The 20 Best Leukodystrophy Doctors Near Me in louisville, KY

Find the Top Leukodystrophy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 4 doctor with experience in Leukodystrophy near louisville, KY. Of these, 4 are Experienced.

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4 providers found
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Referral may be required

    Norton Childrens Medical Group LLC

    601 S Floyd St, Suite 604, 
    Louisville, KY 
     (0.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Joseph Hersh is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Louisville, Kentucky. Dr. Hersh is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Micrognathia, Microcephaly, Achalasia Microcephaly Syndrome, and Classic Galactosemia. Dr. Hersh is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required

    Uofl Physicians-Parkinson’s Disease & Movement Disorders Clinic

    220 Abraham Flexner Way Ste 606, 
    Louisville, KY 
     (1.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Peter Hedera is a Neurologist practicing medicine in Louisville, Kentucky. Dr. Hedera is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 70 other conditions, according to our data. His clinical expertise encompasses Essential Tremor, Drug Induced Dyskinesia, Movement Disorders, Deep Brain Stimulation, and Thalamotomy. Dr. Hedera is currently accepting new patients.

    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics
    Referral may be required
    411 E Chestnut St # Street2, 
    Louisville, KY 
     (1.1 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Alexander Asamoah is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Louisville, Kentucky. Dr. Asamoah is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Hyperlysinemia, Glutaric Acidemia Type 1, Fabry Disease, and Hereditary Sensory Neuropathy Type 1 (HSN1). Dr. Asamoah is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics | Pediatric Neurology
    Experienced in Leukodystrophy
    Medical Genetics | Pediatrics | Pediatric Neurology
    Referral may be required
    411 E Chestnut St # Street2, 
    Louisville, KY 
     (1.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kimberly Mcdonald is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Louisville, Kentucky. Dr. Mcdonald is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Tay-Sachs Disease, Maternal Hyperphenylalaninemia, and Dihydropteridine Reductase Deficiency. Dr. Mcdonald is currently accepting new patients.

    Showing 1-4 of 4

    Last Updated: 09/26/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor near louisville, KY?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor near louisville, KY?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leukodystrophy doctors near louisville, KY?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors near louisville, KY?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor near louisville, KY?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor near louisville, KY?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors near louisville, KY?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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