The 20 Best Lafora Disease Doctors in Netherlands

Find the Top Lafora Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 49 doctor with experience in Lafora Disease near Netherlands. Of these, 44 are Experienced, 3 are Distinguished and 2 are Advanced.

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49 providers found
    Distinguished in Lafora Disease

    Tom J. De Koning
    Distinguished in Lafora Disease

    Tom J. De Koning
    Referral may be required
    Groningen, GR, NL 

    Tom De Koning practices practicing medicine in Groningen, Netherlands. Mr. De Koning is rated as a Distinguished expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Harding Ataxia.

    Distinguished in Lafora Disease

    Roald A. Lambrechts
    Distinguished in Lafora Disease

    Roald A. Lambrechts
    Referral may be required
    Groningen, GR, NL 

    Roald Lambrechts practices practicing medicine in Groningen, Netherlands. Mr. Lambrechts is rated as a Distinguished expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Distinguished in Lafora Disease

    Marina A. Tijssen
    Distinguished in Lafora Disease

    Marina A. Tijssen
    Referral may be required
    Groningen, GR, NL 

    Marina Tijssen practices practicing medicine in Groningen, Netherlands. Tijssen is rated as a Distinguished expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 20 other conditions, according to our data. Their clinical expertise encompasses Drug Induced Dyskinesia, Myoclonus-Dystonia, Palatal Myoclonus, Movement Disorders, and Deep Brain Stimulation.

    Learn about our expert tiers
    Advanced in Lafora Disease

    Ody M. Sibon
    Advanced in Lafora Disease

    Ody M. Sibon
    Referral may be required
    Groningen, GR, NL 

    Ody Sibon practices practicing medicine in Groningen, Netherlands. Mr. Sibon is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Lafora Disease, Dentatorubral-Pallidoluysian Atrophy, Hallervorden-Spatz Disease, and Epilepsy with Myoclonic-Atonic Seizures.

    Advanced in Lafora Disease

    Jenke A. Gorter
    Advanced in Lafora Disease

    Jenke A. Gorter
    Referral may be required
    Groningen, GR, NL 

    Jenke Gorter practices practicing medicine in Groningen, Netherlands. Gorter is rated as an Advanced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Myoclonic Epilepsy, Lafora Disease, Dentatorubral-Pallidoluysian Atrophy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Lafora Disease

    Oebele F. Brouwer
    Experienced in Lafora Disease

    Oebele F. Brouwer
    Referral may be required
    Groningen, GR, NL 

    Oebele Brouwer practices practicing medicine in Groningen, Netherlands. Brouwer is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Acute Flaccid Myelitis (AFM), Cramp-Fasciculation Syndrome, Myelitis, Epilepsy in Children, and Ileostomy.

    Experienced in Lafora Disease

    Zaid Afawi
    Experienced in Lafora Disease

    Zaid Afawi
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Zaid Afawi practices practicing medicine in Rotterdam, Netherlands. Mr. Afawi is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Partial Familial Epilepsy, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Lafora Disease

    Nicola A. Grzeschik
    Experienced in Lafora Disease

    Nicola A. Grzeschik
    Referral may be required
    Groningen, GR, NL 

    Nicola Grzeschik practices practicing medicine in Groningen, Netherlands. Ms. Grzeschik is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. Her clinical expertise encompasses Lafora Disease, Dentatorubral-Pallidoluysian Atrophy, Epilepsy with Myoclonic-Atonic Seizures, and Myoclonic Epilepsy.

    Experienced in Lafora Disease

    Sterre G. Van Der Veen
    Experienced in Lafora Disease

    Sterre G. Van Der Veen
    Referral may be required
    Groningen, GR, NL 

    Sterre Van Der Veen practices practicing medicine in Groningen, Netherlands. Van Der Veen is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Palatal Myoclonus, Hereditary Hyperekplexia, Myoclonus-Dystonia, and Drug Induced Dyskinesia.

    Experienced in Lafora Disease

    Martje E. Van Egmond
    Experienced in Lafora Disease

    Martje E. Van Egmond
    Referral may be required
    Groningen, GR, NL 

    Martje Van Egmond practices practicing medicine in Groningen, Netherlands. Van Egmond is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Drug Induced Dyskinesia, Focal Dystonia, Movement Disorders, Mohr-Tranebjaerg Syndrome, and Deep Brain Stimulation.

    Experienced in Lafora Disease

    Deborah A. Sival
    Experienced in Lafora Disease

    Deborah A. Sival
    Referral may be required
    Groningen, GR, NL 

    Deborah Sival practices practicing medicine in Groningen, Netherlands. Ms. Sival is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Drug Induced Dyskinesia, Harding Ataxia, Movement Disorders, and Acute Cerebellar Ataxia.

    Experienced in Lafora Disease

    Gea Drost
    Experienced in Lafora Disease

    Gea Drost
    Referral may be required
    Groningen, GR, NL 

    Gea Drost practices practicing medicine in Groningen, Netherlands. Ms. Drost is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Drug Induced Dyskinesia, Cramp-Fasciculation Syndrome, Hypokalemic Periodic Paralysis, Deep Brain Stimulation, and Hepato-Pancreato-Biliary Surgery.

    Experienced in Lafora Disease

    Rodi Zutt
    Experienced in Lafora Disease

    Rodi Zutt
    Referral may be required

    Lumc

    Leiden, ZH, NL 

    Rodi Zutt practices practicing medicine in Leiden, Netherlands. Zutt is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Palatal Myoclonus, Drug Induced Dyskinesia, Myoclonus-Dystonia, Movement Disorders, and Deep Brain Stimulation.

    Experienced in Lafora Disease

    Michel A. Willemsen
    Experienced in Lafora Disease

    Michel A. Willemsen
    Referral may be required
    Wageningen, GE, NL 

    Michel Willemsen practices practicing medicine in Wageningen, Netherlands. Mr. Willemsen is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Sjogren-Larsson Syndrome, Ataxia-Telangiectasia, Dopamine Beta-Hydroxylase Deficiency, and Telangiectasia.

    Experienced in Lafora Disease

    Herman S. Overkleeft
    Experienced in Lafora Disease

    Herman S. Overkleeft
    Referral may be required
    Leiden, ZH, NL 

    Herman Overkleeft practices practicing medicine in Leiden, Netherlands. Mr. Overkleeft is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Phosphoglycerate Mutase Deficiency, and Multiple Myeloma.

    Experienced in Lafora Disease

    Rick Kamps
    Experienced in Lafora Disease

    Rick Kamps
    Referral may be required
    Maastricht, LI, NL 

    Rick Kamps practices practicing medicine in Maastricht, Netherlands. Mr. Kamps is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. His clinical expertise encompasses Myoclonic Epilepsy Associated With Ragged Red Fibers, Kearns-Sayre Syndrome, Progressive External Ophthalmoplegia, and Leigh Syndrome.

    Experienced in Lafora Disease

    Arlin Keo
    Experienced in Lafora Disease

    Arlin Keo
    Referral may be required
    Delft, ZH, NL 

    Arlin Keo practices practicing medicine in Delft, Netherlands. Mr. Keo is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. His clinical expertise encompasses Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, Lafora Disease, and Dentatorubral-Pallidoluysian Atrophy.

    Experienced in Lafora Disease

    Oleh Dzyubachyk
    Experienced in Lafora Disease

    Oleh Dzyubachyk
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Oleh Dzyubachyk practices practicing medicine in Rotterdam, Netherlands. Mr. Dzyubachyk is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. His clinical expertise encompasses Spinal and Bulbar Muscular Atrophy, Huntington Disease, Congenital Diaphragmatic Hernia, and Diaphragmatic Hernia.

    Experienced in Lafora Disease

    Sabine A. Fuchs
    Experienced in Lafora Disease

    Sabine A. Fuchs
    Referral may be required
    Uppsalalaan 8, 3584, CT, 
    Utrecht, UT, NL 

    Sabine Fuchs practices practicing medicine in Utrecht, Netherlands. Ms. Fuchs is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Protein Deficiency, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, Rhabdomyolysis, Hepato-Pancreato-Biliary Surgery, and Liver Transplant.

    Experienced in Lafora Disease

    Anna Nolle
    Experienced in Lafora Disease

    Anna Nolle
    Referral may be required
    Amsterdam, NH, NL 

    Anna Nolle practices practicing medicine in Amsterdam, Netherlands. Ms. Nolle is rated as an Experienced expert by MediFind in the treatment of Lafora Disease. Her clinical expertise encompasses Myoclonic Epilepsy, Lafora Disease, and Dentatorubral-Pallidoluysian Atrophy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 49

    Last Updated: 06/30/2026

    What is the definition of Lafora Disease?

    Lafora disease is an inherited, severe form of progressive myoclonus epilepsy. The condition most commonly begins with epileptic seizures in late childhood or adolescence. Other signs and symptoms include difficulty walking, muscle spasms (myoclonus) and dementia. Affected people also experience rapid cognitive deterioration that begins around the same time as the seizures. Most cases are caused by changes in either the EPM2A gene or the NHLRC1 gene and are inherited in an autosomal recessive manner.

    When should I see a Lafora Disease doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Lafora Disease doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Lafora Disease doctor in Netherlands?

    You can find a Lafora Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Lafora Disease doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Lafora Disease doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Lafora Disease doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lafora Disease doctor search results page. 

    Why is it important to get a second opinion from a different Lafora Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Lafora Disease doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Lafora Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Lafora Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Lafora Disease doctors in Netherlands?

    Look for the filter feature on the left side of the Lafora Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Lafora Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Lafora Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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