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    Last Updated: 10/30/2025

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    MediFind found 6 doctor with experience in Leukodystrophy near Zurich, CH. Of these, 6 are Experienced.

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    6 providers found
      Experienced in Leukodystrophy

      Robert Steinfeld
      Experienced in Leukodystrophy

      Robert Steinfeld
      Zurich, ZH, CH 

      Robert Steinfeld practices in Zurich, Switzerland. Mr. Steinfeld is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Folate Deficiency, CLN3 Disease, CLN1 Disease, and CLN5 Disease.

      Experienced in Leukodystrophy

      Andreas J. Hulsmeier
      Experienced in Leukodystrophy

      Andreas J. Hulsmeier
      Zurich, ZH, CH 

      Andreas Hulsmeier practices in Zurich, Switzerland. Mr. Hulsmeier is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Bardet-Biedl Syndrome, Leukodystrophy, Non-Alcoholic Fatty Liver Disease, and Hypophosphatemia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Leukodystrophy

      Eugen Boltshauser
      Experienced in Leukodystrophy

      Eugen Boltshauser
      Zurich, ZH, CH 

      Eugen Boltshauser practices in Zurich, Switzerland. Mr. Boltshauser is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Joubert Syndrome, Oculomotor Apraxia Cogan Type, Cerebellar Hypoplasia, and Dandy-Walker Syndrome.

      Learn about our expert tiers
      Experienced in Leukodystrophy

      Sandra P. Toelle
      Experienced in Leukodystrophy

      Sandra P. Toelle
      Zurich, ZH, CH 

      Sandra Toelle practices in Zurich, Switzerland. Ms. Toelle is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Oculomotor Apraxia Cogan Type, Diencephalic Syndrome, Ruvalcaba Syndrome, and Cowden Syndrome.

      Experienced in Leukodystrophy

      Thorsten Hornemann
      Experienced in Leukodystrophy

      Thorsten Hornemann
      Zurich, ZH, CH 

      Thorsten Hornemann practices in Zurich, Switzerland. Hornemann is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Hereditary Sensory Neuropathy Type 1 (HSN1), Anhidrosis, Hajdu-Cheney Syndrome, and Hereditary Sensory and Autonomic Neuropathy Type 2.

      Experienced in Leukodystrophy

      Angela Bahr
      Experienced in Leukodystrophy

      Angela Bahr
      Schlieren, ZH, CH 

      Angela Bahr practices in Schlieren, Switzerland. Ms. Bahr is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Micrognathia, Wolf-Hirschhorn Syndrome, and Retinitis Pigmentosa.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-6 of 6

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in Zurich, CH?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in Zurich, CH?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Leukodystrophy doctor in Zurich, CH?

      You can find a Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Leukodystrophy doctors in Zurich, CH?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in Zurich, CH?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in Zurich, CH?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in Zurich, CH?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in Zurich, CH?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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