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    Last Updated: 10/30/2025

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    MediFind found 101 doctor with experience in Leukodystrophy near Netherlands. Of these, 77 are Experienced, 13 are Advanced, 7 are Distinguished and 4 are Elite.

    Location
    LocationClose
    101 providers found
      Elite in Leukodystrophy
      Elite in Leukodystrophy
      Amsterdam, NH, NL 

      Nicole Wolf practices in Amsterdam, Netherlands. Ms. Wolf is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Pelizaeus-Merzbacher Disease, and Bone Marrow Transplant.

      Elite in Leukodystrophy
      Elite in Leukodystrophy
      Amsterdam, NH, NL 

      Marjo Van Der Knaap practices in Amsterdam, Netherlands. Ms. Van Der Knaap is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CACH Syndrome, Leukodystrophy, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Metachromatic Leukodystrophy, and Bone Marrow Transplant.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Leukodystrophy
      Elite in Leukodystrophy
      Amsterdam, NH, NL 

      Shanice Beerepoot practices in Amsterdam, Netherlands. Ms. Beerepoot is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Singleton-Merten Syndrome.

      Learn about our expert tiers
      Elite in Leukodystrophy
      Elite in Leukodystrophy
      Amsterdam, NH, NL 

      Marianna Bugiani practices in Amsterdam, Netherlands. Ms. Bugiani is rated as an Elite expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Amsterdam, NH, NL 

      Daphne Schoenmakers practices in Amsterdam, Netherlands. Ms. Schoenmakers is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Niemann-Pick Disease.

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Utrecht, UT, NL 

      Caroline Lindemans practices in Utrecht, Netherlands. Ms. Lindemans is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, Graft Versus Host Disease (GvHD), Bone Marrow Transplant, and Liver Transplant.

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Utrecht, UT, NL 

      Diane Van Rappard practices in Utrecht, Netherlands. Ms. Van Rappard is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Gallbladder Removal.

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Amsterdam, NH, NL 

      Petra Pouwels practices in Amsterdam, Netherlands. Ms. Pouwels is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, Metachromatic Leukodystrophy, CACH Syndrome, and Obsessive-Compulsive Disorder (OCD).

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Utrecht, UT, NL 

      Peter Van Hasselt practices in Utrecht, Netherlands. Mr. Van Hasselt is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Metachromatic Leukodystrophy, Leukodystrophy, Osteotomy, and Bone Marrow Transplant.

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Amsterdam, NH, NL 

      Menno Stellingwerff practices in Amsterdam, Netherlands. Mr. Stellingwerff is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, Achalasia Microcephaly Syndrome, and Hepato-Pancreato-Biliary Surgery.

      Distinguished in Leukodystrophy
      Distinguished in Leukodystrophy
      Amsterdam, NH, NL 

      Marjolein Breur practices in Amsterdam, Netherlands. Breur is rated as a Distinguished expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Leukodystrophy, CACH Syndrome, Metachromatic Leukodystrophy, and Pelizaeus-Merzbacher Disease.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Carla Hollak practices in Amsterdam, Netherlands. Ms. Hollak is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Gaucher Disease Type 1, Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Classic Galactosemia, and Splenectomy.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Murtadha Saady-Al practices in Amsterdam, Netherlands. Saady-Al is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Their top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, and CACH Syndrome.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Vivi Heine practices in Amsterdam, Netherlands. Ms. Heine is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, CACH Syndrome, Rett Syndrome, and Adrenoleukodystrophy (ALD).

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Quinten Waisfisz practices in Amsterdam, Netherlands. Mr. Waisfisz is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Fetal Akinesia Sequence, Birt-Hogg-Dube Syndrome, CACH Syndrome, and Increased Head Circumference.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Nicole Breeuwsma practices in Amsterdam, Netherlands. Ms. Breeuwsma is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Adrenoleukodystrophy (ALD).

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Rosalina Van Spaendonk practices in Amsterdam, Netherlands. Ms. Van Spaendonk is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, CACH Syndrome, Blepharophimosis, and Megalencephalic Leukoencephalopathy with Subcortical Cysts.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy

      Olvg

      Amsterdam, NH, NL 

      Marjan Steenweg practices in Amsterdam, Netherlands. Ms. Steenweg is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CACH Syndrome, Leukodystrophy, Metachromatic Leukodystrophy, and Adrenoleukodystrophy (ALD).

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Stephanie Dooves practices in Amsterdam, Netherlands. Ms. Dooves is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, CACH Syndrome, Tuberous Sclerosis Complex, and Tuberous Sclerosis.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      Amsterdam, NH, NL 

      Stefan Roosendaal practices in Amsterdam, Netherlands. Mr. Roosendaal is rated as an Advanced expert by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Classic Galactosemia, Leukodystrophy, Galactose Epimerase Deficiency, Galactokinase Deficiency, and Thrombectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 101

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leukodystrophy doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in Netherlands?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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