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    Last Updated: 10/30/2025

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    MediFind found 30 doctor with experience in Leukodystrophy near Lower Saxony, DE. Of these, 26 are Experienced and 4 are Advanced.

    Location
    LocationClose
    30 providers found
      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Jutta Gartner practices in Goettingen, Germany. Ms. Gartner is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Multiple Sulfatase Deficiency, Zellweger Syndrome, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, CACH Syndrome, and Thrombectomy.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Lars Schlotawa practices in Goettingen, Germany. Mr. Schlotawa is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Multiple Sulfatase Deficiency, Metachromatic Leukodystrophy, Chondrodysplasia Punctata with Steroid Sulfatase Deficiency, CACH Syndrome, and Thrombectomy.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Nils Janzen practices in Hannover, Germany. Mr. Janzen is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, Metachromatic Leukodystrophy, Glutaric Acidemia Type 2, and Leukodystrophy.

      Learn about our expert tiers
      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Andreas Ohlenbusch practices in Goettingen, Germany. Mr. Ohlenbusch is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Zellweger Syndrome, Multiple Sulfatase Deficiency, Xeroderma Pigmentosum, and Hemiplegia.

      Jens E. Schmidt
      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Jens Schmidt practices in Goettingen, Germany. Mr. Schmidt is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Myositis, Inclusion Body Myositis, Antisynthetase Syndrome, Polymyositis, and Vitrectomy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Steffi Kulaczewski-Dreha practices in Goettingen, Germany. Ms. Kulaczewski-Dreha is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Pelizaeus-Merzbacher Disease, Supernumerary Nipples, Alexander Disease, and Linear Nevus Sebaceous Syndrome.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Marco Henneke practices in Goettingen, Germany. Mr. Henneke is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are CACH Syndrome, Fetal Enterovirus Syndrome, West Syndrome, and Leukodystrophy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Stina Schiller practices in Goettingen, Germany. Ms. Schiller is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Acrokeratoelastoidosis of Costa, Palmoplantar Keratoderma, Agyria Pachygyria Polymicrogyria, and Fetal Enterovirus Syndrome.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Katharina Stoeck practices in Goettingen, Germany. Ms. Stoeck is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Multiple Sulfatase Deficiency, Creutzfeldt-Jakob Disease, Metachromatic Leukodystrophy, and Sensorimotor Polyneuropathy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Hannover, NI, DE 

      Theresa Stork practices in Hannover, Germany. Ms. Stork is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Krabbe Disease, Leukodystrophy, Chondrodystrophy, and Avian Influenza.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Christine Stadelmann practices in Goettingen, Germany. Ms. Stadelmann is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Neuromyelitis Optica, and Transverse Myelitis.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Goettingen, NI, DE 

      Franziska Van Der Meer practices in Goettingen, Germany. Ms. Van Der Meer is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Multiple Sclerosis (MS), Adrenoleukodystrophy (ALD), CACH Syndrome, and Addison's Disease.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Goettingen, NI, DE 

      Sabine Pfeifenbring practices in Goettingen, Germany. Ms. Pfeifenbring is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CACH Syndrome, Multiple Sclerosis (MS), Adrenoleukodystrophy (ALD), and Rathke Cleft Cyst.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str, 40, 
      Goettingen, NI, DE 

      Wolfgang Bruck practices in Goettingen, Germany. Mr. Bruck is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Encephalitis, and Milk-Alkali Syndrome.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Hannover, NI, DE 

      Enrice Huenerfauth practices in Hannover, Germany. Huenerfauth is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Status Epilepticus, Seizures, Fibrodysplasia Ossificans Progressiva, and Arachnoid Cysts.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Christian Hartmann practices in Hannover, Germany. Mr. Hartmann is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Glioma, Gliomatosis Cerebri, Astrocytoma, Brain Tumor, and Microvascular Decompression.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Ernst Grube Str. 40, 
      Halle, NI, DE 

      Gisela Didinger-Stoltenburg practices in Halle, Germany. Ms. Didinger-Stoltenburg is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Distal Myopathy 2, Autosomal Recessive Primary Microcephaly, Seckel Syndrome, and Achalasia Microcephaly Syndrome.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Goettingen, NI, DE 

      Anne Winkler practices in Goettingen, Germany. Ms. Winkler is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CACH Syndrome, Transverse Myelitis, Neuromyelitis Optica, and Optic Neuritis.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Stefan Nessler practices in Goettingen, Germany. Mr. Nessler is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are CACH Syndrome, Meningitis, Adrenoleukodystrophy (ALD), and Multiple Sclerosis (MS).

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Hannover, NI, DE 

      Wolfgang Baumgartner practices in Hannover, Germany. Mr. Baumgartner is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Congenital Mirror Movement Disorder, Parainfluenza, Encephalitis, and Gangliosidosis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 30

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in Lower Saxony, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in Lower Saxony, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leukodystrophy doctors in Lower Saxony, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in Lower Saxony, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in Lower Saxony, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in Lower Saxony, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in Lower Saxony, DE?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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