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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Lhermitte-Duclos Disease near North Rhine-Westphalia, DE. Of these, 9 are Experienced, 4 are Distinguished, 3 are Advanced and 1 are Elite.

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    17 providers found
      Elite in Lhermitte-Duclos Disease

      Stefan Aretz
      Elite in Lhermitte-Duclos Disease

      Stefan Aretz
      1Institute Of Human Genetics, Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Stefan Aretz practices in Bonn, Germany. Mr. Aretz is rated as an Elite expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Cowden Syndrome, Bannayan-Riley-Ruvalcaba Syndrome, Salpingo-Oophorectomy, and Endoscopy.

      Distinguished in Lhermitte-Duclos Disease

      Bettina C. Gohlke
      Distinguished in Lhermitte-Duclos Disease

      Bettina C. Gohlke
      Bonn, NW, DE 

      Bettina Gohlke practices in Bonn, Germany. Ms. Gohlke is rated as a Distinguished expert by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Bannayan-Riley-Ruvalcaba Syndrome, Cowden Syndrome, Lhermitte-Duclos Disease, Ruvalcaba Syndrome, and Hormone Replacement Therapy (HRT).

      Distinguished in Lhermitte-Duclos Disease

      Joachim F. Woelfle
      Distinguished in Lhermitte-Duclos Disease

      Joachim F. Woelfle
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Joachim Woelfle practices in Bonn, Germany. Mr. Woelfle is rated as a Distinguished expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Bannayan-Riley-Ruvalcaba Syndrome, Cowden Syndrome, Lhermitte-Duclos Disease, Hormone Replacement Therapy (HRT), and Gastrostomy.

      Learn about our expert tiers
      Distinguished in Lhermitte-Duclos Disease

      Michaela Plamper
      Distinguished in Lhermitte-Duclos Disease

      Michaela Plamper
      Bonn, NW, DE 

      Michaela Plamper practices in Bonn, Germany. Ms. Plamper is rated as a Distinguished expert by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Lhermitte-Duclos Disease, Cowden Syndrome, Bannayan-Riley-Ruvalcaba Syndrome, and Ruvalcaba Syndrome.

      Distinguished in Lhermitte-Duclos Disease

      Felix Schreiner
      Distinguished in Lhermitte-Duclos Disease

      Felix Schreiner
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Felix Schreiner practices in Bonn, Germany. Mr. Schreiner is rated as a Distinguished expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lhermitte-Duclos Disease, Bannayan-Riley-Ruvalcaba Syndrome, Cowden Syndrome, and Ruvalcaba Syndrome.

      Advanced in Lhermitte-Duclos Disease

      Robert Huneburg
      Advanced in Lhermitte-Duclos Disease

      Robert Huneburg
      Bonn, NW, DE 

      Robert Huneburg practices in Bonn, Germany. Mr. Huneburg is rated as an Advanced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Lynch Syndrome, Familial Adenomatous Polyposis, Familial Colorectal Cancer, Endoscopy, and Colonoscopy.

      Advanced in Lhermitte-Duclos Disease

      Isabel Spier
      Advanced in Lhermitte-Duclos Disease

      Isabel Spier
      1Institute Of Human Genetics, Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Isabel Spier practices in Bonn, Germany. Ms. Spier is rated as an Advanced expert by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Familial Adenomatous Polyposis, Familial Colorectal Cancer, Juvenile Polyposis Syndrome, Gastrectomy, and Endoscopy.

      Advanced in Lhermitte-Duclos Disease

      Mark Born
      Advanced in Lhermitte-Duclos Disease

      Mark Born
      Bonn, NW, DE 

      Mark Born practices in Bonn, Germany. Born is rated as an Advanced expert by MediFind in the treatment of Lhermitte-Duclos Disease. Their top areas of expertise are Ruvalcaba Syndrome, Primary Hyperoxaluria, Cowden Syndrome, and Lhermitte-Duclos Disease.

      Dirk Schadendorf
      Experienced in Lhermitte-Duclos Disease

      Dirk Schadendorf
      Experienced in Lhermitte-Duclos Disease

      Dirk Schadendorf
      Essen, NW, DE 

      Dirk Schadendorf practices in Essen, Germany. Mr. Schadendorf is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Melanoma, Basal Cell Skin Cancer, Merkel Cell Carcinoma, Neuroendocrine Tumor, and Tissue Biopsy.

      Experienced in Lhermitte-Duclos Disease

      Vincent Hoffmann
      Experienced in Lhermitte-Duclos Disease

      Vincent Hoffmann
      Herne, NW, DE 

      Vincent Hoffmann practices in Herne, Germany. Mr. Hoffmann is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Prurigo Nodularis, Ruvalcaba Syndrome, Bannayan-Riley-Ruvalcaba Syndrome, and Lhermitte-Duclos Disease.

      Experienced in Lhermitte-Duclos Disease

      Tobias Goschzik
      Experienced in Lhermitte-Duclos Disease

      Tobias Goschzik
      Bonn, NW, DE 

      Tobias Goschzik practices in Bonn, Germany. Mr. Goschzik is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Posterior Fossa Tumor, and Gliomatosis Cerebri.

      Experienced in Lhermitte-Duclos Disease

      Julia Reifenberger
      Experienced in Lhermitte-Duclos Disease

      Julia Reifenberger
      Duesseldorf, NW, DE 

      Julia Reifenberger practices in Duesseldorf, Germany. Ms. Reifenberger is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Eccrine Porocarcinoma, Sporotrichosis, Ruvalcaba Syndrome, and Bannayan-Riley-Ruvalcaba Syndrome.

      Experienced in Lhermitte-Duclos Disease

      Clemens B. Tempfer
      Experienced in Lhermitte-Duclos Disease

      Clemens B. Tempfer
      Herne, NW, DE 

      Clemens Tempfer practices in Herne, Germany. Mr. Tempfer is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Choriocarcinoma, Endometrial Cancer, Cervical Dysplasia, Hysterectomy, and Endoscopy.

      Experienced in Lhermitte-Duclos Disease

      Kirsten Cremer
      Experienced in Lhermitte-Duclos Disease

      Kirsten Cremer
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Kirsten Cremer practices in Bonn, Germany. Ms. Cremer is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Increased Head Circumference, Cortical Dysplasia, Lacrimo-Auriculo-Dento-Digital Syndrome, Beta-Propeller Protein-Associated Neurodegeneration, and Gallbladder Removal.

      Experienced in Lhermitte-Duclos Disease

      Torsten Pietsch
      Experienced in Lhermitte-Duclos Disease

      Torsten Pietsch
      Sigmund Freud St. 25, 
      Bonn, NW, DE 

      Torsten Pietsch practices in Bonn, Germany. Mr. Pietsch is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Gliomatosis Cerebri, Glioma, Ependymoma, and Medulloblastoma.

      Experienced in Lhermitte-Duclos Disease

      Markus C. Fleisch
      Experienced in Lhermitte-Duclos Disease

      Markus C. Fleisch
      Wuppertal, NW, DE 

      Markus Fleisch practices in Wuppertal, Germany. Mr. Fleisch is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Triple-Negative Breast Cancer, 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency, Endometrial Cancer, and Bannayan-Riley-Ruvalcaba Syndrome.

      Experienced in Lhermitte-Duclos Disease

      Sandra C. Schulte
      Experienced in Lhermitte-Duclos Disease

      Sandra C. Schulte
      Bonn, NW, DE 

      Sandra Schulte practices in Bonn, Germany. Ms. Schulte is rated as an Experienced expert by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Twin-To-Twin Transfusion Syndrome, Ruvalcaba Syndrome, Prader-Willi Syndrome, and Anemia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Lhermitte-Duclos Disease?

      Lhermitte-Duclos disease (LDD) is a very rare, benign (non-cancerous) brain tumor, called a dysplastic gangliocytoma of the cerebellum, that is characterized by abnormal development and enlargement of the cerebellum, and an increased intracranial pressure. LDD manifests most commonly in the third and fourth decades of life. Symptoms may include headache, nausea, cerebellar dysfunction, hydrocephalus, ataxia (problems with movement and coordination), and visual disturbances. Other features may include an enlarged brain (megalencephaly), hydromyelia, extra fingers or toes (polydactyly), partial gigantism, and/or a large tongue (macroglossia). Lhermitte-Duclos disease can occur as an isolated condition; it is also associated with a hereditary cancer syndrome called Cowden disease. Although the exact cause is unknown, genetic changes in the PTEN gene have been identified in some individuals with LDD.

      When should I see a Lhermitte-Duclos Disease doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Lhermitte-Duclos Disease doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Lhermitte-Duclos Disease doctor in North Rhine-Westphalia, DE?

      You can find a Lhermitte-Duclos Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Lhermitte-Duclos Disease doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Lhermitte-Duclos Disease doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Lhermitte-Duclos Disease doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. 

      Why is it important to get a second opinion from a different Lhermitte-Duclos Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Lhermitte-Duclos Disease doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Lhermitte-Duclos Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Lhermitte-Duclos Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Lhermitte-Duclos Disease doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Lhermitte-Duclos Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Lhermitte-Duclos Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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