Learn About Polycystic Kidney Disease

What is the definition of Polycystic Kidney Disease?

Polycystic kidney disease (PKD) is a kidney disorder passed down through families. In this disease, many cysts form in the kidneys, causing them to become enlarged.

What are the alternative names for Polycystic Kidney Disease?

Cysts - kidneys; Kidney - polycystic; Autosomal dominant polycystic kidney disease; ADPKD

What are the causes of Polycystic Kidney Disease?

PKD is passed down through families (inherited). The two inherited forms of PKD are autosomal dominant and autosomal recessive.

People with PKD have many clusters of cysts in the kidneys. What exactly triggers the cysts to form is unknown.

PKD is associated with the following conditions:

  • Aortic aneurysms
  • Brain aneurysms
  • Cysts in the liver, pancreas, and testes
  • Diverticula of the colon

As many as half of people with PKD have cysts in the liver.

What are the symptoms of Polycystic Kidney Disease?

Symptoms of PKD may include any of the following:

  • Abdominal pain or tenderness
  • Blood in the urine
  • Excessive urination at night (nocturia)
  • Flank pain on one or both sides
  • Drowsiness
  • Joint pain
  • Nail abnormalities
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What are the current treatments for Polycystic Kidney Disease?

The goal of treatment is to control symptoms and prevent complications. Treatment may include:

  • Blood pressure medicines
  • Diuretics (water pills)
  • Low-salt diet

Any urinary tract infection should be treated quickly with antibiotics.

Cysts that are painful, infected, bleeding, or causing a blockage may need to be drained. There are usually too many cysts to make it practical to remove each cyst.

Surgery to remove one or both kidneys may be needed. Treatments for end-stage kidney disease may include dialysis or a kidney transplant.

Who are the top Polycystic Kidney Disease Local Doctors?

Barnabas Health Medical Group PC

102 James St, 
Edison, NJ 
 (2.5 mi)
Languages Spoken:
English
Offers Telehealth

Kim Tibaldi is a Nephrologist in Edison, New Jersey. Dr. Tibaldi and is rated as an Experienced provider by MediFind in the treatment of Polycystic Kidney Disease. Her top areas of expertise are Polycystic Kidney Disease, Nephrosclerosis, Renovascular Hypertension, Autosomal Dominant Polycystic Kidney Disease, and Ureteroscopy.

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Rutgers Health-Rwj Neurosurgery Faculty

125 Paterson St, 
New Brunswick, NJ 
 (7.6 mi)
Languages Spoken:
English
Accepting New Patients

Ronald Pelletier is a Transplant Surgeon and a General Surgeon in New Brunswick, New Jersey. Dr. Pelletier and is rated as an Experienced provider by MediFind in the treatment of Polycystic Kidney Disease. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Antibody-Mediated Rejection, Chylous Ascites, Kidney Transplant, and Pancreas Transplant. Dr. Pelletier is currently accepting new patients.

 
 
 
 
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Hackensack Meridian Health Medical Group - Specialty Care PC

1 Robert Wood Johnson Pl, 
New Brunswick, NJ 
 (7.6 mi)
Languages Spoken:
English
Accepting New Patients
Offers Telehealth

Glenn Dubov is a Nephrologist in New Brunswick, New Jersey. Dr. Dubov and is rated as an Experienced provider by MediFind in the treatment of Polycystic Kidney Disease. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and Diabetic Nephropathy. Dr. Dubov is currently accepting new patients.

What are the support groups for Polycystic Kidney Disease?

More information and support for people with polycystic kidney disease and their families can be found at a kidney disease support group.

What is the outlook (prognosis) for Polycystic Kidney Disease?

The disease gets worse slowly. Eventually, it may lead to end-stage kidney failure. It is also associated with liver disease, including infection of liver cysts.

Treatment may relieve symptoms for many years.

People with PKD who don't have other diseases may be good candidates for a kidney transplant.

What are the possible complications of Polycystic Kidney Disease?

Health problems that may result from PKD include:

  • Anemia
  • Bleeding or rupture of cysts
  • Long-term (chronic) kidney disease
  • End-stage kidney disease
  • High blood pressure
  • Infection of liver cysts
  • Kidney stones
  • Liver failure (mild to severe)
  • Repeated urinary tract infections
When should I contact a medical professional for Polycystic Kidney Disease?

Contact your health care provider if:

  • You have symptoms of PKD
  • You have a family history of PKD or related disorders and you are planning to have children (you may want to have genetic counseling)
How do I prevent Polycystic Kidney Disease?

Currently, no treatment can prevent the cysts from forming or enlarging.

What are the latest Polycystic Kidney Disease Clinical Trials?
A Study to Determine the Prevalence and Clinical Characteristics Associated With PKD1 Gene Variant Groups in Autosomal Dominant Polycystic Kidney Disease (ADPKD)

Summary: The purpose of this study is to estimate the prevalence, demographic, and clinical characteristics of PKD1/2 gene variant groups in the ADPKD population.

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Kidney Sodium Functional Imaging: Evaluation of Kidney Medullary Sodium Content Using 23Na MRI in Kidney Disease

Summary: The corticomedullary gradient is largely responsible for developing the gradients that are needed to concentrate urine (more solutes and less water). The ability of the kidneys to produce concentrated urine is a major determinant of the ability to survive the warm weather. When temperatures are high, we lose water through sweat, and so the kidneys retain water to maintain fluidity in the blood. Th...

Who are the sources who wrote this article ?

Published Date: August 28, 2023
Published By: Walead Latif, MD, Nephrologist and Clinical Associate Professor, Rutgers Medical School, Newark, NJ. Review provided by VeriMed Healthcare Network. Also reviewed by David C. Dugdale, MD, Medical Director, Brenda Conaway, Editorial Director, and the A.D.A.M. Editorial team.

What are the references for this article ?

Arnaout MA. Cystic kidney diseases. In: Goldman L, Cooney KA, eds. Goldman-Cecil Medicine. 27th ed. Philadelphia, PA: Elsevier; 2024:chap 112.

Torres VE, Harris PC. Cystic diseases of the kidney. In: Yu ASL, Chertow GM, Luyckx VA, Marsden PA, Skorecki K, Taal MW, eds. Brenner and Rector's The Kidney. 11th ed. Philadelphia, PA: Elsevier; 2020:chap 45.