The 20 Best Joubert Syndrome Doctors Near Me in Minnesota, US

Find the Top Joubert Syndrome Experts and Specialists

The 20 Best Joubert Syndrome Doctors in Minnesota, US

Last Updated: 02/22/2026

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MediFind found 16 doctor with experience in Joubert Syndrome near Minnesota, US. Of these, 13 are Experienced and 3 are Advanced.

Location
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16 providers found
    Advanced in Joubert Syndrome
    Advanced in Joubert Syndrome

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
    Languages Spoken:
    English

    Nicole Williams is a Neurologist in Maple Grove, Minnesota. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Orofaciodigital Syndrome 6.

    Advanced in Joubert Syndrome
    Advanced in Joubert Syndrome

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Galen Breningstall is a Neurologist in Saint Paul, Minnesota. Dr. Breningstall is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Epilepsy, Seizures, Orofaciodigital Syndrome 6, and Agyria Pachygyria Polymicrogyria.

    Advanced in Joubert Syndrome
    Family Medicine
    Advanced in Joubert Syndrome
    Family Medicine

    Simplicity Health

    3290 42nd Ave S, 
    St Cloud, MN 
    Languages Spoken:
    English

    Julie Anderson is a primary care provider, practicing in Family Medicine in St Cloud, Minnesota. Dr. Anderson is rated as an Advanced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Generalized Anxiety Disorder (GAD), Coach Syndrome, Agyria Pachygyria Polymicrogyria, Lissencephaly, and Intrauterine Device Insertion.

    Learn about our expert tiers
    Experienced in Joubert Syndrome
    Neurology
    Experienced in Joubert Syndrome
    Neurology

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist in Edina, Minnesota. Dr. Feyma is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Experienced in Joubert Syndrome
    Pediatrics
    Experienced in Joubert Syndrome
    Pediatrics

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Tori Bahr is a primary care provider, practicing in Pediatrics in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Temple Syndrome, and Mosaic Variegated Aneuploidy Syndrome.

    Experienced in Joubert Syndrome
    Medical Genetics | Pediatrics
    Experienced in Joubert Syndrome
    Medical Genetics | Pediatrics
    347 Smith Ave N, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Nancy Mendelsohn is a Medical Genetics specialist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Mendelsohn is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), Mucopolysaccharidoses (MPS), Cockayne Syndrome, and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

    Experienced in Joubert Syndrome
    Neurology | Pediatrics | Pediatric Neurology
    Experienced in Joubert Syndrome
    Neurology | Pediatrics | Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Keith Coffman is a Neurologist and a Pediatrics provider in Rochester, Minnesota. Dr. Coffman is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Drug Induced Dyskinesia, Tourette Syndrome, Short-Chain Acyl-CoA Dehydrogenase Deficiency, Movement Disorders, and Deep Brain Stimulation.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Charbel El Kosseifi is a Neurologist in Saint Paul, Minnesota. Dr. El Kosseifi is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Aphantasia, Chromosome 11 Uniparental Disomy, Chromosome 6 Uniparental Disomy, and Temple Syndrome.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Namita Garg is a Pediatric Neurologist in Saint Paul, Minnesota. Dr. Garg is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and GAPO Syndrome.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Karachunski is a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Karachunski is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Duchenne Muscular Dystrophy, Paramyotonia Congenita, Myotonic Dystrophy, and Myotonic Dystrophy Type 2.

    Experienced in Joubert Syndrome
    Pediatric Neurology
    Experienced in Joubert Syndrome
    Pediatric Neurology

    Noran Neurology - Lake Elmo

    8515 Eagle Point Blvd Ste 100, 
    Lake Elmo, MN 
    Languages Spoken:
    English

    Amy Catalfamo is a Pediatric Neurologist in Lake Elmo, Minnesota. Dr. Catalfamo is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Epilepsy Juvenile Absence, Migraine, Absence Seizure, and Seizures.

    Experienced in Joubert Syndrome
    Experienced in Joubert Syndrome

    Shriners Hospitals For Children-Twin Cities

    2025 E River Pkwy, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jessica Goldstein is a Pediatrics provider in Minneapolis, Minnesota. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Generalized Tonic-Clonic Seizure, and GAPO Syndrome.

    Experienced in Joubert Syndrome
    Internal Medicine
    Experienced in Joubert Syndrome
    Internal Medicine

    Abbott Northwestern Hospital

    800 E 28th St, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Angela Noble is a primary care provider, practicing in Internal Medicine in Minneapolis, Minnesota. Dr. Noble is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Moebius Syndrome, Cerebral Palsy, Lennox-Gastaut Syndrome (LGS), Baller-Gerold Syndrome, and Endoscopy.

    Experienced in Joubert Syndrome
    Neuromusculoskeletal Medicine
    Experienced in Joubert Syndrome
    Neuromusculoskeletal Medicine

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Randal Richardson is a Neuromusculoskeletal Medicine provider in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Fukuyama Type Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy.

    Experienced in Joubert Syndrome
    Family Medicine
    Experienced in Joubert Syndrome
    Family Medicine

    Park Nicollet Clinic Eden Prairie

    8455 Flying Cloud Dr, 
    Eden Prairie, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Kaitlyn Henkelman is a primary care provider, practicing in Family Medicine in Eden Prairie, Minnesota. Dr. Henkelman is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are VLDLR-Associated Cerebellar Hypoplasia, Bilateral Perisylvian Polymicrogyria, Hydranencephaly, and Coach Syndrome.

    Experienced in Joubert Syndrome
    Medical Genetics | Pediatrics
    Experienced in Joubert Syndrome
    Medical Genetics | Pediatrics
    2525 Chicago Ave S, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Amy Lebedoff is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lebedoff is rated as an Experienced provider by MediFind in the treatment of Joubert Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Head Circumference, and Proteus-Like Syndrome.

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    Last Updated: 02/22/2026

    What is the definition of Joubert Syndrome?

    Joubert syndrome is a condition that affects the development of the brain. This condition can also impact many other parts of the body. The signs and symptoms seen in people with Joubert syndrome can vary, even among members of the same family.

    When should I see a Joubert Syndrome doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Joubert Syndrome doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Joubert Syndrome doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Joubert Syndrome doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Joubert Syndrome doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Joubert Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Joubert Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Joubert Syndrome doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Joubert Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Joubert Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Joubert Syndrome doctors in Minnesota, US?

    Look for the filter feature on the left side of the Joubert Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Joubert Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Joubert Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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