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    Last Updated: 01/09/2026

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    MediFind found 21 doctor with experience in Joubert Syndrome near North Rhine-Westphalia, DE. Of these, 14 are Experienced and 7 are Advanced.

    Location
    LocationClose
    21 providers found
      Bernhard Schermer
      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Bernhard Schermer practices in Koeln, Germany. Mr. Schermer is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Focal Segmental Glomerulosclerosis, Glomerulonephritis, Polycystic Kidney Disease, Nephrotic Syndrome, and Kidney Transplant.

      Thomas Benzing
      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Thomas Benzing practices in Koeln, Germany. Mr. Benzing is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Focal Segmental Glomerulosclerosis, Polycystic Kidney Disease, Nephrotic Syndrome, Glomerulonephritis, and Kidney Transplant.

      Holger D. Thiele
      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Kerpener Str 62, 
      Koeln, NW, DE 

      Holger Thiele practices in Koeln, Germany. Mr. Thiele is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Heart Attack, Cardiogenic Shock, Tricuspid Regurgitation, Percutaneous Coronary Intervention (PCI), and Transcatheter Aortic Valve Replacement (TAVR).

      Learn about our expert tiers
      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Max Liebau practices in Koeln, Germany. Mr. Liebau is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Kerpener Street 62, 
      Koeln, NW, DE 

      Claudia Dafinger practices in Koeln, Germany. Ms. Dafinger is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Autosomal Recessive Polycystic Kidney Disease, Joubert Syndrome, Nephronophthisis, and Polycystic Kidney Disease.

      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Peter Nurnberg practices in Koeln, Germany. Mr. Nurnberg is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Autosomal Recessive Primary Microcephaly, and Cortical Dysplasia.

      Advanced in Joubert Syndrome
      Advanced in Joubert Syndrome
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Janine Altmuller practices in Koeln, Germany. Ms. Altmuller is rated as an Advanced expert by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and Oculomotor Apraxia Cogan Type.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Koeln, NW, DE 

      Michaela Thoenes practices in Koeln, Germany. Ms. Thoenes is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Joubert Syndrome, Primary Lateral Sclerosis, X-Linked Infantile Nystagmus, and Achalasia Microcephaly Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Robert Koch Str. 21, 
      Koeln, NW, DE 

      Bodo Beck practices in Koeln, Germany. Beck is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Their top areas of expertise are Primary Hyperoxaluria, Primary Hyperoxaluria Type 1, Nephrocalcinosis, Kidney Transplant, and Liver Transplant.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Koeln, NW, DE 

      Mohammad Toliat practices in Koeln, Germany. Mr. Toliat is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Benign Rolandic Epilepsy, Achalasia Microcephaly Syndrome, Microcephaly, and Joubert Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Friederike Koerber practices in Koeln, Germany. Koerber is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Their top areas of expertise are Idiopathic Edema, Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, and Joubert Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Raoul Heller practices in Koeln, Germany. Mr. Heller is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Arthrogryposis Multiplex Congenita Neurogenic Type, Arthrogryposis Multiplex Congenita, Congenital Contractures, and Marden-Walker Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Michael Nothnagel practices in Koeln, Germany. Mr. Nothnagel is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Curry Jones Syndrome, Acrocallosal Syndrome, Dupuytren Contracture, and Fibromatosis.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Robert Koch Str. 21, 
      Koeln, NW, DE 

      Bjorn Reusch practices in Koeln, Germany. Reusch is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Their top areas of expertise are Bartter Syndrome, Polyhydramnios, Nephrosclerosis, and Nephrotic Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Muenster, NW, DE 

      Heymut Omran practices in Muenster, Germany. Omran is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Their top areas of expertise are Situs Inversus, Ciliary Dyskinesia-Bronchiectasis, Kartagener Syndrome, and Drug Induced Dyskinesia.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Bonn, NW, DE 

      Florian Piekarski practices in Bonn, Germany. Mr. Piekarski is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Anemia, Iron Deficiency Anemia, Childhood Iron Deficiency Anemia, and Joubert Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Muenster, NW, DE 

      Diana Bracht practices in Muenster, Germany. Ms. Bracht is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Situs Inversus, Dextrocardia with Situs Inversus, Dextrocardia, and Kartagener Syndrome.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Koeln, NW, DE 

      Thomas Langmann practices in Koeln, Germany. Mr. Langmann is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Late-Onset Retinal Degeneration, Batten Disease, CLN3 Disease, and CLN5 Disease.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Dagmar Wachten practices in Bonn, Germany. Ms. Wachten is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Bardet-Biedl Syndrome, Shingles, Spastic Paraplegia Type 7, and Acute Cerebellar Ataxia.

      Experienced in Joubert Syndrome
      Experienced in Joubert Syndrome
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Sandra Habbig practices in Koeln, Germany. Ms. Habbig is rated as an Experienced expert by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Nephronophthisis, Coach Syndrome, Nephrocalcinosis, Chronic Kidney Disease, and Kidney Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 21

      Last Updated: 01/09/2026

      What is the definition of Joubert Syndrome?

      Joubert syndrome is a disorder that affects many parts of the body. The signs and symptoms of this condition vary among affected individuals, even among members of the same family.

      When should I see a Joubert Syndrome doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Joubert Syndrome doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Joubert Syndrome doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Joubert Syndrome doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Joubert Syndrome doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Joubert Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Joubert Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Joubert Syndrome doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Joubert Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Joubert Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Joubert Syndrome doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Joubert Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Joubert Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Joubert Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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