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    Last Updated: 10/30/2025

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    MediFind found 32 doctor with experience in Leukodystrophy near New York, US. Of these, 26 are Experienced, 5 are Advanced and 1 are Distinguished.

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    LocationClose
    32 providers found
      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      New York University

      111 Broadway, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Lauren Krupp is a Neurologist in New York, New York. Dr. Krupp is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and CACH Syndrome.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      New York University

      560 1st Ave, 
      New York, NY 
      Languages Spoken:
      English

      Steven Galetta is a Neurologist in New York, New York. Dr. Galetta is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Optic Neuritis, Multiple Sclerosis (MS), Brown Syndrome, Concussion, and Thrombectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Leukodystrophy
      Pediatric Hematology Oncology
      Distinguished in Leukodystrophy
      Pediatric Hematology Oncology
      1275 York Ave, 
      New York, NY 
      Languages Spoken:
      English

      Jaap-jan Boelens is a Pediatric Hematologist Oncology provider in New York, New York. Dr. Boelens is rated as a Distinguished provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Graft Versus Host Disease (GvHD), Metachromatic Leukodystrophy, Leukodystrophy, Adrenoleukodystrophy (ALD), and Bone Marrow Transplant.

      Learn about our expert tiers
      Advanced in Leukodystrophy
      Medical Genetics | Pediatrics
      Advanced in Leukodystrophy
      Medical Genetics | Pediatrics

      Icahn School Of Medicine At Mount Sinai

      1428 Madison Ave, 
      New York, NY 
      Languages Spoken:
      English

      Jaya Ganesh is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Ganesh is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, Pompe Disease, and Fabry Disease.

      Advanced in Leukodystrophy
      Family Medicine
      Advanced in Leukodystrophy
      Family Medicine

      United Health Services Hospitals, Inc.

      54 Main St, 
      Candor, NY 
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      Elizabeth Rosato is a primary care provider, practicing in Family Medicine in Candor, New York. Dr. Rosato has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Combined Hyperlipidemia.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy
      219 Bryant St, 
      Buffalo, NY 
      Languages Spoken:
      English

      Thomas Langan is a Neurologist in Buffalo, New York. Dr. Langan is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Krabbe Disease, CACH Syndrome, Leukodystrophy, and Brain Stem Cancer.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy

      Neurology Medical Service Group Llp

      90 Presidential Plz, Suite 4, 
      Syracuse, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Jenny Meyer is a Neurologist in Syracuse, New York. Dr. Meyer is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Post Polio Syndrome.

      Advanced in Leukodystrophy
      Advanced in Leukodystrophy

      Icahn School Of Medicine At Mount Sinai

      300 Cadman Plaza W, 
      Brooklyn, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Christine Fitzpatrick is a Neurologist in Brooklyn, New York. Dr. Fitzpatrick is rated as an Advanced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Acute Flaccid Myelitis (AFM), Vertigo, Neuralgia, and Migraine.

      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics
      Experienced in Leukodystrophy
      Medical Genetics | Pediatrics

      Trustees Of Columbia University In The City Of New York

      622 W 168th St, 
      New York, NY 
      Languages Spoken:
      English

      Gustavo Maegawa is a Medical Genetics specialist and a Pediatrics provider in New York, New York. Dr. Maegawa is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Krabbe Disease, Acid Sphingomyelinase Deficiency (ASMD), Niemann-Pick Disease, and Gaucher Disease.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Westchester Medical Center Advanced Physician Services PC

      95 Grasslands Rd, 
      Valhalla, NY 
      Languages Spoken:
      English

      Alexander Grimm is a Radiologist in Valhalla, New York. Dr. Grimm is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Headache, Ganglioneuroma, Mononeuritis Multiplex, and Pleurisy.

      Experienced in Leukodystrophy
      Neurology | Psychiatry
      Experienced in Leukodystrophy
      Neurology | Psychiatry

      St. Peter's Health Partners Medical Associates, P.C.

      63 Shaker Rd, Suite G01, 
      Albany, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Erik Istre is a Neurologist and a Psychiatrist in Albany, New York. Dr. Istre is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Seizures, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Epilepsy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      10 Union Sq E, 
      New York, NY 
      Languages Spoken:
      English

      Walter Molofsky is a Neurologist in New York, New York. Dr. Molofsky is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Vein of Galen Aneurysm, GAPO Syndrome, Autism Spectrum Disorder, and Tension Headache.

      Experienced in Leukodystrophy
      Neurology | Palliative Medicine
      Experienced in Leukodystrophy
      Neurology | Palliative Medicine

      University Of Rochester

      601 Elmwood Ave, 
      Rochester, NY 
      Languages Spoken:
      English

      Robert Holloway is a Neurologist and a Palliative Medicine provider in Rochester, New York. Dr. Holloway is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Stroke, PEPCK 1 Deficiency, Dihydrolipoamide Dehydrogenase Deficiency, Gastrostomy, and Thrombectomy.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      601 Elmwood Ave, Box 278984, 
      Rochester, NY 
      Languages Spoken:
      English

      Steven Goldman is a Neurologist in Rochester, New York. Dr. Goldman is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Pelizaeus-Merzbacher Disease, Huntington Disease, CACH Syndrome, and Movement Disorders.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      1410 Pelham Pkwy S, 
      Bronx, NY 
      Languages Spoken:
      English

      Solen Gokhan is a Neurologist in Bronx, New York. Dr. Gokhan is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are CACH Syndrome, Leukodystrophy, Huntington Disease, and Movement Disorders.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy
      Kennedy Center Room 401, 1410 Pelham Parkway South, 
      Bronx, NY 
      Languages Spoken:
      English

      Mark Mehler is a Neurologist in Bronx, New York. Dr. Mehler is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Huntington Disease, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Dementia.

      Experienced in Leukodystrophy
      Experienced in Leukodystrophy

      Icahn School Of Medicine At Mount Sinai

      1000 10th Ave, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Stephen Scelsa is a Neurologist in New York, New York. Dr. Scelsa is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy.

      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      Experienced in Leukodystrophy
      Pediatric Neurology | Neurology
      Nyph-weill Cornell Medical Center, 505 East 70th Street, 3rd Floor, 
      New York, NY 
      Languages Spoken:
      English

      Juan Pascual is a Pediatric Neurologist and a Neurologist in New York, New York. Dr. Pascual is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. His top areas of expertise are Glucose Transporter Deficiency, Seizures, Cerebral Hypoxia, and Epilepsy.

      Experienced in Leukodystrophy
      Medical Genetics
      Experienced in Leukodystrophy
      Medical Genetics
      1 Gustave L Levy Pl, 
      New York, NY 
      Languages Spoken:
      English

      Mafalda Cabral-Dos is a Medical Genetics provider in New York, New York. Dr. Cabral-Dos is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Snyder-Robinson Syndrome, Caudal Appendage Deafness, Acrodermatitis Enteropathica, and Trichorhinophalangeal Syndrome Type 2.

      Experienced in Leukodystrophy
      Pediatrics | Internal Medicine
      Experienced in Leukodystrophy
      Pediatrics | Internal Medicine

      Highland Hospital Of Rochester

      913 Culver Rd, 
      Rochester, NY 
      Languages Spoken:
      English

      Karen Nead is a primary care provider, practicing in Pediatrics and Internal Medicine in Rochester, New York. Dr. Nead is rated as an Experienced provider by MediFind in the treatment of Leukodystrophy. Her top areas of expertise are Sickle Cell Disease, Headache, Type 1 Diabetes (T1D), and Alexander Disease.

      Showing 1-20 of 32

      Last Updated: 10/30/2025

      What is the definition of Leukodystrophy?

      A Leukodystrophy is a type of rare genetic disorder that affects the brain, spinal cord, and other nerves in the body. It is caused by destruction of the white matter of the brain. The white matter degrades due to defects of the myelin, which is a fatty covering that insulates nerves in the brain. Myelin is needed to protect the nerves and the nerves can't function normally without it. These disorders are progressive, meaning they tend to get worse with time. The leukodystrophies are a group of disorders caused by spelling mistakes in the genes involved in making myelin. Specific leukodystrophies include metachromatic Leukodystrophy, Krabbe Leukodystrophy, X-linked adrenoLeukodystrophy, Pelizaeus-Merzbacher disease, Canavan disease, and Alexander disease. The most common symptom of a Leukodystrophy is a decline in functioning of an infant or child who previously appeared healthy. This gradual loss may be seen with issues in body tone, movements, gait, speech, ability to eat, vision, hearing, and behavior.

      When should I see a Leukodystrophy doctor in New York, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Leukodystrophy doctor in New York, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Leukodystrophy doctors in New York, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Leukodystrophy doctors in New York, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Leukodystrophy doctor in New York, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Leukodystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Leukodystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Leukodystrophy doctor in New York, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Leukodystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Leukodystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Leukodystrophy doctors in New York, US?

      Look for the filter feature on the left side of the Leukodystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Leukodystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Leukodystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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