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    Last Updated: 01/09/2026

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    MediFind found 22 doctor with experience in Leukodystrophy near Florida, US. Of these, 19 are Experienced and 3 are Advanced.

    Location
    LocationClose
    22 providers found
      Advanced in Leukodystrophy
      Radiology | Interventional Radiology
      Advanced in Leukodystrophy
      Radiology | Interventional Radiology

      Sheridan Radiology Services Of South Florida Inc

      5352 Linton Blvd, 
      Delray Beach, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rushi Patel is a Radiologist and an Interventional Radiologist in Delray Beach, Florida. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Leukodystrophy, CACH Syndrome, Gallbladder Disease, and Pleurisy. Dr. Patel is currently accepting new patients.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy

      University Of Miami

      1400 Nw 12th Ave Ent-7, University Of Miami Hospit, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Jose Romano is a Neurologist in Miami, Florida. Dr. Romano is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Stroke, Transient Ischemic Attack (TIA), Alexander Disease, Thrombectomy, and Extracranial-Intracranial Bypass Surgery. Dr. Romano is currently accepting new patients.

      Advanced in Leukodystrophy
      Family Medicine
      Advanced in Leukodystrophy
      Family Medicine

      Adventhealth Primary Care Network Inc

      661 E Altamonte Dr, Suite 115, 
      Altamonte Springs, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Joel Weinberger is a primary care provider, practicing in Family Medicine in Altamonte Springs, Florida. Dr. Weinberger is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Leukodystrophy, and Metachromatic Leukodystrophy. Dr. Weinberger is currently accepting new patients.

      Learn about our expert tiers
      Peter Huszar
      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology
      Experienced in Leukodystrophy
      Neurology | Pediatric Neurology

      Johns Hopkins All Children's Hospital

      501 6th Avenue South, 
      Saint Petersburg, FL 
      Languages Spoken:
      English, Hungarian
      Offers Telehealth

      Dr. Huszar specializes in care for hospitalized pediatric neurology patients in the Johns Hopkins All Children’s Institute for Brain Protection Sciences in St. Petersburg, Florida. He rejoined the medical staff in 2023 after a previous stint from 2014-19. Dr. Huszar’s clinical and research interests include neonatal and childhood cerebrovascular disorders and childhood primary headaches. Dr. Huszar received his medical degree from Albert Szent-Gyorgyi Medical University (SZOTE) in Szeged, Hungary. Dr. Huszar trained in pediatrics at Erzsebet Hospital in Hodmezovasarhely, Hungary and SUNY Downstate Medical Center in Brooklyn, New York. He then completed a pediatric neurology residency/fellowship at SUNY Downstate Medical Center. Dr. Huszar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Microcephaly with Spastic Quadriplegia.

      Nadia A. Falah
      Experienced in Leukodystrophy
      Medical Genetics
      Experienced in Leukodystrophy
      Medical Genetics

      MD Genetic Clinic

      1201 6th Ave W, 
      Bradenton, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Nadia Falah practices in Bradenton, Florida. Dr. Falah is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are 46XX Testicular Disorder of Sex Development, Pelizaeus-Merzbacher Disease, Waardenburg Syndrome, and Waardenburg Syndrome Type 1.

      Experienced in Leukodystrophy
      Medical Genetics
      Experienced in Leukodystrophy
      Medical Genetics

      Mayo Clinic Jacksonville

      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Karthik Muthusamy is a Medical Genetics provider in Jacksonville, Florida. Dr. Muthusamy has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Branchiootorenal Syndrome, Branchio-Oculo-Facial Syndrome (BOFS), RFT1-CDG, Prader-Willi Syndrome, and Thrombectomy. Dr. Muthusamy is currently accepting new patients.

      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      1324 Lakeland Hills Blvd Ste A, 
      Lakeland, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Gian Rossi is a Pediatric Neurologist and a Neurologist in Lakeland, Florida. Dr. Rossi is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Seizures, Stereotypic Movement Disorder, Spasmus Nutans, and Autism Spectrum Disorder. Dr. Rossi is currently accepting new patients.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      University Of Miami

      1611 Nw 12 Th Ave, Jackson Memorial Hospital, 
      Miami, FL 
      Languages Spoken:
      English, Romanian
      Accepting New Patients
      Offers Telehealth

      Olimpia Carbunar is a Neurologist in Miami, Florida. Dr. Carbunar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, VEXAS Syndrome, and Myasthenia Gravis. Dr. Carbunar is currently accepting new patients.

      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics
      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics

      Florida Clinical Practice Association Inc

      1600 Sw Archer Rd, Suite 100371, 
      Gainesville, FL 
      Languages Spoken:
      English

      Klaas Wierenga is a Medical Genetics specialist and a Pediatrics provider in Gainesville, Florida. Dr. Wierenga is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Hypotonia, Nevoid Basal Cell Carcinoma Syndrome, Smith-Magenis Syndrome, and Ehlers-Danlos Syndrome (EDS).

      Experienced in Leukodystrophy
      Pediatric Hematology Oncology
      Experienced in Leukodystrophy
      Pediatric Hematology Oncology
      2501 N Orange Ave Ste 589, 
      Orlando, FL 
      Languages Spoken:
      English

      Heather Allewelt is a Pediatric Hematologist Oncology provider in Orlando, Florida. Dr. Allewelt is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, Metachromatic Leukodystrophy, Adrenoleukodystrophy (ALD), Leukemia, and Bone Marrow Transplant.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Florida Clinical Practice Association Inc

      2001 Sw 13th St, Gi Clinic At Endoscopy Cen, 
      Gainesville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Amanda Currie is a Neurologist in Gainesville, Florida. Dr. Currie is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Spasticity, Movement Disorders, Parkinson's Disease, Pol 3-Related Leukodystrophy, and Deep Brain Stimulation. Dr. Currie is currently accepting new patients.

      Experienced in Leukodystrophy
      Family Medicine
      Experienced in Leukodystrophy
      Family Medicine

      Tampa General Medical Group Inc

      2501 W Kennedy Blvd, 
      Tampa, FL 
      Languages Spoken:
      English, Arabic, Hindi, Spanish, Urdu
      Accepting New Patients
      Offers Telehealth

      Akif Ahmad is a primary care provider, practicing in Family Medicine in Tampa, Florida. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Type 2 Diabetes (T2D). Dr. Ahmad is currently accepting new patients.

      Experienced in Leukodystrophy
      Family Medicine
      Experienced in Leukodystrophy
      Family Medicine

      Shands Teaching Hospital And Clinics Inc

      3951 Nw 48th Ter, Suite 101, 
      Gainesville, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nicole Provost is a primary care provider, practicing in Family Medicine in Gainesville, Florida. Dr. Provost is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Sitosterolemia, Maturity Onset Diabetes of the Young, Familial Hypertension, and Hypertension. Dr. Provost is currently accepting new patients.

      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Omer Abdul-Hamid is a Pediatric Neurologist and a Neurologist in Orlando, Florida. Dr. Abdul-Hamid is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Abdul-Hamid is currently accepting new patients.

      Experienced in Leukodystrophy
      Family Medicine
      Experienced in Leukodystrophy
      Family Medicine
      90130 Old Hwy, Suite 1, 
      Tavernier, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Miguel Diaz is a primary care provider, practicing in Family Medicine in Tavernier, Florida. Dr. Diaz is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Chronic Graft Versus Host Disease (cGvHD), Graft Versus Host Disease (GvHD), Leukemia, Bone Graft, and Adenoidectomy. Dr. Diaz is currently accepting new patients.

      Experienced in Leukodystrophy
      Medical Genetics | Obstetrics and Gynecology
      Experienced in Leukodystrophy
      Medical Genetics | Obstetrics and Gynecology
      3100 Sw 62nd Ave, 
      Miami, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Brocha Tarshish is a Medical Genetics specialist and an Obstetrics and Gynecologist in Miami, Florida. Dr. Tarshish is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are 46XX Testicular Disorder of Sex Development, Pelizaeus-Merzbacher Disease, and Leukodystrophy. Dr. Tarshish is currently accepting new patients.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Mayo Clinic Jacksonville

      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Languages Spoken:
      English
      Accepting New Patients

      Zbigniew Wszolek is a Neurologist in Jacksonville, Florida. Dr. Wszolek is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Movement Disorders, Parkinson's Disease, Focal Dystonia, and Drug Induced Dyskinesia. Dr. Wszolek is currently accepting new patients.

      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics
      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics

      University Of Miami

      1611 Nw 12 Th Ave, Jackson Memorial Hospital, 
      Miami, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Willa Thorson is a Medical Genetics specialist and a Pediatrics provider in Miami, Florida. Dr. Thorson is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CHARGE Syndrome, Classic Galactosemia, KBG Syndrome, and Galactosemia. Dr. Thorson is currently accepting new patients.

      Experienced in Leukodystrophy
      Pediatric Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology
      2508 W Virginia Ave, Suite B, 
      Tampa, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Raymond Fernandez is a Pediatric Neurologist in Tampa, Florida. Dr. Fernandez is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Duchenne Muscular Dystrophy, Leukodystrophy, and CACH Syndrome. Dr. Fernandez is currently accepting new patients.

      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics
      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics
      1131 N 35th Ave Fl 2, 
      Hollywood, FL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Paul Benke is a Medical Genetics specialist and a Pediatrics provider in Hollywood, Florida. Dr. Benke is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant, Sandhaus Ben-Ami Syndrome, Rommen Mueller Sybert Syndrome, and 46XX Testicular Disorder of Sex Development. Dr. Benke is currently accepting new patients.

      Showing 1-20 of 22

      Last Updated: 01/09/2026

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in Florida, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in Florida, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leukodystrophy doctors in Florida, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in Florida, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in Florida, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in Florida, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in Florida, US?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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