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    Last Updated: 10/30/2025

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    MediFind found 27 doctor with experience in Leukodystrophy near North Rhine-Westphalia, DE. Of these, 23 are Experienced, 2 are Advanced and 2 are Distinguished.

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    27 providers found
      Distinguished in Leukodystrophy

      Volkmar Gieselmann
      Distinguished in Leukodystrophy

      Volkmar Gieselmann
      Bonn, NW, DE 

      Volkmar Gieselmann practices in Bonn, Germany. Gieselmann is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Canavan Disease.

      Distinguished in Leukodystrophy

      Ulrich Matzner
      Distinguished in Leukodystrophy

      Ulrich Matzner
      Bonn, NW, DE 

      Ulrich Matzner practices in Bonn, Germany. Mr. Matzner is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

      Advanced in Leukodystrophy

      Karthikeyan Radhakrishnan
      Advanced in Leukodystrophy

      Karthikeyan Radhakrishnan
      Bielefeld, NW, DE 

      Karthikeyan Radhakrishnan practices in Bielefeld, Germany. Mr. Radhakrishnan is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Multiple Sulfatase Deficiency, Metachromatic Leukodystrophy, Leukodystrophy, and Chondrodysplasia Punctata with Steroid Sulfatase Deficiency.

      Learn about our expert tiers
      Advanced in Leukodystrophy

      Marc D. Sylvester
      Advanced in Leukodystrophy

      Marc D. Sylvester
      Bonn, NW, DE 

      Marc Sylvester practices in Bonn, Germany. Mr. Sylvester is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Glutaric Acidemia Type 1.

      Holger D. Thiele
      Experienced in Leukodystrophy

      Holger D. Thiele
      Experienced in Leukodystrophy

      Holger D. Thiele
      Kerpener Str 62, 
      Koeln, NW, DE 

      Holger Thiele practices in Koeln, Germany. Mr. Thiele is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Heart Attack, Cardiogenic Shock, Tricuspid Regurgitation, Percutaneous Coronary Intervention (PCI), and Transcatheter Aortic Valve Replacement (TAVR).

      Soren G. Gatermann
      Experienced in Leukodystrophy

      Soren G. Gatermann
      Experienced in Leukodystrophy

      Soren G. Gatermann
      Bochum, NW, DE 

      Soren Gatermann practices in Bochum, Germany. Gatermann is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Pseudomonas Stutzeri Infections, Hospital-Acquired Pneumonia, Pneumonia, and Tularemia.

      Experienced in Leukodystrophy

      Dagmar Timmann
      Experienced in Leukodystrophy

      Dagmar Timmann
      Essen, NW, DE 

      Dagmar Timmann practices in Essen, Germany. Ms. Timmann is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Cerebellar Degeneration, Drug Induced Dyskinesia, Spinocerebellar Ataxia, and Olivopontocerebellar Atrophy.

      Experienced in Leukodystrophy

      Peter N. Nurnberg
      Experienced in Leukodystrophy

      Peter N. Nurnberg
      Joseph Stelzmann Str. 26, 
      Koeln, NW, DE 

      Peter Nurnberg practices in Koeln, Germany. Mr. Nurnberg is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Autosomal Recessive Primary Microcephaly, and Cortical Dysplasia.

      Experienced in Leukodystrophy

      Matthias Eckhardt
      Experienced in Leukodystrophy

      Matthias Eckhardt
      Bonn, NW, DE 

      Matthias Eckhardt practices in Bonn, Germany. Mr. Eckhardt is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Canavan Disease, Hereditary Spastic Paraparesis, CACH Syndrome, and Metachromatic Leukodystrophy.

      Experienced in Leukodystrophy

      Kee-pyo Kim
      Experienced in Leukodystrophy

      Kee-pyo Kim
      Muenster, NW, DE 

      Kee-pyo Kim practices in Muenster, Germany. Kim is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Pelizaeus-Merzbacher Disease, CACH Syndrome, Denys-Drash Syndrome (DDS), and Metachromatic Leukodystrophy.

      Experienced in Leukodystrophy

      Rebekka Kohlmann
      Experienced in Leukodystrophy

      Rebekka Kohlmann
      Bochum, NW, DE 

      Rebekka Kohlmann practices in Bochum, Germany. Ms. Kohlmann is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Tularemia, Metachromatic Leukodystrophy, Leukodystrophy, and Sepsis.

      Experienced in Leukodystrophy

      Elena Jeworutzki
      Experienced in Leukodystrophy

      Elena Jeworutzki
      Muenster, NW, DE 

      Elena Jeworutzki practices in Muenster, Germany. Ms. Jeworutzki is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Leukodystrophy, and ECHO Virus.

      Experienced in Leukodystrophy

      Christoph M. Heyer
      Experienced in Leukodystrophy

      Christoph M. Heyer
      Bochum, NW, DE 

      Christoph Heyer practices in Bochum, Germany. Mr. Heyer is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Juvenile Paget's Disease, Primary Lateral Sclerosis, Rhizomelic Syndrome, Canavan Disease, and Osteotomy.

      Experienced in Leukodystrophy

      Stefan P. Lemburg
      Experienced in Leukodystrophy

      Stefan P. Lemburg
      St. Josef Hospital, Gudrunstr. 56, 
      Bochum, NW, DE 

      Stefan Lemburg practices in Bochum, Germany. Mr. Lemburg is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Canavan Disease, Leukodystrophy, and Osteotomy.

      Experienced in Leukodystrophy

      Wolfgang Hohne
      Experienced in Leukodystrophy

      Wolfgang Hohne
      Koeln, NW, DE 

      Wolfgang Hohne practices in Koeln, Germany. Mr. Hohne is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Autosomal Recessive Primary Microcephaly, Arterial Calcification of Infancy, Microcephaly, and Achalasia Microcephaly Syndrome.

      Experienced in Leukodystrophy

      Manfred Spraul
      Experienced in Leukodystrophy

      Manfred Spraul

      Mathias Spital Rheine

      Rheine, NW, DE 

      Manfred Spraul practices in Rheine, Germany. Mr. Spraul is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Phenylketonuria (PKU), Trimethylaminuria, Long Haul COVID, and Severe Acute Respiratory Syndrome (SARS).

      Experienced in Leukodystrophy

      Janine Altmuller
      Experienced in Leukodystrophy

      Janine Altmuller
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Janine Altmuller practices in Koeln, Germany. Ms. Altmuller is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and Oculomotor Apraxia Cogan Type.

      Experienced in Leukodystrophy

      Charlotte Thiels
      Experienced in Leukodystrophy

      Charlotte Thiels
      St. Josef Hospital, 
      Bochum, NW, DE 

      Charlotte Thiels practices in Bochum, Germany. Ms. Thiels is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Myelitis.

      Experienced in Leukodystrophy

      Sabine Hoffjan
      Experienced in Leukodystrophy

      Sabine Hoffjan
      St. Josef Hospital, 
      Bochum, NW, DE 

      Sabine Hoffjan practices in Bochum, Germany. Ms. Hoffjan is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Beta-Propeller Protein-Associated Neurodegeneration, Hallervorden-Spatz Disease, Primary Lateral Sclerosis, and Lipoid Proteinosis.

      Experienced in Leukodystrophy

      Hans R. Scholer
      Experienced in Leukodystrophy

      Hans R. Scholer
      Muenster, NW, DE 

      Hans Scholer practices in Muenster, Germany. Mr. Scholer is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Pelizaeus-Merzbacher Disease, Hairy Cell Leukemia (HCL), Retinal Vasculopathy with Cerebral Leukodystrophy, and Denys-Drash Syndrome (DDS).

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 27

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Leukodystrophy doctor in North Rhine-Westphalia, DE?

      You can find a Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Leukodystrophy doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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