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    Last Updated: 01/09/2026

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    MediFind found 29 doctor with experience in CACH Syndrome near North Carolina, US. Of these, 27 are Experienced and 2 are Advanced.

    Location
    LocationClose
    29 providers found
      Donna Graves
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Atrium Health Neurology Specialty Care

      1225 Harding Place, Suite 4200, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Donna Graves is a Neurologist in Charlotte, North Carolina. Dr. Graves is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Neuromyelitis Optica, and Optic Neuritis. Dr. Graves is currently accepting new patients.

      Daniel J. Bonthius
      Experienced in CACH Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in CACH Syndrome
      Pediatrics | Pediatric Neurology

      Atrium Health Levine Children's Neurology

      1001 Blythe Blvd., Suite 4151, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Bonthius is a Pediatrics specialist and a Pediatric Neurologist in Charlotte, North Carolina. Dr. Bonthius is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Cerebellar Hypoplasia, Subacute Sclerosing Panencephalitis, Fetal Alcohol Syndrome (FAS), and Myoclonic Epilepsy. Dr. Bonthius is currently accepting new patients.

      Suma K. Shah
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Duke Infusion Center South Durham

      234 Crooked Creek Pkwy, 
      Durham, NC 
      Languages Spoken:
      English, Bengali, Hindi, Spanish
      Accepting New Patients
      Offers Telehealth

      Suma Shah is a Neurologist in Durham, North Carolina. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Neurosarcoidosis, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Stiff Person Syndrome. Dr. Shah is currently accepting new patients.

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      Kerry R. Bianchi
      Advanced in CACH Syndrome
      Internal Medicine
      Advanced in CACH Syndrome
      Internal Medicine

      Atrium Health Kannapolis Internal Medicine

      201 Dale Earnhardt Blvd., Suite 200, 
      Kannapolis, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kerry Bianchi is a primary care provider, practicing in Internal Medicine in Kannapolis, North Carolina. Dr. Bianchi is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Maturity Onset Diabetes of the Young. Dr. Bianchi is currently accepting new patients.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      Duke University Hospital

      2301 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English

      Daniel Kenney is a Neurologist in Durham, North Carolina. Dr. Kenney is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Cardiofaciocutaneous Syndrome, Seizures, and Thrombectomy.

      Eric C. Westman
      Experienced in CACH Syndrome
      Internal Medicine
      Experienced in CACH Syndrome
      Internal Medicine

      Duke Outpatient Clinic

      4220 N Roxboro St, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eric Westman is a primary care provider, practicing in Internal Medicine in Durham, North Carolina. Dr. Westman is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Alzheimer's Disease, Dementia, Parkinson's Disease, and Movement Disorders. Dr. Westman is currently accepting new patients.

      Daniel T. Laskowitz
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Duke University Hospital

      2301 Erwin Rd, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Laskowitz is a Neurologist in Durham, North Carolina. Dr. Laskowitz is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Traumatic Brain Injury, Stroke, Delirium, Vascular Dementia, and Gastrostomy. Dr. Laskowitz is currently accepting new patients.

      Shashank S. Shekhar
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Shashank Shekhar is a Neurologist in Durham, North Carolina. Dr. Shekhar is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, Spontaneous Coronary Artery Dissection (SCAD), Transient Ischemic Attack (TIA), Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement. Dr. Shekhar is currently accepting new patients.

      Christopher P. Eckstein
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Christopher Eckstein is a Neurologist in Durham, North Carolina. Dr. Eckstein is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Encephalitis, Anti-NMDA Receptor Encephalitis, Multiple Sclerosis (MS), and Rasmussen Encephalitis. Dr. Eckstein is currently accepting new patients.

      Emily M. Manlove
      Experienced in CACH Syndrome
      Family Medicine
      Experienced in CACH Syndrome
      Family Medicine

      Atrium Health CMC Elizabeth Family Medicine

      2001 Vail Ave., Suite 400, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Emily Manlove is a primary care provider, practicing in Family Medicine in Charlotte, North Carolina. Dr. Manlove is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Increased Intracranial Pressure, Sepsis, Status Epilepticus, and CACH Syndrome. Dr. Manlove is currently accepting new patients.

      Donald Heck
      Experienced in CACH Syndrome
      Radiology
      Experienced in CACH Syndrome
      Radiology

      Cone Health Neurosurgery At Greensboro

      301 E Wendover Ave, Ste 411, 
      Greensboro, NC 
      Experience:
      33+ years
      Languages Spoken:
      English

      Donald Heck is a Radiologist in Greensboro, North Carolina. Dr. Heck has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Brain Aneurysm, ALK-Positive Non-Small Cell Lung Cancer, Subarachnoid Hemorrhage, Stent Placement, and Thrombectomy.

      Joel C. Morgenlander
      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Duke Neurological Disorders Clinic - Clinic 1L

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Joel Morgenlander is a Neurologist in Durham, North Carolina. Dr. Morgenlander is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Seizures, Peripheral Neuropathy, Rasmussen Encephalitis, and Anti-NMDA Receptor Encephalitis. Dr. Morgenlander is currently accepting new patients.

      John Morris
      Experienced in CACH Syndrome
      Neurology
      Experienced in CACH Syndrome
      Neurology

      Novant Health Neurology - Kernersville

      1730 Kernersville Medical Parkway, Suite 203, 
      Kernersville, NC 
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      John Morris is a Neurologist in Kernersville, North Carolina. Dr. Morris has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Memory Loss, and Primary Amyloidosis.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Jeff Gordon Children's Center

      920 Church St. N, 
      Concord, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Otallah is a Neurologist in Concord, North Carolina. Dr. Otallah is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Episodic Ataxia with Nystagmus, Concussion, and Guillain-Barre Syndrome. Dr. Otallah is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Cone Health Guilford Neurologic Associates

      912 3rd St # 101, 
      Greensboro, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Richard Sater is a Neurologist in Greensboro, North Carolina. Dr. Sater is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Neuromyelitis Optica, and Optic Neuritis.

      Experienced in CACH Syndrome
      Neuroradiology | Radiology
      Experienced in CACH Syndrome
      Neuroradiology | Radiology
      101 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Mauricio Castillo is a Neuroradiologist and a Radiologist in Chapel Hill, North Carolina. Dr. Castillo is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Brain Herniation, Primary Lymphoma of the Brain, and Chiari Malformation Type 1.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome
      9625 Northcross Center Ct, Ste 102, 
      Huntersville, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Allen Desena is a Neurologist in Huntersville, North Carolina. Dr. Desena is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Relapsing Multiple Sclerosis (RMS), and Neuromyelitis Optica. Dr. Desena is currently accepting new patients.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      Wake Forest University Health Sciences

      Medical Ctr Blvd, 
      Winston Salem, NC 
      Languages Spoken:
      English
      Accepting New Patients

      Sudhir Datar is a Neurologist in Winston Salem, North Carolina. Dr. Datar is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, Subarachnoid Hemorrhage, Generalized Tonic-Clonic Seizure, Cerebral Arteriovenous Malformation, and Gastrostomy. Dr. Datar is currently accepting new patients.

      Experienced in CACH Syndrome
      Neurology
      Experienced in CACH Syndrome
      Neurology

      Duke Health Integrated Practice Inc

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English

      Qing Hao is a Neurologist in Durham, North Carolina. Dr. Hao is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Stroke, Subarachnoid Hemorrhage, Cerebral Arteriovenous Malformation, Thrombectomy, and Cerebral Artery Bypass Surgery.

      Experienced in CACH Syndrome
      Experienced in CACH Syndrome

      University Of North Carolina At Chapel Hill

      101 Manning Dr, 
      Chapel Hill, NC 
      Languages Spoken:
      English

      Deanna Saylor is a Neurologist in Chapel Hill, North Carolina. Dr. Saylor is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Syphilitic Aseptic Meningitis, Headache, Multiple Sclerosis (MS), and Stroke.

      Showing 1-20 of 29

      Last Updated: 01/09/2026

      What is the definition of CACH Syndrome?

      Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

      When should I see a CACH Syndrome doctor in North Carolina, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CACH Syndrome doctor in North Carolina, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CACH Syndrome doctors in North Carolina, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CACH Syndrome doctors in North Carolina, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CACH Syndrome doctor in North Carolina, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CACH Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CACH Syndrome doctor in North Carolina, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CACH Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CACH Syndrome doctors in North Carolina, US?

      Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CACH Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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