The 20 Best Leukodystrophy Doctors in Germany

Find the Top Leukodystrophy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 218 doctor with experience in Leukodystrophy near Germany. Of these, 179 are Experienced, 29 are Advanced, 7 are Distinguished and 3 are Elite.

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218 providers found
    Elite in Leukodystrophy

    Ingeborg Mann-Krageloh
    Elite in Leukodystrophy

    Ingeborg Mann-Krageloh
    Tuebingen, BW, DE 

    Ingeborg Mann-Krageloh practices practicing medicine in Tuebingen, Germany. Ms. Mann-Krageloh is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

    Elite in Leukodystrophy

    Samuel Groeschel
    Elite in Leukodystrophy

    Samuel Groeschel
    Tuebingen, BW, DE 

    Samuel Groeschel practices practicing medicine in Tuebingen, Germany. Mr. Groeschel is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Bone Marrow Transplant.

    Elite in Leukodystrophy

    Christiane Kehrer
    Elite in Leukodystrophy

    Christiane Kehrer
    Tuebingen, BW, DE 

    Christiane Kehrer practices practicing medicine in Tuebingen, Germany. Ms. Kehrer is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Krabbe Disease, and Bone Marrow Transplant.

    Learn about our expert tiers
    Distinguished in Leukodystrophy

    Ludger J. Schols
    Distinguished in Leukodystrophy

    Ludger J. Schols
    Hoppe Seyler Str. 3, 
    Tuebingen, BW, DE 

    Ludger Schols practices practicing medicine in Tuebingen, Germany. Mr. Schols is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Paraplegia, Spastic Paraplegia Type 7, Spasticity, and Drug Induced Dyskinesia.

    Distinguished in Leukodystrophy

    Lucia Laugwitz
    Distinguished in Leukodystrophy

    Lucia Laugwitz
    Tuebingen, BW, DE 

    Lucia Laugwitz practices practicing medicine in Tuebingen, Germany. Ms. Laugwitz is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Pontocerebellar Hypoplasia, and Gastrostomy.

    Distinguished in Leukodystrophy

    Volkmar Gieselmann
    Distinguished in Leukodystrophy

    Volkmar Gieselmann
    Bonn, NW, DE 

    Volkmar Gieselmann practices practicing medicine in Bonn, Germany. Gieselmann is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Hereditary Spastic Paraparesis.

    Distinguished in Leukodystrophy

    Annette E. Bley
    Distinguished in Leukodystrophy

    Annette E. Bley
    Martini Str. 52, 
    Hamburg, HH, DE 

    Annette Bley practices practicing medicine in Hamburg, Germany. Ms. Bley is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Canavan Disease, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

    Distinguished in Leukodystrophy

    Wolfgang Kohler
    Distinguished in Leukodystrophy

    Wolfgang Kohler

    Fachkrankenhaus Hubertusburg

    Wermsdorf, SN, DE 

    Wolfgang Kohler practices practicing medicine in Wermsdorf, Germany. Mr. Kohler is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Adrenoleukodystrophy (ALD), Addison's Disease, Leukodystrophy, and Bone Marrow Transplant.

    Distinguished in Leukodystrophy

    Judith Bohringer
    Distinguished in Leukodystrophy

    Judith Bohringer
    Tuebingen, BW, DE 

    Judith Bohringer practices practicing medicine in Tuebingen, Germany. Ms. Bohringer is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Multiple Sulfatase Deficiency, and Bone Marrow Transplant.

    Distinguished in Leukodystrophy

    Ulrich Matzner
    Distinguished in Leukodystrophy

    Ulrich Matzner
    Bonn, NW, DE 

    Ulrich Matzner practices practicing medicine in Bonn, Germany. Mr. Matzner is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

    Advanced in Leukodystrophy

    Alfried Kohlschutter
    Advanced in Leukodystrophy

    Alfried Kohlschutter
    Martini Str. 52, 
    Hamburg, HH, DE 

    Alfried Kohlschutter practices practicing medicine in Hamburg, Germany. Kohlschutter is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Batten Disease, CLN1 Disease, CLN4 Disease, CLN5 Disease, and Bone Marrow Transplant.

    Advanced in Leukodystrophy

    Stefanie Beck-Wodl
    Advanced in Leukodystrophy

    Stefanie Beck-Wodl
    Tuebingen, BW, DE 

    Stefanie Beck-Wodl practices practicing medicine in Tuebingen, Germany. Ms. Beck-Wodl is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Coffin-Siris Syndrome, and Micrognathia.

    Advanced in Leukodystrophy

    Michaela Doring
    Advanced in Leukodystrophy

    Michaela Doring
    Hoppe Seyler St. 1, 
    Tuebingen, BW, DE 

    Michaela Doring practices practicing medicine in Tuebingen, Germany. Ms. Doring is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Graft Versus Host Disease (GvHD), CACH Syndrome, and Bone Marrow Transplant.

    Advanced in Leukodystrophy

    Tobias B. Haack
    Advanced in Leukodystrophy

    Tobias B. Haack
    Hoppe Seyler Str. 3, 
    Tuebingen, BW, DE 

    Tobias Haack practices practicing medicine in Tuebingen, Germany. Mr. Haack is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 71 other conditions, according to our data. His clinical expertise encompasses Lactic Acidosis, Spasticity, Hypotonia, Drug Induced Dyskinesia, and Gastrostomy.

    Advanced in Leukodystrophy

    Caroline G. Bergner
    Advanced in Leukodystrophy

    Caroline G. Bergner
    Leipzig, SN, DE 

    Caroline Bergner practices practicing medicine in Leipzig, Germany. Ms. Bergner is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Addison's Disease, Leukodystrophy, and Bone Marrow Transplant.

    Advanced in Leukodystrophy

    Pascal P. Martin
    Advanced in Leukodystrophy

    Pascal P. Martin
    Hoppe Seyler Str. 3, 
    Tuebingen, BW, DE 

    Pascal Martin practices practicing medicine in Tuebingen, Germany. Mr. Martin is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Epilepsy, and Myoclonic Epilepsy.

    Advanced in Leukodystrophy

    Vidiyaah Santhanakumaran
    Advanced in Leukodystrophy

    Vidiyaah Santhanakumaran
    Tuebingen, BW, DE 

    Vidiyaah Santhanakumaran practices practicing medicine in Tuebingen, Germany. Santhanakumaran is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gangliosidosis.

    Advanced in Leukodystrophy

    Benjamin Bender
    Advanced in Leukodystrophy

    Benjamin Bender
    Hoppe Seyler Str. 3, 
    Tuebingen, BW, DE 

    Benjamin Bender practices practicing medicine in Tuebingen, Germany. Mr. Bender is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Glioma, Brain Tumor, Thrombectomy, and Deep Brain Stimulation.

    Advanced in Leukodystrophy

    Malte R. Spielmann
    Advanced in Leukodystrophy

    Malte R. Spielmann
    Luebeck, SH, DE 

    Malte Spielmann practices practicing medicine in Luebeck, Germany. Spielmann is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 22 other conditions, according to our data. Their clinical expertise encompasses Liebenberg Syndrome, Learman Syndrome, Syndactyly, and Hypoplasia of the Tibia with Polydactyly.

    Advanced in Leukodystrophy

    Andrea Bevot
    Advanced in Leukodystrophy

    Andrea Bevot
    Hoppe Seyler Str. 3, 
    Tuebingen, BW, DE 

    Andrea Bevot practices practicing medicine in Tuebingen, Germany. Ms. Bevot is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Early Infantile Epileptic Encephalopathy, Microcephaly Deafness Syndrome, Leukodystrophy, and Deep Brain Stimulation.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 218

    Last Updated: 04/28/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Leukodystrophy doctor in Germany?

    You can find a Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Leukodystrophy doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors in Germany?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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