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    Last Updated: 10/30/2025

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    MediFind found 535 doctor with experience in Jones Syndrome near New York, US. Of these, 239 are Experienced, 177 are Advanced and 119 are Distinguished.

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    535 providers found
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      New York University

      530 1st Ave, 
      New York, NY 
      Languages Spoken:
      English

      John Roland is an Otolaryngologist in New York, New York. Dr. Roland is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Acoustic Neuroma, DFNB1, Jones Syndrome, and Schwannoma.

      Gary Snyder
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - Plainview

      146A Manetto Hill Road, Suite 200, 
      Plainview, NY 
      Languages Spoken:
      English

      Gary Snyder is a Pediatrics provider in Plainview, New York. Dr. Snyder is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are DFNB1, Jones Syndrome, Infant Hearing Loss, and Tinnitus.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Steven Alexander
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - Astoria 30Th Avenue

      35-01 30th Avenue, Suite 300, 400, 
      Astoria, NY 
      Languages Spoken:
      English

      Steven Alexander is a Pediatrics provider in Astoria, New York. Dr. Alexander is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, DFNB1, Infant Hearing Loss, and Tinnitus.

      Learn about our expert tiers
      Philip W. Perlman
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology
      333 East Shore Road, Suite 102, 
      Manhasset, NY 
      Languages Spoken:
      English

      Philip Perlman is an Otolaryngologist in Manhasset, New York. Dr. Perlman is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Ozena, Nonallergic Rhinopathy, Palatal Myoclonus, and Infant Hearing Loss.

      Robert A. Feld
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Northwell Health Physician Partners Otolaryngology At Huntington

      205 East Main Street, Suite 2-4, 
      Huntington, NY 
      Languages Spoken:
      English

      I have been in practice for over 25 years in Huntington. I welcome all patients with a variety of Ear, Nose and Throat problems. Common ear problems include hearing los, dizziness, tinnitus and ear infections. Nasal problems such as nosebleeds, nasal blockage, sinusitis and chronic nasal drip are commonly treated. There are recent noninvasive treatments for nasal drip and congestion that are now performed here in the office. Sufferers of chronic cough are fully evaluated and treated here.I have extensive experience in facial and neck lesion removal and reconstructive procedures for those with skin cancer.I personally evaluate all patients who have an appointment with me and do not use physician assistants or nurse practitioners. Dr. Feld is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, Infant Hearing Loss, Glossopharyngeal Neuralgia, and DFNB1.

      Jay S. Youngerman
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Northwell Health Physician Partners Otolaryngology At Plainview

      875 Old Country Road, Suite 200, 
      Plainview, NY 
      Languages Spoken:
      English

      Jay Youngerman is an Otolaryngologist in Plainview, New York. Dr. Youngerman is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Nonallergic Rhinopathy, Ozena, Palatal Myoclonus, Septoplasty, and Gastrostomy.

      Elliot Goldofsky
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Northwell Health Physician Partners Otolaryngology & Facial Plastics At Great Neck

      600 Northern Boulevard, Suite 100, 
      Great Neck, NY 
      Languages Spoken:
      English, Hebrew

      Dr Goldofsky specializes in all disease of the ear including :InfectionHearing LossRinging in the EarTinnitusInfection. Dr. Goldofsky is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Infant Hearing Loss, Jones Syndrome, DFNB1, and Aural Polyps.

      Michael Setzen
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology
      600 Northern Boulevard, Suite 113, 
      Great Neck, NY 
      Languages Spoken:
      English

      I specialize primarily in the Nose and Sinuses including septoplasty,rhinoplasty,endoscopic sinus surgery,snoring and sleep apnea surgery in adults and children.I also treat hearing and balance problems and hoarseness,reflux and swallowing problems.See my web page for more details about my practice and my involvement in Otolaryngology locally,nationally and worldwide at www.michaelsetzen.com. Dr. Setzen is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Sinusitis, Chronic Rhinosinusitis with Nasal Polyps (CRSwNP), Empyema, Septoplasty, and Endoscopic Transnasal Transsphenoidal Surgery.

      Andrea Vambutas
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Northwell Health Otolaryngology And Head And Neck Surgery

      430 Lakeville Road, 1st Floor, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      About Andrea Vambutas MD, FACSDr. Andrea Vambutas is the Chair of the Department of Otolaryngology at Long Island Jewish Medical Center and North Shore University Hospital. She is also Director for the Center of Hearing & Balance at the New York Head & Neck Institute. She is also the Medical Director of the Apelian Cochlear Implant Program and Professor of Otolaryngology & Molecular Medicine. She was instrumental in developing the Apelian Cochlear Implant Center, which celebrated its 10th anniversary in 2011. The center cares for infants and adults. The cochlear implant team is comprised of surgeons, audiologists, speech pathologists, social workers, sign language interpreters and deaf educators who provide all aspects of evaluation prior to, and rehabilitation following cochlear implantation. The center has been the recipient of many complicated otologic cases, and difficult clinical problems.Dr. Vambutas is a clinician-scientist that studies immune responses and their effect on hearing.There are three unique forms of hearing loss that may be amenable to medical therapy for recovery of natural hearing: Autoimmune Inner Ear Disease, Sudden Sensorineural Hearing Loss and Meniere s Disease. Timely treatment with steroids results in hearing recovery in about 60% of cases. Unfortunately, that response is lost over time with repetitive treatment. For those that fail to respond to corticosteroids, there are no alternate treatments. Deteriorating hearing is rehabilitated with hearing aids or cochlear implants. Despite how beneficial these devices are, they do not select for what we want to hear, unlike our brains that do it naturally and seamlessly.Her research interests are in the restoration of natural hearing in these steroid resistant patients.To this end, her laboratory has identified the critical role of an inflammatory protein, interleukin-1 (IL-1), in this disease. Her research group is running a NIH-sponsored phase I open-label clinical trial to determine if blockade of IL-1 can prevent further hearing loss in these steroid-resistant individuals (www.clinicaltrials.gov NCT01267994). Her laboratory is also trying to better understand the molecular mechanisms behind these diseases, specifically in distinguishing steroid sensitive and resistant hearing loss which would identify new biologic markers of disease.Awards and Recognition:Castle Connolley, Best DoctorsBest Doctors in AmericaOutstanding Teacher Awards, North Shore-LIJ Health System & Montefiore Medical CenterService Award, American Academy of Otolaryngology HNSProfessional Affiliations:Diplomat: American Academy of Otolaryngology-Head and Neck SurgeryFellow: American College of SurgeonsFellow, American Neurotology SocietyElected Member: New York Otologic SocietyElected Member: Henry Kunkel SocietyElected Member: American Association of Immunologists. Dr. Vambutas is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. Her top areas of expertise are Infant Hearing Loss, Hearing Loss, Meniere Disease, and Cholesteatoma.

      Richard S. Litman
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Northwell Health Physician Partners Otolaryngology At Huntington

      205 East Main Street, Suite 2-4, 
      Huntington, NY 
      Languages Spoken:
      English

      Richard Litman is an Otolaryngologist in Huntington, New York. Dr. Litman is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are DFNB1, Jones Syndrome, Infant Hearing Loss, and Chronic Rhinosinusitis with Nasal Polyps (CRSwNP).

      Ian S. Storper
      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Northwell Health Physician Partners Otolaryngology At East 59th Street

      110 East 59th Street, Suite 10A, 
      New York, NY 
      Languages Spoken:
      English

      Dr. Ian Storper is the Director of the Otology Program at the New York Head and Neck Institute at Lenox Hill Hospital. He specializes in diseases of the ear, specifically in hearing loss and hearing restoration surgery, stapes surgery, surgery for chronic ear infections and eardrum perforations, cholesteatoma, cochlear implantation, superior semicircular canal dehiscence repair and facial nerve surgery.He joined the New York Head and Neck Institute after being the Director of Neurotology at a major university medical center in New York for 16 years, where he performed their first cochlear implant.At the New York Head and Neck Institute, Dr. Storper performed the first Baha Attract hearing implant in the United States in 2013 and the first MAXUM middle ear implant in the Greater New York Area in 2012.In addition to ear surgery, Dr. Storper maintains a large general practice in Otolaryngology, including sinonasal surgery and offie otolaryngology. Dr. Storper is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Infant Hearing Loss, Meniere Disease, DFNB1, and Vertigo.

      Experienced in Jones Syndrome
      Otolaryngology
      Experienced in Jones Syndrome
      Otolaryngology

      Maimonides Medical Center Division Of Otolaryngology Fpp

      919 49th St, 
      Brooklyn, NY 
      Languages Spoken:
      English

      Michael Weiss is an Otolaryngologist in Brooklyn, New York. Dr. Weiss is rated as an Experienced provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Familial Deafness, Otitis, Infant Hearing Loss, and Nasal Polyps.

      Experienced in Jones Syndrome
      Plastic Surgery | Otolaryngology
      Experienced in Jones Syndrome
      Plastic Surgery | Otolaryngology

      Maimonides Medical Center Division Of Otolaryngology Fpp

      919 49th St, 
      Brooklyn, NY 
      Languages Spoken:
      English

      Victor Lagmay is a Plastic Surgeon and an Otolaryngologist in Brooklyn, New York. Dr. Lagmay is rated as an Experienced provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Adenoid Cystic Carcinoma, Familial Deafness, Tongue Cancer, Thyroidectomy, and Gastrostomy.

      Distinguished in Jones Syndrome
      Distinguished in Jones Syndrome

      Icahn School Of Medicine At Mount Sinai

      One Gustave L Levy Place, Head And Neck Surgery Dept, 
      New York, NY 
      Languages Spoken:
      English

      Bartolomeo Castellano is an Otolaryngologist in New York, New York. Dr. Castellano is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, DFNB1, Infant Hearing Loss, and Sinusitis.

      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - Babylon

      400 West Main Street, Suite 200, 
      Babylon, NY 
      Languages Spoken:
      English

      Alexander London is a Pediatrics provider in Babylon, New York. Dr. London is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, DFNB1, Infant Hearing Loss, and Tinnitus.

      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - Southampton

      365 County Rd 39A, Benton Plaza Unit 3, 
      Southampton, NY 
      Languages Spoken:
      English

      Kevin Braat is a Pediatrics provider in Southampton, New York. Dr. Braat is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Palatal Myoclonus, Ozena, Nonallergic Rhinopathy, and Trachoma.

      Distinguished in Jones Syndrome
      Otolaryngology
      Distinguished in Jones Syndrome
      Otolaryngology

      Sunrise Ent PC

      100 Sunrise Hwy, 
      Lindenhurst, NY 
      Languages Spoken:
      English

      John Grosso is an Otolaryngologist in Lindenhurst, New York. Dr. Grosso is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, DFNB1, Otitis, and Infant Hearing Loss.

      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - West Nyack

      1 Crosfield Avenue, Suite 201, 
      West Nyack, NY 
      Languages Spoken:
      English

      Edward Rhee is a Pediatrics provider in West Nyack, New York. Dr. Rhee is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, Trachoma, DFNB1, and Infant Hearing Loss.

      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - Forest Hills

      107-21 Queens Boulevard, Suite 2, 8, 
      Forest Hills, NY 
      Languages Spoken:
      English

      Michael Alleva is a Pediatrics provider in Forest Hills, New York. Dr. Alleva is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Jones Syndrome, DFNB1, Infant Hearing Loss, and Tinnitus.

      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics
      Distinguished in Jones Syndrome
      Otolaryngology | Pediatrics

      ENT & Allergy Associates - Yonkers

      1086 N. Broadway, Suite 220, 
      Yonkers, NY 
      Languages Spoken:
      English

      Michael Tom is a Pediatrics provider in Yonkers, New York. Dr. Tom is rated as a Distinguished provider by MediFind in the treatment of Jones Syndrome. His top areas of expertise are Infant Hearing Loss, Jones Syndrome, DFNB1, and Nonallergic Rhinopathy.

      Showing 1-20 of 535

      Last Updated: 10/30/2025

      What is the definition of Jones Syndrome?

      Jones syndrome is a very rare condition characterized by gingival fibromatosis (enlargement and overgrowth of the gums) and progressive, sensorineural hearing loss. Excessive growth of the gums may cause displacement of teeth, over-retention of primary teeth, and increased spacing. Jones syndrome is inherited in an autosomal dominant manner, but the underlying genetic cause is not yet known. Only a few families with Jones syndrome have been reported.

      When should I see a Jones Syndrome doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Jones Syndrome doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Jones Syndrome doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Jones Syndrome doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Jones Syndrome doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Jones Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Jones Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Jones Syndrome doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Jones Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Jones Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Jones Syndrome doctors in New York, US?

      Look for the filter feature on the left side of the Jones Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Jones Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Jones Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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