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    Last Updated: 10/30/2025

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    MediFind found 116 doctor with experience in Leukodystrophy near The United Kingdom. Of these, 99 are Experienced, 15 are Advanced and 2 are Distinguished.

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    116 providers found
      Distinguished in Leukodystrophy

      Henry H. Houlden
      Distinguished in Leukodystrophy

      Henry H. Houlden

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Henry Houlden practices in London, United Kingdom. Mr. Houlden is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

      Distinguished in Leukodystrophy

      Evangeline Wassmer
      Distinguished in Leukodystrophy

      Evangeline Wassmer
      Birmingham, ENG, GB 

      Evangeline Wassmer practices in Birmingham, United Kingdom. Ms. Wassmer is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CACH Syndrome, Encephalitis, Multiple Sclerosis (MS), and Leukodystrophy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Frederik Barkhof
      Advanced in Leukodystrophy

      Frederik Barkhof
      Advanced in Leukodystrophy

      Frederik Barkhof
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Frederik Barkhof practices in London, United Kingdom. Mr. Barkhof is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Multiple Sclerosis (MS), Dementia, Alzheimer's Disease, CACH Syndrome, and Gastric Bypass.

      Learn about our expert tiers
      Advanced in Leukodystrophy

      Davide Pareyson
      Advanced in Leukodystrophy

      Davide Pareyson
      Queen Square, 
      London, ENG, GB 

      Davide Pareyson practices in London, United Kingdom. Mr. Pareyson is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Charcot-Marie-Tooth Disease, CACH Syndrome, Spinal and Bulbar Muscular Atrophy, and Adrenoleukodystrophy (ALD).

      Advanced in Leukodystrophy

      Indran Davagnanam
      Advanced in Leukodystrophy

      Indran Davagnanam

      UCL Queen Square Institute Of Neurology, Queen Square

      London, ENG, GB 

      Indran Davagnanam practices in London, United Kingdom. Davagnanam is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are CACH Syndrome, Leukodystrophy, Cerebrospinal Fluid Leak, Laminectomy, and Thalamotomy.

      Advanced in Leukodystrophy

      David S. Lynch
      Advanced in Leukodystrophy

      David S. Lynch
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      David Lynch practices in London, United Kingdom. Mr. Lynch is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are CACH Syndrome, Spasticity, Leukodystrophy, Spastic Paraplegia Type 7, and Bone Marrow Transplant.

      Advanced in Leukodystrophy

      Dipak Ram
      Advanced in Leukodystrophy

      Dipak Ram
      Oxford Road, 
      Manchester, ENG, GB 

      Dipak Ram practices in Manchester, United Kingdom. Mr. Ram is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Seizures, and CACH Syndrome.

      Advanced in Leukodystrophy

      Jeremy Chataway
      Advanced in Leukodystrophy

      Jeremy Chataway
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Jeremy Chataway practices in London, United Kingdom. Mr. Chataway is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, Leukodystrophy, and Patent Foramen Ovale Repair.

      Advanced in Leukodystrophy

      Elaine M. Murphy
      Advanced in Leukodystrophy

      Elaine M. Murphy
      Queen Square, 
      London, ENG, GB 

      Elaine Murphy practices in London, United Kingdom. Ms. Murphy is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Argininosuccinic Aciduria, Classic Galactosemia, Fabry Disease, Rhabdomyolysis, and Osteotomy.

      Advanced in Leukodystrophy

      Teresa Y. Wu
      Advanced in Leukodystrophy

      Teresa Y. Wu
      Manchester, ENG, GB 

      Teresa Wu practices in Manchester, United Kingdom. Ms. Wu is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Isovaleric Acidemia, and CACH Syndrome.

      Advanced in Leukodystrophy

      Georgina Morton
      Advanced in Leukodystrophy

      Georgina Morton
      506 Betula House, North Wharf Road, 
      London, ENG, GB 

      Georgina Morton practices in London, United Kingdom. Ms. Morton is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

      Advanced in Leukodystrophy

      Reza Maroofian
      Advanced in Leukodystrophy

      Reza Maroofian

      UCL Queen Square Institute Of Neurology

      London, ENG, GB 

      Reza Maroofian practices in London, United Kingdom. Mr. Maroofian is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, Microcephaly, Cortical Dysplasia, and Deep Brain Stimulation.

      Advanced in Leukodystrophy

      Heather J. Church
      Advanced in Leukodystrophy

      Heather J. Church
      Oxford Road, 
      Manchester, ENG, GB 

      Heather Church practices in Manchester, United Kingdom. Ms. Church is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Cholesteryl Ester Storage Disease, Wolman Disease, and Bone Marrow Transplant.

      Advanced in Leukodystrophy

      Simon A. Jones
      Advanced in Leukodystrophy

      Simon A. Jones
      Manchester University NHS FT, 
      Manchester, ENG, GB 

      Simon Jones practices in Manchester, United Kingdom. Mr. Jones is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Cholesteryl Ester Storage Disease, Mucopolysaccharidoses (MPS), Wolman Disease, Lysosomal Acid Lipase Deficiency, and Bone Marrow Transplant.

      Advanced in Leukodystrophy

      Nick C. Fox
      Advanced in Leukodystrophy

      Nick C. Fox
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Nick Fox practices in London, United Kingdom. Mr. Fox is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Dementia, Alzheimer's Disease, Frontotemporal Dementia, and Developmental Dysphasia Familial.

      Advanced in Leukodystrophy

      Huw B. Thomas
      Advanced in Leukodystrophy

      Huw B. Thomas
      St Mark's Hospital, London Northwest Healthcare Trust, 
      London, ENG, GB 

      Huw Thomas practices in London, United Kingdom. Thomas is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Deafness Craniofacial Syndrome, Lynch Syndrome, Choanal Atresia, Salpingo-Oophorectomy, and Oophorectomy.

      Advanced in Leukodystrophy

      Rahul Phadke
      Advanced in Leukodystrophy

      Rahul Phadke
      UCL Queen Square Institute Of Neurology, Queen Square, 
      London, ENG, GB 

      Rahul Phadke practices in London, United Kingdom. Mr. Phadke is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Amyotonia Congenita, Myotonia Congenita, Arthrogryposis Multiplex Congenita, and Congenital Contractures.

      Jonathan M. Schott
      Experienced in Leukodystrophy

      Jonathan M. Schott
      Experienced in Leukodystrophy

      Jonathan M. Schott
      UCL Queen Square Institute Of Neurology, 
      London, ENG, GB 

      Jonathan Schott practices in London, United Kingdom. Mr. Schott is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Dementia, Alzheimer's Disease, Developmental Dysphasia Familial, Knee Replacement, and Hip Replacement.

      Andrew R. Gennery
      Experienced in Leukodystrophy

      Andrew R. Gennery
      Experienced in Leukodystrophy

      Andrew R. Gennery
      Queen Victoria Road, 
      Newcastle Upon Tyne, ENG, GB 

      Andrew Gennery practices in Newcastle Upon Tyne, United Kingdom. Mr. Gennery is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Primary Immunodeficiency (PID), Severe Combined Immunodeficiency (SCID), Chronic Granulomatous Disease, Bone Marrow Transplant, and Heart Transplant.

      Experienced in Leukodystrophy

      Langping I. He
      Experienced in Leukodystrophy

      Langping I. He
      University Park, 
      Nottingham, ENG, GB 

      Langping He practices in Nottingham, United Kingdom. He is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Cytochrome C Oxidase Deficiency, Lactic Acidosis, Leigh Syndrome, and MELAS Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 116

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Leukodystrophy doctor in The United Kingdom?

      You can find a Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

      Leukodystrophy doctor near New York, NY
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      Leukodystrophy doctor near Philadelphia, PA
      Leukodystrophy doctor near Atlanta, GA
      Leukodystrophy doctor near Boston, MA
      Leukodystrophy doctor near Dallas, TX
      Leukodystrophy doctor near San Jose, CA

      How does MediFind rank Leukodystrophy doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in The United Kingdom?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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