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    Last Updated: 01/09/2026

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    MediFind found 56 doctor with experience in L1 Syndrome near Boston, MA. Of these, 45 are Experienced, 10 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    56 providers found
      Distinguished in L1 Syndrome
      Distinguished in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeremy Schmahmann is a Neurologist in Boston, Massachusetts. Dr. Schmahmann is rated as a Distinguished provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Spinocerebellar Ataxia, Acute Cerebellar Ataxia, Olivopontocerebellar Atrophy, Drug Induced Dyskinesia, and Gastrostomy. Dr. Schmahmann is currently accepting new patients.

      Advanced in L1 Syndrome
      Advanced in L1 Syndrome

      Beth Israel Deaconess Medical Center

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Elizabeth Raynor is a Neurologist in Boston, Massachusetts. Dr. Raynor is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Peripheral Neuropathy, Post Polio Syndrome, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Atrius Health Inc.

      133 Brookline Ave, 
      Boston, MA 
       (2.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Emily Coskun is a Neurologist in Boston, Massachusetts. Dr. Coskun is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Tension Headache, Migraine with Brainstem Aura, Spastic Paraplegia Type 5A, and Epilepsy.

      Learn about our expert tiers
      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Beth Israel Deaconess Medical Center

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Pushpa Narayanaswami is a Neurologist in Boston, Massachusetts. Dr. Narayanaswami is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Myasthenia Gravis, Limb-Girdle Muscular Dystrophy, Polymyositis, Vein of Galen Aneurysm, and Thymectomy.

      Experienced in L1 Syndrome
      Internal Medicine
      Experienced in L1 Syndrome
      Internal Medicine

      Cha Broadway Care Center

      300 Broadway, 
      Somerville, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      David Epstein is a primary care provider, practicing in Internal Medicine in Somerville, Massachusetts. Dr. Epstein is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Sickle Cell Disease, Type 2 Diabetes (T2D), Diabetic Neuropathy, and Diabetic Nephropathy.

      Experienced in L1 Syndrome
      Pediatric Cardiology
      Experienced in L1 Syndrome
      Pediatric Cardiology

      Department Of Neurology

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Coral Stredny is a Pediatric Cardiologist in Boston, Massachusetts. Dr. Stredny is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Seizures, Anti-NMDA Receptor Encephalitis, Encephalitis, and Status Epilepticus.

      Advanced in L1 Syndrome
      Advanced in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      300 1st Ave, 
      Charlestown, MA 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Donna Nimec is a Physiatrist in Charlestown, Massachusetts. Dr. Nimec is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, and Hemiplegia. Dr. Nimec is currently accepting new patients.

      Advanced in L1 Syndrome
      Advanced in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      300 1st Ave, 
      Charlestown, MA 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jason Frankel is a Physiatrist in Charlestown, Massachusetts. Dr. Frankel is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Opisthotonos, and Muscle Spasms. Dr. Frankel is currently accepting new patients.

      Advanced in L1 Syndrome
      Advanced in L1 Syndrome

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Patricia Greenstein is a Neurologist in Boston, Massachusetts. Dr. Greenstein is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Spinocerebellar Ataxia, Cervical Myelopathy, Spastic Ataxia Charlevoix-Saguenay Type, and Spinocerebellar Ataxia Type 28.

      Advanced in L1 Syndrome
      Neurology
      Advanced in L1 Syndrome
      Neurology

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Lan Luo is a Neurologist in Boston, Massachusetts. Dr. Luo is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Parkinson's Disease, Movement Disorders, Striatonigral Degeneration Infantile, and Familial Paroxysmal Nonkinesigenic Dyskinesia. Dr. Luo is currently accepting new patients.

      Advanced in L1 Syndrome
      Pediatric Neurology | Neurology
      Advanced in L1 Syndrome
      Pediatric Neurology | Neurology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Darius Ebrahimi-Fakhari is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ebrahimi-Fakhari is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Vici Syndrome, Chorea, Troyer Syndrome, and Spastic Paraplegia Type 2. Dr. Ebrahimi-Fakhari is currently accepting new patients.

      Advanced in L1 Syndrome
      Physiatry | Orthopedics
      Advanced in L1 Syndrome
      Physiatry | Orthopedics

      Children's Orthopaedic Surgery Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Fogelman is a Physiatrist and an Orthopedics provider in Boston, Massachusetts. Dr. Fogelman is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Spastic Diplegia Infantile Type, Cerebral Palsy, Spasticity, and Moebius Syndrome. Dr. Fogelman is currently accepting new patients.

      Advanced in L1 Syndrome
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in L1 Syndrome
      Neurology | Pediatrics | Pediatric Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Partha Ghosh is a Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Ghosh is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Congenital Myasthenic Syndrome, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Amyotonia Congenita. Dr. Ghosh is currently accepting new patients.

      Anthony A. Amato
      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Advanced in L1 Syndrome
      Pediatric Hematology Oncology
      Advanced in L1 Syndrome
      Pediatric Hematology Oncology
      44 Binney St, Dana Farber Cancer Institute, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Lewis Silverman is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Silverman is rated as an Advanced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Leukemia, Adult T-Cell Leukemia, and Kienbock's Disease.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome
      750 Washington St, Nemc Box #836, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Joseph Hanak is a Physiatrist in Boston, Massachusetts. Dr. Hanak is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. His top areas of expertise are Opisthotonos, Muscle Spasms, Spasticity, and Post Polio Syndrome.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sabrina Paganoni is a Physiatrist in Boston, Massachusetts. Dr. Paganoni is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Paganoni is currently accepting new patients.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nutan Sharma is a Neurologist in Boston, Massachusetts. Dr. Sharma is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Drug Induced Dyskinesia, Focal Dystonia, Movement Disorders, Dopa-Responsive Dystonia, and Deep Brain Stimulation. Dr. Sharma is currently accepting new patients.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Susan Ehrenthal is a Physiatrist in Boston, Massachusetts. Dr. Ehrenthal is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Bursitis, Tendinitis, Fibromyalgia, and Scoliosis. Dr. Ehrenthal is currently accepting new patients.

      Experienced in L1 Syndrome
      Experienced in L1 Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Doreen Ho is a Neurologist in Boston, Massachusetts. Dr. Ho is rated as an Experienced provider by MediFind in the treatment of L1 Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, Cramp-Fasciculation Syndrome, and Myasthenia Gravis. Dr. Ho is currently accepting new patients.

      Showing 1-20 of 56

      Last Updated: 01/09/2026

      What is the definition of L1 Syndrome?

      L1 syndrome describes a group of conditions that primarily affect the nervous system and occur almost exclusively in males. These conditions vary in severity and include, from most severe to least, X-linked hydrocephalus with stenosis of the aqueduct of Sylvius (HSAS), MASA syndrome, spastic paraplegia type 1, and X-linked complicated corpus callosum agenesis.

      When should I see a L1 Syndrome doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a L1 Syndrome doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank L1 Syndrome doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by L1 Syndrome doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a L1 Syndrome doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the L1 Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different L1 Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a L1 Syndrome doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my L1 Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my L1 Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female L1 Syndrome doctors near Boston, MA?

      Look for the filter feature on the left side of the L1 Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a L1 Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the L1 Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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