The 20 Best Leukodystrophy Doctors Near Me in minneapolis, MN

Find the Top Leukodystrophy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 7 doctor with experience in Leukodystrophy near minneapolis, MN. Of these, 5 are Experienced and 2 are Advanced.

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7 providers found
    Advanced in Leukodystrophy
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Advanced in Leukodystrophy
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Center For Pediatric Blood And Marrow Transplant And Celluar Therapy

    Journey Clinic Riverside East 9th, Floor 2450 Riverside Ave, 
    Minneapolis, MN 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Paul Orchard is a Transplant Surgeon and a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Bone Marrow Transplant, and Osteotomy. Dr. Orchard is currently accepting new patients.

    Experienced in Leukodystrophy
    Pediatrics | Pediatric Hematology Oncology
    Experienced in Leukodystrophy
    Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Journey Pediatric Specialty Clinic

    2450 Riverside Avenue, Building 9 EAST, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Troy Lund is a Pediatrics specialist and a Pediatric Hematologist Oncology provider practicing medicine in Minneapolis, Minnesota. Dr. Lund is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Alpha Mannosidosis, and Bone Marrow Transplant. Dr. Lund is board certified in Pediatrics: American Board Of Pediatrics, 2007 and Pediatric Hematology-Oncology: American Board Of Pediatrics, 2011. Dr. Lund is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required

    Abbott Northwestern Hospital - Neuroscience Clinic

    913 East 26th Street, Suite 304, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nathan Sit is a Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Sit is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Sit is board certified in Neurology, American Board Of Psychiatry And Neurology,2022, 2016, and Neuromuscular Medicine. Dr. Sit is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Leukodystrophy
    Family Medicine
    Experienced in Leukodystrophy
    Family Medicine

    Allina Health West St. Paul Clinic

    150 Emerson Avenue East, 
    West Saint Paul, MN 
     (9.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Alexis Vosooney is a primary care provider, practicing in Family Medicine in West Saint Paul, Minnesota. Dr. Vosooney is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her clinical expertise encompasses Meniere Disease, Farber Lipogranulomatosis, Canavan Disease, and Leukodystrophy. Dr. Vosooney is board certified in Family Medicine and American Board Of Family Medicine,2013. Dr. Vosooney is currently accepting new patients.

    Experienced in Leukodystrophy
    Experienced in Leukodystrophy
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
     (8.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Galen Breningstall is a Neurologist practicing medicine in Saint Paul, Minnesota. Dr. Breningstall is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Seizures, Orofaciodigital Syndrome 6, and Cerebellar Agenesis. Dr. Breningstall is currently accepting new patients.

    Experienced in Leukodystrophy
    Neuroradiology | Pediatric Radiology | Radiology
    Experienced in Leukodystrophy
    Neuroradiology | Pediatric Radiology | Radiology
    Referral may be required

    Fairview Clinics

    14500 99th Ave N, Suite 100, 
    Maple Grove, MN 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    David Nascene is a Neuroradiologist and a Pediatric Radiologist practicing medicine in Maple Grove, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spinal Muscular Atrophy Type 2, X-Linked Infantile Spinal Muscular Atrophy, Posterior Fossa Decompression, and Osteotomy. Dr. Nascene is board certified in Diagnostic Radiology: American Board Of Radiology, 2008 and Neuroradiology: American Board Of Radiology, 2013. Dr. Nascene is currently accepting new patients.

    Advanced in Leukodystrophy
    Advanced in Leukodystrophy
    Referral may be required

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
     (14.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Williams-Doonan is a Neurologist practicing medicine in Maple Grove, Minnesota. Dr. Williams-Doonan is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. She is also highly rated in 142 other conditions, according to our data. Her clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Pontocerebellar Hypoplasia. Dr. Williams-Doonan is currently accepting new patients.

    Showing 1-7 of 7

    Last Updated: 09/26/2026

    What is the definition of Leukodystrophy?

    A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

    When should I see a Leukodystrophy doctor near minneapolis, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Leukodystrophy doctor near minneapolis, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Leukodystrophy doctors near minneapolis, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Leukodystrophy doctors near minneapolis, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Leukodystrophy doctor near minneapolis, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

    Why is it important to get a second opinion from a different Leukodystrophy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Leukodystrophy doctor near minneapolis, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Leukodystrophy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Leukodystrophy doctors near minneapolis, MN?

    Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Leukodystrophy doctor that offers video calls?

    Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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