The 20 Best Leukodystrophy Doctors Near Me in Florida, US

Find the Top Leukodystrophy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 24 doctor with experience in Leukodystrophy near Florida, US. Of these, 21 are Experienced and 3 are Advanced.

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24 providers found
    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required
    1150 Northwest 14th Street, Suite 609, 
    Miami, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Jose Romano is a Neurologist practicing medicine in Miami, Florida. Dr. Romano is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Stroke, Transient Ischemic Attack (TIA), CACH Syndrome, Thrombectomy, and Extracranial-Intracranial Bypass Surgery. Dr. Romano is currently accepting new patients.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required

    Ics Radiology

    7700 W Sunrise Blvd, 
    Plantation, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rushi Patel is a Radiologist practicing medicine in Plantation, Florida. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Leukodystrophy, CACH Syndrome, Gallbladder Disease, and Pleurisy. Dr. Patel is currently accepting new patients.

    Advanced in Leukodystrophy
    Family Medicine
    Advanced in Leukodystrophy
    Family Medicine

    AdventHealth Primary Care Kissimmee

    327 W Oak St, 
    Kissimmee, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Joel Weinberger is a primary care provider, practicing in Family Medicine in Kissimmee, Florida. Dr. Weinberger is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, Canavan Disease, and CACH Syndrome. Dr. Weinberger is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required

    Nemours Children's Health, Lake Nona Boulevard

    6718 Lake Nona Blvd., Suite 280, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Gifty Bhat is a Medical Genetics provider practicing medicine in Orlando, Florida. Dr. Bhat is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 133 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, HNRNPH2-Related Disorder, Chromosome 6q Duplication, and Chromosome 8p Deletion. Dr. Bhat is board certified in American Board Of Medical Genetics And Genomics. Dr. Bhat is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required

    Nemours Children's Health, Lakeland

    1324 Lakeland Hills Blvd., Lakeland Regional Health Medical Center, 
    Lakeland, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Gian Rossi is a Neurologist practicing medicine in Lakeland, Florida. Dr. Rossi is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 62 other conditions, according to our data. His clinical expertise encompasses Seizures, Stereotypic Movement Disorder, Spasmus Nutans, and Autism Spectrum Disorder. Dr. Rossi is board certified in American Board Of Psychiatry & Neurology. Dr. Rossi is currently accepting new patients.

    Experienced in Leukodystrophy
    Neuromusculoskeletal Medicine | Neurology
    Experienced in Leukodystrophy
    Neuromusculoskeletal Medicine | Neurology
    Referral may be required
    1150 Northwest 14th Street, Suite 609, 
    Miami, FL 
    Languages Spoken:
    English, Romanian
    Accepting New Patients
    Offers Telehealth

    Olimpia Carbunar is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in Miami, Florida. Dr. Carbunar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, VEXAS Syndrome, and Myasthenia Gravis. Dr. Carbunar is currently accepting new patients.

    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Referral may be required

    Johns Hopkins All Children's Hospital

    501 6th Avenue South, 
    Saint Petersburg, FL 
    Languages Spoken:
    English, Hungarian
    Accepting New Patients
    Offers Telehealth

    Peter Huszar is a Neurologist and a Pediatric Neurologist practicing medicine in Saint Petersburg, Florida. Dr. Huszar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Microcephaly. Dr. Huszar is board certified in American Board Of Psychiatry And Neurology. Dr. Huszar is currently accepting new patients.

    Experienced in Leukodystrophy
    Pediatric Neurology
    Experienced in Leukodystrophy
    Pediatric Neurology
    Referral may be required

    Orlando Health Arnold Palmer Hospital For Children Neurology

    6150 Metrowest Blvd, Ste 105, 
    Orlando, FL 
    Languages Spoken:
    English, Icelandic
    Accepting New Patients

    Laufey Sigurdardottir is a Pediatric Neurologist practicing medicine in Orlando, Florida. Dr. Sigurdardottir is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Autism Spectrum Disorder, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Sigurdardottir is board certified in American Board Of Psychiatry And Neurology and American Board Of Psychiatry & Neurology. Dr. Sigurdardottir is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Omer Hamid is a Neurologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 10 years. Dr. Hamid is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 62 other conditions, according to our data. His clinical expertise encompasses Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Hamid is board certified in American Board Of Psychiatry & Neurology. Dr. Hamid is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required

    MD Genetic Clinic

    1201 6th Ave W, 
    Bradenton, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Nadia Falah practices practicing medicine in Bradenton, Florida. Dr. Falah is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses 46XX Testicular Disorder of Sex Development, Waardenburg Syndrome Type 1, Pelizaeus-Merzbacher Disease, and Waardenburg Syndrome. Dr. Falah is board certified in American Board Of Medical Genetics.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required
    900 Northwest 17th Street, Floor 4, 
    Miami, FL 
    Languages Spoken:
    English, Turkish
    Accepting New Patients

    Mustafa Tekin is a Medical Genetics provider practicing medicine in Miami, Florida. Dr. Tekin is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Branchiootorenal Syndrome, Branchio-Oculo-Facial Syndrome (BOFS), KBG Syndrome, and Achalasia Microcephaly Syndrome. Dr. Tekin is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required
    1601 Northwest 12th Avenue, 
    Miami, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Willa Thorson is a Medical Genetics provider practicing medicine in Miami, Florida. Dr. Thorson is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses CHARGE Syndrome, Classic Galactosemia, KBG Syndrome, and Galactosemia. Dr. Thorson is currently accepting new patients.

    Experienced in Leukodystrophy
    Pediatric Radiology | Pediatrics | Radiology
    Experienced in Leukodystrophy
    Pediatric Radiology | Pediatrics | Radiology
    Referral may be required

    Nemours Children's Health, Downtown Orlando

    1717 S. Orange Ave., 
    Orlando, FL 
    Languages Spoken:
    English, Filipino
    Accepting New Patients
    Offers Telehealth

    Vinay Kandula is a Pediatric Radiologist and a Pediatrics provider practicing medicine in Orlando, Florida. Dr. Kandula is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Aplasia Cutis Congenita, and Ectodermal Dysplasias. Dr. Kandula is board certified in American Board Of Radiology. Dr. Kandula is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics
    Referral may be required

    Mayo Clinic Jacksonville

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Karthik Muthusamy is a Medical Genetics provider practicing medicine in Jacksonville, Florida. He has been practicing medicine for over 18 years. Dr. Muthusamy is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Familial Multiple Lipomatosis, Branchiootorenal Syndrome, Branchio-Oculo-Facial Syndrome (BOFS), MELAS Syndrome, and Thrombectomy. Dr. Muthusamy is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Referral may be required

    Florida Clinical Practice Association Inc

    1600 Sw Archer Rd, 
    Gainesville, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Klaas Wierenga is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Gainesville, Florida. Dr. Wierenga is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Hypotonia, Nevoid Basal Cell Carcinoma Syndrome, Smith-Magenis Syndrome, and Ehlers-Danlos Syndrome (EDS). Dr. Wierenga is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required

    Mayo Clinic Hospital In Florida

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Sara Hooshmand is a Neurologist practicing medicine in Jacksonville, Florida. Dr. Hooshmand is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her clinical expertise encompasses CACH Syndrome, Chorea, Leukodystrophy, Low Blood Pressure, and Thalamotomy.

    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    TGH Family Care Center Kennedy

    2501 W Kennedy Blvd, 
    Tampa, FL 
    Languages Spoken:
    English, Arabic, Hindi, Spanish, Urdu
    Accepting New Patients
    Offers Telehealth

    Akif Ahmad is a primary care provider, practicing in Family Medicine in Tampa, Florida. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His clinical expertise encompasses Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Type 2 Diabetes (T2D). Dr. Ahmad is currently accepting new patients.

    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    Uf Health Family Medicine-Magnolia Parke

    3951 NW 48th Ter Ste 101, 
    Gainesville, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nicole Provost is a primary care provider, practicing in Family Medicine in Gainesville, Florida. Dr. Provost is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Sitosterolemia, Maturity Onset Diabetes of the Young, Hypertension, and Familial Hypertension. Dr. Provost is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics | Obstetrics and Gynecology
    Experienced in Leukodystrophy
    Medical Genetics | Obstetrics and Gynecology
    Referral may be required
    3100 Sw 62nd Ave, 
    Miami, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Brocha Tarshish is a Medical Genetics specialist and an Obstetrics and Gynecologist practicing medicine in Miami, Florida. Dr. Tarshish is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her clinical expertise encompasses 46XX Testicular Disorder of Sex Development, Pelizaeus-Merzbacher Disease, and Leukodystrophy. Dr. Tarshish is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Referral may be required
    1131 N 35th Ave Fl 2, 
    Hollywood, FL 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Paul Benke is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Hollywood, Florida. Dr. Benke is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Rommen Mueller Sybert Syndrome, Sandhaus Ben-Ami Syndrome, and Fabry Disease. Dr. Benke is currently accepting new patients.

    Showing 1-20 of 24

    Last Updated: 09/26/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leukodystrophy doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors in Florida, US?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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