The 20 Best Joubert Syndrome Doctors Near Me in Chicago, IL

Find the Top Joubert Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 15 doctor with experience in Joubert Syndrome near Chicago, IL. Of these, 13 are Experienced and 2 are Advanced.

Location
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15 providers found
    Advanced in Joubert Syndrome
    Advanced in Joubert Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    David Bieber is a Neurologist practicing medicine in Chicago, Illinois. Dr. Bieber is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. He is also highly rated in 53 other conditions, according to our data. His clinical expertise encompasses Memory Loss, Partial Seizure, Athetosis, and Seizures.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Joshua Goldstein is a Neurologist practicing medicine in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Status Epilepticus, Seizures, Epilepsy, and Landau-Kleffner Syndrome.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Lubov Romantseva is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Romantseva is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Seizures, CLN3 Disease, CLN5 Disease, and Batten Disease.

    Learn about our expert tiers
    Advanced in Joubert Syndrome
    Pediatrics
    Advanced in Joubert Syndrome
    Pediatrics

    Office

    225 E Chicago Ave Ste 51, 
    Chicago, IL 
     (1.3 miles away)
    Languages Spoken:
    English

    Andrea Pardo is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Pardo is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 120 other conditions, according to our data. Her clinical expertise encompasses Corpus Callosum Agenesis, Seizures, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

    Experienced in Joubert Syndrome
    Neurology
    Experienced in Joubert Syndrome
    Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Divya Desai is a Neurologist practicing medicine in Chicago, Illinois. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Athetosis, Photosensitive Epilepsy, Landau-Kleffner Syndrome, and Partial Seizure.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Rebecca Garcia is a Neurologist practicing medicine in Chicago, Illinois. Dr. Garcia is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Partial Seizure, Photosensitive Epilepsy, and Partial Familial Epilepsy.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Tracy Gertler is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Gertler is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 94 other conditions, according to our data. Her clinical expertise encompasses Seizures, Athetosis, Myoclonic Epilepsy, and Epilepsy in Children.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Alma Bicknese is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Bicknese is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Progressive Myoclonic Epilepsy, Lafora Disease, Unverricht-Lundborg Syndrome, and Migraine.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Joanna Blackburn is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Blackburn is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Chorea, Tourette Syndrome, Transient Tic Disorder, and Spasmus Nutans.

    Experienced in Joubert Syndrome
    Neuromusculoskeletal Medicine
    Experienced in Joubert Syndrome
    Neuromusculoskeletal Medicine

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Abigail Schwaede is a Neuromusculoskeletal Medicine provider practicing medicine in Chicago, Illinois. Dr. Schwaede is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy Type 2, Dysferlinopathy, X-Linked Infantile Spinal Muscular Atrophy, and Spinal Muscular Atrophy with Arthrogryposis.

    Experienced in Joubert Syndrome
    Medical Genetics | Pediatrics
    Experienced in Joubert Syndrome
    Medical Genetics | Pediatrics

    The Board Of Trustees Of The University Of Illinois

    1801 W Taylor St, 2a, 
    Chicago, IL 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Miguel Barajas is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Barajas is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His clinical expertise encompasses HNRNPH2-Related Disorder, Coffin-Lowry Syndrome, Cerebellar Hypoplasia, and Bilateral Perisylvian Polymicrogyria. Dr. Barajas is currently accepting new patients.

    Experienced in Joubert Syndrome
    Neurology | Pediatrics
    Experienced in Joubert Syndrome
    Neurology | Pediatrics

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Tamar Caceres is a Neurologist and a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Caceres is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 88 other conditions, according to our data. Her clinical expertise encompasses Trisomy 2 Mosaicism, Trisomy 3 Mosaicism, Mosaic Trisomy 7, and Trisomy 12 Mosaicism.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
     (6.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Douglas Nordli is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Nordli is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Epilepsy, Seizures, and Generalized Tonic-Clonic Seizure.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Loyola University Medical Center

    2160 S 1st Ave, 
    Maywood, IL 
     (10.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Haidar Kabbani is a Neurologist practicing medicine in Maywood, Illinois. Dr. Kabbani is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Epilepsy.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Northshore Univ HLTH Systems Div Of Rheumatology

    1000 Central St Ste 800, 
    Evanston, IL 
     (12.3 miles away)
    Languages Spoken:
    English

    Margaret Michelson is a Pediatrics provider practicing medicine in Evanston, Illinois. Dr. Michelson is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Tourette Syndrome, Migraine, Migraine with Brainstem Aura, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

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    Last Updated: 04/28/2026

    What is the definition of Joubert Syndrome?

    Joubert syndrome is a condition that affects the development of the brain. This condition can also impact many other parts of the body. The signs and symptoms seen in people with Joubert syndrome can vary, even among members of the same family.

    When should I see a Joubert Syndrome doctor near Chicago, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Joubert Syndrome doctor near Chicago, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Joubert Syndrome doctors near Chicago, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Joubert Syndrome doctors near Chicago, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Joubert Syndrome doctor near Chicago, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Joubert Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Joubert Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Joubert Syndrome doctor near Chicago, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Joubert Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Joubert Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Joubert Syndrome doctors near Chicago, IL?

    Look for the filter feature on the left side of the Joubert Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Joubert Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Joubert Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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