The 20 Best Leukodystrophy Doctors Near Me in Florida, US

Find the Top Leukodystrophy Experts and Specialists

The 20 Best Leukodystrophy Doctors in Florida, US

Last Updated: 02/22/2026

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MediFind found 25 doctor with experience in Leukodystrophy near Florida, US. Of these, 22 are Experienced and 3 are Advanced.

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25 providers found
    Advanced in Leukodystrophy
    Radiology
    Advanced in Leukodystrophy
    Radiology

    HCA Florida JFK Hospital

    5301 S Congress Ave, 
    Atlantis, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Rushi Patel is a Radiologist in Atlantis, Florida. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are CACH Syndrome, Leukodystrophy, Gallbladder Disease, and Pleurisy.

    Peter Huszar
    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology
    Experienced in Leukodystrophy
    Neurology | Pediatric Neurology

    Johns Hopkins All Children's Hospital

    501 6th Avenue South, 
    Saint Petersburg, FL 
    Languages Spoken:
    English, Hungarian
    Offers Telehealth

    Dr. Huszar specializes in care for hospitalized pediatric neurology patients in the Johns Hopkins All Children’s Institute for Brain Protection Sciences in St. Petersburg, Florida. He rejoined the medical staff in 2023 after a previous stint from 2014-19. Dr. Huszar’s clinical and research interests include neonatal and childhood cerebrovascular disorders and childhood primary headaches. Dr. Huszar received his medical degree from Albert Szent-Gyorgyi Medical University (SZOTE) in Szeged, Hungary. Dr. Huszar trained in pediatrics at Erzsebet Hospital in Hodmezovasarhely, Hungary and SUNY Downstate Medical Center in Brooklyn, New York. He then completed a pediatric neurology residency/fellowship at SUNY Downstate Medical Center. Dr. Huszar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Microcephaly.

    Experienced in Leukodystrophy
    Neuroradiology
    Experienced in Leukodystrophy
    Neuroradiology

    Mayo Clinic Hospital In Florida

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Languages Spoken:
    English

    Zbigniew Wszolek is a Neuroradiologist in Jacksonville, Florida. Dr. Wszolek is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Movement Disorders, Parkinson's Disease, Focal Dystonia, and Drug Induced Dyskinesia.

    Learn about our expert tiers
    Experienced in Leukodystrophy
    Radiology
    Experienced in Leukodystrophy
    Radiology

    Baptist Health Baptist Hospital

    8900 N Kendall Dr, 
    Miami, FL 
    Languages Spoken:
    English

    Atul Taneja is a Radiologist in Miami, Florida. Dr. Taneja is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Tenosynovitis, Facet Joint Syndrome, Osteochondroma, Leukodystrophy, and Endoscopy.

    Advanced in Leukodystrophy
    Neurology
    Advanced in Leukodystrophy
    Neurology

    Jackson Health System

    1611 NW 12th Ave, 
    Miami, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Jose Romano is a Neurologist in Miami, Florida. Dr. Romano is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Stroke, Transient Ischemic Attack (TIA), Alexander Disease, Thrombectomy, and Extracranial-Intracranial Bypass Surgery.

    Advanced in Leukodystrophy
    Family Medicine
    Advanced in Leukodystrophy
    Family Medicine

    AdventHealth Primary Care Kissimmee

    327 W Oak St, 
    Kissimmee, FL 
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Joel Weinberger is a primary care provider, practicing in Family Medicine in Kissimmee, Florida. Dr. Weinberger has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, CACH Syndrome, and Metachromatic Leukodystrophy.

    Gian C. Rossi
    Experienced in Leukodystrophy
    Experienced in Leukodystrophy

    Nemours Children's Health, Lakeland

    1324 Lakeland Hills Blvd., Lakeland Regional Health Medical Center, 
    Lakeland, FL 
    Languages Spoken:
    English

    Dr. Gian Rossi is a pediatric neurologist at Nemours Children's Specialty Care, Lakeland. He helps children and teens with a wide range of neurological issues, including headaches, migraines and seizure disorders. Dr. Rossi is a published medical journal author, with scholarly articles on topics such as epilepsy and interruptions in circadian rhythms. I highly admire my father, a retired pediatric neurologist, who before his passing, allowed me to shadow him in clinic. Thereafter, in high school, I loved learning about the brain and its functioning in a psychology class. I majored in neuroscience in college and pursued a career in medicine. I enjoy working with children — they are fun, and you get to meet whole families sometimes, which is a privilege. I enjoy a balance of academic pursuits including teaching, research and staying up-to-date in pediatric neurology. Anything in the whole milieu of medical practice could spark an interest in me at any time, whether it be reading up on the latest potential neurologic complications of COVID-19, sports concussion and CTE, bioethics of gene therapy, complementary and alternative medicine therapies for neurologic symptoms/disorders — those are just a few topics I have delved into and enjoy talking about with anyone who is interested. Interests in my field include: Seizures Epilepsy Spina bifida  Developmental delays  Tourette syndrome  Headaches and migraines I try to take each individual patient I see, and get to the bottom of their disease process and this almost always involves mental, physical, and spiritual or emotional health and the complex interactions embedded there.  I am new to Lakeland, so I want to get to know our resources in town and team up with the community. Dr. Rossi is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Seizures, Stereotypic Movement Disorder, Spasmus Nutans, and Autism Spectrum Disorder.

    Gifty Bhat
    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    3+ years
    Languages Spoken:
    English

    Gifty Bhat is a Medical Genetics provider in Orlando, Florida. Dr. Bhat has been practicing medicine for over 3 years and is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Microcephaly, HNRNPH2-Related Disorder, Chromosome 8p Deletion, and Chromosome 6q Duplication.

    Nadia A. Falah
    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics

    MD Genetic Clinic

    1201 6th Ave W, 
    Bradenton, FL 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Falah is a Medical Doctor specializing in Medical and Biochemical Genetics and is the owner of MD Genetic, LLC. She is a former assistant professor in the Department of Pediatrics, Division of Genetics and Metabolism, at West Virginia University. Additionally, she previously served on the West Virginia Advisory Council on Rare Diseases, with a particular focus on rare diseases.Dr. Falah earned her medical degree from Tripoli University of Medical Science in Tripoli, Libya. She then completed a residency in clinical genetics at the University of Miami Leonard M. Miller School of Medicine/Jackson Health System. Following this, Dr. Falah pursued a fellowship in clinical pharmacology at the Indiana University School of Medicine/IU Health. She also holds a Master of Science degree in Clinical Investigation from Vanderbilt University in Nashville, Tennessee. To further advance her expertise in genetics, she completed a medical biochemical fellowship at Duke University.Dr. Falah is board-certified in Medical Genetics and Medical Biochemical Genetics by the American Board of Medical Genetics and Genomics (ABMGG). She has been a member of the American College of Medical Genetics and Genomics and the American Medical Association since 2014. Dr. Falah’s work has been published in peer-reviewed journals, and she has presented at various medical conferences. She also serves as a reviewer for several medical journals and as a consultant for private pharmaceutical companies. Dr. Falah is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are 46XX Testicular Disorder of Sex Development, Pelizaeus-Merzbacher Disease, Waardenburg Syndrome, and Waardenburg Syndrome Type 1.

    Laufey Y. Sigurdardottir
    Experienced in Leukodystrophy
    Experienced in Leukodystrophy

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    32+ years
    Languages Spoken:
    English, Icelandic

    Medicine seems to run in my family. My father trained as a physician in Iceland, and my childhood was split between the US and Reykjavik, Iceland. At first, I wanted to be a veterinarian, but once in medical school I had my heart set on Pediatrics from the start. I love kids. With eight children of my own I have realized that every child is unique and that there is no one right way to parent. Parents can be certain that I will be upfront with them regarding their child’s illness. I treat people the way I want to be treated when I step into a physician’s office with one of my kids. I try to listen more than I speak and learn from others at every opportunity. To me the treatment of a child is a collaboration between the child, his/her parents and the physician and team at Nemours. Together we will find the best solution, always. Dr. Sigurdardottir is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Autism Spectrum Disorder.

    Omer A. Hamid
    Experienced in Leukodystrophy
    Experienced in Leukodystrophy

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic

    Omer Hamid is a Neurologist in Orlando, Florida. Dr. Hamid has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Amyotonia Congenita, Congenital Myasthenic Syndrome, Dysferlinopathy, and Duchenne Muscular Dystrophy.

    Experienced in Leukodystrophy
    Medical Genetics
    Experienced in Leukodystrophy
    Medical Genetics

    Mayo Clinic Jacksonville

    4500 San Pablo Rd S, 
    Jacksonville, FL 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Karthik Muthusamy is a Medical Genetics provider in Jacksonville, Florida. Dr. Muthusamy has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Branchiootorenal Syndrome, Branchio-Oculo-Facial Syndrome (BOFS), RFT1-CDG, Prader-Willi Syndrome, and Thrombectomy. Dr. Muthusamy is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy

    Cedars Healthcare Group LTD.

    1400 NW 12th Ave, 
    Miami, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Olimpia Carbunar is a Neurologist in Miami, Florida. Dr. Carbunar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Inclusion Body Myositis, VEXAS Syndrome, and Myasthenia Gravis.

    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics

    Florida Clinical Practice Association Inc

    1600 Sw Archer Rd, Suite 100371, 
    Gainesville, FL 
    Languages Spoken:
    English

    Klaas Wierenga is a Medical Genetics specialist and a Pediatrics provider in Gainesville, Florida. Dr. Wierenga is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Hypotonia, Nevoid Basal Cell Carcinoma Syndrome, Smith-Magenis Syndrome, and Ehlers-Danlos Syndrome (EDS).

    Experienced in Leukodystrophy
    Hematology | Oncology
    Experienced in Leukodystrophy
    Hematology | Oncology

    AdventHealth Medical Group Pediatric Oncology

    2501 N Orange Ave Ste 589, 
    Orlando, FL 
    Languages Spoken:
    English

    Heather Allewelt is a Hematologist and an Oncologist in Orlando, Florida. Dr. Allewelt is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Leukodystrophy, Metachromatic Leukodystrophy, Adrenoleukodystrophy (ALD), Leukemia, and Bone Marrow Transplant.

    Experienced in Leukodystrophy
    Internal Medicine
    Experienced in Leukodystrophy
    Internal Medicine

    Conviva Dunedin

    2812 Saint Marks Dr, 
    Dunedin, FL 
    Languages Spoken:
    English

    Kevin Kyle is a primary care provider, practicing in Internal Medicine in Dunedin, Florida. Dr. Kyle is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Neurosarcoidosis, Movement Disorders, Parkinson's Disease, Purpura, and Thalamotomy.

    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    Kissimmee Primary Care Anti-Aging Wellness And Weightloss Center PA

    1520 N John Young Pkwy, 
    Kissimmee, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Saeed Ahmad is a primary care provider, practicing in Family Medicine in Kissimmee, Florida. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Spasticity, COVID-19, Alzheimer's Disease, Hemolysis, and Osteotomy.

    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    TGH Family Care Center Kennedy

    2501 W Kennedy Blvd, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Akif Ahmad is a primary care provider, practicing in Family Medicine in Tampa, Florida. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Type 2 Diabetes (T2D).

    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    Uf Health Family Medicine-Magnolia Parke

    3951 NW 48th Ter Ste 101, 
    Gainesville, FL 
    Languages Spoken:
    English

    Nicole Provost is a primary care provider, practicing in Family Medicine in Gainesville, Florida. Dr. Provost is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Sitosterolemia, Maturity Onset Diabetes of the Young, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

    Experienced in Leukodystrophy
    Medical Genetics | Obstetrics and Gynecology
    Experienced in Leukodystrophy
    Medical Genetics | Obstetrics and Gynecology
    3100 Sw 62nd Ave, 
    Miami, FL 
    Languages Spoken:
    English
    Accepting New Patients

    Brocha Tarshish is a Medical Genetics specialist and an Obstetrics and Gynecologist in Miami, Florida. Dr. Tarshish is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are 46XX Testicular Disorder of Sex Development, Pelizaeus-Merzbacher Disease, and Leukodystrophy. Dr. Tarshish is currently accepting new patients.

    Showing 1-20 of 25

    Last Updated: 02/22/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leukodystrophy doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors in Florida, US?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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