The 20 Best Lafora Disease Doctors in Netherlands

Find the Top Lafora Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 53 doctor with experience in Lafora Disease near Netherlands. Of these, 47 are Experienced, 4 are Advanced and 2 are Distinguished.

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53 providers found
    Distinguished in Lafora Disease
    Distinguished in Lafora Disease
    Groningen, GR, NL 

    Tom De Koning practices practicing medicine in Groningen, Netherlands. Mr. De Koning is rated as a Distinguished expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Harding Ataxia.

    Distinguished in Lafora Disease
    Distinguished in Lafora Disease
    Groningen, GR, NL 

    Roald Lambrechts practices practicing medicine in Groningen, Netherlands. Mr. Lambrechts is rated as a Distinguished expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Advanced in Lafora Disease
    Advanced in Lafora Disease
    Groningen, GR, NL 

    Marina Tijssen practices practicing medicine in Groningen, Netherlands. Tijssen is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 21 other conditions, according to our data. Their clinical expertise encompasses Drug Induced Dyskinesia, Myoclonus-Dystonia, Palatal Myoclonus, Movement Disorders, and Deep Brain Stimulation.

    Learn about our expert tiers
    Advanced in Lafora Disease
    Advanced in Lafora Disease
    Groningen, GR, NL 

    Ody Sibon practices practicing medicine in Groningen, Netherlands. Mr. Sibon is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Epilepsy with Myoclonic-Atonic Seizures, and Hallervorden-Spatz Disease.

    Advanced in Lafora Disease
    Advanced in Lafora Disease
    Nijmegen, GE, NL 

    Michel Willemsen practices practicing medicine in Nijmegen, Netherlands. Mr. Willemsen is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Ataxia-Telangiectasia, Telangiectasia, Sjogren-Larsson Syndrome, and Dopamine Beta-Hydroxylase Deficiency.

    Advanced in Lafora Disease
    Advanced in Lafora Disease
    Groningen, GR, NL 

    Jenke Gorter practices practicing medicine in Groningen, Netherlands. Gorter is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Myoclonic Epilepsy, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Groningen, GR, NL 

    Oebele Brouwer practices practicing medicine in Groningen, Netherlands. Brouwer is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Acute Flaccid Myelitis (AFM), Cramp-Fasciculation Syndrome, Myelitis, Currarino Triad, and Ileostomy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Erasmus MC

    Rotterdam, ZH, NL 

    Zaid Afawi practices practicing medicine in Rotterdam, Netherlands. Mr. Afawi is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Partial Familial Epilepsy, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Groningen, GR, NL 

    Nicola Grzeschik practices practicing medicine in Groningen, Netherlands. Ms. Grzeschik is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. Her clinical expertise encompasses Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Epilepsy with Myoclonic-Atonic Seizures, and Myoclonic Epilepsy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Groningen, GR, NL 

    Martje Van Egmond practices practicing medicine in Groningen, Netherlands. Van Egmond is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Drug Induced Dyskinesia, Focal Dystonia, Movement Disorders, Mohr-Tranebjaerg Syndrome, and Deep Brain Stimulation.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Groningen, GR, NL 

    Sterre Van Der Veen practices practicing medicine in Groningen, Netherlands. Van Der Veen is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Palatal Myoclonus, Hereditary Hyperekplexia, Myoclonus-Dystonia, and Drug Induced Dyskinesia.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Groningen, GR, NL 

    Deborah Sival practices practicing medicine in Groningen, Netherlands. Ms. Sival is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Drug Induced Dyskinesia, Harding Ataxia, Movement Disorders, and Acute Cerebellar Ataxia.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Groningen, GR, NL 

    Gea Drost practices practicing medicine in Groningen, Netherlands. Ms. Drost is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Cramp-Fasciculation Syndrome, Drug Induced Dyskinesia, Paramyotonia Congenita, Deep Brain Stimulation, and Hepato-Pancreato-Biliary Surgery.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Lumc

    Leiden, ZH, NL 

    Rodi Zutt practices practicing medicine in Leiden, Netherlands. Zutt is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Palatal Myoclonus, Drug Induced Dyskinesia, Myoclonus-Dystonia, Movement Disorders, and Deep Brain Stimulation.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Lumc

    Leiden, ZH, NL 

    Willeke Mom-Van Roon practices practicing medicine in Leiden, Netherlands. Mom-Van Roon is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Spinocerebellar Ataxia Type 1, Huntington Disease, Olivopontocerebellar Atrophy, and Hereditary Cerebral Amyloid Angiopathy.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Leiden, ZH, NL 

    Herman Overkleeft practices practicing medicine in Leiden, Netherlands. Mr. Overkleeft is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Multiple Myeloma, and Niemann-Pick Disease.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Maastricht, LI, NL 

    Rick Kamps practices practicing medicine in Maastricht, Netherlands. Mr. Kamps is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. His clinical expertise encompasses Myoclonic Epilepsy Associated With Ragged Red Fibers, Kearns-Sayre Syndrome, Progressive External Ophthalmoplegia, and Leigh Syndrome.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Delft, ZH, NL 

    Arlin Keo practices practicing medicine in Delft, Netherlands. Mr. Keo is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, Dentatorubral-Pallidoluysian Atrophy, and Lafora Disease.

    Experienced in Lafora Disease
    Experienced in Lafora Disease

    Franciscus Gasthuis

    Rotterdam, ZH, NL 

    Paul De Laat practices practicing medicine in Rotterdam, Netherlands. Mr. De Laat is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses MELAS Syndrome, Ballinger-Wallace Syndrome, Lactic Acidosis, and Myoclonic Epilepsy Associated With Ragged Red Fibers.

    Experienced in Lafora Disease
    Experienced in Lafora Disease
    Nijmegen, GE, NL 

    Jan Smeitink practices practicing medicine in Nijmegen, Netherlands. Smeitink is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Mitochondrial Complex 1 Deficiency, MELAS Syndrome, Leigh Syndrome, and Cytochrome C Oxidase Deficiency.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 53

    Last Updated: 04/28/2026

    What is the definition of Lafora Disease?

    Lafora disease is an inherited, severe form of progressive myoclonus epilepsy. The condition most commonly begins with epileptic seizures in late childhood or adolescence. Other signs and symptoms include difficulty walking, muscle spasms (myoclonus) and dementia. Affected people also experience rapid cognitive deterioration that begins around the same time as the seizures. Most cases are caused by changes in either the EPM2A gene or the NHLRC1 gene and are inherited in an autosomal recessive manner.

    When should I see a Lafora Disease doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Lafora Disease doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Lafora Disease doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Lafora Disease doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Lafora Disease doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lafora Disease doctor search results page. 

    Why is it important to get a second opinion from a different Lafora Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Lafora Disease doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Lafora Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Lafora Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Lafora Disease doctors in Netherlands?

    Look for the filter feature on the left side of the Lafora Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Lafora Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Lafora Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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