Family Study of Early Hypertension in Children and Young People at Risk of Autosomal Dominant Polycystic Kidney Disease

Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY

The goal of this project is to measure the prevalence of Autosomal Dominant Polycystic Kidney Disease (ADPKD) and hypertension in the general population of children and young people at risk of ADPKD, using magnetic resonance imaging (MRI) for rapid diagnosis alongside genetic testing. The main question it aims to answer is: What is the prevalence of hypertension in a population sample of adolescents with ADPKD? Participants will have the following measurements performed: * Height and weight. * Blood pressure. * Non-invasive measurement of arterial stiffness. * Cardiac and renal MRI. * Blood sample. * Genetic testing.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 12
Maximum Age: 17
Healthy Volunteers: f
View:

• Age 12 - 17 years at the time of consent

• Able to tolerate the key study investigations (office blood pressure measurement, ambulatory blood pressure measurement, MRI and blood test)

• Parent with confirmed clinical diagnosis of ADPKD

• Parent (if child \<16 years) or both parent and young person (if \>=16 years) consents to genetic testing for ADPKD and demonstrates understanding of the implications of this.

Locations
Other Locations
United Kingdom
Evelina London Children's Hospital
RECRUITING
London
Contact Information
Primary
Benjamin Boxer, PhD
gstt.hiya.pkd@nhs.net
+44 20 7188 4770
Backup
Louise Keehn, MSc
louise.keehn@kcl.ac.uk
+44 20 7188 4770
Time Frame
Start Date: 2025-08-15
Estimated Completion Date: 2028-03
Participants
Target number of participants: 200
Treatments
ADPKD positive
Participants with positive renal MRI and/or genetic test for ADPKD
ADPKD negative
Participants with negative renal MRI and genetic test for ADPKD
Sponsors
Leads: King's College London
Collaborators: Guy's and St Thomas' NHS Foundation Trust

This content was sourced from clinicaltrials.gov

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