The 20 Best Legius Syndrome Doctors in The United States

Find the Top Legius Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 6473 doctor with experience in Legius Syndrome near The United States. Of these, 6182 are Experienced, 265 are Advanced, 25 are Distinguished and 1 are Elite.

Location
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6,473 providers found
    Elite in Legius Syndrome
    Medical Genetics | Pediatrics
    Elite in Legius Syndrome
    Medical Genetics | Pediatrics
    Referral may be required
    2825 50th St Rm 2284, Uc Davis Mind Institute, 
    Sacramento, CA 
    Languages Spoken:
    English

    Katherine Rauen is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Rauen is rated as an Elite provider by MediFind in the treatment of Legius Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses RASopathies, Costello Syndrome, Cardiofaciocutaneous Syndrome, and Legius Syndrome.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral may be required

    Avera Medical Group Pain Management — Aberdeen

    820 1st Ave SE, Suite 200, 
    Aberdeen, SD 
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Wurnig-Johnson is a Pain Medicine provider practicing medicine in Aberdeen, South Dakota. Dr. Wurnig-Johnson is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Chronic Pain, Legius Syndrome, RASopathies, and Fibromyalgia. Dr. Wurnig-Johnson is board certified in National Commission On Certification Of Physician Assistants. Dr. Wurnig-Johnson is currently accepting new patients.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral may be required

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English
    Accepting New Patients

    Neha Patel is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Legius Syndrome, RASopathies, and Neurofibromatosis Type 1 (NF1). Dr. Patel is board certified in American Board Of Pediatrics, 2009. Dr. Patel is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Legius Syndrome
    Family Medicine
    Advanced in Legius Syndrome
    Family Medicine

    Bassett Health Center Canajoharie

    56 Montgomery Street, 
    Canajoharie, NY 
    Languages Spoken:
    English
    Offers Telehealth

    Kenneth Riley is a primary care provider, practicing in Family Medicine in Canajoharie, New York. Dr. Riley is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Maturity Onset Diabetes of the Young.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral may be required

    AdventHealth Medical Group Neuro Oncology At

    2501 N Orange Ave Ste 286, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Herbert Newton is an Oncologist practicing medicine in Orlando, Florida. Dr. Newton is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Glioma, Brain Tumor, Astrocytoma, and Glioblastoma. Dr. Newton is currently accepting new patients.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral may be required

    MUSC University Hospital

    171 Ashley Ave, 
    Charleston, SC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Scott Lindhorst is an Oncologist practicing medicine in Charleston, South Carolina. Dr. Lindhorst is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 36 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioblastoma, Glioma, Brain Tumor, and Awake Craniotomy. Dr. Lindhorst is currently accepting new patients.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral may be required

    Henry Ford West Bloomfield Hospital

    6777 W Maple Rd, 
    West Bloomfield, MI 
    Languages Spoken:
    English, French, German
    Accepting New Patients
    Offers Telehealth

    Tobias Walbert is a Neurologist practicing medicine in West Bloomfield, Michigan. Dr. Walbert is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Glioma, Brain Tumor, Glioblastoma, and Astrocytoma. Dr. Walbert is currently accepting new patients.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral required

    Amc

    47 New Scotland Ave, 
    Albany, NY 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Murnane is a Neurologist practicing medicine in Albany, New York. Dr. Murnane is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 66 other conditions, according to our data. His clinical expertise encompasses Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, Sensorimotor Polyneuropathy, and Septic Arthritis. Dr. Murnane is currently accepting new patients.

    Advanced in Legius Syndrome
    Advanced in Legius Syndrome
    Referral may be required

    Loyola University Medical Center

    6800 N Frontage Rd, 
    Burr Ridge, IL 
    Languages Spoken:
    English
    Accepting New Patients

    Vikram Prabhu is a Neurosurgery provider practicing medicine in Burr Ridge, Illinois. Dr. Prabhu is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 49 other conditions, according to our data. His clinical expertise encompasses Meningioma, Familial Porencephaly, Hydrocephalus, Awake Craniotomy, and Osteotomy. Dr. Prabhu is currently accepting new patients.

    Advanced in Legius Syndrome
    Neurosurgery
    Advanced in Legius Syndrome
    Neurosurgery
    Referral may be required

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kim Burchiel is a Neurosurgery provider practicing medicine in Portland, Oregon. Dr. Burchiel is rated as an Advanced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Trigeminal Neuralgia, Essential Tremor, Parkinson's Disease, Deep Brain Stimulation, and Microvascular Decompression. Dr. Burchiel is currently accepting new patients.

    Experienced in Legius Syndrome
    Plastic Surgery
    Experienced in Legius Syndrome
    Plastic Surgery
    Referral may be required
    259 E Erie St Ste 2060, Lavin Family Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jason Ko is a Plastic Surgeon practicing medicine in Chicago, Illinois. Dr. Ko is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Phantom Limb Pain, Legius Syndrome, Erb's Palsy, Leg or Foot Amputation, and Bone Graft. Dr. Ko is currently accepting new patients.

    Experienced in Legius Syndrome
    Hematology | Oncology
    Experienced in Legius Syndrome
    Hematology | Oncology
    Referral may be required
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Karan Dixit is a Hematologist and an Oncologist practicing medicine in Chicago, Illinois. Dr. Dixit is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioma, Brain Tumor, Glioblastoma, and Gastrostomy. Dr. Dixit is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified). Dr. Dixit is currently accepting new patients.

    Experienced in Legius Syndrome
    Pain Medicine
    Experienced in Legius Syndrome
    Pain Medicine
    Referral may be required

    Avera Medical Group Pain Management — Aberdeen

    820 1st Ave SE, Suite 200, 
    Aberdeen, SD 
    Languages Spoken:
    English
    Accepting New Patients

    Shawna Schmidt is a Pain Medicine provider practicing medicine in Aberdeen, South Dakota. Dr. Schmidt is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Chronic Pain, Sacroiliac Joint Disease, Neuralgia, and Fibromyalgia. Dr. Schmidt is board certified in American Board Of Anesthesiology; American Board Of Anesthesiology In Pain Management. Dr. Schmidt is currently accepting new patients.

    Experienced in Legius Syndrome
    Experienced in Legius Syndrome
    Referral may be required

    Sanford Eye Center &Amp; Optical

    1621 S. Minnesota Ave., 
    Sioux Falls, SD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Hayley Klein is a Pediatrics provider practicing medicine in Sioux Falls, South Dakota. Dr. Klein is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Gomez Lopez Hernandez Syndrome, Marcus Gunn Phenomenon, Microphthalmia Syndromic 9, and Micropthalmia Associated with Colobomatous Cyst. Dr. Klein is board certified in American Board Of Ophthalmology. Dr. Klein is currently accepting new patients.

    Experienced in Legius Syndrome
    Ophthalmology
    Experienced in Legius Syndrome
    Ophthalmology
    Referral may be required

    Cleveland Clinic Main Campus

    2022 East 105th Street, 
    Cleveland, OH 
    Languages Spoken:
    English, Hindi
    Accepting New Patients

    Fatema Ghasia is an Ophthalmologist practicing medicine in Cleveland, Ohio. Dr. Ghasia is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Brown Syndrome, Esotropia, and Deep Brain Stimulation. Dr. Ghasia is board certified in American Board Of Ophthalmology, 2013. Dr. Ghasia is currently accepting new patients.

    Experienced in Legius Syndrome
    Experienced in Legius Syndrome
    Referral may be required

    Duke Children's Health Center Hematology/Oncology Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Corinne Linardic is a Pediatrics provider practicing medicine in Durham, North Carolina. Dr. Linardic is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. Her clinical expertise encompasses Legius Syndrome, Childhood Iron Deficiency Anemia, Anemia, and RASopathies. Dr. Linardic is currently accepting new patients.

    Experienced in Legius Syndrome
    Experienced in Legius Syndrome
    Referral may be required

    Cornerstone Medical Pediatric Associates South

    1275 South Houston Lake Road, 
    Warner Robins, GA 
    Languages Spoken:
    English, Arabic, Spanish, Swahili
    Accepting New Patients

    Yasir Al-Qaqaa is a Pediatrics provider practicing medicine in Warner Robins, Georgia. Dr. Al-Qaqaa is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Obesity in Children, Diarrhea, Autism Spectrum Disorder, and Delayed Growth. Dr. Al-Qaqaa is board certified in American Board Of Preventive Medicine, American Board Of Pediatrics - Pediatric Critical Care Medicine, and American Board Of Pediatrics. Dr. Al-Qaqaa is currently accepting new patients.

    Experienced in Legius Syndrome
    Experienced in Legius Syndrome
    Referral may be required

    St. Christopher's Pediatric Associates Oncology - E. Erie Avenue

    160 E Erie Ave, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Gregory Halligan is a Pediatrics provider practicing medicine in Philadelphia, Pennsylvania. Dr. Halligan is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His clinical expertise encompasses Embryonal Tumor with Multilayered Rosettes, Classical Hodgkin Lymphoma, Gliomatosis Cerebri, Legius Syndrome, and Bone Marrow Aspiration. Dr. Halligan is board certified in American Board Of Pediatrics.

    Experienced in Legius Syndrome
    Experienced in Legius Syndrome
    Referral may be required

    Aurora Spine Surgery

    210 Wisconsin American Dr, 
    Fond Du Lac, WI 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Walter Jacobsen is a Neurologist practicing medicine in Fond Du Lac, Wisconsin. Dr. Jacobsen is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. His clinical expertise encompasses Sciatica, Invertebral Disc Disease, Legius Syndrome, Vertebroplasty, and Bone Graft. Dr. Jacobsen is board certified in American Board Of Neurological Surgery. Dr. Jacobsen is currently accepting new patients.

    Experienced in Legius Syndrome
    Family Medicine
    Experienced in Legius Syndrome
    Family Medicine

    Texas Health Family Care

    2721 Panhandle St, Suite 200, 
    Denton, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mclean Sanborn is a primary care provider, practicing in Family Medicine in Denton, Texas. Dr. Sanborn is rated as an Experienced provider by MediFind in the treatment of Legius Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Bronchitis, High Cholesterol, Type 2 Diabetes (T2D), and Glucocorticoid-Remediable Aldosteronism. Dr. Sanborn is currently accepting new patients.

    Showing 1-20 of 6,473

    Last Updated: 11/08/2026

    When should I see a Legius Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Legius Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Legius Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Legius Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Legius Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Legius Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Legius Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Legius Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Legius Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Legius Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Legius Syndrome doctors in The United States?

    Look for the filter feature on the left side of the Legius Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Legius Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Legius Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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