Leveraging Digital Health Solutions to Reduce Learning and Functional Disparities in Children With Cancer
This clinical trial evaluates a high intensity electronic health (eHealth) intervention program for reducing learning disparities in children with cancer. Most children with leukemia and lymphoblastic lymphoma can be cured due to advancements in diagnosis and treatment. However, because treatments for these conditions target the central nervous system, these children are at increased risk for developing neurocognitive late effects (problems with attention, thinking, learning, and remembering). Fortunately, many survivors do well, but some children continue to struggle with learning and have academic difficulties after their cancer treatments. The purpose of this research study is to see whether providing parents with educational knowledge and parenting tips using videoconferencing and a special website better helps their cancer survivor child in learning and school achievement compared to typical services.
• Documented informed consent of the participant and/or legally authorized representative
⁃ Assent, when appropriate, will be obtained per institutional guidelines
• Primary participating parent/caregiver is English- or Spanish-speaking (any race/ethnicity)
• Child is aged 6-12 years (yr.) (for the website usability pre-study, child is age 8 - 12 yrs.)
• Child understands English (but can be bilingual)
• Child treated for acute leukemia (e.g., acute lymphoblastic leukemia, acute myelogenous leukemia) or lymphoblastic lymphoma
• Child is in cancer remission and has completed cancer therapies, including maintenance treatment
• Primary participating parent/caregiver has daily contact with the child
• Child is enrolled in school