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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in KBG Syndrome near Seattle, WA. Of these, 17 are Experienced and 1 are Advanced.

    Location
    LocationClose
    18 providers found
      Advanced in KBG Syndrome
      Cardiology
      Advanced in KBG Syndrome
      Cardiology

      Virginia Mason Medical Center

      1100 9th Ave, 
      Seattle, WA 
       (0.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Drew Baldwin is a Cardiologist in Seattle, Washington. Dr. Baldwin is rated as an Advanced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Coronary Heart Disease, Angina, Atherosclerosis, and Heart Failure with Preserved Ejection Fraction (HFpEF).

      Catherine Otto
      Experienced in KBG Syndrome
      Experienced in KBG Syndrome

      Gme Office University Of Washington

      1959 NE Pacific St, 
      Seattle,, WA 
       (3.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Catherine Otto is a Cardiologist in Seattle,, Washington. Dr. Otto is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Aortic Valve Stenosis, Marfan Syndrome, Bicuspid Aortic Valve, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

      Karen Stout
      Experienced in KBG Syndrome
      Cardiology
      Experienced in KBG Syndrome
      Cardiology

      Heart Institute At UW Medical Center – Montlake

      1959 NE Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Karen Stout is a Cardiologist in Seattle, Washington. Dr. Stout is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Partial Atrioventricular Canal, Heart Valve Repair, and Aortic Valve Replacement.

      Learn about our expert tiers
      Experienced in KBG Syndrome
      Endocrinology
      Experienced in KBG Syndrome
      Endocrinology

      The Association Of University Physicians

      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Joshua Thaler is an Endocrinologist in Seattle, Washington. Dr. Thaler is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Obesity, Russell-Silver Dwarfism, Meier-Gorlin Syndrome, Camptodactyly Syndrome Guadalajara Type 1, and Orchiectomy.

      Experienced in KBG Syndrome
      Medical Genetics | Neurology
      Experienced in KBG Syndrome
      Medical Genetics | Neurology

      The Association Of University Physicians

      1701 Columbia Rd, 
      Seattle, WA 
       (3.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Fuki Hisama is a Medical Genetics specialist and a Neurologist in Seattle, Washington. Dr. Hisama is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Werner Syndrome, Cockayne Syndrome, Coffin-Siris Syndrome, and Cornelia De Lange Syndrome.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome

      The Association Of University Physicians

      1701 Columbia Rd, 
      Seattle, WA 
       (3.1 miles away)
      Languages Spoken:
      English, Castilian, Filipino, French, German, Spanish
      Accepting New Patients
      Offers Telehealth

      Gary Stobbe is a Neurologist in Seattle, Washington. Dr. Stobbe is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Autism Spectrum Disorder, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Rett Syndrome. Dr. Stobbe is currently accepting new patients.

      Experienced in KBG Syndrome
      Pediatrics | Medical Genetics
      Experienced in KBG Syndrome
      Pediatrics | Medical Genetics
      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, Mandarin, Spanish
      Accepting New Patients
      Offers Telehealth

      Jennifer Hayek is a Pediatrics specialist and a Medical Genetics provider in Seattle, Washington. Dr. Hayek is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Smith-Magenis Syndrome, Miller-Dieker Syndrome, HNRNPH2-Related Disorder, and Townes-Brocks Syndrome. Dr. Hayek is currently accepting new patients.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome

      Heart Institute At UW Medical Center – Montlake

      1959 NE Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Yonatan Buber is a Cardiologist in Seattle, Washington. Dr. Buber is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Isthmian Coarctation, Coarctation of the Aorta, Arrhythmias, Heart Valve Repair, and Cardiac Ablation.

      Experienced in KBG Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in KBG Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Benjamin Dean is a Pediatric Neurologist and a Pediatrics provider in Seattle, Washington. Dr. Dean is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Aphantasia, Juvenile Myoclonic Epilepsy, Seizures, and Tourette Syndrome. Dr. Dean is currently accepting new patients.

      Experienced in KBG Syndrome
      Medical Genetics | Pediatrics
      Experienced in KBG Syndrome
      Medical Genetics | Pediatrics
      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anne Hing is a Medical Genetics specialist and a Pediatrics provider in Seattle, Washington. Dr. Hing is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Craniosynostosis, Micrognathia, Deafness Craniofacial Syndrome, and Acrofrontofacionasal Dysostosis Syndrome. Dr. Hing is currently accepting new patients.

      Experienced in KBG Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in KBG Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Catherine Otten is a Pediatric Neurologist and a Pediatrics provider in Seattle, Washington. Dr. Otten is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Acute Flaccid Myelitis (AFM), Anti-NMDA Receptor Encephalitis, Cramp-Fasciculation Syndrome, and Encephalitis. Dr. Otten is currently accepting new patients.

      Experienced in KBG Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in KBG Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      4800 Sand Point Way Ne, Oc.7.830, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michelle Kerr is a Pediatric Neurologist and a Pediatrics provider in Seattle, Washington. Dr. Kerr is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Seizures, Tourette Syndrome, Camptocormism, and Memory Loss. Dr. Kerr is currently accepting new patients.

      Experienced in KBG Syndrome
      Pediatric Neurology
      Experienced in KBG Syndrome
      Pediatric Neurology

      Seattle Children's Hospital

      4800 Sand Point Way NE, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Russell Saneto is a Pediatric Neurologist in Seattle, Washington. Dr. Saneto is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Leigh Syndrome, Epilepsy, Epilepsy in Children, and West Syndrome.

      Experienced in KBG Syndrome
      Pediatric Neurology | Neurology
      Experienced in KBG Syndrome
      Pediatric Neurology | Neurology
      4800 Sand Point Way Ne, 
      Seattle, WA 
       (4.5 miles away)
      Languages Spoken:
      English, Korean, Mandarin, Russian, Spanish, Tamil, Vietnamese
      Accepting New Patients
      Offers Telehealth

      Xiuhua Bozarth is a Pediatric Neurologist and a Neurologist in Seattle, Washington. Dr. Bozarth is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Seizures, West Syndrome, Lennox-Gastaut Syndrome (LGS), and Epilepsy in Children. Dr. Bozarth is currently accepting new patients.

      Experienced in KBG Syndrome
      Pediatric Cardiology
      Experienced in KBG Syndrome
      Pediatric Cardiology

      Seattle Children's Hospital

      4800 Sand Point Way NE, 
      Seattle,, WA 
       (4.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Luciana Young is a Pediatric Cardiologist in Seattle,, Washington. Dr. Young is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. Her top areas of expertise are Marfan Syndrome, Turner Syndrome, Mixed Gonadal Dysgenesis, and Perrault Syndrome.

      Experienced in KBG Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in KBG Syndrome
      Hematology Oncology | Hematology | Oncology

      The Association Of University Physicians

      1550 N 115th St, 
      Seattle, WA 
       (7.5 miles away)
      Languages Spoken:
      English, Castilian, Italian, Spanish
      Accepting New Patients
      Offers Telehealth

      Edmond Marzbani is a Hematologist Oncology specialist and a Hematologist in Seattle, Washington. Dr. Marzbani is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Pleuropulmonary Blastoma, Lung Cancer, Small Cell Lung Cancer (SCLC), and Posterior Fossa Tumor. Dr. Marzbani is currently accepting new patients.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome

      Uw Medicine/Valley Medical Center

      400 S 43rd St, 
      Renton, WA 
       (12.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      David Vossler is a Neurologist in Renton, Washington. Dr. Vossler is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Seizures, Epilepsy, Lennox-Gastaut Syndrome (LGS), Generalized Tonic-Clonic Seizure, and Awake Craniotomy.

      Experienced in KBG Syndrome
      Experienced in KBG Syndrome

      Valley Medical Group-Renton

      400 S 43rd St, 
      Renton, WA 
       (12.6 miles away)
      Languages Spoken:
      English, French, German, Mandarin, Polish, Spanish
      Accepting New Patients
      Offers Telehealth

      Wojciech Gryc is a Neurologist in Renton, Washington. Dr. Gryc is rated as an Experienced provider by MediFind in the treatment of KBG Syndrome. His top areas of expertise are Movement Disorders, Essential Tremor, Parkinson's Disease, and Drug Induced Dyskinesia. Dr. Gryc is currently accepting new patients.

      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of KBG Syndrome?

      KBG syndrome is a rare disorder that affects several body systems. "KBG" represents the surname initials of the first families diagnosed with the disorder. Common signs and symptoms in individuals with this condition include unusual facial features, skeletal abnormalities, and intellectual disability.

      When should I see a KBG Syndrome doctor near Seattle, WA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a KBG Syndrome doctor near Seattle, WA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank KBG Syndrome doctors near Seattle, WA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by KBG Syndrome doctors near Seattle, WA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a KBG Syndrome doctor near Seattle, WA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the KBG Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different KBG Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a KBG Syndrome doctor near Seattle, WA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my KBG Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my KBG Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female KBG Syndrome doctors near Seattle, WA?

      Look for the filter feature on the left side of the KBG Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a KBG Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the KBG Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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