Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 21 doctor with experience in Leukodystrophy near Minnesota, US. Of these, 15 are Experienced, 5 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    21 providers found
      Paul J. Orchard
      Distinguished in Leukodystrophy
      Pediatric Hematology Oncology
      Distinguished in Leukodystrophy
      Pediatric Hematology Oncology

      Center For Pediatric Blood And Marrow Transplantation - Pediatric Specialty Care Journey Clinic

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Paul Orchard is a Pediatric Hematologist Oncology provider in Minneapolis, MN. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy.

      Advanced in Leukodystrophy
      Medical Genetics | Neurology
      Advanced in Leukodystrophy
      Medical Genetics | Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Ralitza Gavrilova is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Gavrilova is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are MELAS Syndrome, Frontotemporal Dementia, Friedreich Ataxia, and Hypotonia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Leukodystrophy
      Neurology | Pediatric Neurology
      Advanced in Leukodystrophy
      Neurology | Pediatric Neurology
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Renaud is a Neurologist and a Pediatric Neurologist in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis. Dr. Renaud is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Leukodystrophy
      Pediatric Neurology | Neurology
      Advanced in Leukodystrophy
      Pediatric Neurology | Neurology
      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Doonan is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Doonan is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Polymicrogyria. Dr. Doonan is currently accepting new patients.

      Advanced in Leukodystrophy
      Medical Genetics | Neurology | Pediatric Neurology
      Advanced in Leukodystrophy
      Medical Genetics | Neurology | Pediatric Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, Cowden Syndrome, Lhermitte-Duclos Disease, and Bannayan-Riley-Ruvalcaba Syndrome.

      Advanced in Leukodystrophy
      Pediatric Hematology Oncology
      Advanced in Leukodystrophy
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Troy Lund is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Lund is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Glucose-6-Phosphate Dehydrogenase Deficiency, Aspartylglucosaminuria, and Bone Marrow Transplant.

      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Randal Richardson is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Walker-Warburg Syndrome, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Richardson is currently accepting new patients.

      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics
      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Brendan Lanpher is a Medical Genetics specialist and a Pediatrics provider in Rochester, Minnesota. Dr. Lanpher is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Increased Head Circumference, Retinopathy Pigmentary Mental Retardation, Urea Cycle Disorders (UCD), and Argininosuccinic Aciduria. Dr. Lanpher is currently accepting new patients.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Sara Hooshmand is a Neurologist in Rochester, Minnesota. Dr. Hooshmand is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Primary Lateral Sclerosis, Camptocormism, CACH Syndrome, and X-Linked Dominant Scapuloperoneal Myopathy.

      Experienced in Leukodystrophy
      Pediatrics | Internal Medicine
      Experienced in Leukodystrophy
      Pediatrics | Internal Medicine

      Allina Health System

      2925 Chicago Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Justin Kirven is a primary care provider, practicing in Pediatrics and Internal Medicine in Minneapolis, Minnesota. Dr. Kirven is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Rett Syndrome, Ureteroscopy, and Endoscopy. Dr. Kirven is currently accepting new patients.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Cuyuna Regional Medical Center

      320 E Main St, 
      Crosby, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nathan Sit is a Neurologist in Crosby, Minnesota. Dr. Sit is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Sit is currently accepting new patients.

      Experienced in Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology | Pediatrics | Neurology
      University Of Minnesota Physicians, 516 Delaware Street Se, Pwb Fourth Floor, Room 4-100, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Galen Breningstall is a Pediatric Neurologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Breningstall is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Epilepsy, Seizures, Lissencephaly, and Cerebellar Agenesis. Dr. Breningstall is currently accepting new patients.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eoin Flanagan is a Neurologist in Rochester, Minnesota. Dr. Flanagan is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Encephalitis, Anti-NMDA Receptor Encephalitis, Rasmussen Encephalitis, and Neuromyelitis Optica. Dr. Flanagan is currently accepting new patients.

      Experienced in Leukodystrophy
      Family Medicine
      Experienced in Leukodystrophy
      Family Medicine

      Allina Health System

      440 Elm St E, 
      Annandale, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Alexis Vosooney is a primary care provider, practicing in Family Medicine in Annandale, Minnesota. Dr. Vosooney is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Meniere Disease, Farber Lipogranulomatosis, Canavan Disease, and CACH Syndrome. Dr. Vosooney is currently accepting new patients.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      John Port is a Radiologist in Rochester, Minnesota. Dr. Port is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Nonalcoholic Steatohepatitis (NASH), Radiation Induced Meningioma, Pseudotumor Cerebri Syndrome, Laminectomy, and Tissue Biopsy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Michael Ruff is a Neurologist in Rochester, Minnesota. Dr. Ruff is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Glioma, Astrocytoma, Brain Tumor, and Glioblastoma.

      Experienced in Leukodystrophy
      Internal Medicine
      Experienced in Leukodystrophy
      Internal Medicine
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Karan Chohan is a primary care provider, practicing in Internal Medicine in Rochester, Minnesota. Dr. Chohan is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Waldenstrom Macroglobulinemia, Hodgkin Lymphoma, Monoclonal Gammopathy of Undetermined Significance (MGUS), Vascular Ehlers-Danlos Syndrome (VEDS), and Lung Transplant.

      Experienced in Leukodystrophy
      Pediatric Hematology Oncology
      Experienced in Leukodystrophy
      Pediatric Hematology Oncology
      516 Delaware Street Se, Pwb 5th Floor, Ste 5-100 Clinic 5b, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Jakub Tolar is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      James Triplett is a Neurologist in Rochester, Minnesota. Dr. Triplett is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Necrotizing Myopathy (NM), Mononeuritis Multiplex, Myositis, and Femoral Nerve Dysfunction.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Fairview Clinics

      14500 99th Ave N, Suite 100, 
      Maple Grove, MN 
      Languages Spoken:
      English

      David Nascene is a Radiologist in Maple Grove, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leukodystrophy doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in Minnesota, US?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Leukodystrophy Doctors by city