    Family Medicine

    Shubhaam Corp

    2863 Delaney Ave, 
    Orlando, FL 
     (2.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Mitul Shah is a primary care provider, practicing in Family Medicine in Orlando, Florida. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 99 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Folate Deficiency, Vitamin B12 Deficiency Anemia, and Multiple Carboxylase Deficiency.

    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Peace Madueme is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 22 years. Dr. Madueme is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 116 other conditions, according to our data. His clinical expertise encompasses Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch. Dr. Madueme is board certified in American Board Of Pediatrics.

    Learn about our expert tiers
    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Languages Spoken:
    English, Farsi, German

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST). Dr. Kakavand is board certified in American Board Of Pediatrics.

    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    5+ years
    Languages Spoken:
    English, Arabic
    Offers Telehealth

    Makram Ebeid is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 5 years. Dr. Ebeid is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Pulmonary Valve Stenosis, Pulmonary Atresia, Ventricular Septal Defects, and Tetralogy of Fallot. Dr. Ebeid is board certified in American Board Of Internal Medicine.

    Experienced in Heterotaxy Syndrome
    Experienced in Heterotaxy Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Languages Spoken:
    English, French, Spanish

    Elena De Leon is a Cardiologist practicing medicine in Orlando, Florida. Dr. De Leon is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Pulmonary Atresia with Intact Ventricular Septum. Dr. De Leon is board certified in American Board Of Pediatrics.

    Experienced in Heterotaxy Syndrome
    Thoracic Surgery
    Experienced in Heterotaxy Syndrome
    Thoracic Surgery

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
     (12.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Jennifer Nelson is a Thoracic Surgeon practicing medicine in Orlando, Florida. She has been practicing medicine for over 10 years. Dr. Nelson is rated as an Experienced provider by MediFind in the treatment of Heterotaxy Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Sternal Cleft, Double Aortic Arch, Vascular Ring, Aortic Valve Replacement, and Heart Transplant. Dr. Nelson is board certified in American Board Of Surgery.

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    Last Updated: 04/28/2026

    What is the definition of Heterotaxy Syndrome?

    Heterotaxy syndrome is a condition in which the internal organs are abnormally arranged in the chest and abdomen. The term "heterotaxy" is from the Greek words "heteros," meaning "other than," and "taxis," meaning "arrangement." Individuals with this condition have complex birth defects affecting the heart, lungs, liver, spleen, intestines, and other organs.

    When should I see a Heterotaxy Syndrome doctor near Orlando, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Heterotaxy Syndrome doctor near Orlando, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Heterotaxy Syndrome doctors near Orlando, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Heterotaxy Syndrome doctors near Orlando, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Heterotaxy Syndrome doctor near Orlando, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Heterotaxy Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Heterotaxy Syndrome doctor near Orlando, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Heterotaxy Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Heterotaxy Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Heterotaxy Syndrome doctors near Orlando, FL?

    Look for the filter feature on the left side of the Heterotaxy Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Heterotaxy Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Heterotaxy Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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