The 20 Best Leukodystrophy Doctors in The United Kingdom

Find the Top Leukodystrophy Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 140 doctor with experience in Leukodystrophy near The United Kingdom. Of these, 122 are Experienced, 15 are Advanced, 2 are Distinguished and 1 are Elite.

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140 providers found
    Elite in Leukodystrophy
    Elite in Leukodystrophy
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Henry Houlden practices practicing medicine in London, United Kingdom. Mr. Houlden is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 134 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

    Distinguished in Leukodystrophy
    Distinguished in Leukodystrophy
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Frederik Barkhof practices practicing medicine in London, United Kingdom. Mr. Barkhof is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Dementia, Alzheimer's Disease, CACH Syndrome, and Gastric Bypass.

    Distinguished in Leukodystrophy
    Distinguished in Leukodystrophy
    Referral may be required
    Birmingham, ENG, GB 

    Evangeline Wassmer practices practicing medicine in Birmingham, United Kingdom. Ms. Wassmer is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Encephalitis, Aicardi-Goutieres Syndrome, and Multiple Sclerosis (MS).

    Learn about our expert tiers
    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Reza Maroofian practices practicing medicine in London, United Kingdom. Mr. Maroofian is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 55 other conditions, according to our data. His clinical expertise encompasses Microcephaly, Achalasia Microcephaly Syndrome, Early Infantile Epileptic Encephalopathy, Cortical Dysplasia, and Deep Brain Stimulation.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Davide Pareyson practices practicing medicine in London, United Kingdom. Mr. Pareyson is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, CACH Syndrome, Spinal and Bulbar Muscular Atrophy, and Adrenoleukodystrophy (ALD).

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Oxford Road, 
    Manchester, ENG, GB 

    Dipak Ram practices practicing medicine in Manchester, United Kingdom. Mr. Ram is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and CLN2 Disease.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Framlington Place, 
    Newcastle Upon Tyne, ENG, GB 

    David Lynch practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Lynch is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spasticity, Leukodystrophy, Spastic Paraplegia Type 7, and Bone Marrow Transplant.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required

    UCL Queen Square Institute Of Neurology, Queen Square

    London, ENG, GB 

    Indran Davagnanam practices practicing medicine in London, United Kingdom. Davagnanam is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses CACH Syndrome, Leukodystrophy, Cerebrospinal Fluid Leak, Laminectomy, and Thalamotomy.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Elaine Murphy practices practicing medicine in London, United Kingdom. Ms. Murphy is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Argininosuccinic Aciduria, Classic Galactosemia, Fabry Disease, Rhabdomyolysis, and Osteotomy.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Jeremy Chataway practices practicing medicine in London, United Kingdom. Mr. Chataway is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Leukodystrophy.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    506 Betula House, North Wharf Road, 
    London, ENG, GB 

    Georgina Morton practices practicing medicine in London, United Kingdom. Ms. Morton is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Manchester, ENG, GB 

    Teresa Wu practices practicing medicine in Manchester, United Kingdom. Ms. Wu is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Metachromatic Leukodystrophy, Leukodystrophy, Fumarase Deficiency, and Isovaleric Acidemia.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Oxford Road, 
    Manchester, ENG, GB 

    Heather Church practices practicing medicine in Manchester, United Kingdom. Ms. Church is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Mucopolysaccharidoses (MPS), Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Wolman Disease, Cholesteryl Ester Storage Disease, and Bone Marrow Transplant.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Queen Square MS Centre, UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Yael Hacohen practices practicing medicine in London, United Kingdom. Hacohen is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 16 other conditions, according to our data. Their clinical expertise encompasses Encephalitis, Optic Neuritis, Transverse Myelitis, and Neuromyelitis Optica.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Nick Fox practices practicing medicine in London, United Kingdom. Mr. Fox is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Frontotemporal Dementia, and Developmental Dysphasia Familial.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Framlington Place, 
    Newcastle Upon Tyne, ENG, GB 

    Huw Thomas practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Thomas is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Perrault Syndrome, Deafness Craniofacial Syndrome, Lynch Syndrome, Salpingo-Oophorectomy, and Oophorectomy.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    UCL Queen Square Institute Of Neurology, Queen Square, 
    London, ENG, GB 

    Rahul Phadke practices practicing medicine in London, United Kingdom. Mr. Phadke is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Amyotonia Congenita, and Myotonia Congenita.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    Leeds, ENG, GB 

    Lydia Green practices practicing medicine in Leeds, United Kingdom. Ms. Green is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Leukodystrophy, CACH Syndrome, Pelizaeus-Merzbacher Disease, and Spasticity.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required
    Queen Victoria Road, 
    Newcastle Upon Tyne, ENG, GB 

    Andrew Gennery practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Gennery is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Severe Combined Immunodeficiency (SCID), Primary Immunodeficiency (PID), Chronic Granulomatous Disease, Bone Marrow Transplant, and Heart Transplant.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Jonathan Schott practices practicing medicine in London, United Kingdom. Mr. Schott is rated as an Experienced expert by MediFind in the treatment of Leukodystrophy. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Developmental Dysphasia Familial, Delirium, and Knee Replacement.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 140

    Last Updated: 11/08/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Leukodystrophy doctor in The United Kingdom?

    You can find a Leukodystrophy doctor in any of the 10 largest U.S. cities by clicking below:

    Leukodystrophy doctor near New York, NY
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    How does MediFind rank Leukodystrophy doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors in The United Kingdom?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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