The 20 Best Lhermitte-Duclos Disease Doctors Near Me in Michigan, US

Find the Top Lhermitte-Duclos Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 162 doctor with experience in Lhermitte-Duclos Disease near Michigan, US. Of these, 142 are Experienced and 20 are Advanced.

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162 providers found
    Ashok K. Ramachandra
    Advanced in Lhermitte-Duclos Disease
    Pediatric Radiology | Radiology
    Advanced in Lhermitte-Duclos Disease
    Pediatric Radiology | Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
    Experience:
    15+ years
    Languages Spoken:
    English

    Ashok Ramachandra is a Pediatric Radiologist and a Radiologist in Grand Rapids, Michigan. Dr. Ramachandra has been practicing medicine for over 15 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Cortical Dysplasia, Lhermitte-Duclos Disease, Focal or Multifocal Malformations in Neuronal Migration, and Subcortical Band Heterotopia.

    Marian M. Bercu
    Advanced in Lhermitte-Duclos Disease
    General Surgery
    Advanced in Lhermitte-Duclos Disease
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    16+ years
    Languages Spoken:
    English

    Marian Bercu is a General Surgeon in Grand Rapids, Michigan. Dr. Bercu has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Dandy-Walker Syndrome, Syringomyelia, Chiari Malformation Type 2, Syringobulbia, and Deep Brain Stimulation.

    Joseph A. Petronio
    Advanced in Lhermitte-Duclos Disease
    General Surgery
    Advanced in Lhermitte-Duclos Disease
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    42+ years
    Languages Spoken:
    English
    Accepting New Patients

    Joseph Petronio is a General Surgeon in Grand Rapids, Michigan. Dr. Petronio has been practicing medicine for over 42 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Brain Herniation, Hydrocephalus, and Craniectomy. Dr. Petronio is currently accepting new patients.

    Learn about our expert tiers
    Rawad Obeid
    Advanced in Lhermitte-Duclos Disease
    Pediatric Neurology
    Advanced in Lhermitte-Duclos Disease
    Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    20+ years
    Languages Spoken:
    English, Arabic, French, Spanish
    Accepting New Patients

    Rawad Obeid is a Pediatric Neurologist in Royal Oak, Michigan. Dr. Obeid has been practicing medicine for over 20 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Intraventricular Hemorrhage of the Newborn, GAPO Syndrome, Delayed Growth, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Obeid is currently accepting new patients.

    Casey J. Madura
    Advanced in Lhermitte-Duclos Disease
    General Surgery
    Advanced in Lhermitte-Duclos Disease
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon in Grand Rapids, Michigan. Dr. Madura has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Chiari Malformation Type 2, Chiari Malformation, Chiari Malformation Type 1, Hydrocephalus, and Craniectomy.

    Jamie L. Frost
    Advanced in Lhermitte-Duclos Disease
    Pediatric Radiology
    Advanced in Lhermitte-Duclos Disease
    Pediatric Radiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
    Experience:
    19+ years
    Languages Spoken:
    English

    Jamie Frost is a Pediatric Radiologist in Grand Rapids, Michigan. Dr. Frost has been practicing medicine for over 19 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Congenital Giant Megaureter, Bronchogenic Cyst, Lhermitte-Duclos Disease, and Subcortical Band Heterotopia.

    Advanced in Lhermitte-Duclos Disease
    Advanced in Lhermitte-Duclos Disease

    Spectrum Health Saint Marys Shared Technology Services Inc

    3264 N Evergreen Dr NE, 
    Grand Rapids, MI 
    Languages Spoken:
    English

    Manish Kumar is a Radiologist in Grand Rapids, Michigan. Dr. Kumar is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are CAPOS Syndrome, Periventricular Heterotopia, Focal or Multifocal Malformations in Neuronal Migration, and Lhermitte-Duclos Disease.

    Advanced in Lhermitte-Duclos Disease
    Neuroradiology
    Advanced in Lhermitte-Duclos Disease
    Neuroradiology

    Office

    24500 Northwestern Hwy, 
    Southfield, MI 
    Languages Spoken:
    English

    Deniz Altinok is a Neuroradiologist in Southfield, Michigan. Dr. Altinok is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Arachnoid Cysts, Choroid Plexus Cyst, Familial Porencephaly, Corpus Callosum Agenesis, and Gastrostomy.

    Advanced in Lhermitte-Duclos Disease
    Pediatric Radiology
    Advanced in Lhermitte-Duclos Disease
    Pediatric Radiology

    Spectrum Health Saint Marys Shared Technology Services Inc

    3264 N Evergreen Dr NE, 
    Grand Rapids, MI 
    Languages Spoken:
    English

    Bogna Targonska is a Pediatric Radiologist in Grand Rapids, Michigan. Dr. Targonska is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Tenosynovitis, Aseptic and Alopecic Nodules of Scalp (AANS), Splenomegaly, and Gas Bloat Syndrome.

    Advanced in Lhermitte-Duclos Disease
    General Surgery
    Advanced in Lhermitte-Duclos Disease
    General Surgery

    Pediatric Neurosurgery Group

    3901 Beaubien Street, Floor 2, 
    Detroit, MI 
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Cools is a General Surgeon in Detroit, Michigan. Dr. Cools has been practicing medicine for over 13 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Hydrocephalus, Chiari Malformation, Chiari Malformation Type 1, and Pineoblastoma. Dr. Cools is currently accepting new patients.

    Advanced in Lhermitte-Duclos Disease
    Radiology | Pediatric Radiology
    Advanced in Lhermitte-Duclos Disease
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    David Bloom is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Bloom is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Neurogenic Bladder, PIK3CA-Related Overgrowth Spectrum, Atresia of Small Intestine, and Parkes Weber Syndrome.

    Advanced in Lhermitte-Duclos Disease
    Advanced in Lhermitte-Duclos Disease

    Michigan Neurology & Spine Center

    1103 7th St, Suite A, 
    Port Huron, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Marwan Shuayto is a Neurologist in Port Huron, Michigan. Dr. Shuayto has been practicing medicine for over 24 years and is rated as an Advanced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Chronic Pain, Migraine, Vertigo, and Memory Loss. Dr. Shuayto is currently accepting new patients.

    Nancy A. Mcnamara
    Experienced in Lhermitte-Duclos Disease
    Pediatrics | Pediatric Neurology
    Experienced in Lhermitte-Duclos Disease
    Pediatrics | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Nancy Mcnamara is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Mcnamara has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Seizures, Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), and Generalized Tonic-Clonic Seizure. Dr. Mcnamara is currently accepting new patients.

    Robin J. Cook
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    12+ years
    Languages Spoken:
    English
    Accepting New Patients

    Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. Her top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Tuberous Sclerosis Complex. Dr. Cook is currently accepting new patients.

    Cesar A. Almeida
    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Cesar Almeida is a Neurosurgery provider in Royal Oak, Michigan. Dr. Almeida is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Dandy-Walker Syndrome, Arachnoid Cysts, Increased Head Circumference, and Choroid Plexus Cyst. Dr. Almeida is currently accepting new patients.

    Jason Umfleet
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jason Umfleet is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Umfleet has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Seizures. Dr. Umfleet is currently accepting new patients.

    Garnett C. Smith
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology | Neurology
    Experienced in Lhermitte-Duclos Disease
    Pediatric Neurology | Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    14+ years
    Languages Spoken:
    English, Russian, Spanish
    Accepting New Patients

    Garnett Smith is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Smith has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Myoclonic Epilepsy, and Memory Loss. Dr. Smith is currently accepting new patients.

    Gary D. Luker
    Experienced in Lhermitte-Duclos Disease
    Radiology | Pediatric Radiology
    Experienced in Lhermitte-Duclos Disease
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Gary Luker is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Luker is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Myeloproliferative Neoplasms (MPN), Tracheoesophageal Fistula, Posterior Urethral Valves, Chondrodystrophy, and Hepato-Pancreato-Biliary Surgery.

    Ronald J. Meade
    Experienced in Lhermitte-Duclos Disease
    Experienced in Lhermitte-Duclos Disease

    Drs Harris Birkhill Wang Songe And Associates PC

    840 Oakwood Boulevard, 
    Dearborn, MI 
    Experience:
    22+ years
    Languages Spoken:
    English

    Ronald Meade is a Radiologist in Dearborn, Michigan. Dr. Meade has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are Boils, Progressive Familial Intrahepatic Cholestasis Type 1, Progressive Familial Intrahepatic Cholestasis Type 2, and Progressive Familial Intrahepatic Cholestasis Type 3.

    Andrew K. Nash
    Experienced in Lhermitte-Duclos Disease
    Radiology | Neuroradiology
    Experienced in Lhermitte-Duclos Disease
    Radiology | Neuroradiology

    Advanced Radiology Services - Grand Rapids

    3264 North Evergreen Drive Northeast, 
    Grand Rapids, MI 
    Experience:
    18+ years
    Languages Spoken:
    English

    Andrew Nash is a Radiologist and a Neuroradiologist in Grand Rapids, Michigan. Dr. Nash has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Lhermitte-Duclos Disease. His top areas of expertise are CAPOS Syndrome, Subarachnoid Hemorrhage, Herniated Disk, and Cerebral Arteriovenous Malformation.

    Showing 1-20 of 162

    Last Updated: 04/28/2026

    What is the definition of Lhermitte-Duclos Disease?

    Lhermitte-Duclos disease (LDD) is a very rare, benign (non-cancerous) brain tumor, called a dysplastic gangliocytoma of the cerebellum, that is characterized by abnormal development and enlargement of the cerebellum, and an increased intracranial pressure. LDD manifests most commonly in the third and fourth decades of life. Symptoms may include headache, nausea, cerebellar dysfunction, hydrocephalus, ataxia (problems with movement and coordination), and visual disturbances. Other features may include an enlarged brain (megalencephaly), hydromyelia, extra fingers or toes (polydactyly), partial gigantism, and/or a large tongue (macroglossia). Lhermitte-Duclos disease can occur as an isolated condition; it is also associated with a hereditary cancer syndrome called Cowden disease. Although the exact cause is unknown, genetic changes in the PTEN gene have been identified in some individuals with LDD.

    When should I see a Lhermitte-Duclos Disease doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Lhermitte-Duclos Disease doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Lhermitte-Duclos Disease doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Lhermitte-Duclos Disease doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Lhermitte-Duclos Disease doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. 

    Why is it important to get a second opinion from a different Lhermitte-Duclos Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Lhermitte-Duclos Disease doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Lhermitte-Duclos Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Lhermitte-Duclos Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Lhermitte-Duclos Disease doctors in Michigan, US?

    Look for the filter feature on the left side of the Lhermitte-Duclos Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Lhermitte-Duclos Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Lhermitte-Duclos Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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