Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 21 doctor with experience in CACH Syndrome near Minneapolis, MN. Of these, 13 are Experienced, 7 are Advanced and 1 are Elite.

    Location
    LocationClose
    21 providers found
      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Fairview Clinics

      14500 99th Ave N, Suite 100, 
      Maple Grove, MN 
       (14.7 miles away)
      Languages Spoken:
      English

      David Nascene is a Radiologist in Maple Grove, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

      Advanced in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      University Of Minnesota Physicians, 516 Delaware Street Se, Pwb Fourth Floor, Room 4-100, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Galen Breningstall is a Pediatric Neurologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Breningstall is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Epilepsy, Seizures, Lissencephaly, and Cerebellar Agenesis. Dr. Breningstall is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in CACH Syndrome
      Neurology | Pediatric Neurology
      Advanced in CACH Syndrome
      Neurology | Pediatric Neurology
      2512 S 7th St, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Kenney-Jung is a Neurologist and a Pediatric Neurologist in Minneapolis, Minnesota. Dr. Kenney-Jung is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), Cardiofaciocutaneous Syndrome, CACH Syndrome, Seizures, and Thrombectomy. Dr. Kenney-Jung is currently accepting new patients.

      Learn about our expert tiers
      Advanced in CACH Syndrome
      Neuroradiology | Radiology
      Advanced in CACH Syndrome
      Neuroradiology | Radiology

      Fairview Express Care

      500 Harvard St Se, 
      Minneapolis, MN 
       (1.7 miles away)
      Languages Spoken:
      English

      Jeffrey Rykken is a Neuroradiologist and a Radiologist in Minneapolis, Minnesota. Dr. Rykken is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Optic Glioma, Spinal Tumor, CACH Syndrome, and Subarachnoid Hemorrhage.

      Advanced in CACH Syndrome
      Radiology | Neuroradiology
      Advanced in CACH Syndrome
      Radiology | Neuroradiology

      University Of Minnesota Physicians

      720 Washington Ave Se, 
      Minneapolis, MN 
       (1.9 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Yasemin Koksel is a Radiologist and a Neuroradiologist in Minneapolis, Minnesota. Dr. Koksel has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are CACH Syndrome, Vasoconstriction, and Urea Cycle Disorders (UCD). Dr. Koksel is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Hennepin Healthcare System Inc

      701 Park Ave, 
      Minneapolis, MN 
       (0.4 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English, Farsi
      Accepting New Patients

      Behnam Sabayan is a Neurologist in Minneapolis, Minnesota. Dr. Sabayan has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, Dementia, Vascular Dementia, Dysarthria, and Thrombectomy. Dr. Sabayan is currently accepting new patients.

      Experienced in CACH Syndrome
      Neuroradiology | Radiology
      Experienced in CACH Syndrome
      Neuroradiology | Radiology

      Hennepin Healthcare System Inc

      701 Park Ave, Sl 350, 
      Minneapolis, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Mark Oswood is a Neuroradiologist and a Radiologist in Minneapolis, Minnesota. Dr. Oswood is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, Stroke, Cerebral Arteriovenous Malformation, and Vertebral Artery Dissection.

      Experienced in CACH Syndrome
      Medical Genetics | Pediatrics | Pediatric Neurology
      Experienced in CACH Syndrome
      Medical Genetics | Pediatrics | Pediatric Neurology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Experience:
      47+ years
      Languages Spoken:
      English
      Accepting New Patients

      William Dobyns is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Dobyns has been practicing medicine for over 47 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Increased Head Circumference, Lissencephaly, Cerebellar Hypoplasia, and Cortical Dysplasia. Dr. Dobyns is currently accepting new patients.

      Experienced in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neonatology
      Experienced in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neonatology
      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English, Korean
      Accepting New Patients
      Offers Telehealth

      Hyoung Choi is a Pediatric Neurologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Choi is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Seizures, and Generalized Tonic-Clonic Seizure. Dr. Choi is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Fairview Express Care

      500 Harvard St Se, 
      Minneapolis, MN 
       (1.7 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Miller is a Neurologist in Minneapolis, Minnesota. Dr. Miller has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, Subarachnoid Hemorrhage, Apoplexy, Stent Placement, and Transmyocardial Revascularization. Dr. Miller is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Fairview Express Care

      717 Delaware St Se, Suite 340, 
      Minneapolis, MN 
       (1.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Elizabeth Neil is a Neurologist in Minneapolis, Minnesota. Dr. Neil is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Glioma, Astrocytoma, Glioblastoma, and Brain Tumor.

      Experienced in CACH Syndrome
      Pediatrics | Internal Medicine
      Experienced in CACH Syndrome
      Pediatrics | Internal Medicine

      Allina Health System

      2925 Chicago Ave, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Justin Kirven is a primary care provider, practicing in Pediatrics and Internal Medicine in Minneapolis, Minnesota. Dr. Kirven is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Rett Syndrome, Ureteroscopy, and Endoscopy. Dr. Kirven is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Fairview Express Care

      909 Fulton St Se, Suite 4 392, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adam Carpenter is a Neurologist in Minneapolis, Minnesota. Dr. Carpenter is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Stiff Person Syndrome, and Transverse Myelitis. Dr. Carpenter is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      University Of Minnesota Health Clinics And Surgery Center Inc

      909 Fulton St Se, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English

      Frederick Ott is a Radiologist in Minneapolis, Minnesota. Dr. Ott is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CAPOS Syndrome, Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, and Prolactinoma.

      Experienced in CACH Syndrome
      Radiology
      Experienced in CACH Syndrome
      Radiology

      University Of Minnesota Health Clinics And Surgery Center Inc

      909 Fulton St Se, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English

      Zuzan Cayci is a Radiologist in Minneapolis, Minnesota. Dr. Cayci is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Mast Cell Activation Syndrome (MCAS), Neuroendocrine Tumor, Primary Lymphoma of the Brain, and Tissue Biopsy.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome
      250 Thompson St, 
      Saint Paul, MN 
       (8.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Loes is a Radiologist in Saint Paul, Minnesota. Dr. Loes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Headache, CACH Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), and CAPOS Syndrome. Dr. Loes is currently accepting new patients.

      Advanced in CACH Syndrome
      Pediatric Neurology | Neurology
      Advanced in CACH Syndrome
      Pediatric Neurology | Neurology
      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Doonan is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Doonan is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Polymicrogyria. Dr. Doonan is currently accepting new patients.

      Experienced in CACH Syndrome
      Internal Medicine
      Experienced in CACH Syndrome
      Internal Medicine
      45 10th St W, 
      Saint Paul, MN 
       (8.3 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Swati Jain is a primary care provider, practicing in Internal Medicine in Saint Paul, Minnesota. Dr. Jain is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Vascular Dementia, Necrosis, Kaposi Sarcoma, Kidney Transplant, and Pancreatectomy. Dr. Jain is currently accepting new patients.

      Experienced in CACH Syndrome
      Pediatric Neurology | Neurology
      Experienced in CACH Syndrome
      Pediatric Neurology | Neurology

      Gillette Childrens Specialty Healthcare

      200 University Ave E, 
      Saint Paul, MN 
       (8.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Randal Richardson is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Richardson is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Miyoshi Myopathy, Emery-Dreifuss Muscular Dystrophy, Walker-Warburg Syndrome, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Richardson is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Fairview Clinics

      14500 99th Ave N, Suite 100, 
      Maple Grove, MN 
       (14.7 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Can Ozutemiz is a Radiologist in Maple Grove, Minnesota. Dr. Ozutemiz has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Lymphofollicular Hyperplasia, CACH Syndrome, Hereditary Retinoblastoma, and Myxoid Liposarcoma.

      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of CACH Syndrome?

      Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

      When should I see a CACH Syndrome doctor near Minneapolis, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CACH Syndrome doctor near Minneapolis, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CACH Syndrome doctors near Minneapolis, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CACH Syndrome doctors near Minneapolis, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CACH Syndrome doctor near Minneapolis, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CACH Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CACH Syndrome doctor near Minneapolis, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CACH Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CACH Syndrome doctors near Minneapolis, MN?

      Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CACH Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More CACH Syndrome Doctors by city