The 20 Best Lafora Disease Doctors in The United Kingdom

Find the Top Lafora Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 106 doctor with experience in Lafora Disease near The United Kingdom. Of these, 103 are Experienced, 2 are Advanced and 1 are Distinguished.

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106 providers found
    Distinguished in Lafora Disease
    Distinguished in Lafora Disease
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Henry Houlden practices practicing medicine in London, United Kingdom. Mr. Houlden is rated as a Distinguished expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 134 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

    Advanced in Lafora Disease
    Advanced in Lafora Disease
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Katri Silvennoinen practices practicing medicine in London, United Kingdom. Ms. Silvennoinen is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Progressive Myoclonic Epilepsy, and Dentatorubral-Pallidoluysian Atrophy.

    Advanced in Lafora Disease
    Advanced in Lafora Disease
    Referral may be required
    Fitzpatrick Referrals Halfway Lane, 
    Godalming, ENG, GB 

    Clare Rusbridge practices practicing medicine in Godalming, United Kingdom. Ms. Rusbridge is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Syringomyelia, Chiari Malformation, Chiari Malformation Type 2, Craniosynostosis, and Laminectomy.

    Learn about our expert tiers
    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Stevenage, ENG, GB 

    Charles Large practices practicing medicine in Stevenage, United Kingdom. Mr. Large is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Tinnitus, Auditory Processing Disorder, Auditory Neuropathy Spectrum Disorder, and Fragile X Syndrome.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Gunnels Wood Road, 
    Stevenage, ENG, GB 

    Martin Gunthorpe practices practicing medicine in Stevenage, United Kingdom. Mr. Gunthorpe is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    London, ENG, GB 

    Ricardo Guerrero practices practicing medicine in London, United Kingdom. Mr. Guerrero is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. His clinical expertise encompasses Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Vascular Dementia, and Dementia.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    London, ENG, GB 

    Julie Greenfield practices practicing medicine in London, United Kingdom. Ms. Greenfield is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Spinocerebellar Ataxia, Acute Cerebellar Ataxia, Drug Induced Dyskinesia, and Friedreich Ataxia.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Sanjay Sisodiya practices practicing medicine in London, United Kingdom. Mr. Sisodiya is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Myoclonic Epilepsy, Seizures, and Gastrostomy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Framlington Place, 
    Newcastle Upon Tyne, ENG, GB 

    Charlotte Alston practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Alston is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Mitochondrial Complex 2 Deficiency, Mitochondrial Complex 1 Deficiency, Lactic Acidosis, and Leigh Syndrome.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Antonietta Coppola practices practicing medicine in London, United Kingdom. Ms. Coppola is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Palatal Myoclonus, Epilepsy with Myoclonic-Atonic Seizures, Myoclonic Epilepsy, and Epilepsy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Guy's And St, 
    London, ENG, GB 

    Heinz Jungbluth practices practicing medicine in London, United Kingdom. Mr. Jungbluth is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Centronuclear Myopathy, Rhabdomyolysis, and Congenital Fiber-Type Disproportion.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Cambridge, ENG, GB 

    Massimo Zeviani practices practicing medicine in Cambridge, United Kingdom. Mr. Zeviani is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Progressive External Ophthalmoplegia, Leigh Syndrome, Mitochondrial Complex 1 Deficiency, Cytochrome C Oxidase Deficiency, and Tenotomy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Langford, ENG, GB 

    Susan Holt practices practicing medicine in Langford, United Kingdom. Ms. Holt is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Lafora Disease, Dentatorubral-Pallidoluysian Atrophy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    James Jepson practices practicing medicine in London, United Kingdom. Mr. Jepson is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Riboflavin Transporter Deficiency Neuronopathy, Myoclonic Epilepsy, and Primary Lateral Sclerosis.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Oxford, ENG, GB 

    Andrea Nemeth practices practicing medicine in Oxford, United Kingdom. Ms. Nemeth is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Hereditary Ataxia, Drug Induced Dyskinesia, Acute Cerebellar Ataxia, and Spinocerebellar Ataxia.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Robert Pitceathly practices practicing medicine in London, United Kingdom. Mr. Pitceathly is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses MELAS Syndrome, Progressive External Ophthalmoplegia, Mitochondrial Complex V Deficiency, and Leigh Syndrome.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    London, ENG, GB 

    Manolis Fanto practices practicing medicine in London, United Kingdom. Mr. Fanto is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Corpus Callosum Agenesis, Cataract, and Frontotemporal Dementia.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Elena Pegoraro practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Pegoraro is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal and Bulbar Muscular Atrophy, Primary Lateral Sclerosis, and Thymectomy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Dimitri Kullmann practices practicing medicine in London, United Kingdom. Mr. Kullmann is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Familial Periodic Paralysis, Epilepsy, Hypokalemic Periodic Paralysis, Landau-Kleffner Syndrome, and Thymectomy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Referral may be required
    Bristol, ENG, GB 

    Laura Smith practices practicing medicine in Bristol, United Kingdom. Ms. Smith is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Alpers-Huttenlocher Syndrome, Pelizaeus-Merzbacher Disease, Tumefactive Multiple Sclerosis, CACH Syndrome, and Kidney Transplant.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 106

    Last Updated: 11/08/2026

    What is the definition of Lafora Disease?

    Lafora disease is an inherited, severe form of progressive myoclonus epilepsy. The condition most commonly begins with epileptic seizures in late childhood or adolescence. Other signs and symptoms include difficulty walking, muscle spasms (myoclonus) and dementia. Affected people also experience rapid cognitive deterioration that begins around the same time as the seizures. Most cases are caused by changes in either the EPM2A gene or the NHLRC1 gene and are inherited in an autosomal recessive manner.

    When should I see a Lafora Disease doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Lafora Disease doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Lafora Disease doctor in The United Kingdom?

    You can find a Lafora Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Lafora Disease doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Lafora Disease doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Lafora Disease doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lafora Disease doctor search results page. 

    Why is it important to get a second opinion from a different Lafora Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Lafora Disease doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Lafora Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Lafora Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Lafora Disease doctors in The United Kingdom?

    Look for the filter feature on the left side of the Lafora Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Lafora Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Lafora Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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