The 20 Best Joubert Syndrome Doctors Near Me in Michigan, US

Find the Top Joubert Syndrome Experts and Specialists

The 20 Best Joubert Syndrome Doctors in Michigan, US

Last Updated: 02/22/2026

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MediFind found 33 doctor with experience in Joubert Syndrome near Michigan, US. Of these, 28 are Experienced and 5 are Advanced.

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33 providers found
    Alexandra Shaw
    Experienced in Joubert Syndrome
    Neurology | Pediatric Neurology
    Experienced in Joubert Syndrome
    Neurology | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    17+ years
    Languages Spoken:
    English, French
    Accepting New Patients

    Alexandra Shaw is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Shaw has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Memory Loss, and Absence Seizure. Dr. Shaw is currently accepting new patients.

    Garnett C. Smith
    Experienced in Joubert Syndrome
    Pediatric Neurology | Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology | Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    14+ years
    Languages Spoken:
    English, Russian, Spanish
    Accepting New Patients

    Garnett Smith is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Smith has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Myoclonic Epilepsy, and Memory Loss. Dr. Smith is currently accepting new patients.

    Linda M. Dillon
    Experienced in Joubert Syndrome
    Pediatrics | Internal Medicine
    Experienced in Joubert Syndrome
    Pediatrics | Internal Medicine

    Corewell Health William Beaumont University Hospital Care Center

    3535 West 13 Mile Road, Ll - South Clinic, 
    Royal Oak, MI 
    Experience:
    20+ years
    Languages Spoken:
    English
    Accepting New Patients

    Linda Dillon is a primary care provider, practicing in Pediatrics and Internal Medicine in Royal Oak, Michigan. Dr. Dillon has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Obesity in Children, Familial Multiple Nevi Flammei, Vascular Birthmark, and Stork Bite. Dr. Dillon is currently accepting new patients.

    Learn about our expert tiers
    Paul R. Mark
    Experienced in Joubert Syndrome
    Pediatrics | Medical Genetics
    Experienced in Joubert Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
    Experience:
    35+ years
    Languages Spoken:
    English

    Paul Mark is a Pediatrics specialist and a Medical Genetics provider in Grand Rapids, Michigan. Dr. Mark has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are VACTERL Association, Peters Plus Syndrome, Chromosome 21q Deletion, and Hypotonia.

    Robert J. Moore
    Advanced in Joubert Syndrome
    Family Medicine
    Advanced in Joubert Syndrome
    Family Medicine

    Corewell Health Internal Medicine - 1700 Biddle Ave

    1700 Biddle Avenue, 
    Wyandotte, MI 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Robert Moore is a primary care provider, practicing in Family Medicine in Wyandotte, Michigan. Dr. Moore has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Obesity in Children, Cerebellar Hypoplasia, Agyria Pachygyria Polymicrogyria, and Cerebellar Agenesis.

    Experienced in Joubert Syndrome
    Neurology
    Experienced in Joubert Syndrome
    Neurology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Eric Armour is a Neurologist in Ann Arbor, Michigan. Dr. Armour is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Tuberous Sclerosis Complex, and Tuberous Sclerosis.

    Advanced in Joubert Syndrome
    Pediatric Neurology
    Advanced in Joubert Syndrome
    Pediatric Neurology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Nicole Pariseau is a Pediatric Neurologist in Ann Arbor, Michigan. Dr. Pariseau is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss.

    Advanced in Joubert Syndrome
    Neurology
    Advanced in Joubert Syndrome
    Neurology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Laurel Reed is a Neurologist in Ann Arbor, Michigan. Dr. Reed is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Absence Seizure.

    Advanced in Joubert Syndrome
    Pediatrics
    Advanced in Joubert Syndrome
    Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Erin Neil is a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Danon Disease, Pompe Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy.

    Advanced in Joubert Syndrome
    Medical Genetics
    Advanced in Joubert Syndrome
    Medical Genetics

    Munson Medical Center Pediatric Specialty Clinic

    106 South Madison Street, 
    Traverse City, MI 
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mark Hannibal is a Medical Genetics provider in Traverse City, Michigan. Dr. Hannibal has been practicing medicine for over 32 years and is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Aase Syndrome, CHARGE Syndrome, Bowen-Conradi Syndrome, and Filippi Syndrome. Dr. Hannibal is currently accepting new patients.

    Adam H. Kuhlman
    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Corewell Health William Beaumont University Hospital Movement Disorders And Neuromodulation Clinic - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N120B, 
    Royal Oak, MI 
    Experience:
    13+ years
    Languages Spoken:
    English

    Adam Kuhlman is a Neurologist in Royal Oak, Michigan. Dr. Kuhlman has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, and Essential Tremor.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Giulia Benedetti is a Neurologist in Ann Arbor, Michigan. Dr. Benedetti is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Lissencephaly 1.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Office

    1540 E Medical Center Dr # 12-733, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Sucheta Joshi is a Neurologist in Ann Arbor, Michigan. Dr. Joshi is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are West Syndrome, Epilepsy in Children, Epilepsy, and Seizures.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Experience:
    10+ years
    Languages Spoken:
    English

    Sarah Dixon is a Pediatric Neurologist in Ann Arbor, Michigan. Dr. Dixon has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Conversion Disorder, Tourette Syndrome, Migraine, and Seizures.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Martha Carlson is a Pediatric Neurologist in Ann Arbor, Michigan. Dr. Carlson is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Seizures, Stereotypic Movement Disorder, and Spasmus Nutans.

    Experienced in Joubert Syndrome
    Medical Genetics
    Experienced in Joubert Syndrome
    Medical Genetics

    Munson Medical Center Pediatric Specialty Clinic

    106 South Madison Street, 
    Traverse City, MI 
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Amanda Pritchard is a Medical Genetics provider in Traverse City, Michigan. Dr. Pritchard has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome. Dr. Pritchard is currently accepting new patients.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Nicholas Beimer is a Neurologist in Ann Arbor, Michigan. Dr. Beimer is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Taryn-leigh Surtees is a Pediatric Neurologist in Ann Arbor, Michigan. Dr. Surtees is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Cavernous Sinus Thrombosis, Generalized Tonic-Clonic Seizure, Seizures, and Memory Loss.

    Experienced in Joubert Syndrome
    Medical Genetics
    Experienced in Joubert Syndrome
    Medical Genetics

    Regents Of The University Of Michigan

    24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
    Ann Arbor, MI 
    Languages Spoken:
    English
    Offers Telehealth

    Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    University Of Michigan Medical Center

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Kerri Neville is a Neurologist in Ann Arbor, Michigan. Dr. Neville is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are West Syndrome, Seizures, Photosensitive Epilepsy, and Generalized Tonic-Clonic Seizure.

    Showing 1-20 of 33

    Last Updated: 02/22/2026

    What is the definition of Joubert Syndrome?

    Joubert syndrome is a condition that affects the development of the brain. This condition can also impact many other parts of the body. The signs and symptoms seen in people with Joubert syndrome can vary, even among members of the same family.

    When should I see a Joubert Syndrome doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Joubert Syndrome doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Joubert Syndrome doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Joubert Syndrome doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Joubert Syndrome doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Joubert Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Joubert Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Joubert Syndrome doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Joubert Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Joubert Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Joubert Syndrome doctors in Michigan, US?

    Look for the filter feature on the left side of the Joubert Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Joubert Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Joubert Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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