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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in CACH Syndrome near Gainesville, FL. Of these, 10 are Experienced and 1 are Advanced.

    Location
    LocationClose
    11 providers found
      Steven T. Dekosky
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      University Of Florida Health

      1149 Newell Dr, 
      Gainesville, FL 
       (1.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Steven Dekosky is a Neurologist in Gainesville, Florida. Dr. Dekosky is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Memory Loss, and Developmental Dysphasia Familial. Dr. Dekosky is currently accepting new patients.

      Advanced in CACH Syndrome
      Neurology
      Advanced in CACH Syndrome
      Neurology

      Florida Clinical Practice Association Inc

      2000 Sw Archer Rd, Uf Health Congenital Heart, 
      Gainesville, FL 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Torge Rempe is a Neurologist in Gainesville, Florida. Dr. Rempe is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Encephalitis, Multiple Sclerosis (MS), Progressive Multifocal Leukoencephalopathy, and CACH Syndrome. Dr. Rempe is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Ilona M. Schmalfuss
      Experienced in CACH Syndrome
      Neuroradiology | Radiology
      Experienced in CACH Syndrome
      Neuroradiology | Radiology

      Florida Clinical Practice Association Inc

      3450 Hull Rd, 
      Gainesville, FL 
       (3.1 miles away)
      Languages Spoken:
      English

      Ilona Schmalfuss is a Neuroradiologist and a Radiologist in Gainesville, Florida. Dr. Schmalfuss is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Stroke, Traumatic Brain Injury, and CACH Syndrome.

      Learn about our expert tiers
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Florida Clinical Practice Association Inc

      2001 Sw 13th St, Gi Clinic At Endoscopy Cen, 
      Gainesville, FL 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Amanda Currie is a Neurologist in Gainesville, Florida. Dr. Currie is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Spasticity, Movement Disorders, Parkinson's Disease, Pol 3-Related Leukodystrophy, and Deep Brain Stimulation. Dr. Currie is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome
      1601 SW Archer Rd, 
      Gainesville, FL 
       (1.6 miles away)
      Languages Spoken:
      English

      Varalakshmi Ballur-Narayana is a Neurologist in Gainesville, Florida. Dr. Ballur-Narayana is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Epilepsy.

      Experienced in CACH Syndrome
      Pediatric Radiology | Radiology | Nuclear Medicine
      Experienced in CACH Syndrome
      Pediatric Radiology | Radiology | Nuclear Medicine

      Florida Clinical Practice Association Inc

      2000 Sw Archer Rd, Uf Health Congenital Heart, 
      Gainesville, FL 
       (1.7 miles away)
      Languages Spoken:
      English

      Dhanashree Rajderkar is a Pediatric Radiologist and a Radiologist in Gainesville, Florida. Dr. Rajderkar is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Retropharyngeal Abscess, Atresia of Small Intestine, Hydrocephalus, Legg-Calve-Perthes Disease (LCPD), and Posterior Fossa Decompression.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Florida Clinical Practice Association Inc

      2000 Sw Archer Rd, Uf Health Congenital Heart, 
      Gainesville, FL 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Melissa Armstrong is a Neurologist in Gainesville, Florida. Dr. Armstrong is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Parkinson's Disease, Movement Disorders, Lewy Body Dementia (LBD), Dementia, and Deep Brain Stimulation. Dr. Armstrong is currently accepting new patients.

      Experienced in CACH Syndrome
      Radiology | Neuroradiology
      Experienced in CACH Syndrome
      Radiology | Neuroradiology

      Florida Clinical Practice Association Inc

      1549 Gale Lemerand Dr, 
      Gainesville, FL 
       (1.8 miles away)
      Languages Spoken:
      English

      Shyamsunder Sabat is a Radiologist and a Neuroradiologist in Gainesville, Florida. Dr. Sabat is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, Cerebral Arteriovenous Malformation, Meningioma, and Pediatric Low-Grade Glioma (pLGG).

      Experienced in CACH Syndrome
      Radiology | Neuroradiology
      Experienced in CACH Syndrome
      Radiology | Neuroradiology

      Florida Clinical Practice Association Inc

      3450 Hull Rd, 
      Gainesville, FL 
       (3.1 miles away)
      Languages Spoken:
      English

      John Rees is a Radiologist and a Neuroradiologist in Gainesville, Florida. Dr. Rees is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, Cerebellar Degeneration, Stroke, and Thrombectomy.

      Experienced in CACH Syndrome
      Family Medicine
      Experienced in CACH Syndrome
      Family Medicine

      Shands Teaching Hospital And Clinics Inc

      3951 Nw 48th Ter, Suite 101, 
      Gainesville, FL 
       (4.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Provost is a primary care provider, practicing in Family Medicine in Gainesville, Florida. Dr. Provost is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Sitosterolemia, Maturity Onset Diabetes of the Young, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Provost is currently accepting new patients.

      Experienced in CACH Syndrome
      Radiology | Pediatric Radiology
      Experienced in CACH Syndrome
      Radiology | Pediatric Radiology

      Florida Clinical Practice Association Inc

      4037 Nw 86th Ter, Fl 3, 
      Gainesville, FL 
       (7.1 miles away)
      Languages Spoken:
      English

      Ibrahim Tuna is a Radiologist and a Pediatric Radiologist in Gainesville, Florida. Dr. Tuna is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Choroid Plexus Cyst, Familial Porencephaly, Pediatric Low-Grade Glioma (pLGG), Larynx Atresia, and Deep Brain Stimulation.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of CACH Syndrome?

      Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

      When should I see a CACH Syndrome doctor near Gainesville, FL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CACH Syndrome doctor near Gainesville, FL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CACH Syndrome doctors near Gainesville, FL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CACH Syndrome doctors near Gainesville, FL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CACH Syndrome doctor near Gainesville, FL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CACH Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CACH Syndrome doctor near Gainesville, FL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CACH Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CACH Syndrome doctors near Gainesville, FL?

      Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CACH Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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